Originally Posted by Viola (Post 595957)

Hi always2late

Have you ever subscribe to YouTube channels where deaf people sign making videos vlog however signing?

I'm glad you're able to manage getting into a sign la., class this fall semester...

Hey what about this idea: what if you can do video vlogs at YouTube what its like learning signing, and majoring in speech pathology, that would be so cool if you do this, cause I vision you helping others as well as meeting others as well, that could would help you too...

I really like YouTube for this as I learn so much...

What are your thoughts about this?

Originally Posted by aishah (Post 594645)

my dad was hard of hearing and many of my friends are deaf or hoh. i also get to spend a lot of time around deaf & hoh folks through my cross-disability work :) i would like to learn to be a better ally, and i want to learn asl. i've gotten better about asking people what works best for them and making sure to look directly at people when speaking so they can read my lips, etc. but i still feel like i have a lot of learning to do to be a good ally to folks with different disabilities than my own.

it has been a blessing (and a wonderful learning experience) to read everyone's posts about your experiences. thank you :)

Originally Posted by Viola (Post 596082)

Hi aishah

When I was hard of hearing I was the only one in my family who was., I think in a way this delay what I need when I gain hearing, as I felt no one knew or any guide for me in a way. I had to figure it out on my own in a way.

do you ever find this where anyone with challenges if not around others with simular challenges then are delay in growth, due to not having a mentor or guide who's been there...

Did your dad know of others who were hard of hearing when being hard of hearing, when you were growing up? I really didn't know any hard of hearing or deaf, when I was hard of hearing...

Originally Posted by Viola (Post 595986)

Hi Rockinonahigh, it went through before I finish writing, um, I think I spent to long on this message and anyways it went through before I finish.

That must of been so frustrating the water is left on and flooding the bathroom floor... any ideas you will try to remind yourself about turning of water;

yeah that does sound better that word challenge instead of impaired, I think I'll begin using that word too., I'm going to use the word language challenged.

I have the challenge of keeping up what I am hearing, I feel as if I'm dyslexic in a way, I hear the words but its to fast for me,

But I hear ever word though. But its a challenge.

So do you as you say, about chatter of life, what does that feel like about to chose not to wear hearing aid and have that power of silence, do you ever wonder how the hearing goes through always hearing; how they manage?

I feel like I slip into an unknown in away. I hear to well, way to well, I went from hard of hearing to hearing extremely well, yet I really don't have anything to compare to., docs says the bones in my ears are all wrong, so then what I do hear, even though I'm hearing is it the same way as others hear.

I don't know cause I'm not in their bodies to compare to...

I also have Meniere's disease in both ears, so then balance issues.

http://www.mayoclinic.com/health/men...isease/DS00535

One time: I thought I was walking where I won't bump into., but no I walk right at the black man, "oh I'm sorry..." I say, as I wonder oh no what had I done, how off am I today, thinking I'm walking ok, how does that do that, my inner ears, had I had to much salt today, I feel high in away, like drunk...

I hadn't had any liquor, but sometimes I get high when having to much salt, but to walk into this strange black man, as he's holding hands with a white woman.,

true scene: how do I explain quickly my fault, I'm drain, my energy is no longer, my emotions drain; I'm a bad person,

they think of me as bad, what else will I do wrong today; focus more when walking,

oh no how off am I... will I make it through this grocery store, I should had grab a Cart, but no I walk freely,

God help me, I'm a nice person,

I said, "sorry to them..."

as they look at me really strange, like am I pshycho...

I have challenges of many kind, I'm always saying, "I'm sorry, I'm sorry, I'm sorry, I'm sorry, I'm sorry..."

I get drain, I dont' want to see humans... I want to be alone...

Then there's online, I'm free, I can type...

but who is this person who's typing... I'm I over doing this?

I'm learning and maybe to summerize this: is awareness,

that's what I got from your message, the challenges of awareness, either from ourselves or from others,

the audio language fails us in awareness, the communication isn't there, the understanding isn't there,

audio world and ballance even the inner ear, the middle ear, the people with normal ears, awareness, is so challenging following the emotions;

I'm rambling can you tell I am in a way., just letting my thoughts flow...

Originally Posted by DamonK (Post 597181)

So..

What about cochlear implants?

Anyone got 'em? Opinions?

Originally Posted by DamonK (Post 597195)

Yes.

Generally if not done within a certain timeframe, it is not as successful. Some see it as a viable option. I don't.

Originally Posted by Rockinonahigh (Post 597118)

One of the biggest problems I face is vertago and ringing in my ears.At times the noise in my ears is anything from a bird chirp or squeek to a blasting fog horn..bird chirps drive me nuts after a while so you can bet the radio is on loud to drown it out,when the fog horn type noise happends it can be really painful.There is the veratgo thats can be just a slight dizzy floating to down right drunken falling down with neasua,I take antivert for it so most of the time it dose ok.How I rode horses plus did the things i've done over the years is a wonder to plane old stuborness.Not to say I did fall of a lot of times cause I did,but over time I got better at not falling off.I find the more active I am the better it is so I still do a lot of active things,once the doc said I had calcium deposits floating in my ear that causes this..whatever I wish it would go away when it hits.

Originally Posted by WolfyOne (Post 597116)

Originally Posted by DamonK (Post 597181)

So..

What about cochlear implants?

Anyone got 'em? Opinions?

Originally Posted by DamonK (Post 598642)

I looked at the link above me.

Watched the video.

Googled it.

Here is the difference:

The Esteem® is fully implantable. The Esteem® is the only fully implantable device for the alleviation of sensorineural hearing loss that does not use a microphone, giving its recipients invisible hearing.

AND

A cochlear implant is an inner ear implant and the Esteem® is a middle ear implant. They address different degrees of hearing loss. A cochlear implant is for the profoundly deaf (greater than 90+ dB of loss). The Esteem® is indicated for moderate to severe hearing loss (40dB to 90dB).

However,

Esteem®’s maintenance-free battery lasts 4.5 to 9 years, depending on use. Once it is depleted, the battery is replaced in a minor outpatient surgical operation. Changing batteries every two weeks and laborious charging are things of the past.

And it costs $30,000. And that minor outpatient... Not quite sure on how much that.

Now, my BTE isn't cheap. I paid $2500 for it. The one I need now is $3500. I'm aware NONE of this is cheap. The above site mentions that battery changes are every couple of days for BTEs, etc. Those must be some crappy batteries in my opinion. I just bought 2 double pack of 12s I think. I can expect ONE pack to last at least a month. Usually longer. My hearing aid...I've had this one since 2004. Before that, there were 2 others. So 3 in 30 years!

Batteries cost a shitload. Maintenance can cost a shitload. Take care of 'em. You won't need it so much.

Ain't worth it to me.

http://www.envoymedical.com/cost-of-the-esteem
http://www.envoymedical.com/get-informed

Originally Posted by DamonK (Post 598665)

Originally Posted by Viola (Post 600256)

Originally Posted by ~Softbutch4U~ (Post 603055)

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

Originally Posted by ~Softbutch4U~ (Post 603055)

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

Originally Posted by nycfembbw (Post 603118)

Do you know sign language?

Originally Posted by ~Softbutch4U~ (Post 603258)

Yes, I use PSE. Its part of ASL but i use sign as english for sentence to deaf people. I notices that alot deaf people do not understand my sentences by text msgs. I almost grew up in mainsteam school most of the time. I felt bad for deaf people who couldnt write english well. I dont blame them.

Femmedyke: I know it is VERY expensive to have CI. Last time i heard was $60K but Im sure there r some way to get some help by Vocab Rehabit. I was going to get some help by VR but didnt have time to get a day off and stop by the office to discuison for Hearing Aids. I dont wear hearing aids for almost 4 yrs now. I like to listen the sound but not the words. :( Alot of my hearing friends said.. You r really lucky that u cant hear. Cuz they cant stand the sound like fire alarm or people get into arguement, etc. For me: I wish i can hear cuz i wanted what the sound of people's accent.. birds sing, waterfall.. many more. :(

Originally Posted by nycfembbw (Post 603299)

At the school where I work we technically use PSE but I think it ends up being more of a combination of ASL and PSE. I study both and think both are useful.