Butch Femme Planet

Butch Femme Planet (http://www.butchfemmeplanet.com/forum/index.php)
-   Support: Abuse, Addiction, Coping (http://www.butchfemmeplanet.com/forum/forumdisplay.php?f=10)
-   -   Cancer Support and Caregivers Who Are Trail Blazers! (http://www.butchfemmeplanet.com/forum/showthread.php?t=171)

Tommi 06-20-2011 08:00 PM

Quote:

Originally Posted by DapperButch (Post 362345)
I don't think you can leave them in, can you?

It was a really simple surgery. They don't put you under like they do when getting it inserted. My doc just gave me a local, cut me about 1.5 inches, and then popped it out. Easy peasy. I asked to look at it b/c I was curious. It just looked like a large tadpole!

And there really isn't much pain afterwards, either. I had some serious pain for a few days when they put it in b/c they have to push and pull on the muscle, but no pain really after it came out. I don't think I even took a Tylenol.

ETA: It is funny that someone posted on this thread today. I have my colonoscopy tomorrow...so I going through the "prep" right now. sucks ass. no pun intended.


Milana, my Buddy had her port in for 10 mos. It got infected last month, had it removed, and she now has a pic line, .have to wait 45 days for infection to clear before doing another port.

:goodluck: Colonoscopy* :goodluck:

*My Doc said "All done. Your colon was boring. See you in 5 years.

Went through that last month. OMGAwd. Prior night->62 OZ of water with bottle of Miramax--fllowed by 32 Oz of water with bottle Miramax in AM before exam. :|:byebye:

On Weds. I see my Gyne/Oncologist for the 7 year Endometrial CA follow-up

DapperButch 06-20-2011 08:04 PM

Quote:

Originally Posted by Tommi (Post 362491)
Milana, my Buddy had her port in for 10 mos. It got infected last month, had it removed, and she now has a pic line, .have to wait 45 days for infection to clear before doing another port.

:goodluck: Colonoscopy* :goodluck:

*My Doc said "All done. Your colon was boring. See you in 5 years.

Went through that last month. OMGAwd. Prior night->62 OZ of water with bottle of Miramax--fllowed by 32 Oz of water with bottle Miramax in AM before exam. :|:byebye:

On Weds. I see my Gyne/Oncologist for the 7 year Endometrial CA follow-up

Yeppers...the bathroom would be my friend at this moment. Same routine you describe except magnesium citrate in the morning. Some nasty tasting stuff, as I recall.

Thanks for the good luck. Hopefully, my GI doc will say the same thing!

Novelafemme 06-20-2011 10:11 PM

Quote:

Originally Posted by DapperButch (Post 362494)
Yeppers...the bathroom would be my friend at this moment. Same routine you describe except magnesium citrate in the morning. Some nasty tasting stuff, as I recall.

Thanks for the good luck. Hopefully, my GI doc will say the same thing!

OH DEAR...even reading the words mag citrate makes me feel queasy. I think I lost a good 6lbs with the bowel prep alone!!!

Thinking of you on Wednesday, Tommi!!!!!

Spirit Dancer 06-20-2011 10:29 PM

Quote:

Originally Posted by Novelafemme (Post 362346)
I was told you could leave them in...but SO good to know it is a far less invasive procedure having it removed! PHEW!!

Positive thoughts for tomorrow's "butt T.V." Oh, how I loathe bowl prepping! :goodluck:

Quote:

Originally Posted by DapperButch (Post 362345)
I don't think you can leave them in, can you?

It was a really simple surgery. They don't put you under like they do when getting it inserted. My doc just gave me a local, cut me about 1.5 inches, and then popped it out. Easy peasy. I asked to look at it b/c I was curious. It just looked like a large tadpole!

And there really isn't much pain afterwards, either. I had some serious pain for a few days when they put it in b/c they have to push and pull on the muscle, but no pain really after it came out. I don't think I even took a Tylenol.

ETA: It is funny that someone posted on this thread today. I have my colonoscopy tomorrow...so I going through the "prep" right now. sucks ass. no pun intended.

Hi sending positive energy to you both, if you have a PICC line it can stay is for a short time, a power port can remain two years and longer as long as it is accessed and flushed every four weeks, and it stay clear of any infections. Power ports are ideally the best for long term chemotherapy IMO they have far less risk of infection. Leaving a :vigil: for those who are fighting and those who are caring for them.

DapperButch 06-21-2011 06:39 PM

I'm in the clear! :thumbsup::happyjump:

Tommi 06-21-2011 06:45 PM

Quote:

Originally Posted by DapperButch (Post 363000)
I'm in the clear! :thumbsup::happyjump:


Glad to her the good news.



:pile: :byebye:

The_Lady_Snow 06-21-2011 06:47 PM

Quote:

Originally Posted by DapperButch (Post 363000)
I'm in the clear! :thumbsup::happyjump:


Congrats!!!!!:hamactor:

That's great news!!

DapperButch 06-21-2011 06:49 PM

Quote:

Originally Posted by Tommi (Post 363004)

Glad to her the good news.



:pile: :byebye:

Quote:

Originally Posted by The_Lady_Snow (Post 363005)
Congrats!!!!!:hamactor:

That's great news!!

Thanks, Tommi and Lady Snow. I appreciate it.

I wasn't aware how much I was holding my breath until it was over!

The_Lady_Snow 06-21-2011 06:54 PM

Yay you should celebrate BIG!

Tommi 06-21-2011 06:54 PM

Quote:

Originally Posted by DapperButch (Post 363007)
Thanks, Tommi and Lady Snow. I appreciate it.

I wasn't aware how much I was holding my breath until it was over!

I get it.

7AM tomorrow, 7 year checkup.. So tonite NetFlix & popcorn.

DapperButch 06-21-2011 08:13 PM

Quote:

Originally Posted by Tommi (Post 363010)
I get it.

7AM tomorrow, 7 year checkup.. So tonite NetFlix & popcorn.

Good Luck, Tommi. positive thoughts coming your way! :hangloose:

Novelafemme 06-22-2011 10:20 AM

Quote:

Originally Posted by Tommi (Post 363010)
I get it.

7AM tomorrow, 7 year checkup.. So tonite NetFlix & popcorn.

Good luck, Tommi!!!

YAY, DAPPER!!!!!!

deb_U_taunt 06-23-2011 12:49 PM

I have been diagnosed with invasive ductual carcinoma (right breast), stage 2B, grade 3, triple negative.
I have my second of eight chemo treatments tomorrow. Today, lots of hair in my brush. My partner and I both have joined support groups and hoping to continue to be healthy enough to attend.
I am having a hard time moving today. Not in pain or anything, just a sad day. I am crying easy.
My partner is scared of me and started sleeping in the other room. He thinks he might accidently roll over on me at night. My first treatment, he left to put new front tires on my car while I was dozing. Typically guy to the core. Can't fix it and is fixing what he can. :)

Novelafemme 06-23-2011 08:05 PM

Quote:

Originally Posted by Debby (Post 363946)
I have been diagnosed with invasive ductual carcinoma (right breast), stage 2B, grade 3, triple negative.
I have my second of eight chemo treatments tomorrow. Today, lots of hair in my brush. My partner and I both have joined support groups and hoping to continue to be healthy enough to attend.
I am having a hard time moving today. Not in pain or anything, just a sad day. I am crying easy.
My partner is scared of me and started sleeping in the other room. He thinks he might accidently roll over on me at night. My first treatment, he left to put new front tires on my car while I was dozing. Typically guy to the core. Can't fix it and is fixing what he can. :)

{{{{{Debby}}}}} you are not alone, dear one. one thing i can say from experience is that it's ok to just plop into a pile of mush after chemo. cry, sleep, snuggle...whatever your body intrinsically tells you it needs - listen and give. and don't forget to put a hand on your heart and tell yourself how much you love YOU. this is your one beautiful life and there are times you/we have to fight like hell for it!! :bunchflowers:

deb_U_taunt 06-24-2011 03:47 AM

Quote:

Originally Posted by Novelafemme (Post 364245)
{{{{{Debby}}}}} you are not alone, dear one. one thing i can say from experience is that it's ok to just plop into a pile of mush after chemo. cry, sleep, snuggle...whatever your body intrinsically tells you it needs - listen and give. and don't forget to put a hand on your heart and tell yourself how much you love YOU. this is your one beautiful life and there are times you/we have to fight like hell for it!! :bunchflowers:

Thank you Novelafemme,

I do feel blessed at the love and support I have from family and friends.
I have learned to put myself first. Sad it took a life changing event to learn to say NO, but its been a great lesson. I have told everyone, I will be in chemo coma all weekend and if they need to talk call my partner.
My sweetie cut all my hair off last night and told me I have a perfect head and my bald head is sexy. He is a keeper. :)

deb_U_taunt 06-25-2011 11:00 AM

I only have 6 more chemo treatments left. :) I feel much better this time then the first one. I did the claratin first and didn't get the sinus headache for HOURS. Didn't even get one at all! Just bald and my brain is a bit fuzzy. Sure makes this heat easier to deal wih.

Random thought, breast cancer has to be timed with menopause? Really what kind of joke is that..lol

Andrew, Jr. 06-25-2011 11:32 AM

Debby,

So many of my close friends who endured chemo all have what they labeled as "chemo brain". They start talking and loose track of their thoughts. Others around them help them finish their sentences or ask them something to keep it going.

I can tell you that my sister had it as well. Everyone around her helped her out with conversations. And it does get better after the chemo stops.

She too lost all of her hair, and when it came back it was curly like a poodles. And she loved it! For once she was able to get the look she wanted without a ton of time spent in the bathroom trying to style it.

One day at a time. You are a gift from God and a treasure to all of us here. Never forget that.

I wish you much peace and tons of love,
Andrew

deb_U_taunt 06-25-2011 11:45 AM

Thank you Andrew!

I spoke with someone yesterday, she was just finishing radiation and she had this great curly head of hair and she said her's was str8 as a pin before. She gave me something to look forward to. :) Getting rid of hot rollers would free up a lot of space in the bathroom. :)


Quote:

Originally Posted by Andrew, Jr. (Post 365451)
Debby,

So many of my close friends who endured chemo all have what they labeled as "chemo brain". They start talking and loose track of their thoughts. Others around them help them finish their sentences or ask them something to keep it going.

I can tell you that my sister had it as well. Everyone around her helped her out with conversations. And it does get better after the chemo stops.

She too lost all of her hair, and when it came back it was curly like a poodles. And she loved it! For once she was able to get the look she wanted without a ton of time spent in the bathroom trying to style it.

One day at a time. You are a gift from God and a treasure to all of us here. Never forget that.

I wish you much peace and tons of love,
Andrew


Andrew, Jr. 06-25-2011 11:54 AM

Debby,

You are most welcome! :bunchflowers:

If you need any support, just let me know. I am full of support for anyone going thru cancer. I have experienced more than most know of online.

Much love and peace,
Andrew

Andrew, Jr. 06-26-2011 09:10 AM

Debby,

I got your message, and I thank you. I added you onto my friends list. God bless you.

Much love and peace,
Andrew

deb_U_taunt 06-26-2011 08:07 PM

Been a great day!! Day two after chemo and feeling great this time. I cleaned house with the wonderful help of my 10 and 12 year old nieces. Tired but happy. :) Bald and strong.

Novelafemme 06-27-2011 11:19 AM

Please keep my friend Amy's little boy Ben in your thoughts as he has surgery to remove another tumor in his brain. This little guy is only 6 and his brain cancer is back for the second time. Let's pray this is the last time he will ever have to go through this!

deb_U_taunt 06-27-2011 01:39 PM

Quote:

Originally Posted by Novelafemme (Post 366733)
Please keep my friend Amy's little boy Ben in your thoughts as he has surgery to remove another tumor in his brain. This little guy is only 6 and his brain cancer is back for the second time. Let's pray this is the last time he will ever have to go through this!

lots of hugs, prayers, love and peace your way to you and your's

Dominique 06-27-2011 02:52 PM

Quote:

Originally Posted by Debby (Post 366400)
Been a great day!! Day two after chemo and feeling great this time. I cleaned house with the wonderful help of my 10 and 12 year old nieces. Tired but happy. :) Bald and strong.


This is good news. Fight the fight!

deb_U_taunt 06-28-2011 03:48 PM

Quote:

Originally Posted by Yellow band (Post 366850)
This is good news. Fight the fight!

Thank you :) Been tired today, but its our support groups tonight and I will drag myself out, if need be. I am having a hard time putting on hats and scarves in this heat, so going bald and strong to the meeting.

Novelafemme 06-28-2011 04:05 PM

Quote:

Originally Posted by Debby (Post 367663)
Thank you :) Been tired today, but its our support groups tonight and I will drag myself out, if need be. I am having a hard time putting on hats and scarves in this heat, so going bald and strong to the meeting.


YAY!!! It's WAY too hot here in AZ to do anything but go bald! :) Have a great session tonight!

deb_U_taunt 06-28-2011 04:19 PM

Quote:

Originally Posted by Novelafemme (Post 367682)
YAY!!! It's WAY too hot here in AZ to do anything but go bald! :) Have a great session tonight!

Sunscreen!!!! Didn't think at first. Could have been a bad look. A peeling baldhead. OOPS

Andrew, Jr. 06-28-2011 05:27 PM


Debby,

I used to take Dino, my mini pin, in his stroller, and I would roll him around in the outdoor garden at NIH with my sister. She had a ball with Dino, and that stroller! I will always treasure that memory.

deb_U_taunt 06-29-2011 11:07 AM

Quote:

Originally Posted by Andrew, Jr. (Post 367743)

Debby,

I used to take Dino, my mini pin, in his stroller, and I would roll him around in the outdoor garden at NIH with my sister. She had a ball with Dino, and that stroller! I will always treasure that memory.

Andrew, that just had to be the sweetest sight. :)

I have to say, its been great being home a lot more with the dogs.

deb_U_taunt 06-29-2011 04:42 PM

Even bald, I don't look remotely butch. At least, it could have made me look like I had even a little street cred, instead of an old bald woman. lol

Andrew, Jr. 06-29-2011 06:18 PM

Hi Debby,

There is an organization called "Hope in Bloom". It is located in Boston, but I believe there are other folks associated with them in other states. What they do is go out and create gardens, laberinths, etc. for those who are enduring breast cancer (mainly). They go out and do everything start to finish. It is all a gift for the patient. Most of the volunteers are those who lost someone they loved to cancer. I haven't had time to research this group online, but hope too. Let me know what you find out. They were on TV this afternoon, and it was just so heartwarming. :rrose:

I hope you are feeling good. I am sending you positive energy, and only goodness your way. You are in my thoughts and prayers.

Much love and peace,
Andrew

deb_U_taunt 06-29-2011 08:47 PM

Thank you! What a wonderful site: http://www.hopeinbloom.org/index.htm
They currently are only in Mass, but WOW. I have a friend who landscapes and I think her and I need to talk.
I have worked with United Way to paint and clean up yards over the years for disabled, but nothing as pretty as some of these gardens.

They currently are only in Mass, but WOW. I have a friend who landscapes and I think her and I need to talk.

Thank you Andrew to you and your's

Quote:

Originally Posted by Andrew, Jr. (Post 368590)
Hi Debby,

There is an organization called "Hope in Bloom". It is located in Boston, but I believe there are other folks associated with them in other states. What they do is go out and create gardens, laberinths, etc. for those who are enduring breast cancer (mainly). They go out and do everything start to finish. It is all a gift for the patient. Most of the volunteers are those who lost someone they loved to cancer. I haven't had time to research this group online, but hope too. Let me know what you find out. They were on TV this afternoon, and it was just so heartwarming. :rrose:

I hope you are feeling good. I am sending you positive energy, and only goodness your way. You are in my thoughts and prayers.

Much love and peace,
Andrew


DapperButch 06-29-2011 09:50 PM

Hi, Debby. I am glad to hear that your chemo is manageable. I was lucky in that regard too and for the first several treatments I would go to work afterwards!

At some point along the way I decided that was not the best thing. I had a decent amount of agitation due to the steroids in the chemo, so I wouldn't go back to work after my chemo in the morning.

Andrew - I have heard it called "chemo fog". Even though I finished my chemo 2 months ago, it is still hanging around. Yesterday and today it was especially bad, for some reason. It is getting better though, as you said.

Hang in there, Debby! One day at a time!

deb_U_taunt 06-30-2011 11:04 AM

Dapper,

I heard the chemo fog/chemo brain can hang around for as much as a year afterwards. Its frustrating to forget midsentence where I am going. lol It feels like its a bit harder for those close to me, sometimes.

Didn't think about the steriods associated and why I felt like I was being such a bitch yesterday. hmmmm I was having a low day yesterday, too.

And I made the decision, if it gets too much working that I will stop, too.

Prayers to you too Dapper :)

Quote:

Originally Posted by DapperButch (Post 368760)
Hi, Debby. I am glad to hear that your chemo is manageable. I was lucky in that regard too and for the first several treatments I would go to work afterwards!

At some point along the way I decided that was not the best thing. I had a decent amount of agitation due to the steroids in the chemo, so I wouldn't go back to work after my chemo in the morning.

Andrew - I have heard it called "chemo fog". Even though I finished my chemo 2 months ago, it is still hanging around. Yesterday and today it was especially bad, for some reason. It is getting better though, as you said.

Hang in there, Debby! One day at a time!


clay 06-30-2011 11:41 AM

Warm hugs to all you GORGEOUS, sexy women with the lovely bald heads! What an incredibly beautiful group you ALL are! Isn't it amazing how wonderful YOU ALL are!! Such a lovingly, positive group!
I lost my own lovely wife March 16, 2009 to Stage IV breast Cancer with Mets. to Liver/Lung/Bone/Brain. She was diagnosed at Stage IV Jan. 08, 2007 and told to "get affairs in order, make last plans, etc. Well the big C just didn;t know whom it had chosen to mess with..she hung on 26 months. Initially she had 40 rad. tx's. to shoulder,hip, neck, and breast. Then Chemo...she was also a pioneer for the drug Tykerb! Chemo went on the entire 26 months. Rad was with another 18 tx.'s July 2008 after FOUR brain tumors were found. Liver failure is what took her. She was never hospitalized excpet one night when the tumors were found. Both of us are Nurses! She wanted to be home and to die at home, with me with her. That was possible and I cherish those 26 months. She asked to be cremated and our ashes be together when I die. Her one wish was that when I gave her eulogy at her Memorial Service that I play Bagpipes version of Amazing Grace, I hope You Dance, and Wind Beneath my Wings. She asked that I tell the folks when I played the Amazing Grace song that she would be in heaven smiling down on us as she had had to endure that sad song over the years and cry...now she could laugh at us...!!
Anyway she was one amazingly incredible trooper...positive from the start to end...never once complaining, always upbeat, happy....and so full of life and joy! She was a brilliant RN...had Mensa intelligence! We had 15 years of a wonderfully healthy, happy, loving life! I have taken the last two and a half years to heal..and I am ready to be in love again....with the right woman! I am in no hurry...and I want to have a healthy, happy loving relationship again!
I send each and every one of you a very special hug....and FIGHT the GOOD fight, folks!!! Her one wish was that I NOT tell people she lost her battle with cancer, but that she passed her torch on to another!!! So to those of you who now carry that torch....do so proudly and FIGHT! In memory of my lovely wife, Cathy! Clay

deb_U_taunt 06-30-2011 01:36 PM

Thank you. :bunchflowers:

Quote:

Originally Posted by claybabytwo (Post 369028)
Warm hugs to all you GORGEOUS, sexy women with the lovely bald heads! What an incredibly beautiful group you ALL are! Isn't it amazing how wonderful YOU ALL are!! Such a lovingly, positive group!
I lost my own lovely wife March 16, 2009 to Stage IV breast Cancer with Mets. to Liver/Lung/Bone/Brain. She was diagnosed at Stage IV Jan. 08, 2007 and told to "get affairs in order, make last plans, etc. Well the big C just didn;t know whom it had chosen to mess with..she hung on 26 months. Initially she had 40 rad. tx's. to shoulder,hip, neck, and breast. Then Chemo...she was also a pioneer for the drug Tykerb! Chemo went on the entire 26 months. Rad was with another 18 tx.'s July 2008 after FOUR brain tumors were found. Liver failure is what took her. She was never hospitalized excpet one night when the tumors were found. Both of us are Nurses! She wanted to be home and to die at home, with me with her. That was possible and I cherish those 26 months. She asked to be cremated and our ashes be together when I die. Her one wish was that when I gave her eulogy at her Memorial Service that I play Bagpipes version of Amazing Grace, I hope You Dance, and Wind Beneath my Wings. She asked that I tell the folks when I played the Amazing Grace song that she would be in heaven smiling down on us as she had had to endure that sad song over the years and cry...now she could laugh at us...!!
Anyway she was one amazingly incredible trooper...positive from the start to end...never once complaining, always upbeat, happy....and so full of life and joy! She was a brilliant RN...had Mensa intelligence! We had 15 years of a wonderfully healthy, happy, loving life! I have taken the last two and a half years to heal..and I am ready to be in love again....with the right woman! I am in no hurry...and I want to have a healthy, happy loving relationship again!
I send each and every one of you a very special hug....and FIGHT the GOOD fight, folks!!! Her one wish was that I NOT tell people she lost her battle with cancer, but that she passed her torch on to another!!! So to those of you who now carry that torch....do so proudly and FIGHT! In memory of my lovely wife, Cathy! Clay


clay 06-30-2011 01:44 PM

YOU are so very welcome! March on in your fight..carry YOUR torch very high! Smoke a Swisher Sweet and have a dark beer in HONOR of my wife, Cathy!!! YOU are beautiful, Debby!!!! :bunchflowers: right back at ya!! Clay
Quote:

Originally Posted by Debby (Post 369077)
Thank you. :bunchflowers:


deb_U_taunt 06-30-2011 01:48 PM

Quote:

Originally Posted by claybabytwo (Post 369082)
YOU are so very welcome! March on in your fight..carry YOUR torch very high! Smoke a Swisher Sweet and have a dark beer in HONOR of my wife, Cathy!!! YOU are beautiful, Debby!!!! :bunchflowers: right back at ya!! Clay

Clay, so will a Swisher and merlot work?

clay 06-30-2011 01:52 PM

Quote:

Originally Posted by Debby (Post 369087)
Clay, so will a Swisher and merlot work?

Oh MOST definitely. She loved Merlot as well!!! I still have a half a carton of Swisher sweets packs of hers.....:( THANKS! Clay

Andrew, Jr. 06-30-2011 02:26 PM

I am so happy that we can support each other in this. It is wonderful! :hangloose:

Have a wonderful day!


All times are GMT -6. The time now is 11:27 AM.

ButchFemmePlanet.com
All information copyright of BFP 2018