Need some support-losing an eye....

Lady_Wu · 05-02-2010, 01:50 PM

I went to see my eye doctor Thursday. He told me that I have 1 tenth of my optic nerve left in my right eye, plus cataracts in both eyes. He also said that soon I would lose all vision in my right eye, b/c the optic nerve is so damaged that the little left won't support my vision. I have MS. That, plus the medication I have to be on FOR MS, is destroying that optic nerve. And he can't say that my other eye won't be affected when I have to rely on just it.
reading and studying are the biggest part of my life. I now have to restrict my read/computer time to one hour every six hours.
I am dealing with this but it is not easy. Thank you for listening to me.
Lady_Wu

Darth Denkay · 05-02-2010, 02:09 PM

(((Lady-Wu)))

I can't imagine what you are facing right now. Just know you are in my thoughts, keep dealing the best you can, know you are loved.

WolfyOne · 05-02-2010, 02:22 PM

Lady Wu, I'll keep you in my thoughts and prayers for all you're going through not just your eye.

Not many know this about me, but I have a blind spot in my left eye from birth or so I've been told. There are things I've never been able to adapt to and other things I can breeze by. I have no depth perception, so I can't use some power tools, like saws. I can't play tennis and gosh knows I've tried since I was a kid.

Anyhow, perhaps it'll be an adjustment for you, but don't let the eye doctor scare you. Keep doing what you do even if you need strong lenses in glasses. I mean, don't give up the fight just because of one doc's evaluation. Maybe with some research, you may find another doc that can help you better. There's always new procedures coming out to make our lives a little easier.

FullCircle · 05-02-2010, 02:58 PM

You may want to consider consuming mass doses of omega III fatty acids perhaps in the form of a high quality krill oil. I was able to reduce the need for reading glasses and I'll be fifty this year. Other side effects of taking krill are a more flexible thought process, hormone regulation (less hot flashes), shrinking tumors, increased ability to withstand extreme cold and gorgeous skin.

-e

Andrew, Jr. · 05-02-2010, 03:00 PM

Lady Wu,

You are in my thoughts and prayers. Please check your pm messages.

Peace and love,
Andrew, Dino, and Gang

Queerasfck · 05-02-2010, 03:00 PM

Will keep in you in our thoughts. Sending out good wishes to you young lady. Best of luck.

Cyclopea · 05-02-2010, 03:10 PM

So sorry for your troubles ((((((Lady Wu))))))...
Will keep you in my thoughts and prayers.

Hang in there hon.

Lady Pamela · 05-02-2010, 03:19 PM

Many hugs to you (((Lady-Wu))) !!!

Know that there are people out here concerned and in your corner.

Jedi · 05-02-2010, 03:30 PM

Lady_Wu,

I'm sorry for what's happening. I will keep you in my thoughts and prayers. My father had soem eye surgery this year. In August...his eye still isn't right and might not ever be. I have been experiencing some symptoms that my retina may be detaching. My eye is fine though. I have just had 2 scary blind episodes (I'll explain if you want). My roommate has MS and is in a wheelchair and I think this year I'm doing the MS walk. She is a great inspiration. I will keep you in my thoughts and prayers.....

Jedi

Soft*Silver · 05-02-2010, 04:34 PM

Lady Wu...it is indeed frightening when your eyes are damaged. I have had 11 surgeries between both eyes for retinal detachment, and two corneal surgeries to correct corneal warping. It appears I need another one of the latter sometime soon.

One of the things I would suggest is to contact your bureau of vocational rehab. Their job is to keep you employable. If you need any adaptive tools, they can help you get them. They can also help pick up the cost of your education and purchase your textbooks in large print or audio. They have helped me and it was a saving grace. They even paid for my one set of surgeries because I was in between insurances and had I not had it done at the time, I would surely have gone blind.

Nat · 05-02-2010, 05:10 PM

Quote:

Originally Posted by Lady_Wu

reading and studying are the biggest part of my life. I now have to restrict my read/computer time to one hour every six hours.
I am dealing with this but it is not easy. Thank you for listening to me.
Lady_Wu

Lady_Wu - I'm so very sorry this is happening to you.

If you are going to have to restrict your read/computer time so severely - I know it obviously isn't the same - but there is so much more to listen to now than there were even 5 years ago.

I don't know what your tastes are, but

http://www.librivox.org is an all-volunteer resource for audio files of classic literature - it's growing all the time.

Berkeley also podcasts several of their courses, and that can be really satisfying to hear. I got to listen to two different profs teach the same survey literature course a few years ago and it was really interesting to hear their separate takes.

http://webcast.berkeley.edu/courses.php

There are also many interesting podcasts you can download if you just search subjects you are interested in through itunes.

I know also in Austin there is a group that will actually read textbooks and other items requested by their clients. If you check with your local college/university's disability office, they may know if there is a local group who can make recordings for you of the books you would like to read.

I know there is software that will also read to you, but I can't pay attention to the electronic, non-human voice.

Again, I'm sorry you're in this situation. :/

Unndunn · 05-02-2010, 05:41 PM

Quote:

Originally Posted by Lady_Wu

I went to see my eye doctor Thursday. He told me that I have 1 tenth of my optic nerve left in my right eye, plus cataracts in both eyes. He also said that soon I would lose all vision in my right eye, b/c the optic nerve is so damaged that the little left won't support my vision. I have MS. That, plus the medication I have to be on FOR MS, is destroying that optic nerve. And he can't say that my other eye won't be affected when I have to rely on just it.
reading and studying are the biggest part of my life. I now have to restrict my read/computer time to one hour every six hours.
I am dealing with this but it is not easy. Thank you for listening to me.
Lady_Wu

what a terrrible thing to be dealing with. I know it isn't the same, but I think there are a lot of books on tape and other programs that you might be able to find that will "read" for you. Please take care of yourself. I wish you the best.

weatherboi · 05-02-2010, 06:03 PM

hey Lady_Wu-

i will be thinking about you and this difficult journey!!! my words fall short to my feelings for your situation!! you will be in my thoughts on the daily!!

Abigail Crabby · 05-02-2010, 06:15 PM

(((( Lady Wu )))) I'm so sorry to hear about what you are facing.

Blaze · 05-02-2010, 06:32 PM

I am very saddened to hear of this Lady Wu...
My deepest heart felt prayers will be for you.
It is not news that anyone wants to hear, but in life
it happens.
Have you also made it a point to get another opinion???
Just asking because I was diagnosed with one thing and went to another Doctor and he said it was treatable with eye drops
and or laser surgery.

key · 05-02-2010, 07:14 PM

Lady Wu

You are in my thoughts and prayers.

Key

Zimmeh · 05-02-2010, 07:57 PM

Ms. Lady,

I am sending you warm wishes to you and hopes the dr's can help you without you having to lose your eyesight.

Hugs,

Zimmy

Quote:

Originally Posted by Lady_Wu

I went to see my eye doctor Thursday. He told me that I have 1 tenth of my optic nerve left in my right eye, plus cataracts in both eyes. He also said that soon I would lose all vision in my right eye, b/c the optic nerve is so damaged that the little left won't support my vision. I have MS. That, plus the medication I have to be on FOR MS, is destroying that optic nerve. And he can't say that my other eye won't be affected when I have to rely on just it.
reading and studying are the biggest part of my life. I now have to restrict my read/computer time to one hour every six hours.
I am dealing with this but it is not easy. Thank you for listening to me.
Lady_Wu

Lady_Wu · 05-04-2010, 06:25 PM

I have read all of your posts. Thank you so much for your support and encouragement! Thanks esp. to the one who sent links to audio help available! I'm afraid the voc rehab laughed when I talked to them-too many things wrong to work. I try to do some small good by clicking on site that done books to other, food, etc just by clicking on "buttons" everyday. I am saddened to think that one of my capabilities-and they are still many!-should be essentially housebound and without means to volunteer at the local library. Anyone know of volunteer work that can be done at home?
Lady_Wu

WingsOnFire · 05-04-2010, 06:37 PM

I will keep you in my thoughts and prayers... I hope you find the help that you need and continue to take the strength and love given here...

NJFemmie · 05-21-2010, 07:47 AM

Wow, I just saw this thread.

Years ago, I suffered from a disease called papiledema. One of the effects of this was that it damaged the optic nerves and ultimately causes blindness. I was fortunate in that I caught it in time and have been asymptomatic for many years now. But this just makes me sad.

You're in my thoughts and prayers.

05-02-2010, 01:50 PM	#1
Lady_Wu Member How Do You Identify?: OFOS Queer Stone femme Preferred Pronoun?: M'Lady Relationship Status: given up looking sigh Join Date: Apr 2010 Location: somewhere buried under a pile of books Posts: 197 My Photo Gallery Thanks: 285 Thanked 300 Times in 105 Posts Rep Power: 155956	Need some support-losing an eye.... I went to see my eye doctor Thursday. He told me that I have 1 tenth of my optic nerve left in my right eye, plus cataracts in both eyes. He also said that soon I would lose all vision in my right eye, b/c the optic nerve is so damaged that the little left won't support my vision. I have MS. That, plus the medication I have to be on FOR MS, is destroying that optic nerve. And he can't say that my other eye won't be affected when I have to rely on just it. reading and studying are the biggest part of my life. I now have to restrict my read/computer time to one hour every six hours. I am dealing with this but it is not easy. Thank you for listening to me. Lady_Wu __________________ I'm the Yin in the Yang and the Yang in the Yin.

05-02-2010, 02:09 PM	#2
Darth Denkay Member How Do You Identify?: Butch Preferred Pronoun?: I'm good with whatever Relationship Status: in love and loved Join Date: Oct 2009 Location: Tennessee (Memphis, from Chattanooga) Posts: 315 My Photo Gallery Thanks: 456 Thanked 463 Times in 150 Posts Rep Power: 891935	(((Lady-Wu))) I can't imagine what you are facing right now. Just know you are in my thoughts, keep dealing the best you can, know you are loved. __________________ Darth

05-02-2010, 02:22 PM	#3
WolfyOne Magically Delicious How Do You Identify?: Gentle Butch Relationship Status: Single and content Join Date: Nov 2009 Location: Minnesota Posts: 6,558 My Photo Gallery Thanks: 22,052 Thanked 15,399 Times in 4,140 Posts Rep Power: 21474858	Lady Wu, I'll keep you in my thoughts and prayers for all you're going through not just your eye. Not many know this about me, but I have a blind spot in my left eye from birth or so I've been told. There are things I've never been able to adapt to and other things I can breeze by. I have no depth perception, so I can't use some power tools, like saws. I can't play tennis and gosh knows I've tried since I was a kid. Anyhow, perhaps it'll be an adjustment for you, but don't let the eye doctor scare you. Keep doing what you do even if you need strong lenses in glasses. I mean, don't give up the fight just because of one doc's evaluation. Maybe with some research, you may find another doc that can help you better. There's always new procedures coming out to make our lives a little easier. __________________ Being deeply loved by someone gives you strength; loving someone deeply gives you courage --- Lao Tzo

05-02-2010, 02:58 PM	#4
FullCircle Junior Member How Do You Identify?: Just a girl Relationship Status: Married Join Date: Apr 2010 Location: Atlanta Posts: 5 My Photo Gallery Thanks: 26 Thanked 26 Times in 5 Posts Rep Power: 0	You may want to consider consuming mass doses of omega III fatty acids perhaps in the form of a high quality krill oil. I was able to reduce the need for reading glasses and I'll be fifty this year. Other side effects of taking krill are a more flexible thought process, hormone regulation (less hot flashes), shrinking tumors, increased ability to withstand extreme cold and gorgeous skin. -e __________________ The greatest gift that you could give to anyone you love is the gift of positive expectation.

05-02-2010, 03:00 PM	#6
Queerasfck Senior Member How Do You Identify?: still ballin' Relationship Status: Triple X Join Date: Nov 2009 Location: west side Posts: 2,544 My Photo Gallery Thanks: 5,716 Thanked 6,492 Times in 1,638 Posts Rep Power: 21474854	Will keep in you in our thoughts. Sending out good wishes to you young lady. Best of luck. __________________ http://www.advertisingarchives.co.uk...28750fb328.jpg

05-02-2010, 03:00 PM	#5
Andrew, Jr. Timed Out How Do You Identify?: Me Preferred Pronoun?: He Relationship Status: Unavailable Join Date: Nov 2009 Location: Over the Rainbow in a House Posts: 5,072 My Photo Gallery Thanks: 16,004 Thanked 5,250 Times in 2,217 Posts Rep Power: 0	Lady Wu, You are in my thoughts and prayers. Please check your pm messages. Peace and love, Andrew, Dino, and Gang

05-02-2010, 03:10 PM	#7
Cyclopea Member How Do You Identify?: Butch Lesbian Join Date: Nov 2009 Location: Exit Zero Posts: 1,267 My Photo Gallery Thanks: 1,694 Thanked 1,615 Times in 632 Posts Rep Power: 226200	So sorry for your troubles ((((((Lady Wu))))))... Will keep you in my thoughts and prayers. Hang in there hon. __________________ http://forum.axishistory.com/images/...arious/eye.jpg

05-02-2010, 03:19 PM	#8
Lady Pamela Senior Member How Do You Identify?: A Lady..Femme..Free Spirit with a touch of survivalist woman in me. Preferred Pronoun?: Spiritual Warrior..She Ra..Baby Doll, or anything close..ha! Relationship Status: In perfect love and perfect trust I believe that will be directed..for now Just friends in my life. Join Date: Mar 2010 Location: Live in Utah but take trips to Arkansas. Plan to move there eventually. Posts: 2,579 My Photo Gallery Thanks: 11,073 Thanked 5,940 Times in 1,609 Posts Rep Power: 21474854	Many hugs to you (((Lady-Wu))) !!! Know that there are people out here concerned and in your corner. __________________ Believe what people show you the first time. It will keep you in balance, and will show you truth! ~~ Author unknown ~~ When negative thoughts come to mind, Let them die stillborn. Speak and do posotive in any situation, And watch your dreams grow and flurish. If you can't say anything posotive, Zip it up. Do not give birth to that which you do not want to see grow. See it, Believe it, Own it, Have it! ~~ Lady Pamela ~~

05-02-2010, 03:30 PM	#9
Jedi Member How Do You Identify?: Butch Preferred Pronoun?: she Relationship Status: they are my world Join Date: Nov 2009 Location: In a galaxy far, far away Posts: 959 My Photo Gallery Thanks: 1,002 Thanked 1,732 Times in 544 Posts Rep Power: 12678953	Lady_Wu, I'm sorry for what's happening. I will keep you in my thoughts and prayers. My father had soem eye surgery this year. In August...his eye still isn't right and might not ever be. I have been experiencing some symptoms that my retina may be detaching. My eye is fine though. I have just had 2 scary blind episodes (I'll explain if you want). My roommate has MS and is in a wheelchair and I think this year I'm doing the MS walk. She is a great inspiration. I will keep you in my thoughts and prayers..... Jedi

05-02-2010, 04:34 PM	#10
SoftSilver Infamous Member How Do You Identify?: femme Preferred Pronoun?: she Relationship Status: Married Join Date: Nov 2009 Location: rose cottage Posts: 5,592 My Photo Gallery Thanks: 8,948 Thanked 15,911 Times in 4,062 Posts Rep Power*: 21474857	Lady Wu...it is indeed frightening when your eyes are damaged. I have had 11 surgeries between both eyes for retinal detachment, and two corneal surgeries to correct corneal warping. It appears I need another one of the latter sometime soon. One of the things I would suggest is to contact your bureau of vocational rehab. Their job is to keep you employable. If you need any adaptive tools, they can help you get them. They can also help pick up the cost of your education and purchase your textbooks in large print or audio. They have helped me and it was a saving grace. They even paid for my one set of surgeries because I was in between insurances and had I not had it done at the time, I would surely have gone blind. __________________ Pole bachit, a lis chuye. The field sees, the forest hears

05-02-2010, 06:03 PM	#13
weatherboi Infamous Member How Do You Identify?: Owned boy Preferred Pronoun?: Hey boy!!! Relationship Status: counting freckles slowly under Her direction!!! Join Date: Nov 2009 Location: i have 2 sets of geographic coordinates!!! Posts: 6,097 My Photo Gallery Thanks: 26,797 Thanked 12,549 Times in 2,993 Posts Rep Power: 21474858	hey Lady_Wu- i will be thinking about you and this difficult journey!!! my words fall short to my feelings for your situation!! you will be in my thoughts on the daily!!

05-02-2010, 06:15 PM	#14
Abigail Crabby Senior Member How Do You Identify?: Queer Femme Preferred Pronoun?: Princess Relationship Status: Single, but sociable Join Date: Nov 2009 Location: Mount Airy, NC Posts: 4,226 My Photo Gallery Thanks: 14,554 Thanked 9,668 Times in 2,484 Posts Rep Power: 21474856	(((( Lady Wu )))) I'm so sorry to hear about what you are facing. __________________ Let us be grateful to people who make us happy, they are the charming gardeners who make our souls blossom. Marcel Proust Turns whatever happens to you into a positive...

05-02-2010, 06:32 PM	#15
Blaze Senior Member How Do You Identify?: With my drivers Lic. Preferred Pronoun?: Gentleman.. Depends on the Situation. Relationship Status: Last Rodeo, what a ride, many sunrises & sunsets to be had... Join Date: Nov 2009 Location: where a realtor had me sign the dotted line Posts: 1,901 My Photo Gallery Thanks: 6,466 Thanked 5,458 Times in 1,450 Posts Rep Power: 21474853	I am very saddened to hear of this Lady Wu... My deepest heart felt prayers will be for you. It is not news that anyone wants to hear, but in life it happens. Have you also made it a point to get another opinion??? Just asking because I was diagnosed with one thing and went to another Doctor and he said it was treatable with eye drops and or laser surgery.

05-02-2010, 07:14 PM	#16
key Member How Do You Identify?: androgynous, gender-queer, butch Preferred Pronoun?: depends on person addressing me Relationship Status: merrily single hopefully married one day Join Date: Jan 2010 Location: san francisco, ca and chama, nm Posts: 197 My Photo Gallery Thanks: 59 Thanked 430 Times in 136 Posts Rep Power: 885764	Lady Wu You are in my thoughts and prayers. Key __________________ http://i43.photobucket.com/albums/e3...ariation6t.jpg

05-04-2010, 06:25 PM	#18
Lady_Wu Member How Do You Identify?: OFOS Queer Stone femme Preferred Pronoun?: M'Lady Relationship Status: given up looking sigh Join Date: Apr 2010 Location: somewhere buried under a pile of books Posts: 197 My Photo Gallery Thanks: 285 Thanked 300 Times in 105 Posts Rep Power: 155956	Ganzi,ganzi! (Many,many thanks!) I have read all of your posts. Thank you so much for your support and encouragement! Thanks esp. to the one who sent links to audio help available! I'm afraid the voc rehab laughed when I talked to them-too many things wrong to work. I try to do some small good by clicking on site that done books to other, food, etc just by clicking on "buttons" everyday. I am saddened to think that one of my capabilities-and they are still many!-should be essentially housebound and without means to volunteer at the local library. Anyone know of volunteer work that can be done at home? Lady_Wu __________________ I'm the Yin in the Yang and the Yang in the Yin.

05-04-2010, 06:37 PM	#19
WingsOnFire Senior Member How Do You Identify?: Queer..femme.. .babygirl...girl Preferred Pronoun?: Female Ones... Relationship Status: Enjoying life but ready to meet someone Join Date: Nov 2009 Location: Portland Oregon Posts: 3,945 My Photo Gallery Thanks: 12,015 Thanked 12,476 Times in 3,357 Posts Rep Power: 21474855	I will keep you in my thoughts and prayers... I hope you find the help that you need and continue to take the strength and love given here...

05-21-2010, 07:47 AM	#20
NJFemmie Senior Member How Do You Identify?: The original lime-twisted femme Preferred Pronoun?: I answer to most things, especially lesbian. Relationship Status: Still loving my Mare ;) Join Date: Nov 2009 Location: New Jersey Posts: 4,683 My Photo Gallery Thanks: 1,343 Thanked 11,420 Times in 2,976 Posts Rep Power: 21474855	Wow, I just saw this thread. Years ago, I suffered from a disease called papiledema. One of the effects of this was that it damaged the optic nerves and ultimately causes blindness. I was fortunate in that I caught it in time and have been asymptomatic for many years now. But this just makes me sad. You're in my thoughts and prayers. __________________