auditory processing disroder
 

here is a link regarding auditory processing disorder:

http://www.asha.org/public/hearing/U...s-in-Children/

Strobe lights,flashing lights and light shows that lots of places have will really do a number on me.I can go from mildly dizzy to full out passing out,so I do my best not to be anywhere near them.Last year in Vegas for the pool championships one night we wen't to a show that had a wild light show at the end of the performance,I ended up so sick people thought I had drank to much even though I hadn't had anything at all.I wen't back to my room but ended up spending the night puking up my guts along with a slaming headache that took me nearly a full day to get rid of...needless to say I didn't go to anymore shows.

The short version is that my ears hear everything perfectly, but my brain often can't interpret that into useful information. For me personally that translates into things like not being able to filter out irrelevant sounds, or getting the sound of somebody talking to me but having no idea what they said. Often when people talk to me it sounds like they're slipping in and out of a foreign language, or just entirely speaking a foreign language. For whatever reason I just can't process sound very well a lot of the time.

I'm a pretty decent lipreader and most of the time I get by with that combined with whatever I can glean from what I'm hearing. Any time I can supplement auditory stuff with visual backup I do a lot better. My college set up captioning for my classes right after I was diagnosed, and by the end of that semester I'd managed to go from an F (pre-captioning) to an A in one of them, just because I could actually understand what was being said.

Oh I love this video! I had it saved on my phone for months, until my phone suffered a tragic accident. Sean Forbes' music is kind of hit or miss for me, but I -love- this one, it's my favorite. I really like how his videos combine sound, written-out words, and ASL.

Once when I was working for the casino,one of my co workers flaged me down in a rush to go from one part of the resturaunt to another.He ask me for more marinade so I made a batch then brought it to him.He said he wanted maranara sauce,I told him next time to slow down then tell me or wright a note the words were to much a like.This happened a few times till we worked out a system to get the right thing when it was needed,everyone kept a pen and paper so they could wright the notes if needed.For whatever reason I guess doing that was to much out of their reach cause I did hear some gripe about it,not from the head Chef but the regular kitchen workers thought it was to much to do.Once one of them said why did the casino have to hire people who were( ret---ed),I didn't hear this I wasn't there but it got back to H.R then the folks who said and agreed with this had to go to a four day work shop about respect in the work place,some quit before it was over a couple did learn a few things but were put on the late shift.WE never had another issue after that.

I have a total crush on the woman who signs most of this.

How have I missed this thread all this time? glad I found it now.

Interpreter here, and looking forward to reading from page one and catching up.

https://medium.com/matter/22979c8ec9d6



a thought provoking article about cochlear implants...

Happy Interpreter Appreciation Day!
 

finnish deaf advocate wins UN prize
 

<------- interpreter. Thanks!!!! Are you an interpreter??

:)

Today I tried VCO (voice carry over) for the first time. (Here is a link to info about the one I am using. http://www.purple.us/vco ) I talked to my friend for a whole hour. AMAZING. It breezed by, and I was able to follow the whole conversation. So. Awesome. I'm so happy.

nope i am not an interpreter...i have a deaf sister, bro in law and niece and nephew...i confess i keep up to date on deaf current events thanks to them via facebook as they are in massachusetts and i am in texas...i am terrible at signing i am embarrassed to say...

Hi, I'm new to this thread. I am hearing fine but my mother is pretty far gone in hearing loss. She has hearing aids that seem to help some but are largely useless on the phone. I saw her last summer and discovered it is the same in person. She has developed the smile and nod response. She is also getting bats in the belfry.

My concern; she relies on my father to do everything, literally. Communication with the outside world is through him, even with me now. He is going to die sooner rather than later and the managing of her will go to me. I live 1000 miles away and may be even further in the next year or so.

I email her occasionally and she forgets to reply, regardless, when my father is gone someday the computer will have some hiccup and that will be the end of that. She cannot/will not learn texting and doesn't have a cell phone anyway. I think it would be too complicated for her. She does not embrace tech.

My question to this thread; are there any old school tools I can show her that would help her to communicate when the time comes? I remember TTYD (?) is this still viable and is it easy to use (and does anyone else use it)? Are there other tools I should be aware of? Maybe a book about losing hearing that she could read with tips? I am afraid she will be helpless and ready to be taken advantage of by others. The world she lives in is roughly 1950 and not apt to change. She is smart, with a masters degree so some of this could be a case of "if I don't do it I won't have to do it" but it is hard to tell.

Ideas?

ETA: I am new to this world and really hope I haven't said anything offensive. If so, please educate me.

Awesome! I worked for Purple for 7 years!

Where is your mother from? I might be able to point you in the direction of resources.

Also, check out ALOHA (it used to be a nationwide organization but I am only finding an AZ chapter?)
http://alohaaz.org

:)

Thanks for the tip, it gives me some terminology to search with. She is in Washington state.

Hi, Kelt,

I love the book "Deaf Culture our Way" by Samuel K Holcomb.

[ame="http://www.amazon.com/gp/product/158121149X/ref=oh_details_o00_s00_i00?ie=UTF8&psc=1"]Deaf Culture, Our Way: Anecdotes from the Deaf Community: Samuel K. Holcomb, Thomas K. Holcomb, Roy K. Holcomb: 9781581211498: Amazon.com: Books[/ame]

I think your mom would get a kick out of it. It's written from an older person's perspective (also, shows a less techy perspective). They keep updating it, though, so it's not like the information itself is outdated. But it's light with a little humor and down to earth. It's informational, both for the one hearing and the one who is hard of hearing or deaf (In other words, I think you'd enjoy it and learn from it too.). It's a simple quick read, very cute and helpful.

I also liked:

"A Survival Guide for New Deafies" by Amy Sargent

[ame="http://www.amazon.com/gp/product/061547361X/ref=oh_details_o03_s00_i00?ie=UTF8&psc=1"]A Survival Guide for New Deafies: Amy Sargent: 9780615473611: Amazon.com: Books[/ame]

This is by a woman who lost her hearing gradually as an adult. It's also written in a light, down to earth style. By the way, in the hard of hearing / Deaf culture, "deafies" is an endearing term (not a mockery). Again, this might be helpful to you and your mom.

Does your mom like to do snail mail? That's about as low tech as you can get and can be fun!

i really feel for you...i did not have a tty and before texting it was impossible to talk to my sister unless i wanted to go thru the operator (very awkward)...since texting i have been able to communicate and even go for a visit...i think you understand what a milestone that is...i found a device that will let you use an iphone with a tty...not sure if this will help you...http://www.ehow.com/facts_5584756_tty-iphone_.html

good luck and i know how hard it is...hang in there :)

happy mothers day to all the deaf moms
 

you can text 911 in an emergency now...
 

True Colors in ASL
 

Found a thing that works awesomely for me and wanted to share.

The rundown: I have an auditory processing disorder. My ears work fine, but my brain doesn't turn what I'm hearing into anything useful a lot of the time.

I've previously tried ip-relay, which is sort of like TTY, and it worked okay for me, but not great. (All comments in this post are just about how the stuff worked for me personally. Different people prefer different things.)

I've also previously tried VRS, Video Relay Service, which is where you use ASL with an interpreter who relays between you and the hearing person. Not a great fit for me because my ASL isn't awesome to that degree yet, and it had the same issue for me as ip-relay - I couldn't speak for myself.

ANYway. The ASL tutor suggested I try VCO, Voice Carry Over. That's where I can talk directly to the person I'm calling - they can hear my voice. Then I can also hear them speaking, and at the same time an interpreter also signs to me what they're saying. So I get visual plus auditory, which is almost always the best situation for me.

It's working SPECTACULARLY for me. It's just the right fit. I've had multiple over-an-hour phone conversations with friends since I started using it, and I've also called for take out a couple of times, neither of which I've been able to do easily in several years.

Anyway, just wanted to share in case it's something someone here could use but hadn't yet considered. :) I use Purple as my VRS/VCO provider, if that's useful.

Deaf in Prison (Open captioned.)


The video is only available for 48 hours, so take some time to watch it sooner rather than later.

Elton John aids hearing disabled in Philippines
 

olivia newton john you are the one that i want
 

koko's tribute to robin williams
 

I know this may not be the place to post this...but it's the closest thing I have seen to reach out and ask questions regarding this topic.

Ok, so...I am faced with a new challenge and I am still processing the situation and still waiting on information to be able to figure out my next step in life as to how I am going to deal with it.

Yesterday, I had my hearing tested because I thought I was loosing it. Ever since I started having issues with my eyes my hearing started doing some odd things. I could hear ambulances miles away and could tell if they were getting closer etc. I thought it was my hearing was enhancing because of my vision. Months later I started hearing a ringing in my ear and music. Yes, music...a big band...like from the 20's and 30's. No one else could hear it. We again thought maybe I was hearing the marching band from the high school because we were a mile or so away and since I could hear ambulances miles away maybe I could hear the band. Then football season ended and I could still hear the music.

So, I googled it and found that music was related to hearing loss. I felt a little better in away. Maybe, just maybe I wasn't loosing it. I finally made the appointment to get my hearing tested. I figured it could be something simple..fluid..infection...heck I'm not that old I thought to myself. I also figured that since most hearing loss (at my age) is natural and that high pitches go first that is really is something minor. No worries.

I did an online test (yes not accurate but it would give me something to measure) and found that I had an upward slope issue (NOT the norm), but it was mild. I never concern myself until I am given reason to be concerned. I headed to my appointment yesterday and it was confirmed that I have a moderate to severe upward slope hearing loss. My right ear is worse than my left..but my left is following my right. As many may now if its going upward that I means I am losing my ability to hear lower tones. Hearing aids are being recommended and I was sent to an ear nose throat dr to find out exactly why this is happening. So, I am still missing information...which of course delays my ability to process this emotionally. As of right now the dr states that because there is no base line to compare it to we have no idea how fast this came on and how bad it will get. We also have no idea if aids will even work at this point. Although, she did indicate that the one that I would require if I am given the medical approval would cost $2600 just for one. *blinks* yeah ok..my insurance doesn't cover hearing aids.

I started to research places that maybe able to help, places that sell hearing aids at discount prices etc. However, I have to admit I'm feeling overwhelmed. Not only because of the new challenge but because what I have read about programming for this type of hearing loss is very difficult. Seems it is the opposite of what most hearing aids get programmed for..the downward slope. Or even if it's worth it the trouble of getting them?

But, if I do...

Any advance as to where I may turn to figure out how to pay for aids if approved? I only know of one agency and I am on the boarder for qualifying..so, I need a back up plan if given the medical approval.

As for the emotional side...I'm really not sure where I stand yet.

I hope that some of these resources work out and may help. Sending positive thoughts your way.
 

HEAR Now: Sponsored by the Starkey Hearing Foundation (800-328-8602), this program provides hearing aids for people with net incomes below $19,058 for a single or $25,743 for couples. Your only costs are a hearing test and an application fee of $125 per hearing aid request.

Lions Affordable Hearing Aid Project: Offered through some Lions clubs throughout the U.S., this program provides the opportunity to purchase new, digital hearing aids manufactured by Rexton for $200 per aid, plus shipping. To be eligible, most clubs will require your income to be somewhere below 200 percent of the federal poverty level which is $22,340 for singles, or $30,260 for couples. Contact your local Lions club to see if they participate in this project.

Audient: This program (audientalliance.org, 866-956-5400) helps people purchase new, digital hearing aids at reduced prices ranging from $495 to $975 for one hearing aid or $990 to $1,575 for a pair. To be eligible, your income must be below $27,075 for a single or $36,425 for couples.

http://www.huffingtonpost.com/jim-t-...b_1641528.html

For a list of more programs, visit the Better Hearing Institute website at betterhearing.org, and click on "Hearing Loss Resources," then on "Financial Assistance." Or, call the National Institute on Deafness and Other Communication Disorders at 800-241-1044 and ask them to mail you their list of financial resources for hearing aids.

More info: The National Institute on Deafness (800) 241-1044; e-mail: nidcdinfo@nidcd.nih.gov and the Better Hearing Institute (1-800-327-9355) have information on groups offering financial assistance for hearing aids.

Nonprofits. Sertoma helps people with hearing problems and runs a hearing aid recycling program, SHARP through its 420 clubs (1-816-333-8300). HEAR Now, sponsored by the Starkey Hearing Foundation provides hearing aids for people with limited income. Clients pay for evaluations and a fee of $125 per aid.

http://www.aarp.org/health/condition...ring-aids.html

hearing aids are not covered by insurance and many (including some of my family members) are actively fighting to change this.....not sure if this link will help...

http://www.ehow.com/info_8757403_hea...x-expense.html

Just got new aids. My insurance paid $2400, first time that's ever happened. Maybe now that all the baby boomers are old and losing their hearing, they've demanded that change, who knows.

What I don't get is why there is still no technology that will allow the aids to pick up blue tooth and stream music and phone calls directly to my ears. Is that so hard? Instead, I'm told this is an option if only I wear a device around my neck that looks a heck of a lot like a garage door opener. Seriously?

My mom, who got new hearing aids a few months ago, says that my chihuahua's toenails on her kitchen floor "sound like two tiny men wearing high heel shoes." My hearing aids don't allow me to hear that, which is a shame, because I sure would like to know why she thinks it sounds like two tiny MEN in high heels, and not two tiny WOMEN.

Hearing update...

Okay, so with the new hearing aids, I can now hear the sound of kissing. And it's not a pleasant sound.

Last night I was watching some rom-com on TV, and as the couple began making out, I heard the sounds of slurping and smacking. At first, I didn't even associate it with the kiss. I thought maybe the dog was on the couch next to me licking himself in that way that male dogs do (not that I ever hear that sound either, but I've heard it described as pretty gross).

But no. It was the kissing couple (besides, the dog wasn't even in the room). And before you think I was watching some cringe comedy and it was supposed to be over-the-top, it wasn't. In fact, it was one of those (way too frequent) scenes in rom-coms where the two leads hate each other, end up being forced to kiss each other for some silly reason, and discover they have this amazing chemistry. It was supposed to be a shining romantic moment (not to mention one of the kissers was Amy Adams, and I rather enjoy watching her do any-damn-thing she does). And there I am, sitting on my couch making an "I smell shit" face and thinking how VILE that sounds.

The next time I make out with someone, I'm taking out my hearing aids.

in the hospital with no interpreter for 5 days
 

I am posting here, well because it seems appropriate. I as of a week ago have lost the hearing in my left ear. The doctor says it's an infection and with any luck the penicillin will work, through this experience I have a new found respect for those faced with this challenge. I am hoping it is temporary, if not I now know that there is a forum that can help. Thanks for this.