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-   -   Cancer Support and Caregivers Who Are Trail Blazers! (http://www.butchfemmeplanet.com/forum/showthread.php?t=171)

clay 04-26-2012 09:10 AM

Thanks Dapper & Vonni!!! She was in pain this am, but still with her humor....possibility she may go home this afternoon. She appreciates everyone's sentiments much!! Thank all of you...Clay

clay 04-27-2012 08:29 AM

Debby Urdate
 
Debby was discharged home late last night, and is recuperating at a friend's. She sends her warmest thanks to all of you and says she will be back online in a few days...when she is up to it.
Sending much love and healing thoughts your way, my beautiful friend!!:rrose:

Tommi 04-27-2012 11:16 AM

COPD and early signs of ..memory loss and confusion
 
Caregivers are my hero.

By default have been an off-site caregiver of my Ex (1997) since mid Sept. 2011.

24/7 the worry, the strain, the confusion, the anger. the love, the get-out of my face, please don't leave me, the I want to die, I don't want to die.

" I TOOK my pills". Well what are these ? "I don't know, you must have put them there. "

Learning about sickness when it is up close and personal. She was victimized by her son the beginning of this April, and is now in a state of sadness, shock and loss and last night told me she is numb.

This morning, Leia, the daughter we raised called from the house (she is here for 4 days from Ohio, and needs to get back to her kids) said, Bama wants to go for Fish and Chips to Dana Point Harbor where we used to when I was little.

AHhhhhhhh, life can turn on a dime.

Soon to celebrate 8 years cancer free, I am realizing what a blessed life I have lead.

Love goes around amnd comes back in the stangest of times. We separated in 1997 for Gosh sake. We (Leia, Peg and I) are seeing an attorney this afternoon, about Advanced Directives , property, wills, living trusts, and ....end of life arrangements

Please know , if you are a caregiver I LOVE YOU ,and u have my utmost respect.... or become a caregiver, it is one hella feeling when you get that smile that says, I know you are doing what is best for me..

DapperButch 04-27-2012 03:57 PM

Quote:

Originally Posted by Tommi (Post 573729)
Caregivers are my hero.

Please know , if you are a caregiver I LOVE YOU ,and u have my utmost respect.... or become a caregiver, it is one hella feeling when you get that smile that says, I know you are doing what is best for me..

I agree! A shout out to my caregiver, tantalizingfemme! :hangloose: (f)

pynkkameleon 05-02-2012 01:50 AM

Venting and sharing
 
A friend and former colleague of mine was just diagnosed in April with stage 4 lung cancer. It had spread to her pancreas. She passed away over the weekend. It happened so quickly. I found out last night. I didn't get to say goodbye ...

She was an amazing lady. Tough as nails professionally but a very giving and compassionate woman. She was a mentor of sorts for me and others as well. She will be very much missed.

Yet another life taken away by this horrible and selfish disease. I f**king hate cancer!

clay 05-02-2012 08:07 AM

Here...here...on shout out to the caregiver!!!
I posted before, and will gladly do so again...countyfem was my awesome and wonderful caregiver!! I will never forget her time, care, love, and devotion to me...during that journey! Thank you, countyfem!!!
{{{{{{{{{{VONNI}}}}}}}}}}}...I am so sorry about the loss of your dear friend....yes this dreaded disease DOES suckin' fluck!!!
{{{{{{{{{debby}}}}}}}}}}}}} I spoke with her a good long while yesterday...she is mending amd healing.....was good to chat with her and hear her humor...I LOVE that woman!!! Godspeed woman!!!

Tommi 05-02-2012 09:01 AM

http://www.my-space-layouts.com/goodmorning%20(13).gif

I am in need of the above. Please make it a great day. Each one counts.

deb_U_taunt 05-02-2012 12:31 PM

been a while
 
JO!!!!!
Hugs to you. I am so sorry to hear your mom passed away. I feel like I have neglected my family here. :( I hope you are doing well and taking care of yourself.

deb_U_taunt 05-02-2012 12:40 PM

update:
 
I have been keeping busy, taking dogs to the park, spending time with nieces and working. I knew the time would be coming for me to have to take another break from my life. Last Wednesday I had a double mastectomy, with no reconstruction. (I didn't want to go through any further surgeries). I am doing okay, the first week was a bit rough, but I added to my own misery by trying to do a load of laundry. I have learned my lesson and am taking it easy again. I go to the Dr tomorrow and hoping to have the drains removed. Dr said one to two weeks and still getting fluid, so not sure if I am stuck for another week. I also hope to get the pathology report tomorrow. I am home from work until June 4th, so I will be back online. I missed everyone. :)

JustJo 05-02-2012 02:30 PM

So glad to see you back Debby...and no more doing laundry! Take care of yourself and take time to heal. You deserve it! Big hugs... :gimmehug:

DapperButch 05-02-2012 03:57 PM

Quote:

Originally Posted by Debby (Post 576740)
I have been keeping busy, taking dogs to the park, spending time with nieces and working. I knew the time would be coming for me to have to take another break from my life. Last Wednesday I had a double mastectomy, with no reconstruction. (I didn't want to go through any further surgeries). I am doing okay, the first week was a bit rough, but I added to my own misery by trying to do a load of laundry. I have learned my lesson and am taking it easy again. I go to the Dr tomorrow and hoping to have the drains removed. Dr said one to two weeks and still getting fluid, so not sure if I am stuck for another week. I also hope to get the pathology report tomorrow. I am home from work until June 4th, so I will be back online. I missed everyone. :)

Hey, there, buddy. Good to see you. It is amazing how quickly you are up around and moving after a double masectomy. The dog park??? Take it easy...you will have time to play before June 4th!

I'll be thinkin' about ya!

Tommi 05-02-2012 10:07 PM

Quote:

Originally Posted by Debby (Post 576740)
I have been keeping busy, taking dogs to the park, spending time with nieces and working. I knew the time would be coming for me to have to take another break from my life. Last Wednesday I had a double mastectomy, with no reconstruction. (I didn't want to go through any further surgeries). I am doing okay, the first week was a bit rough, but I added to my own misery by trying to do a load of laundry. I have learned my lesson and am taking it easy again. I go to the Dr tomorrow and hoping to have the drains removed. Dr said one to two weeks and still getting fluid, so not sure if I am stuck for another week. I also hope to get the pathology report tomorrow. I am home from work until June 4th, so I will be back online. I missed everyone. :)

http://static.pplaylist.com/uimg/0/p...287569921p.jpg

deb_U_taunt 05-04-2012 08:47 AM

Quote:

Originally Posted by DapperButch (Post 576807)
Hey, there, buddy. Good to see you. It is amazing how quickly you are up around and moving after a double masectomy. The dog park??? Take it easy...you will have time to play before June 4th!

I'll be thinkin' about ya!

OH NO...those were things I was keeping myself busy doing knowing I was going to be home for a few weeks after surgery. So far since surgery I have been home whiniing and taking pain pills. Went to the Dr yesterday and he removed 2 of the 4 drains. Tuesday he said he will remove the other 2.

deb_U_taunt 05-04-2012 08:49 AM

Quote:

Originally Posted by JustJo (Post 576781)
So glad to see you back Debby...and no more doing laundry! Take care of yourself and take time to heal. You deserve it! Big hugs... :gimmehug:

Thank you :)
My niece is coming over tomorrow to do laundry for me.

DapperButch 05-04-2012 04:43 PM

Quote:

Originally Posted by Debby (Post 577834)
OH NO...those were things I was keeping myself busy doing knowing I was going to be home for a few weeks after surgery. So far since surgery I have been home whiniing and taking pain pills. Went to the Dr yesterday and he removed 2 of the 4 drains. Tuesday he said he will remove the other 2.

Now that sounds more like it! :huhlaugh: :(

clay 05-09-2012 08:02 AM

UPDATE
 
Hey everyone...just dropped by to say I saw my surgical oncologist yesterday, and my CEA (tumor cell count in my blood) is "less than 1" and I will get these done every 3 months, for life now. My scans didn't show any new cancers either.....whoohoooo!!!
I DO have a ventral hernia...soooo I am being referred to a surgical specialist who does nothing but these hernias, laparoscopically. I will see her in about 3 months.
As far as the pain I have in my right flank, and under my liver....we will continue to watch, and see if it is "surgical incison healing".
The malaise & fatigue are slightly improved...will take time as that surgery, which was done just 5 months ago today...was with a huge toll on my body, having TWO major abd. surgeries consecutively. My prenatal vitamins and extra iron, as well as B12 shots monthly for life, will help this eventually. I am so very thankful!!! for being as healthy as I am.....thank the Universe & goddesses!!!
My doctor says every time we get a good CEA result, I am getting to be a "longer term" survivor of colon cancer!!!! THis was very reassuring to me...smiles..
Thank all of you...for always thinking of me, keeping me in prayers, holding me close, and walking this path. I heart you all...love..Clay

firegal 05-09-2012 08:44 AM

...
 
Long time Ms Vonnie,

Vonnie sorry to hear about your friend.

I agree on how you feel about "C"

Von my lil sis was diagnosed with stage 4, 3 years ago. Experimental drugs/chemo has blessed us with having her here in our lives.She is slowly becoming more and more fragile.

her partner is the most caring wonderfull lady. Yes my lil sis is gay too! her partner moves heaven and earth for my sis.

Hugs to you Von!


Terry

pynkkameleon 05-09-2012 02:31 PM

Terry,

I'm so sorry to hear about your sister and her ongoing battle with this disease. Your family has been through so much. She is clearly a fighter like you, and is surrounded by a wonderful group of supportive and loving caregivers. I pray that the treatment she receives will continue to give her more time.

My "numbers" are holding steady right now. I'm due for the dreaded scans again but they don't hold as much power over me as they did a year or even 6 months ago. A good thing I think. I've recently hit little milestones worth celebrating, including my two year mark. Yay! All continuous reminders to cherish each moment of every day and the people that surround and support me.

It's really good to hear from you. It seems forever since we last caught up. You should see how big the twins have gotten. Ten years old now and keeping this Mama on her toes! They grow up way too fast.

Please keep me posted on how you and your sister are doing. I'll be keeping you all in my thoughts.

Big hugs!

pynkkameleon 05-09-2012 02:48 PM

Clay,

I'm so glad to hear that your Onco visit went well! Bummer about the hernia but at least it can be dealt with laparoscopically.

It's amazing how much surgery can sap a persons energy, especially when they are back to back like that.

Sending my own woohoo's for you and my thank you's as well. You do so much to support, encourage and lift us all up.

Many hugs!

clay 05-09-2012 02:53 PM

Hi Vonni:
THank you for the post! It means so much to me.
Yes, having two major abd. surgeries at same time...in 6 hr period wiped me out. I am getting my strength back a little along but some days I am just so fatigued..as are most folks here who haved faced this same diagnosis (C). It just takes time is all.
I try hard to focus on the positives and support and encourage others. I am their biggest fan..sometimes all it takes to get someone to fight is someone to believe and that helps another to fight...I know it did for me.
Hoping you continue to make those small steps and keep up that awesome attitude my friend. Good to see you here....hugs..Clay


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