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Old 09-19-2022, 11:29 AM   #1521
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Hey V!!! Really glad to see this update, but sorry to hear of the issues related to Ibrance, etc. Have you tried any of the biotene drops for your mouth? They have a whole slew of products available. IF you can't find them, let me know & I will make sure you get some!!

My LTR partner had same issues as you are having, I found them, & she LOVED them.

Nystatin swish & swallow....she had thrush from her chemo wiping out immune system.

Big ole hugs...and you are making me blush. Your kind words are so appreciated, my dear friend.

I DO have an awesome rapport with my docs!!! They call me personally with any updates, concerns, etc!

Take care.....be gentle with you!!!





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Originally Posted by pynkkameleon View Post
You have such a beautiful heart Clay. Thank you for caring about and checking in on all of us.

I’m sad to learn that Bulldog has these challenges ahead. Please pass on my thoughts of comfort, healing and well wishes for a speedy recovery from surgery. It sounds like she has a great team of doctors behind her and that her spirit is strong. Please continue to keep us all posted.

I’m doing okay. I’ve been pretty fatigued lately and back to napping like I’m Rip Van Winkle **Zzzzz…** Two days ago I went in for my monthly checkup and infusion and found out that my I’m neutropenic and extra susceptible to infections. The Doc put me on a short break from the Ibrance in order to get my numbers back up. It explains why I’ve been so sleepy, sluggish and have been having issues with mouth and nose sores etc. Cancer truly is the gift that keeps on giving.. This Friday I have a brain MRI to rule out mets as the cause of my headaches. I’m not too concerned about that being the cause but it’ll be good to get a baseline.

Glad to hear that you’ll be seeing the Onco soon and that you’re getting in to see pain management. It sounds like you have a pretty spectacular relationship with your entire team of doctors. That doesn’t surprise me in the slightest. You have that way about you.

Nina- Hopefully your labs came back good and you can get your scans done soon.

Kätzchen And Canela- How are each of you doing?

How’s everyone else doing?

Sending big love and good juju out into the universe for each of you. Be good to you 💜
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Old 09-19-2022, 11:33 AM   #1522
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[COLOR="Blue"]B]BULLY!!!!

DAMN that is awesome news!!! It makes my heart sing for your progress AND for your positive attitude!!!! That makes a HUGE difference!


We already talked, so you KNOW how happy I am!! I called my wife & we were both crying! She & I love you so very much, J!!!!

I love being here for you, dood!!!

Go gently, baby steps, do not over do!!!!





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Originally Posted by BullDog View Post
Thank you for giving the update Clay! She has been amazing support for the entire time. I do have stage 4 uterine cancer which is serious. I had a hysterectomy, Fallopian tubes and other bits taken out, a colostomy, and an appendectomy.

I was so weak at first but now able to walk short distances. I talked to my doctor today. I am getting out of the hospital later today. I thought I was going to have to go to rehab for 2 weeks but I don’t. Also my colostomy is temporary. I am ecstatic with all this great news.

I do have to start chemo in 3-4 weeks so more to do. But I have an amazing doctor and incredible family and friends - many of whom are facing their own very serious challenges. Yet still they support me. I am so grateful and love them all very much.

I hope everyone is doing well. I want to hear how all of you are doing and let me know if I can do anything to help.
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Old 09-20-2022, 02:11 PM   #1523
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Talking My short update

Thanks for asking about me, Pynk. We're in crisis mode at work and my health appts got pushed back until we solve our situation at work.

I'm doing okay. I hurt a lot, but my bones hurt the most. I'm in no big hurry but my medical providers are so helpful and encouraging me with alternative methods of treatment, which we talk about privately on our health care website -- almost daily -- we have a robust conversation about what we can do, once we get confirmation on the biopsy result.

Bulldog, your situation sounds entirely challenging. Please know that my partner and I send tons of positive energy your way.

And Pynk, we continue to keep you in our thoughts.


Sending wellness wishes to all,
~K.
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Old 09-21-2022, 01:10 PM   #1524
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CT Chest scan.....no new nodules, no bigger growths.

See Doc again soon. I do have a large, calcified granuloma in lower right lobe. Usually benign, form after pneumonia, lung infections, inhalants, etc. I am happy about this!!

Off for a long 5 day with my wife, camping at Salt Springs....can hardly wait to get into those 72 degree salt springs!!!

Take care everyone. We have no internet nor cell service at the forest.

Mad love to all of us, facing challenges of varying degrees.

Bully...stay out of trouble, dood!!
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Old 09-22-2022, 12:39 AM   #1525
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Default The Parking Lot.....

Hi to everyone...

Had my treatment yesterday at 10am. Did 2 hours in the chair. Ya know if I gotta go through this stuff I am very grateful it is with these people. They are good to me and make sure I am ok or need anything. They are all nice and caring nurses. However there is 1 nurse that I feel a little tension from. Don't know what I did or said to her for her to be like that to me. In the early times my sister or sister-in-law would go with me to my appointments. That nurse didn't stop talking to them. I tried to get in the conversation and she would talk around me or through me. My sister-in-law saw it to. She gets me checked in when I get there. I just follow her and do not talk to her. I feel the tension and I know she does also. Chatting with the nurse getting me hooked up I asked her if she got a chance if she could look up my last treatment. She looked it up and said it was October 17th 2023. Yeah couple more weeks.

Now the parking lot....
The the last 4 times I have pulled in the parking lot for my treatment I have to look for a spot to park with my choices of 2 or 3 spots. When I first started going I had the pick of parking spots. I always park in the spot farthest away from the door and get there 15 minutes early so I can sit quiet and listen to the radio a few minutes before I go in. I see people going in and coming out with bags. They are treatment people that have gotten or getting treatments. The bags have snacks drinks and puzzle books. My time is close to going in. After this song I gotta go in. Now I am 1 of those people caring a bag in the building. The longest walk of the day.It just makes me sad to see the increase of people that need help since I started going for my treatment.
Prayers for us all. We keep fighting together.

Thank you for reading and caring.

s
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