Cancer Support and Caregivers Who Are Trail Blazers!

[clay]

Originally Posted by deb_U_taunt

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

hey sweetheart....let me know as soon as you hear, k? I am with you!!!
There is the Sister Study...my dec. wife's sister went thru it...
before you were diagnosed, sisters had a 1 in 10 chance of having BC. Now they are at 1 in 5 chance of developing it.
So glad you liked your new oncologist, too! That makes a whole world of difference.
Aches/pains do make one worry, but shouldn't be ignored. It is far better to rule them out than to just say ahh WTH, just old age pains....
My wife had neuropathy/chemo fog even at 26 months after initial rads/chemo...feet as well as hands. Her depth perception was way off after her initial 40 rad. tx.'s, too.
Dapper & Deb...I hear ya both. I am majorly concerned with the issues I am having. They began again (have had this since August)...and I demanded the Gastro take a look inside..I seeing him this Friday..to get an order to scope..so far my hgb. is WNL...so that is great. The pain in liver/kidney area comes and goes..
Anyway, it will all be a-ok...I have to believe that. I am with each of you on your journeys...I heart you all.....

[mustangjeano]

Originally Posted by DapperButch

Saying I know exactly what you mean is an understatement.




Same here. I kept my head in the sand by ignoring times of rectal bleeding when I went to the bathroom...for over a year. Then I ignored daily diarrhea for several months, pumping myself up with over the counter meds to keep it from happening. I finally did something about it when I couldn't get through a meal without having to jump up from the table due to having diarrhea.

What do you do now to keep yourself healthy? What does not keeping your head in the sand mean to you?

I have an appointment tomorrow with my oncologist to go over my CAT scan. I am a bit nervous about that.

Genetic testing? I did that. I will look back in the thread and see if you started talking about it in an earlier post to get more information. If you didn't, could you explain here?

I think that my neuropathy is less than it was. In my hands, anyway. I was surprised that it decreased even after a year of being done with chemo, as evidently, it is the first year out that determines the long term effects. My feet, however, have not improved, but I know that mine is a hell of a lot less than some other peoples, so for that I am thankful.

Please keep us updated.

Hang in there Dapper. Lots of us are with you in spirit and looking forward to good news tomorrow. Jeano

[mustangjeano]

Originally Posted by clay

hey sweetheart....let me know as soon as you hear, k? I am with you!!!
There is the Sister Study...my dec. wife's sister went thru it...
before you were diagnosed, sisters had a 1 in 10 chance of having BC. Now they are at 1 in 5 chance of developing it.
So glad you liked your new oncologist, too! That makes a whole world of difference.
Aches/pains do make one worry, but shouldn't be ignored. It is far better to rule them out than to just say ahh WTH, just old age pains....
My wife had neuropathy/chemo fog even at 26 months after initial rads/chemo...feet as well as hands. Her depth perception was way off after her initial 40 rad. tx.'s, too.
Dapper & Deb...I hear ya both. I am majorly concerned with the issues I am having. They began again (have had this since August)...and I demanded the Gastro take a look inside..I seeing him this Friday..to get an order to scope..so far my hgb. is WNL...so that is great. The pain in liver/kidney area comes and goes..
Anyway, it will all be a-ok...I have to believe that. I am with each of you on your journeys...I heart you all.....

Clay buddy, you know I am in your corner. Let us know how your appointment goes on Friday. Jeano

[mustangjeano]

Originally Posted by deb_U_taunt

I got blood work done today and they are going to push for genetic testing again. I sure would like to know for my sisters, daughter, niece and for treatment options and clinical trials.
I really like the new oncologist, he is a straight to the point kinda guy. I had the usual tumor mark blood work, plus x-rays and bone scans (Thursday) and will get results on Friday. I really don't like the waiting. I am still having neuropathy issues and some pain in my back and hips (why I am having the bone scan).
I am so over the fear of cancer coming back. I wanna just stick my head in the sand and forget.

Deb, I'm glad you like your new oncologist and are having the tests. I do know the being tired of worrying about the cancer coming back and have spent my time with my head in the sand. Sending love and prayers to you. Jeano

[deb_U_taunt]

Everyone - so far tests are appearing to look good. I can see them online and they are looking normal, 3 are flagged as high, but just over a normal range. I have NO idea what it actually means. lol One more test tomorrow. I will have to have patience and wait until Friday.

Tommi - I really do like my new oncologist. I DO NOT like the new primary, so dr shopping again for a primary.

Dapper - I am prone to doing the same thing, thinking 'oh hell, it will go away'. I hope your scan comes back clean. Please, let us know how you are doing. I know I stress myself out WAY more than I need to, also. It doesn't change the outcome, so its needless. Right???
The genetics test is for the BRCA gene. Since the cancer was negative for hormone receptors, I have a higher chance of recurrence and it coming back in other areas of my body. If I test positive for the gene it can help with any future treatment plans and my daughter, niece and sisters will have to be screened more often and earlier.
Head in the sand means to me; ignoring changes in my body/health, continuing to not take care of ME.
To keep myself healthy: I eat a very low-fat, high fiber diet. I do not eat soy or processed sugar. I moved closer to family, ended an unhealthy/toxic relationship (I even let hym back in after radiation, after hy left me the day after my 2nd chemo WTF) and am working from home and less hours to lower my stress level.

KC - thank you and so sorry about all the losses you have had. HUGS

Lucian - finding it early is such a blessing I pray Aryon is back out of the hospital soon (of not already) and the infection is gone.

julie - I truly feel it is harder to be the caretaker. You are amazing. It is such a loving, unselfish thing to do for a person. I have never been closer to my best friend and am in awe of what she gave to me. I am grateful every minute to have her in my life.

clay - hope you get an appt for a scope soon and don't have too wait long.

Jeano - I am working hard at not worrying about what hasn't happened. It is hard! It did motivate me to have my affairs in order. I have a safe with wills, user names and passwords, account information. HUGS and LOVE to you, too.

[clay]

good evening everyone:
Dapper...please do let us know what you find out. Know we are all here, sending you much love & support....
deb: I love you my friend! Sending you healing energies and comfort...I am always here for you...
jeano: Yes, I absolutely DO know you are in my corner...you ahve been a strong ally to me as well...and I appreciate you. I send you loving hugs my friend.
julieisa: Much hugs and comfort sent to you. I agree, yours is by far the hardest of the journeys...I walked the steps of caretaker/supporter and being the "patient".
Lucien: welcome and hugs for you buddy!
Aryon: sending you loving and healing thoughts and energies...take care..
Take care of each other and yourselves...I care for each one...

[DapperButch]

Hey, folks. The CAT scan was clean! Yay. Thanks for your support.

Deb- I believe it is all about what we eat, low stress, and exercise. Please consider purchasing/reading Keith Block's book, "Life Over Cancer". I went to Chicago to meet him and get some testing done. The testing determined types/dosing for supplements to assist with providing an uninhabitable place for cancer.

It is about it not coming back. I won't ramble on about it, because people have heard enough here from my jaws on the issue, but please consider eating no meat but fish, and no dairy. No processed sugar, of course, or any, actually. Sugar feeds tumors. Use Agava Nectar or Stevia. We may not be able to control if we have cancer cells or even the beginning of tumors in our bodies all the time, but we can keep them from flourishing. It is all about creating an environment that cancer does not flourish in.

http://www.lifeovercancer.com/

Take care and please keep updating us.

[deb_U_taunt]

I agree. I take supplements suggested by treatment center. I only eat fish and seafood and rarely turkey (twice in the last year). Once in a while low-fat feta (I love me some feta), otherwise no dairy. Never sugar, since as you know, cancer LOVES some sugar. I have a dog that insists we walk, too. I love to hike.

With that all said. A friend fought breast cancer about the same time and she ran marathons, coached volleyball, never smoked and the healthiest vegan I know.

Sometimes shit just happens.

Originally Posted by DapperButch

Hey, folks. The CAT scan was clean! Yay. Thanks for your support.

Deb- I believe it is all about what we eat, low stress, and exercise. Please consider purchasing/reading Keith Block's book, "Life Over Cancer". I went to Chicago to meet him and get some testing done. The testing determined types/dosing for supplements to assist with providing an uninhabitable place for cancer.

It is about it not coming back. I won't ramble on about it, because people have heard enough here from my jaws on the issue, but please consider eating no meat but fish, and no dairy. No processed sugar, of course, or any, actually. Sugar feeds tumors. Use Agava Nectar or Stevia. We may not be able to control if we have cancer cells or even the beginning of tumors in our bodies all the time, but we can keep them from flourishing. It is all about creating an environment that cancer does not flourish in.

http://www.lifeovercancer.com/

Take care and please keep updating us.

[mustangjeano]

Dapper , YAY, thanks for sharing the great news.

Originally Posted by DapperButch

Hey, folks. The CAT scan was clean! Yay. Thanks for your support.

Deb- I believe it is all about what we eat, low stress, and exercise. Please consider purchasing/reading Keith Block's book, "Life Over Cancer". I went to Chicago to meet him and get some testing done. The testing determined types/dosing for supplements to assist with providing an uninhabitable place for cancer.

It is about it not coming back. I won't ramble on about it, because people have heard enough here from my jaws on the issue, but please consider eating no meat but fish, and no dairy. No processed sugar, of course, or any, actually. Sugar feeds tumors. Use Agava Nectar or Stevia. We may not be able to control if we have cancer cells or even the beginning of tumors in our bodies all the time, but we can keep them from flourishing. It is all about creating an environment that cancer does not flourish in.

http://www.lifeovercancer.com/

Take care and please keep updating us.

[mustangjeano]

Originally Posted by deb_U_taunt

Everyone - so far tests are appearing to look good. I can see them online and they are looking normal, 3 are flagged as high, but just over a normal range. I have NO idea what it actually means. lol One more test tomorrow. I will have to have patience and wait until Friday.

Tommi - I really do like my new oncologist. I DO NOT like the new primary, so dr shopping again for a primary.

Dapper - I am prone to doing the same thing, thinking 'oh hell, it will go away'. I hope your scan comes back clean. Please, let us know how you are doing. I know I stress myself out WAY more than I need to, also. It doesn't change the outcome, so its needless. Right???
The genetics test is for the BRCA gene. Since the cancer was negative for hormone receptors, I have a higher chance of recurrence and it coming back in other areas of my body. If I test positive for the gene it can help with any future treatment plans and my daughter, niece and sisters will have to be screened more often and earlier.
Head in the sand means to me; ignoring changes in my body/health, continuing to not take care of ME.
To keep myself healthy: I eat a very low-fat, high fiber diet. I do not eat soy or processed sugar. I moved closer to family, ended an unhealthy/toxic relationship (I even let hym back in after radiation, after hy left me the day after my 2nd chemo WTF) and am working from home and less hours to lower my stress level.

KC - thank you and so sorry about all the losses you have had. HUGS

Lucian - finding it early is such a blessing I pray Aryon is back out of the hospital soon (of not already) and the infection is gone.

julie - I truly feel it is harder to be the caretaker. You are amazing. It is such a loving, unselfish thing to do for a person. I have never been closer to my best friend and am in awe of what she gave to me. I am grateful every minute to have her in my life.

clay - hope you get an appt for a scope soon and don't have too wait long.

Jeano - I am working hard at not worrying about what hasn't happened. It is hard! It did motivate me to have my affairs in order. I have a safe with wills, user names and passwords, account information. HUGS and LOVE to you, too.

Deb, reading the good news has really made my day--doing the happy dance right now. Jeano

[clay]

Originally Posted by DapperButch

Hey, folks. The CAT scan was clean! Yay. Thanks for your support.

Deb- I believe it is all about what we eat, low stress, and exercise. Please consider purchasing/reading Keith Block's book, "Life Over Cancer". I went to Chicago to meet him and get some testing done. The testing determined types/dosing for supplements to assist with providing an uninhabitable place for cancer.

It is about it not coming back. I won't ramble on about it, because people have heard enough here from my jaws on the issue, but please consider eating no meat but fish, and no dairy. No processed sugar, of course, or any, actually. Sugar feeds tumors. Use Agava Nectar or Stevia. We may not be able to control if we have cancer cells or even the beginning of tumors in our bodies all the time, but we can keep them from flourishing. It is all about creating an environment that cancer does not flourish in.

http://www.lifeovercancer.com/

Take care and please keep updating us.

YAY, Dap!!! Incredible news!!! Hugs ya bro.....just freakin' incredible....your efforts, as well as TF's have paid off.........

[deb_U_taunt]

Originally Posted by mustangjeano

Deb, reading the good news has really made my day--doing the happy dance right now. Jeano

I have been all happy excited too! Today is a bone scan, but not as scared as I was earlier this week. Just gotta keep looking forward.

[clay]

Originally Posted by deb_U_taunt

I have been all happy excited too! Today is a bone scan, but not as scared as I was earlier this week. Just gotta keep looking forward.

hey deb...Good Luck...you are amazing! I am with you, my hand is always wrapped around yours....we got this babe!!!! YOU have fought hard...long...and YOU are so loved and adored.....loves ya....Clay......

[deb_U_taunt]

Originally Posted by clay

hey deb...Good Luck...you are amazing! I am with you, my hand is always wrapped around yours....we got this babe!!!! YOU have fought hard...long...and YOU are so loved and adored.....loves ya....Clay......

Thank you my mommy is going with me, too. I tried to talk her into staying home, but she isn't having it.

[clay]

Originally Posted by deb_U_taunt

Thank you my mommy is going with me, too. I tried to talk her into staying home, but she isn't having it.

awww...let her be a part of this...I know she will at most keep you "entertained"...chuckles....let me know,k? huggles

[deb_U_taunt]

Originally Posted by clay

awww...let her be a part of this...I know she will at most keep you "entertained"...chuckles....let me know,k? huggles

I will. I see the dr at 9:30 tomorrow. BUT I will be checking online tonight for results.

[clay]

Originally Posted by deb_U_taunt

I will. I see the dr at 9:30 tomorrow. BUT I will be checking online tonight for results.

awesome...will expect text dahlin'...

[DapperButch]

Originally Posted by deb_U_taunt

I agree. I take supplements suggested by treatment center. I only eat fish and seafood and rarely turkey (twice in the last year). Once in a while low-fat feta (I love me some feta), otherwise no dairy. Never sugar, since as you know, cancer LOVES some sugar. I have a dog that insists we walk, too. I love to hike.

With that all said. A friend fought breast cancer about the same time and she ran marathons, coached volleyball, never smoked and the healthiest vegan I know.

Sometimes shit just happens.

When it comes to breast cancer from hereditary most bets are off. If she ate meat/dairy as a child, her cells would have already mutated. The question is if she would have gotten cancer earlier than she did, if she wasn't vegan. Perhaps it was indeed her eating vegan that kept it from starting 10 years earlier. My chicago doc (Keith Block), told me it was a combination of hereditary (possibly, got additional testing, like I mentioned) and from eating animal protein when young. Yep, that was my mom. Meat, vegetable, starch at every meal.

You must believe it on some level, or you wouldn't do it. Unless you ate this way before/enjoy it this way. Personally, I hate a no meat, no dairy diet. Hate it everyday, if I am honest. Every FUCKING day, if I am really, really honest.

[DapperButch]

Originally Posted by clay

YAY, Dap!!! Incredible news!!! Hugs ya bro.....just freakin' incredible....your efforts, as well as TF's have paid off.........

Yes, Clay, I really do have TF to thank eating healthy. She is the cook around here! What she cooks is awesome, I just desperately miss meat and dairy.

[Corkey]

http://news.yahoo.com/genetic-twist-...124030861.html

Could help personalize treatments.