10-08-2012, 07:23 PM | #21 |
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Nice thread, Belle.
I am registered as an organ donor (actually, I'm a whole-body donor for any purpose). I've also been a monthly platelet donor for close to 20 years. I have AB+ blood so my type stocks life flights and nicu's; the American Red Cross keeps in close personal touch. Seriously. If you're proud of being an organ donor but it seems like an awful long time to wait, get into blood donation. You don't have to do apheresis, whole blood is quick and there has to be more time between donations. Well, kiss a nurse! |
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10-08-2012, 07:27 PM | #22 |
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I am, but I won't put it on my DL. My wife knows and so do my folks.
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10-08-2012, 07:37 PM | #23 | |
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Actually, do you know that book? When i took my training for OB at the University of Tennessee, that is where they made us low life undergraduates park: right by the body farm. Oh my on those hot Aug afternoons the smell of decaying bodies sifting through the magnolia blossoms was just ....lovely. Yes Tapu!!! We can donate body pieces/parts while still alive. We all bleed and we all have at least once in our life where we, or someone we know, needs plasma!!! Good point!!!
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10-08-2012, 07:44 PM | #24 |
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Many years ago some friends and I got to see Sekou Sundiata at the Painted Bride in the gayborhood in Philly, he preforming Blessing the Boats, I have no words for how great it was!
blessing the boats is a powerful solo performance that relates Sekou Sundiata's experience with the life-threatening illness of kidney failure and recovery through organ transplant. Diagnosed with kidney disease in 1995, Sekou lived a story familiar to thousands of people and their families. On the national list for a kidney transplant, he received dialysis for a year and half until, in January 1999, he received a kidney donated by his manager and close friend. After nearly a year in and out of the hospital, the transplant finally stabilized in December 1999. Told with honesty and humor, blessing the boats blends the forms of theatrical monologue, literary reading, stand-up comedy, spoken word performance and griot storytelling. A mix of sound, lighting and video underscores this evocative and unsentimental look into a time of profound change when Sundiata was "an exile from the self I had come to know" and the resulting state of unexpected, precious grace. With Sekou Sundiata's poetic voice, which is, in turn, heartfelt, funny, poignant, reflective and irreverent, blessing the boats uses the power of language to encourage and facilitate discussions and thought about health, history, mortality, friendship and love. As a stirring work of theater, blessing the boats has the potential to deeply affect not only people like Sekou, who have faced or are facing a life and death issue each day, but all of us. blessing the boats was directed by Rhodessa Jones, and the artistic team included Roberta Uno (dramaturg), Bill Toles (sound design), Michael Mazzola (lighting design) and Sage Marie Carter (projections design). From 2003-2007, Sekou performed blessing the boats in more than thirty cities across the United States, at university-based theaters, art centers, community centers and health care organizations. Responding to the performance, Catherine Paykin, Transplant Programs Director at the National Kidney Foundation, said: "I was awestruck. This is a fascinating glimpse into the life of a talented actor, poet and musician who happens to be kidney patient. It is a 'must-see' for all who work helping kidney patients and transplant recipients." Sekou Sundiata is committed to using this show to raise public awareness about kidney disease and treatment as well as organ donation and transplantation. In addition to the stage performances, presenters are asked to arrange public symposia and other community activities to expand upon the discourse. MAPP also facilitates partnerships between presenters and organ procurement organizations, transplant centers, and other medical organizations such as the National Kidney Foundation, Minority Organ Tissue Transplant Education Program (MOTTEP), and Coalition on Donation to increase audience attendance and funding possibilities. blessing the boats was a production of Dance & Be Still Arts and MultiArts Projects & Productions (MAPP) and was commissioned by Miami Dade Community College in partnership with the Flynn Center for the Arts and the National Performance Network Creation Fund; the University Musical Society, Ann Arbor, MI; Duke University Institute of the Arts, Durham, NC; and Aaron Davis Hall in partnership with New Heritage Theater Group, New York City. The development of blessing the boats was made possible, in part, by New Works for a New WORLD play development laboratory at New WORLD Theater, University of Massachusetts at Amherst. blessing the boats was also made possible by a grant from The Greenwald Foundation.
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10-08-2012, 07:53 PM | #25 |
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ayup, I am a donor. My sister knows of what I wish for. We usually talk about this at least once a year to make sure nothin has changed
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10-08-2012, 08:03 PM | #26 |
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I am a donor.
As a nurse, all I can say is please, please, PLEASE put your wishes into writing!! I have seen, too many times, family members override the wishes of patients who could not make the decisions for themselves at the moment. If you don't want life support, make SURE you specify that you do NOT want a feeding tube!! I don't know the laws in all the states, however, I do know that in NJ a feeding tube is not considered a "heroic measure" (as in, I do not wish any heroic measures be undertaken to sustain my life). Family members, though well-meaning I am sure, can make the wrong decisions based on emotion or grief...so please, make sure you are specific in your wishes and that they are written and legally documented! Also, if you have a partner that you want making medical decisions for you...make sure you have that legally documented as well!
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Out beyond ideas of wrongdoing and rightdoing there is a field. I'll meet you there ~ Rumi Last edited by always2late; 10-08-2012 at 08:07 PM. |
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10-08-2012, 08:04 PM | #27 |
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Yes, registered organ donor....although what they can use may be limited by my diabetes as well.
When my mother died in April, she had decided to make a whole body donation to research on Crohn's disease and the colon cancer that resulted (and which ultimately killed her). I thought that was that. However, Belle is right. Only hours after the call from the hospital telling me she had died, I got a call from the Organ & Tissue Bank asking for a donation of her eyes. We had never talked about that, and I had a moment of total blankness before I decided to say yes, of course. It's a good thing to talk about, document, and spread the information around. The person who gets that phone call may not be the one you expect to. For me, donate whatever is usable. Cremate the rest. NO burial....and no funeral. I love roses, and roses love ashes. Act accordingly.
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10-08-2012, 08:08 PM | #28 |
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I just read Just_jo's post, and for me. I also said, no burial, no funeral. take what money there is and have the whole family go on a trip. I want ppl to be laughin when they think of me. Remember the good times. Remember my smiles, not the tears.
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10-08-2012, 08:19 PM | #29 |
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yes I am
I wish many of my passed on people had talked about it.
I think it would have given my mother great peace to know that her body was used to study cancer , Or to think of her eyes being out there seeing for someone. She survived breast cancer twice but brain cancer was too fn much She had just buried her mom months earlier from alzheimer's. Both could have been talked into it , with a bit more time. |
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10-08-2012, 08:24 PM | #30 |
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Thanks EVERYONE that have posted!!!! This is wonderful and i'm glad we are talking about this!!!
I looked for a heartfelt poem out there about organ donation and i can't find a good one. But, real life experiences in this, such as JustJo's and Dude's, speak louder than poetry. In a progressive terminal illness, paperwork and legal documentation will let everyone know your wishes. BUT, sometimes and especially if it is an accident, NONE of that will matter. What is most important is VERBAL. Note: WE are talking about organ donation. Not end of life/pull the plug/living will wishes. We can talk about those of course, but they are very different regarding how the real life decisions are made. What will matter is a split second decision that falls upon whoever the Organ Donor people will CALL immediately following death. The person they call, who is established as next of kin, will be given to them by the RN or Doc that notifies them. Who is the next of kin? Whoever they find and can contact. In Tennessee it goes in this order...spouse/child over the age of 18/mother and father/siblings. So EVERYONE has to be told your wishes. Two very different situations here. One the documentation matters, one it really doesn't. So, to cover all of our bases: Document and even MORE importantly spred the word, it's the only way to truly get your wishes carried out.
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10-08-2012, 08:41 PM | #31 |
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To Remember Me
Robert Noel Test (1926-1994) The day will come when my body will lie upon a white sheet neatly tucked under four corners of a mattress located in a hospital; busily occupied with the living and the dying. At a certain moment a doctor will determine that my brain has ceased to function and that, for all intents and purposes, my life has stopped. When that happens, do not attempt to instill artificial life into my body by the use of a machine. And don't call this my deathbed. Let it be called the bed of life, and let my body be taken from it to help others lead fuller lives. Give my sight to the man who has never seen a sunrise, a baby's face or love in the eyes of a woman. Give my heart to a person whose own heart has caused nothing but endless days of pain. Give my blood to the teenager who was pulled from the wreckage of his car, so that he might live to see his grandchildren play. Give my kidneys to the one who depends on a machine to exist from week to week. Take my bones, every muscle, every fiber and nerve in my body and find a way to make a crippled child walk. Explore every corner of my brain. Take my cells, if necessary, and let them grow so that, someday a speechless boy will shout at the crack of a bat and a deaf girl will hear the sound of rain against her window. Burn what is left of me and scatter the ashes to the winds to help the flowers grow. If you must bury something, let it be my faults, my weakness and all prejudice against my fellow man…. If, by chance, you wish to remember me, do it with a kind deed or word to someone who needs you. If you do all I have asked, I will live forever.
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10-09-2012, 05:01 AM | #32 |
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I want to get on the registry for bone marrow donation. I just never get around to it. :/
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10-09-2012, 06:53 AM | #33 |
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i am a donor and it is well known.
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10-09-2012, 07:18 AM | #34 |
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I'm an organ donor. Take everything you need then cremate me. I am also a bone marrow donor. If I can help anyone in that way I am more than willing.
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10-09-2012, 09:13 AM | #35 |
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I have this secret wish to become a classroom skeleton.... I don't think you can specify that, though. Here are some semi-serious thoughts on my last wishes, if you like to read blogs:
http://tapu-tapu-tapu.blogspot.com/2...st-wishes.html |
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10-09-2012, 09:15 AM | #36 | |
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The National Marrow Donor Program® (NMDP), a federally funded nonprofit organization, was created to improve the effectiveness of the search for donors. The NMDP maintains an international registry of volunteers willing to be donors for all sources of blood stem cells used in transplantation: bone marrow, peripheral blood, and umbilical cord blood. The NMDP website contains a list of transplant centers Exit Disclaimer that perform allogeneic transplants. The list includes descriptions of the centers as well as their transplant experience, survival statistics, research interests, pretransplant costs, and contact information. National Marrow Donor Program Suite 100 3001 Broadway Street, NE. Minneapolis, MN 55413–1753 612–627–5800 1–800–627–7692 (1–800–MARROW–2) (Be The Match Registry) 1–888–999–6743 (Be The Match Patient Services) patientinfo@nmdp.org http://www.bethematch.org Exit Disclaimer Of note: When my father had cancer i went in to see if i was a match to donate bone marrow. Surprisingly it didn't hurt as much as i had anticipated. But, i won't lie, it did hurt. I was a match. He just never got well enough to receive it. Sometimes it is about knowing you've done all that you could possibly do. Again, it is everyone's choice. No right or wrong answer here. Life is full of hard decisions and supporting each other is a wonderful way to say " i kinda like ya" LOL.
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10-09-2012, 09:17 AM | #37 |
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Like many others... Donate anything you can. Use what you can for anything else. Do not bury me. Period.
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10-09-2012, 09:58 AM | #38 |
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I am an organ donor, and I am also registered for bone marrow donation...
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10-09-2012, 10:10 AM | #39 | |
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Also, hopefully, it will advertise this very important part of life that will get others thinking!!!!
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10-09-2012, 05:00 PM | #40 | |
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