Lounge for Deaf people and their allies

[Viola]

Wolfyone how? how do you do it...

I"m still figure how to do this., able to put a video here for you all to watch; I'm brain storming quite a bit;

http://www.youtube.com/watch?v=XVqzA...feature=relmfu

[YOUTUBE][[nomedia="http://www.youtube.com/watch?v=XVqzAg4QEdY&feature=relmfu"]Sign Language Basics : Sign Language: Numbers 1-20 - YouTube[/nomedia]

PHP Code:

http://www.youtube.com/watch?v=XVqzAg4QEdY&feature=relmfu 


/YOUTUBE]

[Viola]

http://www.chuckbairdart.com/index.html

some of his art is below...


maybe you might find this interesting... Deaf artists and heres... Chuck Baird

Here's about Chuck...

In 1947, as a baby boomer, he was born with moderate deaf, grown up as culturally deaf while attended the deaf residential school in Kansas. He went to study both at Gallaudet College and National Technical Institute for the Deaf (NTID). After received his BFA in Rochester Institute of Technology 1974, he spent 5 summers at the National Theatre of the Deaf (NTD) painting their sets. During these years, he held a variety of jobs developing his art in upstate New York and Delaware before he joined Spectrum, the deaf art colony Texas. In 1980, he joined the NTD for the next 10 years as an actor and did some set designs. For the more artistic opportunities, he left the NTD to live nomadically in California and Arizona. He has performed at some Equity theaters. He also worked for DawnSignPress as an in-house artist, and painted a number of first deaf-related works, culminating in the coffee table book. He went back to Kansas City and moved again to Tucson setting up his own painting studios. During time, he has often traveled to paint murals or lead art workshops for deaf children at schools, summer camps, and at art festivals. He had his works known for the genre called Deaf View Image Art (De’VIA) in numerous art exhibits here and oversea over last 12 years. He was summoned to Gallaudet to help coordinating the visual arts exhibitions for Deaf Way II in 2002 and went back there again teaching art for one semester. He now resides in Austin, Texas continued creating arts at his studio and aboard. He has established the visual art foundation in his name for promoting emerging deaf artists. Please go to www.chuckbairdfoundation.org.






http://www.chuckbairdart.com/index.html

[Viola]

How can I have youtube video here: I've tried so many ways...

Have you heard of...

http://www.envoymedical.com/

http://www.envoymedical.com/






[nomedia="http://www.youtube.com/watch?v=xdBzjR-i9E0"]How the Esteem® Works (Animation) - YouTube[/nomedia]

http://www.youtube.com/watch?v=xdBzjR-i9E0

I wonder if this is better then cochlear implants?

http://www.envoymedical.com/hear-from-esteem-recipients


How the Esteem® Works (Animation)



I'll try again this youtube video, I really want this to work so bad, please work please, let this youtube video show here, where one doesn't need to go else where...




Anyways, I wonder how this is different form the cochlear implants...


How to Add Youtube Videos
When posting videos, just paste the full URL (address) from YouTube into your post. For example, if you were going to post a video of the Village People's YMCA video you would paste the URL [nomedia="http://www.youtube.com/watch?v=CS9OO0S5w2k"]YMCA - YouTube[/nomedia] into the post. The system renders it, if it's allowed to be embedded, into the video (you may not see it in the preview).

PHP Code:

http://www.youtube.com/watch?v=xdBzjR-i9E0 


http://www.youtube.com/watch?v=xdBzjR-i9E0

[nomedia]http://http://www.youtube.com/watch?v=xdBzjR-i9E0[/nomedia]

[nomedia="http://www.youtube.com/watch?v=xdBzjR-i9E0"]How the Esteem® Works (Animation) - YouTube[/nomedia]

maybe this will work....

STill I wonder which one is better this esteem or cochlear

Maybe,

Originally Posted by DamonK

So..

What about cochlear implants?

Anyone got 'em? Opinions?

[Viola]

https://www.facebook.com/InvisibleHe...pp_57675755167

10/5/11 - Esteem® on The Ellen Show 1367 views

Watch an actual Esteem® recipient talk about her first experiences with Invisible Hearing™ on The Ellen Degeneres Show

https://www.facebook.com/InvisibleHe...pp_57675755167

[DamonK]

I looked at the link above me.

Watched the video.

Googled it.

Here is the difference:

The Esteem® is fully implantable. The Esteem® is the only fully implantable device for the alleviation of sensorineural hearing loss that does not use a microphone, giving its recipients invisible hearing.

AND

A cochlear implant is an inner ear implant and the Esteem® is a middle ear implant. They address different degrees of hearing loss. A cochlear implant is for the profoundly deaf (greater than 90+ dB of loss). The Esteem® is indicated for moderate to severe hearing loss (40dB to 90dB).

However,

Esteem®’s maintenance-free battery lasts 4.5 to 9 years, depending on use. Once it is depleted, the battery is replaced in a minor outpatient surgical operation. Changing batteries every two weeks and laborious charging are things of the past.

And it costs $30,000. And that minor outpatient... Not quite sure on how much that.

Now, my BTE isn't cheap. I paid $2500 for it. The one I need now is $3500. I'm aware NONE of this is cheap. The above site mentions that battery changes are every couple of days for BTEs, etc. Those must be some crappy batteries in my opinion. I just bought 2 double pack of 12s I think. I can expect ONE pack to last at least a month. Usually longer. My hearing aid...I've had this one since 2004. Before that, there were 2 others. So 3 in 30 years!

Batteries cost a shitload. Maintenance can cost a shitload. Take care of 'em. You won't need it so much.

Ain't worth it to me.

http://www.envoymedical.com/cost-of-the-esteem
http://www.envoymedical.com/get-informed

[Viola]

Oh now I understand more - thank you for looking this up...

Batteries are expensive, not sure much but I wonder if batteries will be covered under this obama care, even though I'm not fully agreeing with obama care cause I've heard night mares that has happen in other countries with health care like long waits,

will the batteries be cover under the obama care? what are your thoughts about this.

so then cochlear is for further deaf 90 db and more., now I understand, I guess I could had look it up not sure why I just rush and put it here.

how come the insurance now doesn't cover batteries for?

Originally Posted by DamonK

I looked at the link above me.

Watched the video.

Googled it.

Here is the difference:

The Esteem® is fully implantable. The Esteem® is the only fully implantable device for the alleviation of sensorineural hearing loss that does not use a microphone, giving its recipients invisible hearing.

AND

A cochlear implant is an inner ear implant and the Esteem® is a middle ear implant. They address different degrees of hearing loss. A cochlear implant is for the profoundly deaf (greater than 90+ dB of loss). The Esteem® is indicated for moderate to severe hearing loss (40dB to 90dB).

However,

Esteem®’s maintenance-free battery lasts 4.5 to 9 years, depending on use. Once it is depleted, the battery is replaced in a minor outpatient surgical operation. Changing batteries every two weeks and laborious charging are things of the past.

And it costs $30,000. And that minor outpatient... Not quite sure on how much that.

Now, my BTE isn't cheap. I paid $2500 for it. The one I need now is $3500. I'm aware NONE of this is cheap. The above site mentions that battery changes are every couple of days for BTEs, etc. Those must be some crappy batteries in my opinion. I just bought 2 double pack of 12s I think. I can expect ONE pack to last at least a month. Usually longer. My hearing aid...I've had this one since 2004. Before that, there were 2 others. So 3 in 30 years!

Batteries cost a shitload. Maintenance can cost a shitload. Take care of 'em. You won't need it so much.

Ain't worth it to me.

http://www.envoymedical.com/cost-of-the-esteem
http://www.envoymedical.com/get-informed

[DamonK]

When I worked for the state of Texas, their insurance paid $500 towards hearing aids. $500! What if I'd bought 2? Still just $500. And I'd have all the paperwork, etc.

I buy mine out of pocket. I buy my batteries out of pocket. I really don't care if any insurance covers my batteries because I'm not going to keep receipts, etc for a year to give to the insurance company so they can argue with me.

I can expect 1 battery to last... usually 2-3 weeks, but for simplicity, let's say a week.

An 8 pack usually costs about $8. So, let's say $1 a battery.

I'm gonna pay about $52 a year on batteries.
I'm gonna pay XXXX amount every few years on maintenance.

Let's assume the average person gets a BTE (since those are my "specialty") every 10 years at $5000. That person starts at 5 years old, and ends at 90.

That estimate is based off MY personal situation.

So, 90/10=9. 9x5000=45000
52x90=4680

***This is an extreme overestimate***

It's not cheap. It's going to get more expensive.

I get to pay for ALL this, maintenance, insurance to cover aforementioned hearing aid.

Surgery = cheaper in long run. But, you don't know it will work. And there aren't any "take backs" once you have the surgery. If they're wrong, they're wrong.

A couple of years ago, I got a nasty ear infection. I can't do any of this simply. I don't get to go to general doctors. I get to go to specialists. So, I'm at the ENT's office and this nice PA is trying to convince me to let the ENT repair the hole in my ear drum.

Me: Why?
PA: It can be fixed.
Me: They said that before. And every time it busted again.
PA: You might could hear.
Me: I don't feel good. Let's talk about it next time with the ENT.
PA: Ok.

Understand I basically got a suction device stuck in my ear and sucked the infection out. It's not pleasant and many times quite painful.

I set up the next ENT appointment to coincide with my mom's visit. You know, she knows my entire history by heart. I'm not gonna remember all that stuff.

ENT: I think with repairing the ear drum and a BTE, you could hear.
Me: Really, now?
ENT: Yes.
Me: What are my chances?
ENT: What do you mean?
Me: If I let you do this, what are my chances of being able to hear? What are the chances of the ear drum blowing again?
ENT: I can't answer if it will bust again.
Me: What about the hearing?
ENT: With training, maybe a 70% chance.

Now, I'm gonna be 30 next month. I've only had one ear for 20 years.

I'm also a CNA. That means intense physical work. After surgery, about 2-3 hours, I would be on a 10 lb restriction for 6-8 weeks.

Then, I'd get to buy another BTE.

For a maybe....a BIG maybe.

Sometimes, the chance to hear, isn't worth the price you end up paying.

[Pixie]

This thread is lovely!

[Viola]

[nomedia="http://www.youtube.com/watch?v=vTFKR9IHQNE"]Teaching You How To Learn Sign Language Part 2 - YouTube[/nomedia]

[Viola]

From reading your message and thinking of batteries, you know what cross my mind???

What if a person made their own batteries...

Um question when you buy your batteries can you take that off your taxes?

What is it like to work for the state of TX., when you did...

That's true abotu surgery what if it goes wrong then what does a person do...

Speaking of ear drums one time I gotten tubes stuck in my ear drum they did surgery on that...

or something like that it was stuck... Mom told me about this when I gotten older., something to do with tubes getting stuck really bad...

I remember getting my ears suck by the device, it scraps like in the ear drum, like... the ears feels raw. I be lying on my side and got to be really still...

I also remember this black ball of air and how my ears had to be popped that i was painful. I also remember doc standing next to me as I sit, and doc doing something to ear, I remember as a kid pulling on doc ear as I reach my hand upward and hang on doc ear and then doc yank on my ear, to teach me not to do that.,

I had to sit still as a kid., can't escape what doc going to do in my ear...

so your mom knows by heart your whole history of ears, my mom remembers a lot too., more then I do as I don't remember all of it as a kid,

oh one time in surgery I work up in the midst of surgery, I do remember this, and I wasn't suppose to wake up, I was in pain, they put me back out...

yeah that's true, what if your ear drum has a hole again, after they fix it.. all that you will go through and then your ear drum gets a whole again, yet doc gets paid but what about your energy in thsi all., thinking of energy it takes a lot of energy docs and...

Originally Posted by DamonK

When I worked for the state of Texas, their insurance paid $500 towards hearing aids. $500! What if I'd bought 2? Still just $500. And I'd have all the paperwork, etc.

I buy mine out of pocket. I buy my batteries out of pocket. I really don't care if any insurance covers my batteries because I'm not going to keep receipts, etc for a year to give to the insurance company so they can argue with me.

I can expect 1 battery to last... usually 2-3 weeks, but for simplicity, let's say a week.

An 8 pack usually costs about $8. So, let's say $1 a battery.

I'm gonna pay about $52 a year on batteries.
I'm gonna pay XXXX amount every few years on maintenance.

Let's assume the average person gets a BTE (since those are my "specialty") every 10 years at $5000. That person starts at 5 years old, and ends at 90.

That estimate is based off MY personal situation.

So, 90/10=9. 9x5000=45000
52x90=4680

***This is an extreme overestimate***

It's not cheap. It's going to get more expensive.

I get to pay for ALL this, maintenance, insurance to cover aforementioned hearing aid.

Surgery = cheaper in long run. But, you don't know it will work. And there aren't any "take backs" once you have the surgery. If they're wrong, they're wrong.

A couple of years ago, I got a nasty ear infection. I can't do any of this simply. I don't get to go to general doctors. I get to go to specialists. So, I'm at the ENT's office and this nice PA is trying to convince me to let the ENT repair the hole in my ear drum.

Me: Why?
PA: It can be fixed.
Me: They said that before. And every time it busted again.
PA: You might could hear.
Me: I don't feel good. Let's talk about it next time with the ENT.
PA: Ok.

Understand I basically got a suction device stuck in my ear and sucked the infection out. It's not pleasant and many times quite painful.

I set up the next ENT appointment to coincide with my mom's visit. You know, she knows my entire history by heart. I'm not gonna remember all that stuff.

ENT: I think with repairing the ear drum and a BTE, you could hear.
Me: Really, now?
ENT: Yes.
Me: What are my chances?
ENT: What do you mean?
Me: If I let you do this, what are my chances of being able to hear? What are the chances of the ear drum blowing again?
ENT: I can't answer if it will bust again.
Me: What about the hearing?
ENT: With training, maybe a 70% chance.

Now, I'm gonna be 30 next month. I've only had one ear for 20 years.

I'm also a CNA. That means intense physical work. After surgery, about 2-3 hours, I would be on a 10 lb restriction for 6-8 weeks.

Then, I'd get to buy another BTE.

For a maybe....a BIG maybe.

Sometimes, the chance to hear, isn't worth the price you end up paying.

[DamonK]

............................

Originally Posted by Viola

From reading your message and thinking of batteries, you know what cross my mind???

What if a person made their own batteries...

Doubt it is safely possible. I'm not mechanically inclined. At all.

Um question when you buy your batteries can you take that off your taxes?

What is it like to work for the state of TX., when you did...

I loved it. I paid dearly for it. In some ways, the best times of my life were there. In some ways, the worst times of my life. During that period was when I discovered drugs. But I also discovered what it was like to fall apart, and still have someone stand there ready to slap you back into being you again... and not be scared.

<snip>..................................

[Bad_boi]

My buddy is deaf so I decided to take ASL over summer. I learned a few signs already, wish me luck.

[~Softbutch4U~]

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

[DamonK]

Originally Posted by ~Softbutch4U~

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

Most Deaf people I know disagree with the CI. But it can be quite controversial.

Me? Uh uh. No way. Too expensive. Too unlikely to succeed.

[femmedyke]

I've had severe hearing issues all my life. Chronic and undiagnosed sinusitis with small Eustachian tubes lent itself to many ear surgeries as a child and into adulthood. When I was 12 I had surgery on my left ear to repair my perforated ear drum and since that surgery I've heard amazing in that ear! However, I have been somewhat screwed with my right ear. I developed mastoiditis several years ago and have had a couple of mastoidectomies. This last one was very expensive and rendered me deaf completely in my right ear as my ENT removed my incus bone with the notion that I would be able to have the second surgery to replace it rather quickly. Crappy insurance did not allow this to happen and two years after that surgery I'm still looking for a way to have this second surgery with implant. I saw someone wrote about cholestotomas -- I had two removed during that surgery as well,that was terribly painful!

I don't sign, I actually will read some lips but mostly depend on my left ear to compensate. Being hard of hearing has often put me in my own world. I get really tired of asking 'huh' or 'what' and kind of just shut down. *shrug*

[nycfem]

Do you know sign language?

Originally Posted by ~Softbutch4U~

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

[~Softbutch4U~]

Originally Posted by nycfembbw

Do you know sign language?

Yes, I use PSE. Its part of ASL but i use sign as english for sentence to deaf people. I notices that alot deaf people do not understand my sentences by text msgs. I almost grew up in mainsteam school most of the time. I felt bad for deaf people who couldnt write english well. I dont blame them.

Femmedyke: I know it is VERY expensive to have CI. Last time i heard was $60K but Im sure there r some way to get some help by Vocab Rehabit. I was going to get some help by VR but didnt have time to get a day off and stop by the office to discuison for Hearing Aids. I dont wear hearing aids for almost 4 yrs now. I like to listen the sound but not the words. Alot of my hearing friends said.. You r really lucky that u cant hear. Cuz they cant stand the sound like fire alarm or people get into arguement, etc. For me: I wish i can hear cuz i wanted what the sound of people's accent.. birds sing, waterfall.. many more.

[~Softbutch4U~]

Oops, its for DamonK not femmedyke. lol my bad

[nycfem]

At the school where I work we technically use PSE but I think it ends up being more of a combination of ASL and PSE. I study both and think both are useful.

Originally Posted by ~Softbutch4U~

Yes, I use PSE. Its part of ASL but i use sign as english for sentence to deaf people. I notices that alot deaf people do not understand my sentences by text msgs. I almost grew up in mainsteam school most of the time. I felt bad for deaf people who couldnt write english well. I dont blame them.

Femmedyke: I know it is VERY expensive to have CI. Last time i heard was $60K but Im sure there r some way to get some help by Vocab Rehabit. I was going to get some help by VR but didnt have time to get a day off and stop by the office to discuison for Hearing Aids. I dont wear hearing aids for almost 4 yrs now. I like to listen the sound but not the words. Alot of my hearing friends said.. You r really lucky that u cant hear. Cuz they cant stand the sound like fire alarm or people get into arguement, etc. For me: I wish i can hear cuz i wanted what the sound of people's accent.. birds sing, waterfall.. many more.

[~Softbutch4U~]

Originally Posted by nycfembbw

At the school where I work we technically use PSE but I think it ends up being more of a combination of ASL and PSE. I study both and think both are useful.

I think PSE is better for all deaf people cuz of communicate thur VRS or their jobs, courts, cops ..etc. For ASL, Rare i dont understand what they say cuz alot states have diff sign languages. We r almost not the same signs.