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Old 08-22-2018, 04:35 PM   #1361
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It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.
Wrangler, I had nine years of silence.
Have you been able to talk to anyone about your Mom, other than the oncologist? Modifying dosing treatments for her. Has radiation been done, or not effective for her situation? Do you have a local cancer organization, or hospital support group, so you can talk and hear about others successes.

I had endometrial cancer in 2004, radical surgery, then a recurrence in 2013. I underwent 28 radiation and brachytherapy treatments versus chemo which was not effective for my type of reoccurance.

Being tired and sick of the treatment is so difficult. I feel for you, and understand where you Mom is coming from. But, please look into talking , and options, and others who have been there. Don't need to be alone. Warmest regards. Tommi
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Old 09-09-2018, 10:54 AM   #1362
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Default hello everyone

Well been through hell and back. Tough part over and back to work a few weeks now. I want to hopefully get 1 more year then retire. Working gets my brain firing and that is what I need now. Doing what the doctors told me to do. Feeling better and I still have a long way to go. Thank you all for your support and you all know you have mine. I love you all very much.. Rustedrims Sheila
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Old 09-25-2018, 02:08 PM   #1363
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I am doing real good and back at work. Things are going well at work and remembering my job. I am glad I am back. It is my therapy and gets my brain a cracking and snapping. Forget about the surgery the thing is I haven't worked in 9 months. Feels good to get out and feel like I did something with the day. My hair is growing back. It looks a little lighter and baby soft. I love being home with my kitties. One of the sisters wont leave me alone. I was gone a long time. January is my reality of what I deal with every day. Getting my MRI and CT scan. The six month check on things. The last check nothing bad showed up. A good feeling. Sometimes I am still afraid to go to sleep. I still get scared. Sheila
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Old 10-16-2018, 03:33 PM   #1364
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Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!
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Old 10-16-2018, 05:54 PM   #1365
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Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!


I am so happy to hear this!!!! Definitely celebrating with you!
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Old 10-17-2018, 07:50 AM   #1366
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Originally Posted by easygoingfemme View Post
Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!
This is AWESOME!!!!! Congratulations, my friend!!
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Old 10-17-2018, 12:01 PM   #1367
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Originally Posted by easygoingfemme View Post
Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!
I am so glad for you, I can imagine your relief, its great news !
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Old 11-04-2018, 09:47 PM   #1368
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I am doing good and feeling stronger. The first of January I go in for a MRI and CT scan. Gotta get checked out for my 6 months. I know my friends mean well but I just hate to hear them say Hey good luck with your MRI. I am not going to Vegas or racing in the Kentucky Derby. I am getting my head checked to see if there is any cancer. Have been getting good scans. I pray for everyone in here to feel good and get better. We all gotta fight the fight together.
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Old 11-05-2018, 02:11 PM   #1369
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Tomorrow I go in to have my medi-port put in.

Hopefully soon after that we will start treatment no matter what it is.

Every have a cancer free day or as close to it as possible
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Old 11-08-2018, 12:58 PM   #1370
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Surgery went well just a few bumps in the road. Blood sugar bottomed out and so did blood pressure.

They gave me some orange juice they put sugar in however they didn't stir the sugar in to dissolve so it was real nasty tasting. That was enough to bring my blood pressure up.

I start chemo on Monday since we dont have the DNA results back yet. Keep your fingers crossed we get them soon.
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Old 11-08-2018, 03:47 PM   #1371
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Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.
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Old 11-08-2018, 04:50 PM   #1372
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Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.
at first my port was easy to deal with ~ then during one chemo treatment a nurse pulled the needle out fast and hard ~ I of course yelled out OUCH she responded with don't be a baby that didn't hurt . It bed for 2 day ~ bruised inside and out ~ and twisted. Every treatment after that the head of nursing at the cancer center had to put the needle in place ~ to this day it hurts, even when the shower water beats down on my skin. (((((( Teddy, easy going, rusted rims, )))))))) 2019 will be a better year.
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Old 11-08-2018, 07:22 PM   #1373
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ooops bled for 2 days.
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Old 11-09-2018, 10:29 AM   #1374
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at first my port was easy to deal with ~ then during one chemo treatment a nurse pulled the needle out fast and hard ~ I of course yelled out OUCH she responded with don't be a baby that didn't hurt . It bed for 2 day ~ bruised inside and out ~ and twisted. Every treatment after that the head of nursing at the cancer center had to put the needle in place ~ to this day it hurts, even when the shower water beats down on my skin. (((((( Teddy, easy going, rusted rims, )))))))) 2019 will be a better year.
Oh ouch. I can feel that and it didn't even happen to me. I'm sorry that was your experience and that you have ongoing pain from it.
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Old 11-12-2018, 12:17 AM   #1375
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Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.

I am good. The surgeon put what looked like super glue on it instead of stitches. It came off yesterday just like glue would.

I have been good and not lifted or pulled anything so it feels ok.

My treatments are 6 hours the first day then they send me home with a pump for 42 more hours. Then back in 2 weeks if I stay on chemo. If I go to immunotherapy it is once every 3 weeks.

I will be on this the rest of my life which I plan on it being a LONG time
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Old 11-12-2018, 12:18 AM   #1376
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ooops bled for 2 days.


I probably would have been in bed for 2 days
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Old Yesterday, 09:28 PM   #1377
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Sending healing vibes to all who are caregiving, going into treatment or recovering.
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