I hear you about limitations. I am ever hopeful that we are going to keep pushing new legislation that opens more doors for people with different abilities.

Except for the surgical tech/mask thing I don't think it's right that you cannot do anything else on that list. Even the surgical tech job could be possible with some kind of compensation maybe? I don't know.

What instrument do you play?

Oh, an the tty thing. They give you a phone that looks like this:

http://ts2.mm.bing.net/images/thumbn...%2fttymini.jpg

and people call you through a tty operator, who types what they are saying onto a screen for you. you either type or speak your responses.

not too awful, and i'm pretty sure you can pick up a phone just about anywhere here in the states and get a tty operator.

Thanks honey. In case anyone didn't know we're married, Plato and I.

It was kismet that two people with brain injuries found each other. We were paralyzed on opposite sides of our bodies, so together we are a complete and functioning right and left.

I know that we both get our different abilities dismissed by our families. In some ugly ways.

I know that you and the kids understand that I cannot taste or smell. You all try to have food ideas that involve texture. The children know that the loss of two of my senses heightened the ones I have left. So if a stranger were to observe our family eat potato chips it would probably come off as very fucking strange. Everyone gingerly tries to fish a chip out of the bag without making crinkling noises. OR they dump them all out and get rid of the bag FAST so as to end the crinkling.

Noises hurt my head and make me feel very very angry. Paper is the worst I think.

We all take care of each other but nobody "gets away" with anything. Ever. We have a tough crowd. The kids have to have patience with two parents operating on limited short term and long term memory. So they are responsible for writing stuff down. Otherwise I am going to get mad and insist "I never said that".

Conversely, they both know how to use those very things to their advantage and will "work it". Sigh.

Thank god for chosen family.

Thank you for your kind words, but I didn't post it to have any sort of recognition. I wanted to talk about how I process with DA's and how it might actually not be fair to the nonDA's - because I don't give them the same amount of energy in trying to figure out their reality.

Am I being preferrential in some way - holding the DA to the same expectation as a nonDA but allowing more processing? Its something for me to look at, for certain.

As you said, nonDA's have a complete set of things that would garner room for processing as well.

I don't have an exact answer for you. Before we are DA or non DA we are human, susceptible to human error.

in reverse-
 

[QUOTE=The_Lady_Snow;151869]Ms Apoca I am gonna jump off your post.

So what does one do when you have made it clear, a THOUSAND times with patience, with kindness and the person still does not respect those boundaries?

Do I just chalk it up to the fact they have a disability and they are gonna use that as an excuse time and time again?

Curious how you would handle this cause I don't have a soft buffer like yourself?

TheLadySnow :rrose:

i was thinking apocalipstic's post was really good [to me] about her ability to understand posts, over the years, which may have been written by DA, and NT moderated.

your question, although it's to apocalipstic, i would like to respond to, please. in my own experiences, i could ask the very same thing about NT's who disrespect boundaries time and time again- do i chalk it up to being the 'majority?"

this is very interesting, because i sometimes have wondered if NT's - DA or not - notice certain things, which can get lost during my translation to someone not on the spectrum, whenever i try to explain what i just heard and/or saw - and these NT words/behaviours can happen rapid-fire.

[quote=violaine;151949]
What is an NT?
What do you mean by "being the majority"?

[quote=SuperFemme;151952]NT = Neuro-Typical

[quote=christie0918;151956]
ah. thank you

I think that there is a darned good system in place to deal with NT people that don't "follow the rules". I hear what you are saying but I don't want to get too far sidetracked into how NT people are assholes too and "get away" with it. I think it detracts from what we are talking about here.

We are a self policed community here, and how "we" choose to deal with each other is super important.

What I am exploring here is fair and equitable treatment for people who are differently abled, and how maybe we have a different set of expectations sometimes.

[QUOTE=SuperFemme;151967]What I am exploring here is fair and equitable treatment for people who are differently abled, and how maybe we have a different set of expectations sometimes.

yes, and i am DA, and am participating in this thread topic as such, addressing the very same thing - fairness - from every angle.

Is it bad to have a different set of expectations? In all respect, I am not trying to be negative.

I agree that pity is bad, and treating with kid gloves is bad....but what about different types of communication where someone might read like an asshole to the average person, when really they are not trying to be an asshole at all?

I have pretty much stopped mentioning when someone is AS as an explanation for behavior because the answer always is..."so and so is not stupid", then I feel stupid for even bringing it up because the post was clear as day to me as not assholish and I must be stupid to be able to understand it clearly.

The difference between many people who are Autistic and on the Spectrum is that we don't see ourselves as having a disability. We see ourselves as having a different way of being which some of us even see as being superior (hence the problem I think)...and I know this can cause anger in Neurotypical people. I have experienced it myself.

Heck NO I don't want pity, but I don't want to be like everyone else either, except for maybe you SuperFemme! xoxoxxo

I am not talking about expectations, although I do think that if we are going to take the time to understand and communicate with people of different abilities that we can take an extra moment and give that same consideration to NT people too if we want to.

I am speaking to a different set of rules/consequences. Really, even if consequences are on a case by case basis (which isn't a bad thing and is my understanding this happens across the board here by mods/owners) at then end of the day are the rules different?

If so, then how is that empowering and a positive thing?

I don't have autism/AS so I don't really know what things look like for somebody that does. Since you know maybe you can tell me if you would feel ok with having a different set of rules than the rest of the world?

Because I am super interested in hearing from ALL kinds of differently abled people.

If someone doesn't consider themselves as such, I respect that. Who am I to label? As for you bringing it up and the response being "that person is not stupid"? That is not a response from a person who wants to communicate. That is a response from a person who is deeply invested in being "right".

I get pretty fumed at the expectation of stupidity in relation to being differently abled. I want to punch people that say "You're so smart, I'd never know you had a TBI".

Instead? I try to educate. If it's a moot point, I don't try very hard.

Passes. I don't get them or give them.

Ah, now I get it! Rules.

No, I do not think there should be a different set of rules. The TOS is clearly stated.

Do I think we should try a little harder to understand each other? Yes! I know there is not a word for phobia or an "ism" for people on the spectrum, but I see it in action by well meaning people like we do racism, sexism, DAism, sizeism, etc.

We hold to what is familiar.