Restless Leg Syndrome

SimpleAlaskanBoy · 07-15-2011, 10:45 AM

Just reaching out to the community to see if anyone deals with this, or sleep disorder issues..I was diagnosed with restless leg syndrome and sleep apnea back in ummmm April? The apnea comes and goes, but the restless leg syndrome is driving me crazy. I'm tired now, it's 12:40 in the afternoon and I haven't slept yet. Even now my legs feel all tingly and HAVE to move.
I was prescribed a CPAP machine, I've just been too busy with life to have home health over here to teach me how to use one. Plus I am rarely sleeping in the bedroom due to having no a/c in there.
I just want to know that I'm not alone, or maybe some tips to cope with the uncomfortable sensations as I am getting settled..most times I just flop around or kick or get up to rub my legs but that only helps for a little while.
Thanks for reading,
~SAB

Andrea · 07-15-2011, 11:24 AM

Restless Leg Syndrome: for me it has always been the side effect of medication I was taking, so by lowering the dose, or finding an alternate med, I found relief. I realize not everyone suffers from RLS due to medication but it is something to consider. Note: I had a doctor tell me the meds could not be responsible so I fired him and found another doctor that at least considered it and changed my medication with a great improvement.

Sleep Apnea: My honey has sleep apnea. DO NOT put off using the CPAP any longer. You are damaging your heart and stressing out your entire body. This is not a situation to take lightly. Move the CPAP machine with you when you sleep elsewhere. We had a good friend die because he had a new relationship and didn't want to use his CPAP machine while sleeping with her.

girl_dee · 07-15-2011, 02:11 PM

I am a Reflexologist who has worked with clients affected by this. Try it! It seemed to help them and I had great feedback regarding relief.

princessbelle · 07-15-2011, 03:01 PM

Andrea has a great point. Lots of medications cause RLS. Some as simple as Phenergan which is a commonly used drug for nausea. You say you saw the doc and he/she said that is what it is? Did they not prescribe meds for it? There are meds out there just for RLS. Are you diabetic? There could be many reasons this is happening but you need to let your doc know, figure out why it is happening and THEN treat it.

My heart goes out to you. It is misreable. Get back to that doc and demand some meds/change of meds or get a new doc. In this day and time, noone should have to suffer.

And as a Home Health Nurse, call them. We aren't so bad and you need to get on that CPAP or you may not wake up. It's a serious condition. You know that. Make the time.

Sending you healing light and a tsk tsk.

Corkey · 07-15-2011, 03:03 PM

If you can find a good masseuse it will do you wonders for the RLS. Also I've found when I take potassium once a day it helps with the must move feeling in my legs, it does help also with fluid retention. USE your CPAP, move it to where you are sleeping. You can get how to use instructions online. Google is a good resource.

Mr.Nobody · 07-15-2011, 07:43 PM

I to have RLS. If you have a walgreens close by they sell some stuff called Restfull Legs. If not Corky suggested potassium which I get in the form of a banana but I am sure a supplement will work too. Try a big glass if milk, if you drink milk, just before bed.
My sister had serious sleep apnea. Her doctors shaved down her uvula and some of the back of her throat (I am sure there is some medical terminology for this procedure) and she has the whole house now gets to sleep peacefully.
Best of luck to you...

P.S.
banana is kind of a hard word to STOP spelling!

Rockinonahigh · 07-15-2011, 08:03 PM

I have had twitches for a lifetime,if im up and doing someithing it rarley bothers me ,but let me sit still or go to bed it starts,I take a 5mg flexerill that helps a lot.

07-15-2011, 10:45 AM	#1
SimpleAlaskanBoy Member How Do You Identify?: Bisexual trans guy Preferred Pronoun?: He Relationship Status: Daddy to a sweet daisy. Join Date: Mar 2010 Location: O-H-I-O Posts: 410 My Photo Gallery Thanks: 1,426 Thanked 1,010 Times in 295 Posts Rep Power: 5996528	Restless Leg Syndrome Just reaching out to the community to see if anyone deals with this, or sleep disorder issues..I was diagnosed with restless leg syndrome and sleep apnea back in ummmm April? The apnea comes and goes, but the restless leg syndrome is driving me crazy. I'm tired now, it's 12:40 in the afternoon and I haven't slept yet. Even now my legs feel all tingly and HAVE to move. I was prescribed a CPAP machine, I've just been too busy with life to have home health over here to teach me how to use one. Plus I am rarely sleeping in the bedroom due to having no a/c in there. I just want to know that I'm not alone, or maybe some tips to cope with the uncomfortable sensations as I am getting settled..most times I just flop around or kick or get up to rub my legs but that only helps for a little while. Thanks for reading, ~SAB __________________ "Eeyup."-Big Macintosh, MLP:FiM <-----Pocky Jedi "There's only one rule I know of babies-G-d damn it, you've got to be kind." -Kurt Vonnegut (G-d Bless You, Mr. Rosewater)

07-15-2011, 11:24 AM	#2
Andrea Senior Member How Do You Identify?: Mature Femme Preferred Pronoun?: Her/She Relationship Status: I heart Rene Join Date: Dec 2009 Location: California Posts: 3,755 My Photo Gallery Thanks: 15,427 Thanked 14,939 Times in 3,022 Posts Rep Power: 21474850	Restless Leg Syndrome: for me it has always been the side effect of medication I was taking, so by lowering the dose, or finding an alternate med, I found relief. I realize not everyone suffers from RLS due to medication but it is something to consider. Note: I had a doctor tell me the meds could not be responsible so I fired him and found another doctor that at least considered it and changed my medication with a great improvement. Sleep Apnea: My honey has sleep apnea. DO NOT put off using the CPAP any longer. You are damaging your heart and stressing out your entire body. This is not a situation to take lightly. Move the CPAP machine with you when you sleep elsewhere. We had a good friend die because he had a new relationship and didn't want to use his CPAP machine while sleeping with her. __________________ I am very spoiled! What we think about and thank about, we bring about! Today I will treat my body with love and respect.

07-15-2011, 03:01 PM	#4
princessbelle Infamous Member How Do You Identify?: femme Preferred Pronoun?: femme ones Join Date: Nov 2009 Location: Tennessee Posts: 6,100 My Photo Gallery Thanks: 29,380 Thanked 30,496 Times in 5,198 Posts Rep Power: 21474858	Andrea has a great point. Lots of medications cause RLS. Some as simple as Phenergan which is a commonly used drug for nausea. You say you saw the doc and he/she said that is what it is? Did they not prescribe meds for it? There are meds out there just for RLS. Are you diabetic? There could be many reasons this is happening but you need to let your doc know, figure out why it is happening and THEN treat it. My heart goes out to you. It is misreable. Get back to that doc and demand some meds/change of meds or get a new doc. In this day and time, noone should have to suffer. And as a Home Health Nurse, call them. We aren't so bad and you need to get on that CPAP or you may not wake up. It's a serious condition. You know that. Make the time. Sending you healing light and a tsk tsk. __________________ ~ I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel. ~ Maya Angelou

07-15-2011, 03:03 PM	#5
Corkey Infamous Member How Do You Identify?: Human Preferred Pronoun?: He Relationship Status: Very Married Join Date: Dec 2009 Location: Where I want to be Posts: 8,155 My Photo Gallery Thanks: 47,491 Thanked 29,270 Times in 6,637 Posts Rep Power: 21474859	If you can find a good masseuse it will do you wonders for the RLS. Also I've found when I take potassium once a day it helps with the must move feeling in my legs, it does help also with fluid retention. USE your CPAP, move it to where you are sleeping. You can get how to use instructions online. Google is a good resource. __________________ "Many proposals have been made to us to adopt your laws, your religion, your manners and your customs. We would be better pleased with beholding the good effects of these doctrines in your own practices, than with hearing you talk about them". ~Old Tassel, Chief of the Tsalagi (Cherokee)

07-15-2011, 07:43 PM	#6
Mr.Nobody Member How Do You Identify?: Niizh manidoowag... Preferred Pronoun?: I prefer amature nouns Relationship Status: Single Join Date: Nov 2009 Location: Texas Posts: 840 My Photo Gallery Thanks: 370 Thanked 1,528 Times in 536 Posts Rep Power: 15623423	I to have RLS. If you have a walgreens close by they sell some stuff called Restfull Legs. If not Corky suggested potassium which I get in the form of a banana but I am sure a supplement will work too. Try a big glass if milk, if you drink milk, just before bed. My sister had serious sleep apnea. Her doctors shaved down her uvula and some of the back of her throat (I am sure there is some medical terminology for this procedure) and she has the whole house now gets to sleep peacefully. Best of luck to you... P.S. banana is kind of a hard word to STOP spelling! __________________ Noblesse oblige...

07-15-2011, 02:11 PM	#3
girl_dee Practically Lives Here How Do You Identify?: Femme Preferred Pronoun?: dee Relationship Status: Hitched up Join Date: Nov 2009 Location: Livin’ the Dream Posts: 24,079 My Photo Gallery Thanks: 30,560 Thanked 54,833 Times in 13,908 Posts Rep Power: 21474873	I am a Reflexologist who has worked with clients affected by this. Try it! It seemed to help them and I had great feedback regarding relief.

07-15-2011, 08:03 PM	#7
Rockinonahigh Senior Member How Do You Identify?: stone butch Preferred Pronoun?: makes no diffrence,I know who I am. Relationship Status: single,maybe looking if the right person comes along. Join Date: Dec 2009 Location: shreveport,Louisiana Posts: 4,907 My Photo Gallery Thanks: 4,682 Thanked 14,933 Times in 3,938 Posts Rep Power: 21474856	I have had twitches for a lifetime,if im up and doing someithing it rarley bothers me ,but let me sit still or go to bed it starts,I take a 5mg flexerill that helps a lot.