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Jeano |
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Today has been a very long day,
I went to see the oncologist with one of the women I sponsor a 12 step recovery program. We waited over two hours to see the doctor. He said what I thought he would which is that she has cancer. Specifically what her biopsy results said was that: Poorly differentiated ductal features and lobular features 10 MM In-situ ductal carcinoma I read before this diagnosis about a new clinical study with a drug called reparixin http://www.fccc.edu/information/news...st-cancer.html Since I trust this doctor I am thinking of having her get her second opinion at Montefiore instead of Fox Chase. I'm scared and appreciate any experience, strength and hope that you might have to share. Thank you in advance for your help. |
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On line Research shows Alves is a General Surgeon not a Breast Specialist.
No obvious litigation though. So meeting with Another specialist may be covered by insurance as second opinions by specialists can be life changing. best wishes to Everyone involved |
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Okay so yesterday, we went to see the surgeon. He was quite surprised when my sponsee was disappointed that she wasn't going to have more of her breast tissue taken. He said he had never had a patient say that to him before. I think she was harboring a secret hope that a side effect would be the breast reduction she has always wanted. I explained that it would end up like one of those cosmetic counter make-overs where they only do one side of your face......not the nice even reduction she dreamed of.
The surgeon is sending the films to the radiologist on his team. He reminds me of a careful carpenter, you know, measure twice, cut once. We are still not sure that this is the surgeon that will be doing the cutting. Her second opinion will be at an oncology hospital and I'm thinking they will most likely take charge of her case, but I don't know that definitively. Monday we will be seeing the hematology oncologist, but that is less nerve wracking, since she has been treated by this lovely doctor three years ago when she had an unrelated blood issue. Thank you again for all your support it means so much, I can't begin to tell you!! |
LeftWriteFemme~ Sending your friend lots of good energy. It sounds as if she is in very good hands. I was diagnosed 4 years ago with invasive ductal carcinoma. I am far from an expert but I do have my own experiences with navigating the system. If you have any questions or just need an ear, please don't hesitate to send me a message.
Wishing all of you a Happy and healthy New Year.. XOXO |
To all of you...gentle hugs!!!!
I, too, have tended to be away for some time!! DEB: I love you, my friend!!! Sending you peaceful energies, hugs, and support!!! LRF: May your friend find some answers, get treatment she needs, and beat this! Much wishes for that for her...and hugs to you for being so strong for her and being there for her during all of this!! TOMMI: Bro, I had no idea that you had gone through all of this either!! I am really happy for you that you have a wonderful woman by your side and to go through all of this with you!! Good luck on success of your treatments and do come back and let us know. Love you, bro!!! PYNK: Good to see you here posting also. Have a wonderful New Year!! JEANO: You always have so much by way of kind words, hugs, and just general all around support for each and every one of us!! Love you, bro!! DAPPER: I always look up to you and all the wonderful insight, support, and compassion you have for all of us here!!! Love you, bud!! Lady: Good luck in your journey and may you get nothing but wonderful news!! I had quite the scare myself, and was out of my mind for 6 weeks!!! My CT Scan showed "apple core lesion" near splenic flexure! BUT a colonoscopy and a PET scan showed nothing there. How the inital "image" was seen then nothing on follow up will remain a mystery to the oncologist and me I suppose. I recently had my yearly mammo. I am waiting for stereotactic biopsies of both breasts now. My mammo digital follow up and US shows "clustered microcalcs....BIRADS 4! This puts me in the 80/20 category for DCIS! My odds of these being benign are 80% and being malignant 20%! So, once again, I am "waiting"......waiting".... I was very blessed last year with a wonderful lady....who has been by my side through all of this!!! We take one day at a time, and I try to live life to the fullest!! We spent a weekend in a Hilton on the Beach when we found out that I didn't have a return of the colon cancer....and celebrated joyously!! We have a trip booked to the Caribbean in May. Regardless of the outcome of my biopsies, I aim to go and enjoy that warm, wonderful Caribbean life. So, like Tommi, I want to soak up life, enjoy my love, and share life with my honey!!! I want to look on my brighter side of things and be around many more years!!! To each one of you....gentle hugs...and I love each and every one of you. Thanks for all of your kind words, support, and love throughout the last 3 years!!! May life and live and prosperity be with you each one...Happy New Year!!! |
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It.s great to read that your tests showed NO return of colon cancer. I will be holding good thoughts of you getting great news on the breast biopsies. Clay. you are always so loving and supportive of everyone on this thread and I' pretty sure that it's ok for me to speak for everyone and sayin' thank you friend. Happy New Year to you and your Lady. Jeano |
my dear friend Jeano....YOU are such a bright ray of sunshine here!!! Your kind words and compassion are such gentle hugs across the miles. Never change, my friend!!
Happy New Year to you as well from us!! I am confident my bx. will be benign!!! :). Have a great weekend, Jeano!! |
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pynkkameleon's offer is something sweet, as we know sharing can help in so many ways, like any program, and life. Hoping for the best during this scary time. Survivor's, caretakers, friends and family are one hella support system. Take care and be well. |
Happy New Year Everyone
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frightening phone call today about my mammogram .
Yesterday I did a mammogram for my yearly. I've always had good results come back and there have never been any call backs to do any more re-takes of my breasts.
Today the Ross Breast Center from Mother Francis Hospital called me and told me the radiologist thought he saw something on my right breast mammogram results and he wants me to do 2 more mammograms to be sure. That phone call has set off my ptsd and anxiety through the roof. I don't take stress on any level at all. My ptsd and anxiety are running amok right now. I am trying to remain positive that it's nothing, maybe fibrous tissue or fatty tissue. I am praying it's nothing. I called my sister in TN for support. She wants me to call her and let her know what they say when I take the other mammograms. I haven't told my mom yet and I can't until I'm sure there is something to worry about because that is exactly what she will do...worry herself too much over possibly nothing. I asked my grandma to put me on their prayer chain at church tonight and also asked my apt mgr to do that same thing for me. I know if they find something that there will be things I will go through, and I have no idea what all that entails. I do know that I won't allow them to remove just one breast, I will ask them to take them both so I don't have to worry about going through it again on the left breast later. I dont' know that I will do reconstructive breast implants or just tell the doc to get a plastic surgeon to just leave me flat chested and put in some pecs so I look half way decent. I don't mind not having breasts because they often get in the way of things I do. The only time I have enjoyed having them is when I am partnered with a femme that loves to make love with me and devour them as much as the rest of me. I asked my ex gf whom has been talking to me about getting back together with me if she would still want me with no breasts, my being flat chested and having pec inserts put in, she said YES, even though she loved my breasts and loved touching and sucking on them when we were together before. That made me feel a little better. I don't have much of a support system where I live. My younger sister lives in TN and my mom is a huge worry wart. My dad is ill and lives with my grandmother 5hrs away so does the rest of my family members that I am close to. I don't know what all to expect if I have breast cancer tumor in my right breast. So if someone could help me prepare for the worst and know ahead of time what i may be dealing with, I would greatly appreciate it. I know that some form of cancer treatment would be done, just don't have a clue as to what all that may entail. IS there anyone here on BFP that can talk to me about this stuff because they've been through it? Please post if you have or pm me. I retake my mammogram on my right breast on Friday it's the earliest that I could get in. I am hoping that I won't have to wait thru the weekend to get a call about the results. Thanks, Justy |
No experience to share but wishing you good healthy results on Friday.:praying:
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I don't want to either negate another's fear or discount it.
I am going to only share my experiences. I am doing this solely because, as women, we know so many women that have dealt with breast cancer, that when we have anything untoward; naturally, that is where our mind is going to go. It does not always turn out like that. I had my first benign breast tumor at age 22. Since that time ( speaking breasts only) I have had two cysts removed and two fibrous tumors removed. All were benign. I have had needle biopsies and needle-guided ultrasound in my breasts. I have had a marker inserted. I think it is still there. I have had screening mammos and diagnostic mammos. None of them were shown to be cancer. Of course it could have turned out differently. My thyroid cancer had nothing to do with breast CA-they were separate issues. First things first: get the repeat mammo. I will hold very good and positive thoughts for you. Let us know. We do care. |
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Yeah I am kinda scared but trying not to worry too much. Taken my anxiety meds has helped and I have a therapy session tomorrow so I can use my therapist for support if needed. I don't know what will show up, hopefully nothing to worry about. I've never had any problems with my breasts, that's what has me worried, that they think they found something that wasn't there last year or didn't show up last 2 mammograms the last couple of years. Thanks for your support Anya, you seem to have been through this and I appreciate it very much. I hope that you are doing well lately. I'll keep you in prayers too. |
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I guess what I am saying is try not to worry until you find out there is something to worry about. It sounds like not telling your mom is a good decision, as well. Often, for retakes, they expect that the person may want to hang around until it gets read. You could ask about that. And yes, there are people here who have had breast cancer and can support you if you find this is what you are up against. Hang in there and try not to stress. |
No Glitter and No Deodorant on Friday
Dear TruTexan,
Breathe deep.Friday is a long way off for someone going through the "Oh my gosh what does this mean"... Drink lottsa water, and stay hydrated. Before your re-visit,Don't wear any deodorant, any cream, etc. , even though you may feel stinky, they don't want aluminum, talc, glitter, by-products junking up your mammo. Millions of mammograms done annually for screening are done. Occasionally something looks "different". Not really "suspicious" of anything. A mammogram takes your pyramid shape (triangle ~sort of:) and tries to squeeze it into a rectangular shape.., Sometimes a normal area may be peeking at the Doc head on, like looking in a pipe directly, versus along the length of it. An area that was once appearing one way can have absolutely norma calcifications with it, thus , they want to squish you around and look at it from another angle. Maybe even take an ultrasound, just rubbing gooey stuff on it and letting sound waves bounce back for a wiggly image, to see if it is just a normal ole'cyst, which many of us have and never know it. Data shows thousands of breast cancer biopsies come back negative. So, if you think about it , we have some things that we may need to go through that scare the hello out of us, and we know others that have been there ahead of us. Come back and let us know...(f) |
As soon as I know something more definite. I will come back let you all know what's going on. Thank you all for your support, I do appreciate each and every one of you , you're some awesome folks here.
Thanks for listening to me and responding to my post. I do appreciate it very much. Justy |
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So glad you can come here 24 hours a day and write about what concerns you, or about, ~~~anything. Fear is better when exposed, so, sharing is really caring, and glad you are here. Some of us have had the big old scary diagnosis and know how good it is to be able to talk about it. Hang in there Justy. Thanks for posting. Tommi |
Thank each and everyone one of you for the positive energy here and for understanding my fears. And for welcoming me so lovingly in to this thread. I do appreciate each and every one of you that have posted to me. It means a great deal. I will be using this thread for a support system since I don't have one here at home.
I am grateful to all of you here for welcoming me with open arms and without any pressure to post. I will keep the thread posted about my results after the second diagnostics that are going to be done on Friday, just as soon as I know something myself. I called a couple of people to start a prayer chain for me so I will be covered spiritually and allow God's grace to come in and help me get through this. With his help and all of you here, I can not lose my mind in worrying at this stage while I'm waiting to go and waiting for more results. I"m just a worry wart over things like this, it's pretty natural to be I guess. Thank you to all of you here for the helpful posts you have allowed me to read. I needed to read them today. :) |
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Rainbow candles, prayers and thoughts to light your way. Sleep well, and I hope the beautiful colors of the rainbow will surround you. Blue skies ahead. :) |
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Further diagnostics today
Today I went back to the Trinity Mother Francis Hospital Ross Breast Center for more imaging. They did 2 more different Mammograms on my right breast along with an ultrasound. Unfortunately, it wasn't a bad screening the first time. I do have a dime to penny size area on my right breast that is suspect. They can't tell from what they did today what it could be, so the oncologist wants a biopsy done. I go next Wednesday Jan 22 for the biopsy at 150 central time. I got to see what they were talking to me about on the mammograms and on the ultrasound. It's actually something there but just not sure what it is. So, it's a precautionary move on the doctors part to do that biopsy on my right breast which will tell him an answer if it's cancer or benign tumor, or fibroid tumor or whatever. My right breast is hurting so bad from that last two mammograms it's not even funny. Squished the shit out of my breast. LOL
I wanted to say thank you to each and everyone of you rendering support to me, it's helping me remain calm. I also had to tell mom today about what is going on so she knows. My sister called while I was telling mom and I had her on speaker phone. Mom is really worried now. I told her there's a good chance it's nothing to worry about and that I am not going to worry about it until they tell me I need to worry. I"ve thought long and hard since the first call back this week. I've decided that if it is cancer, to have both breasts removed so I don't have to deal with it a second time in the other breast, just to get rid of them and that way I won't have to wear a damn bra anymore. LMAO I can joke about this today and be okay with it. Thank you all for your support. I will post more when I know the results of my biopsy. And to all those dealing with cancer, I commend you on your bravery. I support you in every way possible even though I haven't posted here before. I watched my uncle go through 6 1/2 yrs of dealing with brain cancer and he finally gave up his fight a yr ago, on Nov 10 2012 he passed away from it. He was the longest living brain cancer patient his oncologist had. He lived 6yrs longer than his oncologist expected him to and he lived those last 6 yrs loving his family and friends and loving me like he was my dad. He was a brave man and a loving gentle person. I couldn't have asked for a better uncle. So, if it turns out I do have cancer, I will be just as brave as he was in his fight and live my life just as he taught me it should be lived, loving those you love the most, and letting them know how much you love them everyday. Justy |
A BIG TRU TEXAN
http://www.ourordinarylife.com/wp-co.../shout-out.gif Thinkin aboutcha! Yep, some scary stuff comes up. Glad your Mom knows now, because, I bet know you want her support, love and prayers. Even though she will be worried and scared and the whole thing, sometimes just knowing you are in good hands, you are following up on it and can talk about it is a good thing for some. Hang in there, come on back and chat.:hangloose: |
Tommi, A BIG THANKS to you today for the shout out. Yes, I did need my mom to know. I told her lets not worry until I find out further from the biopsy, but being my mom that she is, she's OMG stage now. I know she's probably stressing out more than I am today. I told her it's not necessary for her to go with me to get the biopsy. My neighbor is going to drive me there to Tyler, an hour away from where I live to get the biopsy done at the Breast Center at the hospital. I am just more worried today about my mom's stress level, but if I hadn't told her and she found out she'd be pretty upset with me and never let me live it down, it would be a huge issue that I didn't tell her about it and what I'm having done. She's very scared of getting cancer because my grandmother , her mom, died from colon cancer or ovarian cancer that had spread. She is so afraid of cancer it's not even funny. I know I"m in God's hands and if it's his will I have it and have to go through treatment for it, then so be it. I have a positive attitude today and today is all I'm going to worry about. My ptsd and anxiety are bad enough to take meds for, but it's under control . I just hope it's nothing to be honest. That it comes back benign.
Thanks for your shout out and support Tommi. I need it from friends online. I have really have no friends in my tiny town here. I only live where I live so that I can be mom's caregiver and help her when she needs help, take her to her doctor appts. etc. I'm the only child she has that was able to move here to help her after my stepfather passed 4yrs ago this month. My younger sister lives all the way in TN. I called her yesterday about it and today about what they said. She's afraid too. I told her don't be, I can handle it. That my spirits are high and that I will just have both breasts removed if i have cancer and she laughed and said it would make me more butch looking. I laughed. we joked, she teared up, I laughed some more she laughed more. She's the onlyi sister I have that I talk to and not very much, she's so busy with her job and family there. She works really long hours in IT for the state of TN. And is rarely able to talk to me. my older sister is a nut job, I don't speak to her anymore. Anyway, I thank you and all of you in this thread that have reached out to me in posts, it' means a lot to me. Thank you and God Bless all of you here. PS. Maybe this just hasn't hit me yet like it should. I don't know. I'm kinda feeling like I am in limbo and nervous about it all. Justy |
bump bump bump for support please
Just bumping the thread for some support please. thanks.
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TruTexan, I am sending positive, uplifting thoughts your way. Hang tight! I wish you did not have to wait to know exactly what is going on with that breast.
Best Wishes, Brock |
today is almost over and I'll wake up with a new day and for that day I will try to only focus on it instead of the what if's because the what if's will only drive me crazy with more fear. Thank you for your support here. I need friends right now the most.
Justy |
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Jeano |
Happy Saturday night everyone.
Watching the SAG awards . eating nacho's. :mohawk: kaijira and the Mom are doing A thousand piece puzzle....I help with the edges only. Knowing Justy is just about to learn a whole lot waiting. It will all be okay. Imagine next year. This will all be over. You will have memories of now, and you will post in this thread for someone new. Love and hugs to ya. Ever want to talk PM us, and we are like be extended family all over the country . You are not alone :hangloose: :rubberducky::fastdraq: :byebye::cowboy::batman::hk13::2femme: :pile::harley::laundryday::hiding::stillheart: |
I'm doing ok today, staying into just today. Been watching movies and keeping my mind off what next week will bring and the waiting game afterwards.
Thanks Tommi. |
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Glad to hear you are hangin out. Game. game :football::football: :footballpass: :football: :football::sumo: Tomorrow ! Go. Denver Go 49ers |
TruTexan, you're in my prayers. Sorry the wait is so long, but you are handling it so well. Caring for your mom and facing your own medical uncertainty is no small feat, I wish you all the best and hope that dime sized object turns out to be something harmless and benign!!!
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