Exhausted. The day was spent shopping for my daughter that turned 19 today. She has significant physical impairment and spends a lot of time in her bedroom. She requires 24 hour awake care. She enjoys novelty lamps that produce light displays. After several stores the perfect disco ball was found. This evening I loaded her into her wheelchair and we took a walk through the neighborhood. Afterwards, we opened gifts, I took a million pictures and danced to ABBA with the disco ball doing what disco balls do. Fully exhausted and ready to sleep I find out that the nurse scheduled to work with her overnight is out of town. "A mix up." So, awake it is.
Although I am tired and slightly grumpy, I'm still grateful for today. Celebrating 19 years of life for a child that was not supposed to make it to 2.
|