Cancer Support and Caregivers Who Are Trail Blazers!

Novelafemme · 01-19-2012, 04:50 PM

HUGE Sigh of relief!!!!!!

Just got back from the oncologist and my partner's CA125 was THIRTEEN!!! WOHOO!!! He did a pelvic exam and found no swollen or enlarged tissue or nodes. He feels 99.99999% sure she is cancer free!!! WOHOO!! We were all jumping up and down and hugging and crying.

We are so blessed and I am so thankful to have this support group here.

I didn't sleep well last night in anticipation of today so I'm gonna rest my eyes.

Lots of love, Novela

clay · 01-19-2012, 06:06 PM

Quote:

Originally Posted by Novelafemme

HUGE Sigh of relief!!!!!!

Just got back from the oncologist and my partner's CA125 was THIRTEEN!!! WOHOO!!! He did a pelvic exam and found no swollen or enlarged tissue or nodes. He feels 99.99999% sure she is cancer free!!! WOHOO!! We were all jumping up and down and hugging and crying.

We are so blessed and I am so thankful to have this support group here.

I didn't sleep well last night in anticipation of today so I'm gonna rest my eyes.

Lots of love, Novela

WhoooHooo, Novela!! THAT is awesome!!!! She made cancer her bitch, also..that is what debby & I say. My oncologist LOVED it and wants it on a shirt for her to wear!!!
Congrats.....I am so thrilled to hear this...we are ALL BRAVE WARRIORS!! Rock it, GF!!...much love and blessings...Clay

DapperButch · 01-19-2012, 07:04 PM

Quote:

Originally Posted by Novelafemme

HUGE Sigh of relief!!!!!!

Just got back from the oncologist and my partner's CA125 was THIRTEEN!!! WOHOO!!! He did a pelvic exam and found no swollen or enlarged tissue or nodes. He feels 99.99999% sure she is cancer free!!! WOHOO!! We were all jumping up and down and hugging and crying.

We are so blessed and I am so thankful to have this support group here.

I didn't sleep well last night in anticipation of today so I'm gonna rest my eyes.

Lots of love, Novela

Wonderful! <High fives all around>

JustJo · 01-22-2012, 10:17 AM

Well....we are up and down over here.

Mom has started chemo again...the "modified" chemo she had high hopes for. Turns out it makes her just as sick...and she will still have to have it every 2 weeks....basically for as long as she can stand it.

Right now she is in the first couple days after the treatment....which means lots of sleeping, lots of depression, lots of anger and tears, lots of throwing up, and lots of conversations that are pretty rough on both of us about is it better to live a long time miserably or a short time feeling relatively normal?

Given the level of abdominal pain she has I think the "relatively normal" part is a moot point.

She has not gone back onto the morphine, but has had to up the number of Lortab she takes each day....and is still using the Fentanol (sp?) patches as well.

We have fixed the dehydration problem, which helps...and she is still eating better and managing to keep the weight up (after a brief issue when she got overly cocky and ate salad and pizza in the same day). Her goal is to hit 130 lbs so she can go off the TPN and get the Pict line out.

Evidently the issue, for her, is that she is literally freckled inside with punctate lesions all over the external tissue of the small intestine, liver and kidneys. These are cancer, but can stay "dormant" (for lack of a better term) indefinitely...perhaps longer with chemo although they can't tell us that for sure....or can become active and develop into tumors at any point.

The only procedure that is possible is called a "belly bath" or "belly wash"....and she is in no way strong enough to survive it. Even with the procedure....chances are it won't eliminate the problem. Her doctors don't recommend that she have it, at this point anyway, because she is more likely to die on the table than have it help her.

Right now....it's one day at a time....a little better now that she can eat and drink....but still very, very rough.

clay · 01-22-2012, 10:28 AM

hugs to Jo & mom...keeping you both in thoughts and prayers!
HEAVENLEAH: I am walking with you, my dear sweet friend!!! Much love & prayers...with you & with Jacob! Keep in touch with me....sending you healing energies and white light of peace....my friend! love you & Jacob!!!
To everyone...big hugs...and hoping everyone has an awesome week!! I heart you all! Clay

Heavenleahangel · 01-22-2012, 05:35 PM

It's a little over 12 hours and I go to the treamtent center for my first round. I have talked myself out of taking the cbemo atleast 4-5 times. I think I can get past the bone issues without it. As I was cooking for my Dad's bday dinner today, I accidently put my weight on my right foot and I heard a "pop" really loud and a burst of pain that lit me up like I was on fire! My ankle popped and I am pretty sure I broke the ankle. I will keep everyone posted on my progress tomorrow. Please keep the prayers coming...my faith is a little low right now....

mustangjeano · 01-22-2012, 10:02 PM

Quote:

Originally Posted by Heavenleahangel

It's a little over 12 hours and I go to the treamtent center for my first round. I have talked myself out of taking the cbemo atleast 4-5 times. I think I can get past the bone issues without it. As I was cooking for my Dad's bday dinner today, I accidently put my weight on my right foot and I heard a "pop" really loud and a burst of pain that lit me up like I was on fire! My ankle popped and I am pretty sure I broke the ankle. I will keep everyone posted on my progress tomorrow. Please keep the prayers coming...my faith is a little low right now....

OMG Heavenleah, I was thinking about you just a little while ago and sending healing energy for a smooth and uneventful chemo appt. tomorrow. I wonder if they will postpone the chemo if you have a broken ankle. Do you have someone going with you? Yes, please keep us updated. Sending prayers to you now and tomorrow.
Jean

SweetJane · 01-22-2012, 10:28 PM

Heaveanleahangel,
I put your name on the Unity prayer list. It's prayed over locally for 30 days and then to Silent Unity for another 30.

I will keep you in my prayers myself.

mustangjeano · 01-22-2012, 10:08 PM

Quote:

Originally Posted by JustJo

Well....we are up and down over here.

Mom has started chemo again...the "modified" chemo she had high hopes for. Turns out it makes her just as sick...and she will still have to have it every 2 weeks....basically for as long as she can stand it.

Right now she is in the first couple days after the treatment....which means lots of sleeping, lots of depression, lots of anger and tears, lots of throwing up, and lots of conversations that are pretty rough on both of us about is it better to live a long time miserably or a short time feeling relatively normal?

Given the level of abdominal pain she has I think the "relatively normal" part is a moot point.

She has not gone back onto the morphine, but has had to up the number of Lortab she takes each day....and is still using the Fentanol (sp?) patches as well.

We have fixed the dehydration problem, which helps...and she is still eating better and managing to keep the weight up (after a brief issue when she got overly cocky and ate salad and pizza in the same day). Her goal is to hit 130 lbs so she can go off the TPN and get the Pict line out.

Evidently the issue, for her, is that she is literally freckled inside with punctate lesions all over the external tissue of the small intestine, liver and kidneys. These are cancer, but can stay "dormant" (for lack of a better term) indefinitely...perhaps longer with chemo although they can't tell us that for sure....or can become active and develop into tumors at any point.

The only procedure that is possible is called a "belly bath" or "belly wash"....and she is in no way strong enough to survive it. Even with the procedure....chances are it won't eliminate the problem. Her doctors don't recommend that she have it, at this point anyway, because she is more likely to die on the table than have it help her.

Right now....it's one day at a time....a little better now that she can eat and drink....but still very, very rough.

Jo, I can only imagine how terribly hard this time is for your Mom and you. Keeping you in my thoughts and prayers.

SweetJane · 01-22-2012, 10:40 PM

JustJo,

I'm keeping you in prayer, too.

Heavenleahangel · 01-23-2012, 11:43 AM

I'm in the middle of my first round and so far, its not too bad. I'm waiting for the "bad" part, lol. I'm here alone (the one who *promised* me yesterday to be here for me today bailed out on me and I found out they weren't being truthful with me), but hey, I'm a fighter and will get over it. I can tough this out alone. I have others I can call/text and I know they will be here for me and all the support from my BFP peeps! Thank you so much!!!

clay · 01-23-2012, 11:59 AM

Quote:

Originally Posted by Heavenleahangel

I'm in the middle of my first round and so far, its not too bad. I'm waiting for the "bad" part, lol. I'm here alone (the one who *promised* me yesterday to be here for me today bailed out on me and I found out they weren't being truthful with me), but hey, I'm a fighter and will get over it. I can tough this out alone. I have others I can call/text and I know they will be here for me and all the support from my BFP peeps! Thank you so much!!!

Heavenleahangel...I am so sorry about the one who bailed...and YES you do have others to lean on!!! Stay strong, stay strong & focused!!! What did they say about that ankle...is it broken??? Sending you big hugs and mega tons of white light and energy..from one who fought hard and won...as can you!!! Stay in touch..k...Clay

mustangjeano · 01-19-2012, 10:23 PM

Quote:

Originally Posted by Novelafemme

HUGE Sigh of relief!!!!!!

Just got back from the oncologist and my partner's CA125 was THIRTEEN!!! WOHOO!!! He did a pelvic exam and found no swollen or enlarged tissue or nodes. He feels 99.99999% sure she is cancer free!!! WOHOO!! We were all jumping up and down and hugging and crying.

We are so blessed and I am so thankful to have this support group here.

I didn't sleep well last night in anticipation of today so I'm gonna rest my eyes.

Lots of love, Novela

EXCELLENT NEWS. Thank you for sharing it with us.

JustBeingMe · 01-20-2012, 02:40 AM

My uncle's Neuroblastoma brain cancer came back again. He was cancer free for 6 yrs until this last 6 month check up. He had surgery a few days ago, just got home from the hospital Tues. He's eating well, and walking around but his gait is not stable nor is the usage of his left hand and arm. His neurosurgeon was able to save his eyesight, otherwise he would have gone blind and would have NOT done the surgery. He is a very strong man and I love him with all my heart, but he is retired now because of this, otherwise he would still be working as a master carpenter. He's 70 now, and feels like he is worthless and I just try to remind him how much we all love him and that he has a 3 yr old great grand daughter that loves him soo much and that just being around to watch her blossom and grow is a blessing. I don't know what else to say to him. I feel lost when he says to me he feels useless and worthless and says he shouldn't have done the surgery that they should have just put him in the ground already. Breaks my heart to hear him speak like this. Anyone have any suggestions to help me when he is like this? I keep reminding him also that he is the only remaining cancer survivor his doctor has now for the past 6 yrs and how proud of him his doctors are of him. He does everything they tell him to do so he can get well and remain healthy. Thanks for listening to me babble on and on.

Heavenleahangel · 01-20-2012, 05:25 PM

It's Friday evening and sowly, but surely, the fear

and uncertainty of my starting chemo Monday morning is setting in. I have always fought for everything and anything in my life. Whether I fought *for* it or *against* it. Either way, whichever side I was on, I have been a warrior. Now, I am not sure whether I am fighting for it or against it.
The pain in my foot and ankle where the bones are affected is horrendous and there hasn't been anything that has totally eased the pain.
The lioness in me is rallying once more for the fight and will demonstrate my roar Monday morning when I show up at the cancer treatment center of Samaritan Hospital in Troy, NY. Thank you all for the prayers and support everyone has shown so far. I will keep you posted....

clay · 01-20-2012, 05:30 PM

Quote:

Originally Posted by Heavenleahangel

It's Friday evening and sowly, but surely, the fear

and uncertainty of my starting chemo Monday morning is setting in. I have always fought for everything and anything in my life. Whether I fought *for* it or *against* it. Either way, whichever side I was on, I have been a warrior. Now, I am not sure whether I am fighting for it or against it.
The pain in my foot and ankle where the bones are affected is horrendous and there hasn't been anything that has totally eased the pain.
The lioness in me is rallying once more for the fight and will demonstrate my roar Monday morning when I show up at the cancer treatment center of Samaritan Hospital in Troy, NY. Thank you all for the prayers and support everyone has shown so far. I will keep you posted....

Good luck, Heavenleahangel! Still in your corner...YOU can do it....do it for Jacob..do it for YOU! Let the lioness courage and strength raaawwwrrrrrrr...hugs my friend....Clay
Prayers and healing energy coming at you...mega loads!

Midnight · 01-20-2012, 08:14 PM

Quote:

Originally Posted by Heavenleahangel

It's Friday evening and sowly, but surely, the fear

and uncertainty of my starting chemo Monday morning is setting in. I have always fought for everything and anything in my life. Whether I fought *for* it or *against* it. Either way, whichever side I was on, I have been a warrior. Now, I am not sure whether I am fighting for it or against it.
The pain in my foot and ankle where the bones are affected is horrendous and there hasn't been anything that has totally eased the pain.
The lioness in me is rallying once more for the fight and will demonstrate my roar Monday morning when I show up at the cancer treatment center of Samaritan Hospital in Troy, NY. Thank you all for the prayers and support everyone has shown so far. I will keep you posted....

Sending positivity and energy your way

mustangjeano · 01-20-2012, 10:31 PM

There will be a large group with you in spirit. Anxiety and fear are certainly to be expected. Try to do some slow deep breathing when you are feeling that way. Some people try to visualize the chemo as an ally in your defeat of the cancer.
Keeping you in my thoughts and prayers. Jean

SweetJane · 01-21-2012, 01:40 AM

Heavenleahangel,
Mustangjeano is right. We all will be with you on Monday. I'll put you on the Unity prayer list.
Sending out positive energy to you for your peace of mind and for healing.

01-22-2012, 10:17 AM	#4
JustJo Infamous Member How Do You Identify?: pushy broad Preferred Pronoun?: she Relationship Status: Follow your heart; it knows things your mind cannot explain. Join Date: Jan 2010 Location: Southeast corner Posts: 5,633 My Photo Gallery Thanks: 24,417 Thanked 25,403 Times in 4,660 Posts Rep Power: 21474858	Well....we are up and down over here. Mom has started chemo again...the "modified" chemo she had high hopes for. Turns out it makes her just as sick...and she will still have to have it every 2 weeks....basically for as long as she can stand it. Right now she is in the first couple days after the treatment....which means lots of sleeping, lots of depression, lots of anger and tears, lots of throwing up, and lots of conversations that are pretty rough on both of us about is it better to live a long time miserably or a short time feeling relatively normal? Given the level of abdominal pain she has I think the "relatively normal" part is a moot point. She has not gone back onto the morphine, but has had to up the number of Lortab she takes each day....and is still using the Fentanol (sp?) patches as well. We have fixed the dehydration problem, which helps...and she is still eating better and managing to keep the weight up (after a brief issue when she got overly cocky and ate salad and pizza in the same day). Her goal is to hit 130 lbs so she can go off the TPN and get the Pict line out. Evidently the issue, for her, is that she is literally freckled inside with punctate lesions all over the external tissue of the small intestine, liver and kidneys. These are cancer, but can stay "dormant" (for lack of a better term) indefinitely...perhaps longer with chemo although they can't tell us that for sure....or can become active and develop into tumors at any point. The only procedure that is possible is called a "belly bath" or "belly wash"....and she is in no way strong enough to survive it. Even with the procedure....chances are it won't eliminate the problem. Her doctors don't recommend that she have it, at this point anyway, because she is more likely to die on the table than have it help her. Right now....it's one day at a time....a little better now that she can eat and drink....but still very, very rough. __________________ I'm not tall enough to ride emotional roller coasters

01-22-2012, 10:28 AM	#5
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,650 Times in 7,746 Posts Rep Power: 21474865	hugs to Jo & mom...keeping you both in thoughts and prayers! HEAVENLEAH: I am walking with you, my dear sweet friend!!! Much love & prayers...with you & with Jacob! Keep in touch with me....sending you healing energies and white light of peace....my friend! love you & Jacob!!! To everyone...big hugs...and hoping everyone has an awesome week!! I heart you all! Clay __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

01-22-2012, 05:35 PM	#6
Heavenleahangel Member How Do You Identify?: OFOS Femme; Earth bound Angel and Babygirl; Preferred Pronoun?: She, Angel, as long as it's respectful Relationship Status: Waiting for the One who can complete me Join Date: Jul 2010 Location: Albany, NY~but originally from Georgia Posts: 562 My Photo Gallery Thanks: 1,257 Thanked 2,068 Times in 468 Posts Rep Power: 18675555	It's a little over 12 hours and I go to the treamtent center for my first round. I have talked myself out of taking the cbemo atleast 4-5 times. I think I can get past the bone issues without it. As I was cooking for my Dad's bday dinner today, I accidently put my weight on my right foot and I heard a "pop" really loud and a burst of pain that lit me up like I was on fire! My ankle popped and I am pretty sure I broke the ankle. I will keep everyone posted on my progress tomorrow. Please keep the prayers coming...my faith is a little low right now.... __________________ Sweet Georgia Peach

01-23-2012, 11:43 AM	#11
Heavenleahangel Member How Do You Identify?: OFOS Femme; Earth bound Angel and Babygirl; Preferred Pronoun?: She, Angel, as long as it's respectful Relationship Status: Waiting for the One who can complete me Join Date: Jul 2010 Location: Albany, NY~but originally from Georgia Posts: 562 My Photo Gallery Thanks: 1,257 Thanked 2,068 Times in 468 Posts Rep Power: 18675555	I'm in the middle of my first round and so far, its not too bad. I'm waiting for the "bad" part, lol. I'm here alone (the one who promised me yesterday to be here for me today bailed out on me and I found out they weren't being truthful with me), but hey, I'm a fighter and will get over it. I can tough this out alone. I have others I can call/text and I know they will be here for me and all the support from my BFP peeps! Thank you so much!!! __________________ Sweet Georgia Peach

01-20-2012, 02:40 AM	#14
JustBeingMe Senior Member How Do You Identify?: as ME Relationship Status: I don't need no stinking status. Join Date: Mar 2010 Location: somewhere you're not..... Posts: 1,808 My Photo Gallery Thanks: 1,961 Thanked 1,690 Times in 694 Posts Rep Power: 12813870	My uncle's Neuroblastoma brain cancer came back again. He was cancer free for 6 yrs until this last 6 month check up. He had surgery a few days ago, just got home from the hospital Tues. He's eating well, and walking around but his gait is not stable nor is the usage of his left hand and arm. His neurosurgeon was able to save his eyesight, otherwise he would have gone blind and would have NOT done the surgery. He is a very strong man and I love him with all my heart, but he is retired now because of this, otherwise he would still be working as a master carpenter. He's 70 now, and feels like he is worthless and I just try to remind him how much we all love him and that he has a 3 yr old great grand daughter that loves him soo much and that just being around to watch her blossom and grow is a blessing. I don't know what else to say to him. I feel lost when he says to me he feels useless and worthless and says he shouldn't have done the surgery that they should have just put him in the ground already. Breaks my heart to hear him speak like this. Anyone have any suggestions to help me when he is like this? I keep reminding him also that he is the only remaining cancer survivor his doctor has now for the past 6 yrs and how proud of him his doctors are of him. He does everything they tell him to do so he can get well and remain healthy. Thanks for listening to me babble on and on. __________________ Nothing more, Nothing less, I'm Just Being Me

01-19-2012, 04:50 PM	#1
Novelafemme Timed Out - TOS Drama How Do You Identify?: ........ Join Date: Nov 2009 Location: ........ Posts: 2,402 My Photo Gallery Thanks: 4,981 Thanked 8,925 Times in 1,834 Posts Rep Power: 0	HUGE Sigh of relief!!!!!! Just got back from the oncologist and my partner's CA125 was THIRTEEN!!! WOHOO!!! He did a pelvic exam and found no swollen or enlarged tissue or nodes. He feels 99.99999% sure she is cancer free!!! WOHOO!! We were all jumping up and down and hugging and crying. We are so blessed and I am so thankful to have this support group here. I didn't sleep well last night in anticipation of today so I'm gonna rest my eyes. Lots of love, Novela

01-22-2012, 10:28 PM	#8
SweetJane Member How Do You Identify?: stone femme Preferred Pronoun?: she Relationship Status: always solo Join Date: Sep 2011 Location: New Mexico Posts: 368 My Photo Gallery Thanks: 380 Thanked 815 Times in 198 Posts Rep Power: 4309958	Heaveanleahangel, I put your name on the Unity prayer list. It's prayed over locally for 30 days and then to Silent Unity for another 30. I will keep you in my prayers myself.

01-22-2012, 10:40 PM	#10
SweetJane Member How Do You Identify?: stone femme Preferred Pronoun?: she Relationship Status: always solo Join Date: Sep 2011 Location: New Mexico Posts: 368 My Photo Gallery Thanks: 380 Thanked 815 Times in 198 Posts Rep Power: 4309958	JustJo, I'm keeping you in prayer, too.

01-20-2012, 05:25 PM	#15
Heavenleahangel Member How Do You Identify?: OFOS Femme; Earth bound Angel and Babygirl; Preferred Pronoun?: She, Angel, as long as it's respectful Relationship Status: Waiting for the One who can complete me Join Date: Jul 2010 Location: Albany, NY~but originally from Georgia Posts: 562 My Photo Gallery Thanks: 1,257 Thanked 2,068 Times in 468 Posts Rep Power: 18675555	It's Friday evening and sowly, but surely, the fear and uncertainty of my starting chemo Monday morning is setting in. I have always fought for everything and anything in my life. Whether I fought for it or against it. Either way, whichever side I was on, I have been a warrior. Now, I am not sure whether I am fighting for it or against it. The pain in my foot and ankle where the bones are affected is horrendous and there hasn't been anything that has totally eased the pain. The lioness in me is rallying once more for the fight and will demonstrate my roar Monday morning when I show up at the cancer treatment center of Samaritan Hospital in Troy, NY. Thank you all for the prayers and support everyone has shown so far. I will keep you posted.... __________________ Sweet Georgia Peach

01-20-2012, 10:31 PM	#18
mustangjeano Member How Do You Identify?: old school stonebutch, Queer TG butch, ranch hand Preferred Pronoun?: he Relationship Status: single, not looking Join Date: Mar 2011 Location: Northern Ca. Posts: 1,088 My Photo Gallery Thanks: 2,459 Thanked 1,029 Times in 361 Posts Rep Power: 15314317	There will be a large group with you in spirit. Anxiety and fear are certainly to be expected. Try to do some slow deep breathing when you are feeling that way. Some people try to visualize the chemo as an ally in your defeat of the cancer. Keeping you in my thoughts and prayers. Jean __________________ "Your outlook affects your outcome". John Paul Warren

01-21-2012, 01:40 AM	#19
SweetJane Member How Do You Identify?: stone femme Preferred Pronoun?: she Relationship Status: always solo Join Date: Sep 2011 Location: New Mexico Posts: 368 My Photo Gallery Thanks: 380 Thanked 815 Times in 198 Posts Rep Power: 4309958	Heavenleahangel, Mustangjeano is right. We all will be with you on Monday. I'll put you on the Unity prayer list. Sending out positive energy to you for your peace of mind and for healing.

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