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Violaine,
You are lucky. I feel like I have to explain everything under the sun online. In real time, no - never. I think it is because I am lousy with words. |
I am so glad to see this thread! I know that I am not the only person that may have misread or interpreted online communications due to someone having a neurological issue (I don't like using disorder). I have a nephew with Asberger's that has certainly had a lot of negative stuff thrown at him and been very misunderstood. Certainly know a few stroke victims/survivors as well as other brain injured people.
Thinking a lot (for myself to pay attention to) about how it can be very difficult to communicate online anyway, but, if someone has a neurotypal dimension involved, it could be all the more difficult. So, thank you all for making me aware! |
:reader::farmtree:
asperger spectrum wiring = atypical / AT non.spectrum wiring = neurotypical / NT mostly, i think of others as being on a spectrum somewhere with something [hay! issues, quirks, ways of processing info, experiences, et c. cannot exclusive to me! ;)]- & so i believe people can meet in the middle to "see" each other- however, when something happens - and it does/will !! it can be so small, and terribly clear to me, yet the "thing" whatever it is, causes confusion elsewhere, i realise, how a "whatever file" at times is just going to be necessary - between AT/NT ; NT/NT ; and AT/AT ! |
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I rue the day that he mastered sarcasm. Now, he says something wise-assed and drips, "THAT, Mommmmm, was sarcasm." Oh goodie. |
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It feels weird to say that I'd love to hear sarcasm from my teenage son. :lol2: |
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:goodpost: Or that something is a cause for celebration in age-appropriateness... like surfing internet porn. :cracked: |
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He did tell his therapist that he is interested in dating at some point, and that he would take his date to a movie so that he didn't have to talk much. :stillheart: :lol2: |
Parenting
My godchild...she is 14 yo. And yes, she took nude pictures of herself, and posted them online for all to see. Within 3 hours of doing this the State Police and the FBI were at my Godmother's home. My godchild had to explain to the State Police and the FBI what was going on.
Next she was admitted to a psychiatric hospital. Now we have to wait to see what charges she is going to be charged with, plus hire an attorney. And how we are going to pay for all of this...God only knows. This will stick with my 14 yo godchild forever, per both the FBI and the State Police. I just shake my head. So please watch what your kids are doing online. It really is a nightmare. And whatever you do, do not let them watch porn online. If they get caught, their name and porn will always be associated with each other. Jobs are hard enough to find, and to have that label attached to your name, can you imagine how tough it will be then? As far as I am concerned, my godchild just blew away her future. |
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:gimmehug: :bouquet: :cheer:
"... "people in our society identify too strongly with what they have, including how they look." Such insecurity-based pride really is at the basis of many of our defensive/hostile reactions. ... " "... Focus -- I can focus for so long I forget to eat some days. Once I'm on the net researching new data, forget it. My stomach growls and I may or may not interrupt my research to shut it up. I'm not sure I ate yesterday, I'm trying to remember..." "... I, and others, don't feel that Asperger's is a disorder. I feel it is a neurological difference. You can SEE the difference on a brain scan. We are literally hard-wired differently than a neuro-typical person... " "... What can't be discounted, or so it seems to me, is that one person's experience of living in the world is one person's experience of living in the world, and perhaps the best we can do is tell our own experience honestly while listening to others with sensitivity, compassion, and occasional insight rather than passing judgment...." http://jerobison.blogspot.com/2009/0...aspergers.html running with scissors/a wolf at the table/robison's brother: http://www.augusten.com/site/index.php |
Dearest Belle, :dog:: smladybug: :goat: :fishswim: :bulldog: :cluck:
When I am thinking or doing something, I never remember to eat, or take my meds, or do whatever I am suppose to do. I just get caught up in the activity I am doing. I have to write down lists every day. I have to have a priority of what I am doing and for how long, etc. If I don't, then forget anything that has to be done. I have a yellow post-it on my front door that reads: 1. Turn off the coffee pot. :coffee: 2. Make sure all the furkids are inside with toys, food & water. :dogwalking: If I don't then everything goes to he** in a handbag in a heartbeat. You are so not alone in that. I am right there too. Love, Your brother, Andrew :waterski: :frog: :pipe: |
come and go gently -
changing plans - repeatedly, coupled with high speed communication of changes, can throw me into anxiety-
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Words, Sentences and everything else related
Word Jumbles...I don't need to buy them. I experience them all the time in real time. :pointing: :freak:
Andrew :hanging: |
cross posting- DSM-V thread
i have not really wanted a separation of AS, because in my own experiences with living on the spectrum, i am in fact, all over the spectrum- exceptionally high functioning some areas, as well as medium to low.
Eliminating the Asperger's diagnosis won't mean that people in that category will lose access to services, Grinker says. That's because "almost anybody with an Asperger's diagnosis also could qualify for what is called autistic disorder," he says, adding that the change could make it easier for some parents to get help for a child with Asperger's. Right now, states including California provide services to children with autism but not those with Asperger's, Grinker says. "So removing Asperger's really removes what is a false barrier to parents getting care for their kids." http://www.npr.org/templates/story/s...ryId=123527833 |
Violaine,
I think that is why the medical community is behind eliminating this. That way they get their hands on more money for something else. I see it just as politics, pure and simple. I am high functioning as well. I always get asked why can I be this way but have this disability. Like I would lie about my health. Sheesh. I would love for people to walk in my shoes for just one day. Then they would know how hard life is. |
As both a member of the medical community who has spent long hours advocating for funds to be released for a patients care,
and as a foster parent who has struggled withing the constraints of a broken system to get care for a child underdiagnosed, I am all for changes that give money to more people. Access to care is vital. I could care less what column the damn x needs to fall on what application to make it happen. What matters is that there is money to get the care needed. Fighting for money to cover care is exhausting both for families/clients and for the healthcare team. It is exhaustive, repetitive, and often feels futile riddled with few results and occasional miracles when something gets pushed through. |
Good article with links to other aspie related articles at bottom...
http://www.npr.org/templates/story/s...567371&ps=cprs |
tomorrow on diane rehm NPR
http://wamu.org/programs/dr/10/02/16.php
The Latest on Aspergers and Autism A move to include Aspergers within the definition of autism has raised concerns of families, physicians, educators and insurance companies. The latest on our understanding of Aspergers syndrome. Guests Dr. Fred Volkmar, professor of child psychiatry and director of the Yale University Child Study Center at Yale University School of Medicine and an international authority on autism spectrum disorders. Coauthor of A Practical Guide to Autism with his wife Lisa Wiesner. Gardiner Harris, science reporter for "The New York Times" Dr. Edwin Cook, an autism researcher at the University of Illinois Chicago and member of the American Psychiatric Association's work group proposing the changes to their diagnostic manual. |
seeing/thinking roundly -
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When you take a drug to treat high blood pressure or diabetes, you have an objective test to measure blood pressure and the amount of sugar in the blood. It is straight-forward. With autism, you are looking for changes in behavior.
Temple Grandin sometimes parents/supporters will think a person on the spectrum might have behaviour 'coming out of the blue' - look closely - what situation[s] preceded any change? several examples- changes: in environment- someone coming or going; remodeling at home/work-moved from or to another space; holiday seasons; diet; noises; dealing w/people who are argumentative/threatening; relocating; travel; and so on. NPR show diane rehm is discussing asperger now. |
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