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Old 11-09-2009, 11:00 AM   #1
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Thumbs up Cancer Support and Caregivers Who Are Trail Blazers!

I want to start a thread that is a support for those who are suffering from any kind of cancer. It also is for those who are caregivers to those suffering from cancer.

I want this to be a safe place to talk openly about diagnoses, treatment plans, medicines, drugs, and everything else imaginable.

My life has drastically changed with the loss of my beloved sister, JoAnn last year. She had skin cancer, called Melanoma. So I am aware of projectile vomiting, fevers, chills, and every side effect of chemo under the sun. JoAnn never complained - not even once.

So, with that said. Please feel free to post.

Namaste,
Andrew
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Old 11-09-2009, 11:46 AM   #2
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I complain all the time. When I get the fever I talk mad crazy shit to the people I love the most.

Without them, I'd be a bigger mess.
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Old 11-09-2009, 01:57 PM   #3
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Jo would talk like that as well. And she hallucinated when she was given stem cell treatments the most. The combination of drugs just didn't work for her. It was wayyy to much for her body to take.

I was walking around taking a break while the nurses were changing her sheets one day, and I happened upon a lady suffering from breast cancer. She had the kind that didn't show up on the mammograms or anything. I cannot think of the name of it. It is the most deadly of all breast cancers.

Anyway, she was walking with her IV, and just had to get out of her room and away from her family. She told me that after a while they grated on her nerves. That they meant well, but after some time, they got to be too much for her to deal with. Now she was just starting out, and only had 1 surgery, and was just having her first chemo treatment. I thought to myself, and didn't say it, but man she has a very long way to go. Sad part was...she was in her late 30's to early 40's.
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Old 11-09-2009, 02:05 PM   #4
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Inflamatory Breast Cancer or IBC is horrid.

I feel for the woman as there are certain factions of my family that gush and coo over me when I am sick. I somehow end up feeling responsible for their emotional turmoil.

My inner circle is very stern with me, and treats me as if I was healthy as much as they can. Thank god.
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Old 11-09-2009, 02:37 PM   #5
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I really believe that is what saved Jo for as long as it did - almost 3 years. We all treated her like she had a splinter. The little kids were the ones who didn't understand why she lost her hair, or why she would try to eat a meal at the table with us, then run to the bathroom, or would spend hours cleaning out closets to keep busy because the meds made her hyperactive.

Jo was active up to the last week of her life. She mentioned to her husband that steps were hard for her to do, and the next day she had a series of strokes that took her voice. All she could do is moan and groan.

Everyone handles devistating news differently. Some are able to deal with it, and move on. Others fear the unknown. I just pray to do God's Will, and let His Will be done, not mine. My Will - He knows what it is.


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Old 11-13-2009, 09:33 AM   #6
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Default Suzanne Somers and Breast Cancer/Treatment Plans

We all know Suzanne Somers' from her jewelry, beauty products, sunglasses, bags, and exercise equipment like the ab roller. And then the 17 books, 8 of which are NYTimes bestsellers.

She has fought most recently her cystic breast disease that became breast cancer according to her latest book. She refused chemo, and even went to the extreme of stating that chemo is what took Patrick Swaze's (sp?) life. I am on the fence about this one. Why? I have seen first hand what chemo does to people first hand. There has to be other methods of care and treatment of cancer like Farrah Faucett (anal cancer) voiced.

Namaste,
Andrew
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Old 03-25-2011, 12:19 AM   #7
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So I have been away from the site for a few months now. My ex was dx with this in Sept. 1 week later was starting chemo and the 1st day of chemo she found out it had already spread...3 spots in her L5 1 in her hip and 1 in her femur. She in the beginning pushed me away then she wanted me there to take care of her and our house and animals we have together. I am the 1 she screams at...fusses with etc. I feel like I am CONSTANTLY on an emotional rollercoaster to the point of starting therapy next week





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Originally Posted by SuperFemme View Post
Inflamatory Breast Cancer or IBC is horrid.

I feel for the woman as there are certain factions of my family that gush and coo over me when I am sick. I somehow end up feeling responsible for their emotional turmoil.

My inner circle is very stern with me, and treats me as if I was healthy as much as they can. Thank god.
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Old 04-12-2011, 02:25 PM   #8
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Default One Day At A Time

Cancer doesn't call to see if your busy and have anything planned

Cancer doesn't care that you have other plans.

Cancer doesn't knock, it just comes crashing through the walls of your sanity.

and then...it disappears. Or does it.

Morbid thoughts before a pre-op at 3:30. Raw feelings..me with feelings, wanting to see the sunrise, and hold my tigger while she purrs, and rub Peaches boy till he goes to sleep, and smell the roses. To hear the voices of loved ones near and far that I have failed to call and touch base with.

Wanting to plant that 7th rose bush on May 15th. Wanting quiet in my mind.
Wanting everyone to be okay. Just for today. I'll deal with tomorrow when it gets here.
.
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Old 04-24-2011, 10:28 AM   #9
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So I have been away from the site for a few months now. My ex was dx with this in Sept. 1 week later was starting chemo and the 1st day of chemo she found out it had already spread...3 spots in her L5 1 in her hip and 1 in her femur. She in the beginning pushed me away then she wanted me there to take care of her and our house and animals we have together. I am the 1 she screams at...fusses with etc. I feel like I am CONSTANTLY on an emotional rollercoaster to the point of starting therapy next week
Make sure you take care of yourself. Just because she has cancer does not mean that she can take out her frustrations on you. She is still responsible for how she is with others.

Yes, it is understandable that her fear and anxiety may result in irritability, but that doesn't mean that she shouldn't acknowledge it or keep it in check.

As a side note, I know that the steroids in my chemo treatment (5FU) causes some BIG TIME irritability in me. My point is, her irritability is not just about having a serious illness, it is also chemically induced. I worked almost full time (72 hours every two weeks). I had been only taking a half day on chemo infusion days, but after noting I was irritable with coworkers, I decided I needed to take the whole day off.

In general, I was kind of whacky. In fact, I screwed up and wrote something in a work email that I shouldn't have during that time (and never would have if I was in my "right mind"). There were some repercussions due to it.

My point is, understand her emotional state, but don't excuse her behavior. Therapy may be helpful to her. Some cancer centers have therapists trained in working with people who have cancer. Also, there may be some free support group there, as well. At minimum, it may help her to get on some support groups/forums online to talk with others who have the same illness.

I know that you and my partner have been PMming, but if you want to talk to someone who went through cancer treatment, please don't hesitate to PM me, as well. I would also be happy talk with your ex via email if she is not on this site. It is a very tough road to travel. For both of you.

Take care of yourself.
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Are you educated or indoctrinated?
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Old 01-15-2010, 05:44 PM   #10
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Right now I am waiting for the results of my latest pap. I had an abnormal result last July. So this is the recheck. And along with the abnormal cells came a positive for HPV. So I am really kind of freaking out. I am scared. And I am wondering if the worst happens how the heck I will get through this thing alone. I have to wait about 2 weeks and then the latest results will be in.
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Old 01-15-2010, 05:57 PM   #11
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Daryn,

Keep us posted on how you are doing. I will be including you in my prayers.

Namaste,
Andrew
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Old 01-15-2010, 06:00 PM   #12
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Quote:
Originally Posted by Daryn View Post
Right now I am waiting for the results of my latest pap. I had an abnormal result last July. So this is the recheck. And along with the abnormal cells came a positive for HPV. So I am really kind of freaking out. I am scared. And I am wondering if the worst happens how the heck I will get through this thing alone. I have to wait about 2 weeks and then the latest results will be in.
The waiting is the hardest part.
Just try to think positive...lots of test come back positive for lots of reasons that are not the big C.
Try not to panic. (((Daryn)))
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Old 01-16-2010, 01:12 PM   #13
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I just heard on the radio that Michael C. Hall of HBO's "6 Feet Under" as David Fischer, and "Dexter" as Dexter Morgan, has Hodgkin's Lymphoma. He apparently is being treated for this with chemo, etc. I hope he is ok.
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Old 01-22-2010, 07:31 AM   #14
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Default sigh...

i'm 26 and over the past few days i've found out that i most likely have ovarian cancer. i meet with an oncologist team in a couple of days. and i know that major surgery will be happening as soon as possible. until they get the tumor(s) out i won't know if it's cancer. but i'll be losing my reproductive organs and possible part of my intestines in the process.
i'm so scared and nervous.
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Old 01-22-2010, 08:19 AM   #15
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Dear Fiercegirrl,

I understand your fears, pain, and everything else. I have been thru this twice with my late sister, Jo, and my Godfather. Cancer sucks. I also had cervical cancer, but no doctor would do anything until I was opened up. Then all hell broke loose. Everything I said made sense - finally. Sometimes you have to talk and talk and talk, and get 2nd, 3rd, and 4th opinions until you can slay that dragon.

If I can be of any support, please let me know.

You are in my prayers.

Love,
Andrew
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Old 02-06-2010, 08:54 PM   #16
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Dear Fiercegirrl,

I understand your fears, pain, and everything else. I have been thru this twice with my late sister, Jo, and my Godfather. Cancer sucks. I also had cervical cancer, but no doctor would do anything until I was opened up. Then all hell broke loose. Everything I said made sense - finally. Sometimes you have to talk and talk and talk, and get 2nd, 3rd, and 4th opinions until you can slay that dragon.

If I can be of any support, please let me know.

You are in my prayers.

Love,
Andrew
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i'm 26 and over the past few days i've found out that i most likely have ovarian cancer. i meet with an oncologist team in a couple of days. and i know that major surgery will be happening as soon as possible. until they get the tumor(s) out i won't know if it's cancer. but i'll be losing my reproductive organs and possible part of my intestines in the process.
i'm so scared and nervous.
Staying in touch with each other is a good thing. When it seems like you are all alone..then bing.."You have Mail"...

come back when you can and be fierce..

Tommi
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Old 02-18-2010, 08:51 PM   #17
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I want to start a thread that is a support for those who are suffering from any kind of cancer. It also is for those who are caregivers to those suffering from cancer.

I want this to be a safe place to talk openly about diagnoses, treatment plans, medicines, drugs, and everything else imaginable.

My life has drastically changed with the loss of my beloved sister, JoAnn last year. She had skin cancer, called Melanoma. So I am aware of projectile vomiting, fevers, chills, and every side effect of chemo under the sun. JoAnn never complained - not even once.

So, with that said. Please feel free to post.

Namaste,
Andrew
Thank you Andrew for starting this thread
As a caregiver I want to post and to enlighten those who've never dealt with Cancer or any other long term chronic illness.
Your caregiver is the one who, gets every imaginable throwback, the happy days, sad days, angry days,
the I don't want to go on days and the days.
The days with good news, bad news and no news.
If there is a change we are there, we clean and cook,
we bathe and care for our loved ones.
Out of love, we are there.
We allow them to shed tears even when we hide our own,
we laugh, we share and in the most heart breaking cases
we watch them cross over.

We are tired, worn out sleep deprived but we march on.
They depend on us, for we are their Nurses, their Pharmacy, their Cooks, their Transporters and their advocate,
we get things done when they cannot. They trust us and confide in us
and we stay strong for them, giving them encouragement even on the darkest days.
Not every Cancer patient has multiple caregivers,
so when people think that caregiver is short, or curt, flighty, in a hurry.
Give some consideration they might be on day three, with only six hours of sleep, in 72 hours and multitasking to no end just to make sure their loved ones get the care they so richly deserve.
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Old 02-19-2010, 12:57 AM   #18
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Thank you Andrew for opening this Thread.

So many of us, just from the Planet, have been effected by Cancer. Either had/has it and/or are Caregivers to loved ones that are going through it.

I've been on both sides of the Fence and currently, my Mom's Caregiver. I now realize that each case is unique and each person reacts differently.

Having Cancer certainly is no picnic, but it's YOU that has it, so it's a bit easier to go through.

When you're the Caregiver, it seems more torturous to me. I want to take on the physical reactions, I would rather have my own hair fall out then theirs, I'd rather be the one that needs to force the food down, etc. It's just excruciating to sit by, feeling totally helpless, watching your loved one travel through the journey you're so familiar with.

Sometimes I wonder - which is worse.
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Old 02-27-2013, 03:03 AM   #19
FireheartForever
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~ my mother has cancer ~

while she is not meant to b with me much longer, i find myself @ a loss as to ask god what i can say for her in my prayers. i dont think anything can prepare me for the loss of another parent. am i supposed to b ready for this? if so...i cant say i feel it. chemo is suppose to extend her life...but i dont see it giving her any quality. all i know is that all the joy in my life has left..it is replaced with a knawing sorrow of what is eniveitable. i understand what its like to not b able to do anything for someone whom u love n cant......... the uneviable position of feelin helpless ....
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Old 02-27-2013, 09:06 AM   #20
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Quote:
Originally Posted by FireheartForever View Post
~ my mother has cancer ~

while she is not meant to b with me much longer, i find myself @ a loss as to ask god what i can say for her in my prayers. i dont think anything can prepare me for the loss of another parent. am i supposed to b ready for this? if so...i cant say i feel it. chemo is suppose to extend her life...but i dont see it giving her any quality. all i know is that all the joy in my life has left..it is replaced with a knawing sorrow of what is eniveitable. i understand what its like to not b able to do anything for someone whom u love n cant......... the uneviable position of feelin helpless ....
Fireheart, I am so sorry about your mom. I don't know what to say. It is hard to watch someone we love leave us. Hold on to good memories when you look in her eyes. Sending lots or love, prayers and hugs to you and your family.
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