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Brae Windsong · 03-19-2016, 07:45 PM

I have been taking care of my spouse for about 8 years. She's been on Hospice for almost 3 of those. She has heart failure. My brother moved in about 5yrs ago and is a big help.
She stays in her hospital bed in the living room all the time, and I stay in my room.
The weight of long-term caregiving is enormous. I get very little time away. I did go see my kids in Sept to welcome my youngest grandson and I've scheduled a trip there for next week. I went back to college last year; so I get out of the house one night a week for class. Other than that, I'm here all the time.
I struggle with burnout daily. I see a therapist, but I haven't found a support group.
I would love to interact with someone about the stress of caregiving.
Gentle hugs to all the caregivers.

03-19-2016, 07:45 PM	#181
Brae Windsong Junior Member How Do You Identify?: femme Preferred Pronoun?: she Relationship Status: widowed Join Date: May 2013 Location: Coastal Alabama Posts: 5 My Photo Gallery Thanks: 8 Thanked 26 Times in 3 Posts Rep Power: 0	I have been taking care of my spouse for about 8 years. She's been on Hospice for almost 3 of those. She has heart failure. My brother moved in about 5yrs ago and is a big help. She stays in her hospital bed in the living room all the time, and I stay in my room. The weight of long-term caregiving is enormous. I get very little time away. I did go see my kids in Sept to welcome my youngest grandson and I've scheduled a trip there for next week. I went back to college last year; so I get out of the house one night a week for class. Other than that, I'm here all the time. I struggle with burnout daily. I see a therapist, but I haven't found a support group. I would love to interact with someone about the stress of caregiving. Gentle hugs to all the caregivers.