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Aryon,
Good luck on the good fight and surgery on Monday. Drop in and say hi soon as you can ,

Tommi

BOO!!! I think we lost Aryon's thread. Any updates?

Thank you,
Deb

Its that time again. I meet my new oncologist Tuesday and get blood work for tumor markers. I gotta say, I hate the stress of wait and see. My mom wants to go with, but told her I was fine going alone. Why did I say that??? WTF is wrong with me.

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Let us know how your tests go. You will be fine. :)

Deb and Clay, my thoughts and prayers are with you both. Waiting to hear how you both are. Jeano

Hi Deb...here ya go. :)

Update from Aryons Partner...............["Aryon Cole update, JAN 17, 2013 - 9:40 pm UK time: Aryon is doing well and all seems ok for the moment. Aryon is scheduled to go home tomorrow (FRI) and I suspect will post on FB at some point after, of course, UK time :) "]

Thank you for the update, Lucian :) Glad to hear Aryon is going home and doing okay.

Since Aryons thread disappeared when there was the server problems i wanted to update you all here.

Aryon is back in the hospital. Please keep those good thoughts and prayers coming.........Lucian

Update from Angelika......"Aryon Cole update JAN 20, 2013 - 4 pm UK time: Aryon is back in the Hospital. An internal infection has developed. Aryon is receiving antibiotics. I will update everyone as things change, etc. Please DO NOT call or text Aryon at this time. Wait until Aryon is back home. If you have Duncan's phone number, please text or call Duncan for updates, or alternatively, you can reach me here on FB. Thank you."

Just letting you all know i started a new thread for Aryon.

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Hi deb,
New Doc sounds like "just what the doctor ordered" :mohawk:
I do the sand thing real well. plus, I live near the beach :)

Aches and pains ~ maybe you have a touch of rhemutizzzz, as my Gramma would say.

And arthritis runs in the family, it just freaked me out a bit for him to remind me one of the ways it comes back is leukemia. And keeping my head in the sand is what got me in this mess. :|

Saying I know exactly what you mean is an understatement.


Same here. I kept my head in the sand by ignoring times of rectal bleeding when I went to the bathroom...for over a year. Then I ignored daily diarrhea for several months, pumping myself up with over the counter meds to keep it from happening. I finally did something about it when I couldn't get through a meal without having to jump up from the table due to having diarrhea.

What do you do now to keep yourself healthy? What does not keeping your head in the sand mean to you?

I have an appointment tomorrow with my oncologist to go over my CAT scan. I am a bit nervous about that.

Genetic testing? I did that. I will look back in the thread and see if you started talking about it in an earlier post to get more information. If you didn't, could you explain here?

I think that my neuropathy is less than it was. In my hands, anyway. I was surprised that it decreased even after a year of being done with chemo, as evidently, it is the first year out that determines the long term effects. My feet, however, have not improved, but I know that mine is a hell of a lot less than some other peoples, so for that I am thankful.

Please keep us updated.

thank you
 

Thank you all for everything you do-I've been fighting for family and friends for years, loss after loss. I most recently lost a dear friend only days ago after her fight wore out and it was time for her to go home.

I just wanted to take a moment to show my gratitude-none of you I know but that matters little.

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I'm a survivor from 1994. I was very lucky in that it was caught early. But even luckier in that i was having a procedure done for something else when they found it. Had i not been having another medical problem. It would have been a lot longer till it would have been found i'm sure.

I've had many loved ones affected by cancer over the years too.

I met my Buddy Aryon who was very involved in Relay For Life as a survivor Hymself. With hym and others i too got more involved over the past four years. Where as in the past i had only done a few walks.

I've had loss of loved ones in my life, and others that are doing good.

I have to honestly say. I never thought my buddy Aryon would be diagnosed again. Once hy made it past that ten year mark. I don't know..I just didn't expect it.

I..like i'm sure all of you, just want to see cancer eradicated. So many people are affected themselves or have friends, family, partners that end up fighting this battle. I just hope with all i have that soon, nobody will ever have to fight that battle anymore.

I'll be keeping all of you in my thoughts and prayers.

Those who can get involved with Relay For Life. Please do. Every penny helps.

This is all hard to hear. I am praying for all of you survivors and hoping all the tests come back clean Deb and Dapper. My Mom is on hospice now for lung cancer with brain, spine and liver mets. I just spent the weekend with her to give my older sister a break from 24/7 caregiving. We are so blessed in that my Mom is living now in one half of a duplex owned by my brother. Her rent, utilities are paid for by him. He came and helped me take her to get an eye exam and some new glasses the other day at Costco. She loved being out and shopping!

My other sister lives in the other side of the duplex. She is an amazing cook and whatever my Mom wants for dinner she makes. They look at cooking magazines and watch cooking shows and then my Mom says "I want this for dinner"! I am the cleaner. I scrub and organize and take care of keeping the house in order. It takes a village to raise a child but it also takes a village to help someone transition!

I worry about my own health and my partner's. Mortality is a bitch! I am in a limbo state right now. I am not the best partner, Mom or rattie caregiver. My own house is a mess. It is hard. I am though so grateful that I have this time with my Mom.