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Originally Posted by julieisafemme
Some good news on the neuropathy. The hospice nurses prescribed a drug called neurontin? or something like that and it has helped tremendously with the mobility in her hands. I came in tonight to say goodnight and she was typing away at the computer on an email to her friends list. She has not been able to do this for a long time. She was really happy!
Also the hiccups and burping from the radiation (she had shots through esophagus to the spine) has improved tremendously! That makes her super happy!
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Hi, Julie. Yes, it is most likely Neurontin. I take that too for the neuropathy in my hands/feet from the chemo. My doc acutally decreased the Oxaliplatin in my chemo more than once due to the fact that the neuropathy started so quickly in the treatment. She ended up stopping the Oxaliplatin a all together half way through the cycle of treatment.
Her concern was how young I was to have neuropathy. For most people it goes away after tx stops, but not unexpectantly, for me, it didn't. It isn't too bad though, I really don't notice it as much now. I mainly have the pain in my feet. My fingers are less flexible...meaning, they are stiffer...it is more difficult to type and I can't type as quickly.
Of course, at this point I feel like the oncologist made the right choice in stopping the drug, since my neuropathy is quite manegable. Of course, if I get cancer again I will have to wonder if it was the stopping of the drug that allowed some of the cancer cells to not be obliterated.
