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Old 07-28-2010, 11:13 PM   #1
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Hey Scorp -

I've been through something similar with both of my parents. It is, truly, the hardest thing I've ever done yet something that I'm grateful for having experienced. Treasure the moments that you can. Pray hard. And, hold tight to her hand, it's good for you both.

I, also, would encourage you to take extra good care of yourself during this time. It's not selfish.

My thoughts, prayers, woo and white light are with you and your family.

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Old 07-29-2010, 12:52 AM   #2
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OH honey. I'm glad you have a supportive partner. It's incredibly hard to go through this. You've gotten some great advice about making sure you take care of yourself. I spend two weeks in the hospital with my mother. I mean I lived in her room with her. She was not where your mom is.

It's one of the hardest things I think we can go through--to see the person who represented so much to us deteriorate and know there is not a single damned thing we can do to stop it.

My mom had End Stage Renal Disease as well. They put her on the transplant list only to find that she had inoperable cancer. It's not easy. I totally get your prayers. They are not wrong. Do not blame yourself for those emotions, honey. They are real. They are valid.

Just more hugs in general.
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Old 07-29-2010, 01:02 AM   #3
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My heart goes out to you. I think you've gotten some great advice from people already and all I can do is share what worked for me and what was the hardest when I lost my mother last year. I was her primary caretaker for the last six months of her life and was completely exhausted for most of that time. She had multiple chronic illnesses and was grieving the death of my father who died in 2007. She lost her will to live and my brothers and I struggled on a daily basis with trying to lift her spirits, urging her to eat one more bite, to try getting out of bed, to see at least some beauty and hope in the world. At a certain point I made the transition to just being her advocate, even when I didn't agree with what she wanted. Putting those opposing feelings in separate compartments in my head and heart was difficult. I wanted her to live, she wanted to die and be with my father.

I don't know where your mother is in this process and I'm sure she can't even think about much beyond her pain, but I urge you to focus on two things.

The first is being her advocate-- find out what she wants and make sure that everyone on her medical treatment team knows it. Make sure she gets her pain meds on time, make sure she gets them prior to any planned moves (ie going to have tests done, daily hygiene from nursing staff). Make sure that everyone in your family knows what she wants and are willing to help her or that they respect her enough to not keep her from what she wants and needs. Even if that means that at some point in the future, God forbid, she just wants to die with dignity.

The second thing I hope you and your brother focus on is taking care of yourselves. You need to sleep, take vitamins, become a hand sanitizer freak at the hospital so that you don't catch anything, work out a schedule between friends and family so that everyone who loves her commits to times that they will sit with her and make sure her treatment plan is being followed.

I can't say I know how you feel because everyone's situation is unique. But I do know how I felt and what worked and what didn't. I wish you peace and I wish your mother comfort and freedom from pain.

Unn
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Old 07-29-2010, 04:26 AM   #4
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((((((Scorp))))))) I'll keep you and your Mom in my prayers.
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Old 07-29-2010, 06:06 AM   #5
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Daily dose of love for you Scorp. xoxo
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