[Scorp]

You're welcome Rlin. Thank you for starting this thread.

I'm a private kinda person with some things, but I thought it was brave of you to post this and the title <of course> caught my eye, so I wanted to share my experience(s). And yes, I'm sure a ton of us have a lot more common than expected in many ways, shapes and forms. You never know, maybe someone else will come across this thread and post.

In my case,my Neurologist told me that he doesn't want to go down the surgery road with me unless things get worse over time. Hopefully that won't be the case, but one never knows now do we. I guess time will tell and I just hope for the best.

Also, the recuperation of the surgery (depending on the extremity) could be a very long recovery as long as a year or so.

Originally Posted by rlin

thank you scorp...
i know its not easy... i have been wanting to start this thread for a loong time... and just got up the nerve to out myself...
they found my ACM a long time ago too... after lots of dr visits but...
the syrinx were just found a couple of years ago...
have they suggested the surgery to you so that you could release the pressure on your spinal fluids?
it isnt a bad surgery... and if i couldve had it b4 the cysts formed i woulda jumped at it...
be careful with yourself and if you start experiencing numbness or pain in your joints or glandular swelling or lots of migraines...
and they dont approach you... i would look into it on my own...

again... thank you scorp... the world is sometimes smaller than i realized...
wonder if there is anyone else here...