Stem Cell/ Bone Marrow Donation

WolfyOne · 08-30-2012, 01:36 PM

I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me

aishah · 08-30-2012, 01:40 PM

i would love to be a donor but am excluded due to my medical conditions (i am listed as an organ donor though). i definitely encourage others who can to donate. i wish i could.

firegal · 08-30-2012, 01:46 PM

Been on the registry for years,was a partial match for lil sis, And for unk person.

Wished i was a complete match.

CherylNYC · 08-30-2012, 04:29 PM

Quote:

Originally Posted by WolfyOne

I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

WolfyOne · 08-30-2012, 06:10 PM

Quote:

Originally Posted by CherylNYC

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

The email didn't say what the justification was. just said I need to be flare up free for a year.

This as those who have IBS, know that, that isn't possible.

thedivahrrrself · 08-30-2012, 06:30 PM

Funny I should run across this thread today. Over the weekend, I found a pack of bandaids at the pharmacy that included a kit for sending in a sample of your blood (when you've cut yourself anyway) to see if you might be a match for someone for a bone marrow donor.

I'd never considered, but I think if I was a match to someone, I'd definitely donate. So, hit up your local walgreens/cvs. they're only like $3, or mine was on sale for 99 cents.

aishah · 08-30-2012, 06:30 PM

Quote:

Originally Posted by CherylNYC

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

they have a huge list on their websites of conditions, disabilities, or life choices that exclude someone from donating (i'm like 3 for 3 i think, LOL). many of them don't seem (to me at least) to make a lot of sense. they don't have to give any justification, though.

Spirit Dancer · 08-31-2012, 06:46 AM

Quote:

Originally Posted by CherylNYC

Really?! IBS disqualifies a person from becoming a donor? I had considered signing up to become a donor, but I'm constantly affected by IBS. What's the justification for excluding those of us with this condition?

Quote:

Originally Posted by WolfyOne

I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me

Wolfy and Cheryl
Eagle Spirit has chemo today, so i'll ask what the reason is and they let you know. It might have to do with the injections to produce more stem cells as it can cause discomfort and possibly bowel distubance for a few days. At any rate we and others appreciate that you even tried to donate.

Spirit Dancer · 08-31-2012, 07:27 PM

We spoke to the hematology oncologist today regarding the stem cell donations and the pre exsisting condition policy, as for the IBS issue it's as i thought the neupogen injections that are given to produce excessive stem cells can also cause some bowel disturbance if you're in a flare up the pain can be worse hence the year free of IBS. Again we all appreciate that those who were so willing to be tested

Tommi · 08-31-2012, 07:36 PM

Quote:

Originally Posted by Spirit Dancer

We spoke to the hematology oncologist today regarding the stem cell donations and the pre exsisting condition policy, as for the IBS issue it's as i thought the neupogen injections that are given to produce excessive stem cells can also cause some bowel disturbance if you're in a flare up the pain can be worse hence the year free of IBS. Again we all appreciate that those who were so willing to be tested

Thanks for the update. I didn't qualify.....
I had one of the cancer's not acceptable, even though it's been 8 years.
.

DapperButch · 08-31-2012, 08:51 PM

Quote:

Originally Posted by Tommi

Thanks for the update. I didn't qualify.....
I had one of the cancer's not acceptable, even though it's been 8 years.
.

It has only been over a year since treatment for me. Seems as though the time doesn't matter, it is the type of cancer. I agree w/better safe than sorry, though.

Hollylane · 08-31-2012, 10:43 PM

Registered and requested the kit...

Spirit Dancer · 03-15-2013, 09:17 PM

~~~~~BuMp~~~~~

08-30-2012, 01:36 PM	#1
WolfyOne Magically Delicious How Do You Identify?: Gentle Butch Relationship Status: Single and content Join Date: Nov 2009 Location: Minnesota Posts: 6,558 My Photo Gallery Thanks: 22,052 Thanked 15,392 Times in 4,138 Posts Rep Power: 21474858	I have been on the bone marrow registry for quite some time now and last week was contacted that I may be a match for someone. Sadly after I told them my IBS has been flaring up and they needed to know that before we went any further, I was told that I have to be free of flare ups for at least a year. I don't see where this is ever going to be possible because I have some really bad flare ups a few times a year. I wonder why they never said that to me when I first signed up and sent my info to them. I'm really bummed that I could have helped someone and they won't let me __________________ Being deeply loved by someone gives you strength; loving someone deeply gives you courage --- Lao Tzo

08-30-2012, 06:30 PM	#6
thedivahrrrself Senior Member How Do You Identify?: Queer Sapiosexual Femme Relationship Status: Mrs. Grumpy Cat Tournaments Won: 4 Join Date: Oct 2011 Location: 8,660 feet high in the Andes Posts: 2,640 My Photo Gallery Thanks: 10,519 Thanked 11,656 Times in 2,292 Posts Rep Power: 21474852	Funny I should run across this thread today. Over the weekend, I found a pack of bandaids at the pharmacy that included a kit for sending in a sample of your blood (when you've cut yourself anyway) to see if you might be a match for someone for a bone marrow donor. I'd never considered, but I think if I was a match to someone, I'd definitely donate. So, hit up your local walgreens/cvs. they're only like $3, or mine was on sale for 99 cents. __________________ Small business owners around the world use microfinance to help expand their businesses and provide for their families. You can help! Click here to learn about Kiva.

08-31-2012, 07:27 PM	#9
Spirit Dancer Senior Member How Do You Identify?: Complex but Tender Preferred Pronoun?: ~Ma`am~ Relationship Status: Shotgun Rider Join Date: Nov 2009 Location: Following the red road Posts: 4,519 My Photo Gallery Thanks: 9,304 Thanked 12,904 Times in 3,466 Posts Rep Power: 21474856	We spoke to the hematology oncologist today regarding the stem cell donations and the pre exsisting condition policy, as for the IBS issue it's as i thought the neupogen injections that are given to produce excessive stem cells can also cause some bowel disturbance if you're in a flare up the pain can be worse hence the year free of IBS. Again we all appreciate that those who were so willing to be tested __________________ “For it was not into my ear you whispered, but into my heart. It was not my lips you kissed, but my soul.” Judy Garland

03-15-2013, 09:17 PM	#13
Spirit Dancer Senior Member How Do You Identify?: Complex but Tender Preferred Pronoun?: ~Ma`am~ Relationship Status: Shotgun Rider Join Date: Nov 2009 Location: Following the red road Posts: 4,519 My Photo Gallery Thanks: 9,304 Thanked 12,904 Times in 3,466 Posts Rep Power: 21474856	*~~~~~BuMp~~~~~* __________________ “For it was not into my ear you whispered, but into my heart. It was not my lips you kissed, but my soul.” Judy Garland

Thread Tools
Show Printable Version Email this Page
Display Modes
Switch to Linear Mode Hybrid Mode Switch to Threaded Mode

08-30-2012, 01:40 PM	#2
aishah Member How Do You Identify?: queer stone femme shark baby girl Preferred Pronoun?: she, her, little one Relationship Status: dating myself. Join Date: Jan 2012 Location: dallas, tx Posts: 1,495 My Photo Gallery Thanks: 13,823 Thanked 6,440 Times in 1,288 Posts Rep Power: 21474851	i would love to be a donor but am excluded due to my medical conditions (i am listed as an organ donor though). i definitely encourage others who can to donate. i wish i could.

08-30-2012, 01:46 PM	#3
firegal Senior Member How Do You Identify?: Butch Preferred Pronoun?: Don't let the gal part of my screen name fool ya I,m ALL butch! Join Date: Jan 2011 Location: Tacoma,Washington Posts: 2,907 My Photo Gallery Thanks: 15,853 Thanked 11,702 Times in 2,469 Posts Rep Power: 21474853	Been on the registry for years,was a partial match for lil sis, And for unk person. Wished i was a complete match.

08-31-2012, 10:43 PM	#12
Hollylane Practically Lives Here How Do You Identify?: . Preferred Pronoun?: . Relationship Status: . Join Date: Jun 2011 Location: . Posts: 11,495 My Photo Gallery Thanks: 34,694 Thanked 26,362 Times in 5,875 Posts Rep Power: 21474862	Registered and requested the kit...