Cancer Support and Caregivers Who Are Trail Blazers!

[clay]

That is indeed very good news, and much needed! Having TC is awesome and a great morale booster for you. That in itself is the BEST medicine!

I, too, just abhor anyone telling me I HAVE to do something. "chuckling"...

Glad you were able to check in & give a positive news update.

Naps are good. Rest is so essential to everything else.

Sends you & TC big hugs, my friend!

[BullDog]

Pynk, I'm so glad you got good news! Thank you so much for asking about all of us.

Yes, I see the Oncologist Specialist this Monday - the 29th. I'm glad I can finally see her. Hopefully, I will get more information on what I have and get the ball rolling on treatment. I feel I've been waiting around forever.

This week has been hard. My pain meds don't seem to be working as well as they used to. Most of the pain is in my legs. It hurts really bad. I had a big ordeal getting my meds re-filled so I'm just going to wait until Monday to see what the doctor says. I don't feel too bad today so far. I will check back after my appointment if I have any news.

I hope everyone has a good weekend and upcoming week and all my best wishes on your recovery.

[BullDog]

I had my appointment with the oncologist today. I like her and also her assistant. I feel I am in very good hands. I am having surgery on September 19 to remove a mass on my uterus, have a hysterectomy, and maybe a few other things lol. My doc said they won’t know for sure if the mass is malignant or not until it is removed and tested. But she said it is concerning and definitely needs to be removed. I agree. Never thought I would look forward to surgery but I want that mass gone. It is causing me a lot of pain.

It’s weird. September 19 was me and one of my ex’s anniversary. A very special love for me.

Thank you so much for all the support here and you have my support as well. Reach out anytime.

[clay]

Hey.......very happy to hear this news. Finally, moving toward having answers & hopefully, pain relief.

That is awesome you gelled with the surgeon and assistants. That is huge.....sends you positive energy vibes....YOU! GOT! THIS!!

Know I am in this with you, Bulley.....

Originally Posted by BullDog

I had my appointment with the oncologist today. I like her and also her assistant. I feel I am in very good hands. I am having surgery on September 19 to remove a mass on my uterus, have a hysterectomy, and maybe a few other things lol. My doc said they won’t know for sure if the mass is malignant or not until it is removed and tested. But she said it is concerning and definitely needs to be removed. I agree. Never thought I would look forward to surgery but I want that mass gone. It is causing me a lot of pain.

It’s weird. September 19 was me and one of my ex’s anniversary. A very special love for me.

Thank you so much for all the support here and you have my support as well. Reach out anytime.

[nina03]

I had thyroid cancer last year, which was successfully treated with surgery and radioactive iodine. I'm past due for my year scan, let alone my six month scan which I missed. I feel frozen about it. I'm usually so proactive about health stuff, and I've just been putting it off. My Dr has messaged me twice now to get my ass in gear. How do you overcome fear- based inertia regarding cancer care? I KNOW that I need to get on this. I know if it came back catching it early is key to effective treatment, but somehow my brain and my fear aren't communicating about this one. Thanks for any advice or thoughts you might have.

[clay]

Hi nina03......

It is always a challenge when faced with or facing a cancer diagnosis.And each person handles this in differing ways. I know I was scared to death when the dr called me to say I had both uterine AND colon cancer. The DR also told me I would have to have concurrent surgeries...a long, arduous one at best. My gynie did my total hystero first while the second team stood by to follow with my colon resection, appendectomy, & couple other things. As I prepared for that, I kept my thoughts positive (having to work hard at that) because my mind tried to instill negativity in me.

Our minds are a terrible force of energy sometimes. Perhaps you could discuss with your partner, ask for support positively, & talk to your support group??!!

I will send you positive energies that you will align mind/heart to go for your follow ups. Others will chime in here also, and offer sage advice.

Tell yourself you HAVE to do this for your own health, have "talks" with your mind that YOU are alpha & are going to face this & get them done.

All of us have had many different types of cancer here, & following up is a challenge most of us face or have faced. BUT we always have each other's back, rallying behind those affected, & just being resent for anyone who comes in here.

There are no magic answers, just kind compassion & words of encouragement. You will do this when you are ready, on your terms. I believe in you!!!

Gentle hugs, nina......am here if you need me.....clay

Originally Posted by nina03

I had thyroid cancer last year, which was successfully treated with surgery and radioactive iodine. I'm past due for my year scan, let alone my six month scan which I missed. I feel frozen about it. I'm usually so proactive about health stuff, and I've just been putting it off. My Dr has messaged me twice now to get my ass in gear. How do you overcome fear- based inertia regarding cancer care? I KNOW that I need to get on this. I know if it came back catching it early is key to effective treatment, but somehow my brain and my fear aren't communicating about this one. Thanks for any advice or thoughts you might have.

[nina03]

Originally Posted by clay

Hi nina03......

It is always a challenge when faced with or facing a cancer diagnosis.And each person handles this in differing ways. I know I was scared to death when the dr called me to say I had both uterine AND colon cancer. The DR also told me I would have to have concurrent surgeries...a long, arduous one at best. My gynie did my total hystero first while the second team stood by to follow with my colon resection, appendectomy, & couple other things. As I prepared for that, I kept my thoughts positive (having to work hard at that) because my mind tried to instill negativity in me.

Our minds are a terrible force of energy sometimes. Perhaps you could discuss with your partner, ask for support positively, & talk to your support group??!!

I will send you positive energies that you will align mind/heart to go for your follow ups. Others will chime in here also, and offer sage advice.

Tell yourself you HAVE to do this for your own health, have "talks" with your mind that YOU are alpha & are going to face this & get them done.

All of us have had many different types of cancer here, & following up is a challenge most of us face or have faced. BUT we always have each other's back, rallying behind those affected, & just being resent for anyone who comes in here.

There are no magic answers, just kind compassion & words of encouragement. You will do this when you are ready, on your terms. I believe in you!!!

Gentle hugs, nina......am here if you need me.....clay

Hi Clay,
Thank you for your endless kindness. I appreciate it so much. I never joined a support group when I was diagnosed. I didn't even tell many people about it, including most of my family. My sister and I talked about it and decided that given our parents' health challenges it would be better for them not to know, but it ended up isolating me. I didn't share it with many of my friends, either, though my partner's family knew.

I think I'm going to set goals to get this done. First, I'll do the blood work, then I'll schedule the scan. The scan takes more than a week of prep. I have to be on a low iodine diet for a week before the scan. I just need to get it done. It's better to know what's going on. Thank you again for your kind response. I'm also here and glad to be a support to anyone who needs it in this process.
Nina

[clay]

You are so very welcome! I am really impressed seeing your....one step at a time....one day at a time....plan of action. YOU CAN DO THIS!!! You have the heft & weight of me behind you, encouraging you all the way. The other amazing warriors here will be here, too. That is the beauty of this inclusive group of warriors.

YOU are a warrior, my friend. I totally understand your keeping it to yourself, and for being protective of your parents. You have this "support group" right here. Feel free to post, vent, feel all the very raw emotions that wax & wane as you go through cancer diagnoses, treatments, & follow ups!! We understand, we "get" you!! We "GOT" you!!

Some of us in here are nurses, and even we have fears when facing the C dx. It can be so overwhelming at times.

I believe in YOU, my sweet friend! I believe YOU can take it one minute, one hour, one day, one step at a time!!

Am always here, Nina!! Gentle hugs & take care of you!!! clay

Originally Posted by nina03

Hi Clay,
Thank you for your endless kindness. I appreciate it so much. I never joined a support group when I was diagnosed. I didn't even tell many people about it, including most of my family. My sister and I talked about it and decided that given our parents' health challenges it would be better for them not to know, but it ended up isolating me. I didn't share it with many of my friends, either, though my partner's family knew.

I think I'm going to set goals to get this done. First, I'll do the blood work, then I'll schedule the scan. The scan takes more than a week of prep. I have to be on a low iodine diet for a week before the scan. I just need to get it done. It's better to know what's going on. Thank you again for your kind response. I'm also here and glad to be a support to anyone who needs it in this process.
Nina

[clay]

I have had so many squamous cell cancerous spots removed from left forearm in a year....12 to be exact, with another one coming up next week. I JUST had one removed from right hand 4 weeks ago, and have had 14 or so off my face, and a fresh biopsy Monday this week.
Now with having said that, I happened to research mult SCC's....my % of having these metastisize is almost 30% now. I DO NOT like those #'s.

My wife just ordered me 3 new UV shirts with sleeves & 3 pair of baggy below knee shorts. I just can NOT wear sunscreen...it is messy, makes greasy spots on my clothes, I accidentally rub it in my eyes....so, long sleeves & my UV hat now.

Saw my pulmo today for 6 months FU....will be getting new scan of chest to see status of my 4 lung nodules. Started with 2 a year ago, then March 2022 grew to 4 & doubled in size. Scan is 09/19/22. Oh, a happy note, my pulmo looked at me today, she said, Donna, you look like you are 40 yrs old. You DO NOT LOOK your true age. She said you are relatively healthy, but you are so positive, always smiling, & enjoying your life! You LIVE life, she knows we go camping almost every month year round, and I always show her pictures, or tell her about new vegan recipes I have made. We are like best friends. We always hug & I tell all my Dr.'s I love them every time I see them. I have an incredible bevy of them!!!

I see my oncologist Oct unless these scans show anything differently.

I am going to be seeing a pain management specialist, to try & get my fibro, polyarthritis quieted down some.

My whole left side is a ball of spasms....

Going into this positively, will face whatever outcome is, head on! I have amazing support team, including all of you in this group. My wife is so amazing!

I am looking ahead to great outcomes with pain management & my scan results!!

Gentle hugs to all of you...I <3 you all! clay

[nina03]

Originally Posted by clay

I have had so many squamous cell cancerous spots removed from left forearm in a year....12 to be exact, with another one coming up next week. I JUST had one removed from right hand 4 weeks ago, and have had 14 or so off my face, and a fresh biopsy Monday this week.
Now with having said that, I happened to research mult SCC's....my % of having these metastisize is almost 30% now. I DO NOT like those #'s.

My wife just ordered me 3 new UV shirts with sleeves & 3 pair of baggy below knee shorts. I just can NOT wear sunscreen...it is messy, makes greasy spots on my clothes, I accidentally rub it in my eyes....so, long sleeves & my UV hat now.

Saw my pulmo today for 6 months FU....will be getting new scan of chest to see status of my 4 lung nodules. Started with 2 a year ago, then March 2022 grew to 4 & doubled in size. Scan is 09/19/22. Oh, a happy note, my pulmo looked at me today, she said, Donna, you look like you are 40 yrs old. You DO NOT LOOK your true age. She said you are relatively healthy, but you are so positive, always smiling, & enjoying your life! You LIVE life, she knows we go camping almost every month year round, and I always show her pictures, or tell her about new vegan recipes I have made. We are like best friends. We always hug & I tell all my Dr.'s I love them every time I see them. I have an incredible bevy of them!!!

I see my oncologist Oct unless these scans show anything differently.

I am going to be seeing a pain management specialist, to try & get my fibro, polyarthritis quieted down some.

My whole left side is a ball of spasms....

Going into this positively, will face whatever outcome is, head on! I have amazing support team, including all of you in this group. My wife is so amazing!

I am looking ahead to great outcomes with pain management & my scan results!!

Gentle hugs to all of you...I <3 you all! clay

Hi Clay,
Thanks for sharing what is going on with you. I hope that the new scans have good news. I was wondering if you have ever looked at powder sunscreen? I can send you links if you're interested. I love your positive attitude towards the things you're dealing with. It isn't just helping you, it's helping me, so thank you.

Since I last posted, I got the ball rolling for my needed tests. I have an appointment tomorrow for the blood work I need to do before my scan, and I also scheduled an ekg at the same time. I'm starting a new arthritis medication that can cause heart issues so they want me to get the EKG before starting then again two weeks after I start to make sure it's ok. I've been sitting on that for two months. After I get this stuff done, I can schedule the scan.

Thanks for the support and encouragement.
Nina

[clay]

Hey Nina:

You are so very welcome.

And thank YOU for your kind words & support. It helps to have others' share with us.

I would love to have the link, pls. Does it have "talc" in it? If so, then no......

Last night I had severe bone pain in upper arms & wrists...so much so I was crying with it. Finally caved & took a pain med. I am scheduling with a pain management clinic!!!

It is a gorgeous day, starting a holiday weekend. Artemis 1 is set to lift off Saturday at 217pm , eastern time!

I am keeping an eye on the tropics also....we have Danielle slated to become a TS or worse....

Leaving everyone a hug.

Keep up the positive steps, Nina. I love it!!!

Originally Posted by nina03

Hi Clay,
Thanks for sharing what is going on with you. I hope that the new scans have good news. I was wondering if you have ever looked at powder sunscreen? I can send you links if you're interested. I love your positive attitude towards the things you're dealing with. It isn't just helping you, it's helping me, so thank you.

Since I last posted, I got the ball rolling for my needed tests. I have an appointment tomorrow for the blood work I need to do before my scan, and I also scheduled an ekg at the same time. I'm starting a new arthritis medication that can cause heart issues so they want me to get the EKG before starting then again two weeks after I start to make sure it's ok. I've been sitting on that for two months. After I get this stuff done, I can schedule the scan.

Thanks for the support and encouragement.
Nina

[nina03]

Clay, I'm sending you a message with that link! Wasn't sure if we are allowed to post links to products in the threads.

[BullDog]

My doctor got more information that I likely do have uterine cancer. My surgery has been bumped up to Tuesday, Sept 13. I'm so glad it is sooner. I am in so much pain. Hopefully, I will get some relief from the surgery.

I hope everyone is doing well.

[clay]

Originally Posted by BullDog

My doctor got more information that I likely do have uterine cancer. My surgery has been bumped up to Tuesday, Sept 13. I'm so glad it is sooner. I am in so much pain. Hopefully, I will get some relief from the surgery.

I hope everyone is doing well.

The diagnosis is not too much of a "surprise" BUT having a much earlier surgery date is great to hear! Talk to you soon, my friend!

[clay]

Thinking of you, Bulley, as you are on the eve of your surgery! I will be in touch as soon as you feel up to talking! YOU! GOT! THIS! You will feel so much better when you get this done!! Big hugs, J!

Here for you, reach out this evening if you wish......stay positive & focused!!

[clay]

(((((((((((((((((((((((((((((((((everyone of us going through cancer right now))))))))))))))))))))))

I REALLY do care about each of you!

Wraps you all into my arms.....YOU! EACH! GOT! THIS!

[clay]

Good evening:

I have permission from Bulldog to post an update for her.

She does has Stage 4 cancer & will be taking treatments soon.

Her spirit is good, she is slowly progressing with her rehab.

You can message me, to pass along any messages for her. Send her positive energies & healing vibes....I will make sure she gets those. I am in close contact with her!!

At this time, she is focused on getting better & getting her treatments, so is not on any social media.

Thank you all, I know many of you love & care for her, as I do!!

Big hugs!!!!

You got this, Bulldog!!

[clay]

Good evening pynk:

Just checking in to see how you are doing?

Leave us an update when you can, pls...thinking of you....fondly...clay

[pynkkameleon]

Originally Posted by clay

Good evening pynk:

Just checking in to see how you are doing?

Leave us an update when you can, pls...thinking of you....fondly...clay

You have such a beautiful heart Clay. Thank you for caring about and checking in on all of us.

I’m sad to learn that Bulldog has these challenges ahead. Please pass on my thoughts of comfort, healing and well wishes for a speedy recovery from surgery. It sounds like she has a great team of doctors behind her and that her spirit is strong. Please continue to keep us all posted.

I’m doing okay. I’ve been pretty fatigued lately and back to napping like I’m Rip Van Winkle **Zzzzz…** Two days ago I went in for my monthly checkup and infusion and found out that my I’m neutropenic and extra susceptible to infections. The Doc put me on a short break from the Ibrance in order to get my numbers back up. It explains why I’ve been so sleepy, sluggish and have been having issues with mouth and nose sores etc. Cancer truly is the gift that keeps on giving.. This Friday I have a brain MRI to rule out mets as the cause of my headaches. I’m not too concerned about that being the cause but it’ll be good to get a baseline.

Glad to hear that you’ll be seeing the Onco soon and that you’re getting in to see pain management. It sounds like you have a pretty spectacular relationship with your entire team of doctors. That doesn’t surprise me in the slightest. You have that way about you.

Nina- Hopefully your labs came back good and you can get your scans done soon.

Kätzchen And Canela- How are each of you doing?

How’s everyone else doing?

Sending big love and good juju out into the universe for each of you. Be good to you 💜

[BullDog]

Thank you for giving the update Clay! She has been amazing support for the entire time. I do have stage 4 uterine cancer which is serious. I had a hysterectomy, Fallopian tubes and other bits taken out, a colostomy, and an appendectomy.

I was so weak at first but now able to walk short distances. I talked to my doctor today. I am getting out of the hospital later today. I thought I was going to have to go to rehab for 2 weeks but I don’t. Also my colostomy is temporary. I am ecstatic with all this great news.

I do have to start chemo in 3-4 weeks so more to do. But I have an amazing doctor and incredible family and friends - many of whom are facing their own very serious challenges. Yet still they support me. I am so grateful and love them all very much.

I hope everyone is doing well. I want to hear how all of you are doing and let me know if I can do anything to help.