Cancer Support and Caregivers Who Are Trail Blazers! - Page 23

clay · 12-01-2011, 08:02 AM

Sending positive and warm energies, healing love to CatalinaRose, to her sister, and to all else who have a need for some...and to all the Brave Warriors here......may you all find the good karma, serenity, and healing that is needed.....we are all here for one another! I heart you all..and each of YOU are a HERO to me...Clay

DapperButch · 12-01-2011, 09:45 AM

Quote:

Originally Posted by CatalinaRose

Hi Everyone. I got my results today but I can't even think about them because an hour later my oldest sister called me to share news of her own. She was diagnosed 5 weeks ago with lymphoma. She has several spots and one large tumor in her left lung. I think the name if it is B-cell lymphoma. She started chemo last Friday and is feeling pretty overwhelmed by everything. She apologized profusely for not telling all of us siblings earlier but said she just needed time to come to terms with it all herself.

I am in shock. And I am so fucking angry at cancer. Lisa is this amazing, bright light of a beautiful person. She has always taken so much pride in her health...she teaches vinyasa yoga and is a massage therapist and is about to enter her thesis semester in grad school. I was laying in bed just now trying to fall asleep and the tears just came out of no where. It felt so good to have a long cry.

Please keep my wonderful sister in your thoughts if you can. And thank you all for letting me vent. I probably will be scarce for a bit since I'm entering finals week, but you are all never far from my heart.

I'm sorry this is happening to your sister. I will keep both of you in my thoughts.

When you can, please let us know the results of your colonoscopy. I, and I would suspect others, are concerned about it since you said in a prior post that you suspect that you will have to get a bowel resection. That is pretty serious stuff, so I am concerned.

Take care and hang in there the best you can.

Novelafemme · 12-01-2011, 09:54 AM

Hi Dapper, Thank you for being patient with me while I re-group.

So all but one of the polyps removed were PRE cancerous. Since my situation has been so unusual, along with such a stong family history of cancer, my doc sent them off for further genetic testing which all came back negative. YAY!!! So I do NOT need any further surgeries but will go back in six months for another colonoscopy and if that comes back fine then I go every year for the next five years. Since the adenoma on my appendix and colon was self contained they will monitor me closely, possibly scheduling a PET scan in the Spring and hopefully that will be that. Everything thus far has been found VERY early and has all been self contained so has been very easily treatable. The biggest concern was the mass on my appendix because they were worried it had perforated my bowel. Thankfully that did not happen! My sister's cancer was also detected VERY early. Since she was diagnosed as a stage 4, she was concerned that she had beein living with cancer for a long time. Her endo seems to think this all started about 4 months ago. I am just so thankful they found hers so early. And also thankful that we are both so in tune with our bodies that we know when something isn't right.

Thank you all for your support. It means more to me than you know. It so much easier for me to talk here about this than to anyone in real time. I just don't like that kind of attention, if that makes sense.

Hugs and love to all, CR.

Countyfem · 12-01-2011, 11:39 AM

[[[[[[[[[[ CatalinaRose]]]]]]]]]]]]]]]

you and your sister are in my thoughts and prayers! so glad your news was on the positive side!

Novelafemme · 12-01-2011, 02:45 PM

I have another quick question for those of you who have had radical hysterectomies due to cancer. Since we can't do hormone replacement therapy, what are some effective ways you all manage hot flashes and sleepless nights. My mood has been amazing since having everything out and I LOVE not having a monthly period, but the hot flashes are killing me! I have such empathy for menopausal women now...I had NO idea how yucky hot flashes could be.

I am still running which seems to help and I no longer drink alcohol <sniff> but are there other things we can do?

DapperButch · 12-01-2011, 03:59 PM

Quote:

Originally Posted by CatalinaRose

I have another quick question for those of you who have had radical hysterectomies due to cancer. Since we can't do hormone replacement therapy, what are some effective ways you all manage hot flashes and sleepless nights. My mood has been amazing since having everything out and I LOVE not having a monthly period, but the hot flashes are killing me! I have such empathy for menopausal women now...I had NO idea how yucky hot flashes could be.

I am still running which seems to help and I no longer drink alcohol <sniff> but are there other things we can do?

Catalina - have you looked to see if their are supplements that are recommended to help with hot flashes? If it were me, I would start there.

JustJo · 12-08-2011, 10:19 AM

So....I've known that my mother was lying to me....and she arrives in two days. This is the timing in which she usually "comes clean" because she knows she can't lie to my face and get away with it.

They have extended her chemo another 6 months...and apparently she's not responding as well as she had been letting on.

Her doctor has also said that she needn't go to Miami to the top-rated chemo center for treatments, but can go right here in PSL and that will be "just fine."

I'm pretty sure that's because the chemo isn't curing anything...and is just delaying the inevitable...and he's stopped pretending otherwise.

Fuck.

clay · 12-08-2011, 10:24 AM

(((((((((((((((((((Debby))))))))))))))))))))))
I heart you, my beautiful and lovely friend!! Congratulations, honey!!!

(((((((((((((((CatalinaRose))))))))))))))))))))))) )
Hugs to you, keep that spirit..and a BIG hug to your sister....smiles..

(((((((((((((((((((((((((((((DB))))))))))))))))))) ))...Have a wonderful week....hugs to you...

(((((((((((((((((((((((((COUNTYFEM)))))))))))))))) ))))) you are the BESTEST!!! You so rockkkkkkkkkkkkkkkk!!! THANK YOU!

(((((((((((((((((((((((JustJo))))))))))))))))))))) ))))....big hugs to you..I so hope your mom will be allright..and you will enjoy the visit...hugs to you both.,..
to all the other BRAVE WARRIORS....fight on...and stay strong! I know I am!!!
I heart you all...big butch hugs..Clay

Novelafemme · 12-08-2011, 11:46 AM

Quote:

Originally Posted by JustJo

So....I've known that my mother was lying to me....and she arrives in two days. This is the timing in which she usually "comes clean" because she knows she can't lie to my face and get away with it.

They have extended her chemo another 6 months...and apparently she's not responding as well as she had been letting on.

Her doctor has also said that she needn't go to Miami to the top-rated chemo center for treatments, but can go right here in PSL and that will be "just fine."

I'm pretty sure that's because the chemo isn't curing anything...and is just delaying the inevitable...and he's stopped pretending otherwise.

Fuck.

{{{{{{{{{{Jo}}}}}}}}}}}}

Dominique · 12-08-2011, 11:53 AM

Quote:

Originally Posted by CatalinaRose

I have another quick question for those of you who have had radical hysterectomies due to cancer. Since we can't do hormone replacement therapy, what are some effective ways you all manage hot flashes and sleepless nights. My mood has been amazing since having everything out and I LOVE not having a monthly period, but the hot flashes are killing me! I have such empathy for menopausal women now...I had NO idea how yucky hot flashes could be.

I am still running which seems to help and I no longer drink alcohol <sniff> but are there other things we can do?

This is coming from the woman who LOVED the COLD so much, I sufferred thru frostbite TWICE.....black cohash tea!

Novelafemme · 12-08-2011, 12:15 PM

Quote:

Originally Posted by Yellow band

This is coming from the woman who LOVED the COLD so much, I sufferred thru frostbite TWICE.....black cohash tea!

Oooooh yes! Someone else mentioned this to me the other day. We were sitting at breakfast with a dear friend of mine, Amanda, and my oldest says to me, "mom, why is your face all shiney?" I was literally melting but trying to hide it, lol. OK, black cohosh tea, CHECK!

Countyfem · 12-09-2011, 06:50 AM

K ya'll Clay is in surgery, will be 4-6 h, I'll update when its all said and done. Send good vibes her way!

DapperButch · 12-09-2011, 06:58 AM

Quote:

Originally Posted by Countyfem

K ya'll Clay is in surgery, will be 4-6 h, I'll update when its all said and done. Send good vibes her way!

Thanks for the information. So strange, I was just about to click on this thread to ask about her.

CountryFem, PM me (or post here), if either of you have any questions about recovery. I had a colon resection last year, so let me know it I can be of any help.

For me, it was a rough recovery. But, part of that is because I had to get it done twice (2 weeks apart), due to adhesions, so how "rough" it is, is probably a bit skewed for me. I do know that I wondered if I was having a normal recovery from time to time, so if I can be of help, I am here.

Also, remember to take care of yourself while taking care of Clay.

MysticOceansFL · 12-09-2011, 08:06 AM

I always make a donate for cancer , My mother died of lung and bone cancer back in 1984 and my best friend from high school died also from bone and lung cancer in 2000 and she was only 36 years old. So here I leave a lited candle for all those to remembering.

Countyfem · 12-09-2011, 10:02 AM

Quote:

Originally Posted by Countyfem

K ya'll Clay is in surgery, will be 4-6 h, I'll update when its all said and done. Send good vibes her way!

Ok first part is OVER the Histo is done, doc said everything was contained within the uterus and that it looked precancerous...great news there. They sent it off to be sliced and diced to confirm. The second part is now under way....

Dapper, thanks for the thoughts, and you can be sure we'll be hitting you up with any questions!
Right now I'm running off coffee, I'll catch up with myself later!

Novelafemme · 12-09-2011, 11:06 AM

Quote:

Originally Posted by Countyfem

Ok first part is OVER the Histo is done, doc said everything was contained within the uterus and that it looked precancerous...great news there. They sent it off to be sliced and diced to confirm. The second part is now under way....

Dapper, thanks for the thoughts, and you can be sure we'll be hitting you up with any questions!
Right now I'm running off coffee, I'll catch up with myself later!

Excellent news, CF! Sometimes the nastiest looking uterus comes back the cleanest. You just never know!! Clay is gonna feel SO much better having all that out.

Thank you for the update and please take good care of yourself!!

Bard · 12-09-2011, 11:57 AM

Quote:

Originally Posted by Countyfem

Ok first part is OVER the Histo is done, doc said everything was contained within the uterus and that it looked precancerous...great news there. They sent it off to be sliced and diced to confirm. The second part is now under way....

Dapper, thanks for the thoughts, and you can be sure we'll be hitting you up with any questions!
Right now I'm running off coffee, I'll catch up with myself later!

please give Clay Desd's and my love we will be thinking of her and sending good thoughts. thank you so much for the updates

Countyfem · 12-09-2011, 02:17 PM

Clay is out of surgery, she did great...the doc's were real pleased with what they didn't find! Both spots were contained, all parts removed cleanly...including the nodule that was found next to the mass. They have sent the leftovers to the lab but both the doc's feel real positive, so keep your fingers crossed.
She has just been moved to an interm room as they want to keep a close eye on her tonight. I got to see her briefly and she has good color, they are doing a great job of pain managment and her stats are great. Once they get her into her spot on the ward I'll be able to go sit with her till 7, then they are gonna kick me out till 8 am Lucky for me they have some comfy couches in the waiting area and they supply pillows and a blanket.

Stay tuned!

1QuirkyKiwi · 12-09-2011, 03:53 PM

Quote:

Originally Posted by Countyfem

Clay is out of surgery, she did great...the doc's were real pleased with what they didn't find! Both spots were contained, all parts removed cleanly...including the nodule that was found next to the mass. They have sent the leftovers to the lab but both the doc's feel real positive, so keep your fingers crossed.
She has just been moved to an interm room as they want to keep a close eye on her tonight. I got to see her briefly and she has good color, they are doing a great job of pain managment and her stats are great. Once they get her into her spot on the ward I'll be able to go sit with her till 7, then they are gonna kick me out till 8 am Lucky for me they have some comfy couches in the waiting area and they supply pillows and a blanket.

Stay tuned!

Thank you for letting us know - please tell Clay I'm thinking about her and sending my love and best wishes.

Hope you're doing well, too!

Rockinonahigh · 12-09-2011, 04:10 PM

Quote:

Originally Posted by Countyfem

K ya'll Clay is in surgery, will be 4-6 h, I'll update when its all said and done. Send good vibes her way!

Thanks for the up date on Clay,give her my best when she is awake enough,im sending loads of energy and good vibes.It wont be long till she will be flirting with the nurses.

12-01-2011, 08:02 AM	#441
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,098 My Photo Gallery Thanks: 96,045 Thanked 31,688 Times in 7,716 Posts Rep Power: 21474862	Sending positive and warm energies, healing love to CatalinaRose, to her sister, and to all else who have a need for some...and to all the Brave Warriors here......may you all find the good karma, serenity, and healing that is needed.....we are all here for one another! I heart you all..and each of YOU are a HERO to me...Clay __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

12-08-2011, 10:19 AM	#447
JustJo Infamous Member How Do You Identify?: pushy broad Preferred Pronoun?: she Relationship Status: Follow your heart; it knows things your mind cannot explain. Join Date: Jan 2010 Location: Southeast corner Posts: 5,633 My Photo Gallery Thanks: 24,417 Thanked 25,407 Times in 4,661 Posts Rep Power: 21474856	So....I've known that my mother was lying to me....and she arrives in two days. This is the timing in which she usually "comes clean" because she knows she can't lie to my face and get away with it. They have extended her chemo another 6 months...and apparently she's not responding as well as she had been letting on. Her doctor has also said that she needn't go to Miami to the top-rated chemo center for treatments, but can go right here in PSL and that will be "just fine." I'm pretty sure that's because the chemo isn't curing anything...and is just delaying the inevitable...and he's stopped pretending otherwise. Fuck. __________________ I'm not tall enough to ride emotional roller coasters

12-08-2011, 10:24 AM	#448
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,098 My Photo Gallery Thanks: 96,045 Thanked 31,688 Times in 7,716 Posts Rep Power: 21474862	(((((((((((((((((((Debby)))))))))))))))))))))) I heart you, my beautiful and lovely friend!! Congratulations, honey!!! (((((((((((((((CatalinaRose))))))))))))))))))))))) ) Hugs to you, keep that spirit..and a BIG hug to your sister....smiles.. (((((((((((((((((((((((((((((DB))))))))))))))))))) ))...Have a wonderful week....hugs to you... (((((((((((((((((((((((((COUNTYFEM)))))))))))))))) ))))) you are the BESTEST!!! You so rockkkkkkkkkkkkkkkk!!! THANK YOU! (((((((((((((((((((((((JustJo))))))))))))))))))))) ))))....big hugs to you..I so hope your mom will be allright..and you will enjoy the visit...hugs to you both.,.. to all the other BRAVE WARRIORS....fight on...and stay strong! I know I am!!! I heart you all...big butch hugs..Clay __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

12-09-2011, 06:50 AM	#452
Countyfem Member How Do You Identify?: Stone Femme Preferred Pronoun?: she/her Join Date: Oct 2011 Location: NC Posts: 244 My Photo Gallery Thanks: 469 Thanked 932 Times in 211 Posts Rep Power: 9455031	Clay update K ya'll Clay is in surgery, will be 4-6 h, I'll update when its all said and done. Send good vibes her way!

12-09-2011, 08:06 AM	#454
MysticOceansFL Senior Member How Do You Identify?: Butch, Preferred Pronoun?: People call me by my nic name. Relationship Status: Not Single, Not Desperate. Join Date: Jun 2010 Location: Florida Posts: 3,833 My Photo Gallery Thanks: 4,645 Thanked 4,035 Times in 1,720 Posts Rep Power: 21474853	I always make a donate for cancer , My mother died of lung and bone cancer back in 1984 and my best friend from high school died also from bone and lung cancer in 2000 and she was only 36 years old. So here I leave a lited candle for all those to remembering. __________________ Faith is not belief without proof, but trust without reservation. It is said, " Some lives are linked across time..... Connected by an ancient calling that echoes through the ages "......

12-01-2011, 09:54 AM	#443
Novelafemme Timed Out - TOS Drama How Do You Identify?: ........ Join Date: Nov 2009 Location: ........ Posts: 2,402 My Photo Gallery Thanks: 4,981 Thanked 8,925 Times in 1,834 Posts Rep Power: 0	Hi Dapper, Thank you for being patient with me while I re-group. So all but one of the polyps removed were PRE cancerous. Since my situation has been so unusual, along with such a stong family history of cancer, my doc sent them off for further genetic testing which all came back negative. YAY!!! So I do NOT need any further surgeries but will go back in six months for another colonoscopy and if that comes back fine then I go every year for the next five years. Since the adenoma on my appendix and colon was self contained they will monitor me closely, possibly scheduling a PET scan in the Spring and hopefully that will be that. Everything thus far has been found VERY early and has all been self contained so has been very easily treatable. The biggest concern was the mass on my appendix because they were worried it had perforated my bowel. Thankfully that did not happen! My sister's cancer was also detected VERY early. Since she was diagnosed as a stage 4, she was concerned that she had beein living with cancer for a long time. Her endo seems to think this all started about 4 months ago. I am just so thankful they found hers so early. And also thankful that we are both so in tune with our bodies that we know when something isn't right. Thank you all for your support. It means more to me than you know. It so much easier for me to talk here about this than to anyone in real time. I just don't like that kind of attention, if that makes sense. Hugs and love to all, CR.

12-01-2011, 11:39 AM	#444
Countyfem Member How Do You Identify?: Stone Femme Preferred Pronoun?: she/her Join Date: Oct 2011 Location: NC Posts: 244 My Photo Gallery Thanks: 469 Thanked 932 Times in 211 Posts Rep Power: 9455031	[[[[[[[[[[ CatalinaRose]]]]]]]]]]]]]]] you and your sister are in my thoughts and prayers! so glad your news was on the positive side!

12-01-2011, 02:45 PM	#445
Novelafemme Timed Out - TOS Drama How Do You Identify?: ........ Join Date: Nov 2009 Location: ........ Posts: 2,402 My Photo Gallery Thanks: 4,981 Thanked 8,925 Times in 1,834 Posts Rep Power: 0	I have another quick question for those of you who have had radical hysterectomies due to cancer. Since we can't do hormone replacement therapy, what are some effective ways you all manage hot flashes and sleepless nights. My mood has been amazing since having everything out and I LOVE not having a monthly period, but the hot flashes are killing me! I have such empathy for menopausal women now...I had NO idea how yucky hot flashes could be. I am still running which seems to help and I no longer drink alcohol <sniff> but are there other things we can do?

12-09-2011, 02:17 PM	#458
Countyfem Member How Do You Identify?: Stone Femme Preferred Pronoun?: she/her Join Date: Oct 2011 Location: NC Posts: 244 My Photo Gallery Thanks: 469 Thanked 932 Times in 211 Posts Rep Power: 9455031	Clay is out of surgery, she did great...the doc's were real pleased with what they didn't find! Both spots were contained, all parts removed cleanly...including the nodule that was found next to the mass. They have sent the leftovers to the lab but both the doc's feel real positive, so keep your fingers crossed. She has just been moved to an interm room as they want to keep a close eye on her tonight. I got to see her briefly and she has good color, they are doing a great job of pain managment and her stats are great. Once they get her into her spot on the ward I'll be able to go sit with her till 7, then they are gonna kick me out till 8 am Lucky for me they have some comfy couches in the waiting area and they supply pillows and a blanket. Stay tuned!