|
|
|
05-18-2010, 10:38 PM
|
#1 | |
|
Infamous Member
How Do You Identify?:
Usually "Hello" Relationship Status:
Married and Bound to Tommi's kaijira (Ts_kaijira )  Join Date: Nov 2009
Location: Suthun.... California that is. Across the ridge from Laguna Beach.
Posts: 8,151
Thanks: 13,621
Thanked 21,337 Times in 5,968 Posts
Rep Power: 21474859    |
6 years and it gets Better N Better
Quote:
After a tough couple of months, and DustyBoy Kitty passing through on May 1st, I realized how time flies I celebrated 6 years of being cancer free on May 15. Endometrial cancer diagnosis shook my world and it felt like the air was sucked out of the universe. After radical total hysterectomy, and 16 lymph nodes removed, i did well UNTIL...I got a massive infection that almost killed me. I live every day to the fullest, and love like there is no tomorrow..Thanks for all the love and positive energy. Tommi |
|
|
|
| The Following 4 Users Say Thank You to Tommi For This Useful Post: |
|
05-19-2010, 07:33 AM
|
#2 | |
|
Member
How Do You Identify?:
TOWANDA! Preferred Pronoun?:
Queen Bee Relationship Status:
Good 'n married. 
Join Date: Nov 2009
Location: Eastern Canada. But if I make a wrong turn at the lights I get stopped by a border guard.
Posts: 1,499
Thanks: 2,355
Thanked 2,759 Times in 820 Posts
Rep Power: 16450091 |
Quote:
Prayers and hugs to all those fighting the fight. Sue 
__________________
"Compassion, in which all ethics must take root, can only attain its full breadth and depth if it embraces all living creatures and does not limit itself to mankind." -Albert Schweitzer |
|
|
|
|
| The Following 2 Users Say Thank You to suebee For This Useful Post: |
|
05-19-2010, 07:47 AM
|
#3 | |
|
Infamous Member
How Do You Identify?:
Usually "Hello" Relationship Status:
Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009
Location: Suthun.... California that is. Across the ridge from Laguna Beach.
Posts: 8,151
Thanks: 13,621
Thanked 21,337 Times in 5,968 Posts
Rep Power: 21474859 |
cybersubee soon to be Two
Quote:
 for you.WOW..It is a good feeling to be know we will celebrate 2 for you soon. See, it has been fast. i remember you posting way back when. Plant a beautiful rose bush wherever you are, cybersubee. It is a good feeling to stop and touch the flowers. I am having some friends over, and I will plant my 6th in the front yard this weekend. I took huge roses from my yard to work on Monday. My private celebration, to stop and smell the roses. Love to all who carry the torch for those who no longer can. Tommi |
|
|
|
|
| The Following User Says Thank You to Tommi For This Useful Post: |
|
05-19-2010, 09:30 AM
|
#4 |
|
Timed Out
How Do You Identify?:
Me Preferred Pronoun?:
He Relationship Status:
Unavailable 
Join Date: Nov 2009
Location: Over the Rainbow in a House
Posts: 5,072
Thanks: 16,004
Thanked 5,249 Times in 2,216 Posts
Rep Power: 0 |
I go in the hospital next week for my surgery. Then I have to wait for the results. I think that is the hardest part. The surgeon told me that the results will be back by the time she is finishing up. So I will know when I wake up. Then in 3 days I will know the exact kind of cancer. She is treating me as if I do have cancer. With the history of cancer in my family, and having the symptoms I have, she is pretty sure it is cancer. The grade and kind is up for debate. I am feeling as if it isn't my time yet. I have alot of living to do yet.   Andrew |
|
|
|
|
05-21-2010, 08:18 PM
|
#5 | |
|
BFP Angel
How Do You Identify?:
Femme Relationship Status:
Yes I have a status. 
Join Date: Nov 2009
Location: I ride a cowboy in Rodeo in the communist nation of the isle of cali.
Posts: 334
Thanks: 310
Thanked 247 Times in 98 Posts
Rep Power: 3700737 |
Quote:
I am now dealing strictly with hospice. I love it. I do have one problem though and that is I have lost wayyyyyy too much weight. People have suggested those protein shakes but that is even confusing. LOL Most of what I have looked at deal with weight loss, I can't seem to find one for weight gain. Any suggestions? sweetcali |
|
|
|
|
| The Following 2 Users Say Thank You to sweetcali For This Useful Post: |
|
05-21-2010, 08:35 PM
|
#6 | |
|
In Memory Of
How Do You Identify?:
fierce femme grrl Preferred Pronoun?:
beautiful, pumpkin, princess, sweet pea, babygirl Relationship Status:
i don't think it's in the stars for me. 
Join Date: Nov 2009
Location: washington DC
Posts: 133
Thanks: 34
Thanked 293 Times in 83 Posts
Rep Power: 2486278 |
Quote:
carnation instant breakfasts or ensure are both something that can help get calories in you fast and come in a can ready to drink (use a straw if you aren't crazy about the flavor) milkshakes! a good granola to snack on even when not so hungry (bear naked is a delicious brand and they even have a high protein version) and maybe a joint to give you the munchies...
__________________
"and you can use my skin. to bury secret sins." |
|
|
|
|
| The Following 4 Users Say Thank You to fiercegrrl For This Useful Post: |
|
05-22-2010, 09:39 AM
|
#7 | |
|
Member
How Do You Identify?:
Human Preferred Pronoun?:
He/Him Relationship Status:
Happily Single! Join Date: Nov 2009
Location: Nunya
Posts: 1,225
Thanks: 2,355
Thanked 2,574 Times in 790 Posts
Rep Power: 18276166 |
Quote:
Glynn |
|
|
|
|
| The Following 5 Users Say Thank You to Oiler41 For This Useful Post: |
|
05-22-2010, 08:34 AM
|
#8 | |
|
Timed Out
How Do You Identify?:
Permanently Banned 5/27/2011 Preferred Pronoun?:
hy ho, hy ho; he, she, it, whatever Relationship Status:
Going slow ...
Join Date: Apr 2010
Location: in her orifices ... la frontera
Posts: 1,433
Thanks: 6,414
Thanked 2,958 Times in 953 Posts
Rep Power: 0 |
Quote:
Do you have appetite? how is your energy level? are you sleeping ok? are you trying to do the traditional three meals a day? what confused you about the protein shakes? is it hard to concentrate? Perhaps I should PM you ... that is how I usually communicate with people here. Is that ok with you? |
|
|
|
|
|
05-22-2010, 09:12 AM
|
#9 |
|
Timed Out
How Do You Identify?:
Permanently Banned 5/27/2011 Preferred Pronoun?:
hy ho, hy ho; he, she, it, whatever Relationship Status:
Going slow ...
Join Date: Apr 2010
Location: in her orifices ... la frontera
Posts: 1,433
Thanks: 6,414
Thanked 2,958 Times in 953 Posts
Rep Power: 0 |
I will be going to Switzerland in about a month ... if all goes well ... to be with the last of my immediate family, my sister. I can only go for a week because it is all the time that I can take off from work.
My sister, Dolores, was diagnosed with an aggressive lung cancer which I learned about the in April, and has lived there, in Switzerland, with her husband for a couple of years. They have good health care there, albeit, slow, and from what I can ascertain, the various specialist do not communicate well with one another. I have been doing the arm chair quarterbacking of her care from afar. I hope that by my going this time I will be able to establish firm contact with at least the oncologist so that I have email communication with her on a fairly regular basis. We have "fired" her primary care doctor, the "professor" who is dismissive and unresponsive. My sister gets confused about all that is going on: she was having palpitations and her PMD did not think to do a simple EKG. I told her to ask for one, and it turns out that she had a significant irregularity that required medications for the rhythm as well as a blood thinner to prevent clot formation and subsequent stroke. There were complications from this in which I had to intervene/interfere. Thus, we fired the bastard. I initially planned on going in the fall/September, but she wants me now, during the next cycle of her chemo and when she will begin radiation therapy. While this does not place me as the usual "caregiver" (her husband is that), I am the one she turns to for help in navigating the tangled webs of western medicine. So, in that fashion, I am a caregiver. If/when her condition worsens, I suspect that I will be there for a longer spell and providing her husband with some respite. I cannot utter that which lays like a stone in my soul about how I feel about my "big" sister having this cancer. I don't know what to say when she says, "I don't know what to do" ... meaning, about dying. We have started the conversation, as a suggestion by a friend of mine, about a bucket list. We've begun the stories of mom anew (she was a medical "miracle" in that she had 3 separate cancers and lived 3 1/2 years beyond her "six months" prediction) ... and have started the laughter in the telling of such tales. There is someone, on this site, knowledgeable about cancer research. She has helped me as I am trying to stay one step ahead of the "natural history" of my sister's cancer (if and when the treatment fails). She has been supportive and kind. As for me, selfishly, I feel at times abandoned and homeless, in an odd sense. I have been writing when I can face it. The pen is my therapist. Metaphors are my life. My new love keeps me from drowning. Thanks for reading/"listening" |
|
|
|
| The Following 4 Users Say Thank You to waxnrope For This Useful Post: |
|
05-22-2010, 09:21 PM
|
#10 | ||
|
BFP Angel
How Do You Identify?:
Femme Relationship Status:
Yes I have a status.
Join Date: Nov 2009
Location: I ride a cowboy in Rodeo in the communist nation of the isle of cali.
Posts: 334
Thanks: 310
Thanked 247 Times in 98 Posts
Rep Power: 3700737 |
Quote:
Quote:
My energy levels are really low. I just do not have the stamina I used to have for anything. Sometimes I sleep ok sometimes I don't. Yes I do the traditional 3 meals a day. What confuses me is some say for muscle gain, some say for weight loss, some say just for added protein. etc etc. Thank you, sweetcali |
||
|
|
|
|
05-21-2010, 08:39 PM
|
#11 | |
|
Timed Out
How Do You Identify?:
Permanently Banned 10/24/2010 Preferred Pronoun?:
She. Relationship Status:
Married (one of 18,000) Join Date: Nov 2009
Location: Atascadero, CA
Posts: 4,933
Thanks: 2,309
Thanked 7,109 Times in 2,327 Posts
Rep Power: 0 |
Quote:
It is kind of unethical for a doctor to tell you that you have cancer before the biopsy results are in, don't you think? It is unconscionable to have you this stressed out withOUT results! That would worry me a LOT! I know everyone is praying for you to have a good outcome. We have to advocate for ourselves. I know that I always get a second opinion because one just never knows what a new set of eyes may see. If you don't like a doctor then don't go back. If a medical professional is cavalier with you? Step up to the plate for yourself! At the end of the day we are the only ones that know our bodies and what is really best. |
|
|
|
|
| The Following 4 Users Say Thank You to SuperFemme For This Useful Post: |
|
05-22-2010, 07:07 AM
|
#12 | |
|
Infamous Member
How Do You Identify?:
Usually "Hello" Relationship Status:
Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009
Location: Suthun.... California that is. Across the ridge from Laguna Beach.
Posts: 8,151
Thanks: 13,621
Thanked 21,337 Times in 5,968 Posts
Rep Power: 21474859 |
Our rights and lefts
Andrew, I wanted to say thanks for this thread. Thanks for a place we can come to and talk among those who understand this journey
And for those taking care of us, a place to seek and rest among friends. Any time of the day or night call out, someone is near by. sweetcali, My Mom loved peanut butter N jelly sandwiches, chased with coffee flavored milk shakes. They now have frozen,I think it's Smucker's Pnt btr and grape jelly..Wishing you well this Sat. AM from So Cal. If you were closer I'd bring you some stuffed French Toast from Mimi's. "and maybe fiercegrrl could bring you a joint to give you the munchies". Andrew, ride hard and be prepared. I know you have been here before dear friend..  Candles of hope for you and you are in my prayers....TommiQuote:
I canceled surgery a day before I was to scheduled for a total radical hyster for uterine cancer. I had done the autologinous blood transfusions for 6 weeks at the Red Cross and my blood was waiting at the hospital for me. I asked the Doc if she had the results from my CT Scan, because my one kidney looked enlarged on the ultrasound..She said no, but if I see anything when I'm in there, we'll take care of it!!!there is always a general surgeon in the OR. STOP>>>I asked if maybe an MRI should be done prior to surgery. She said no, we can "always" remove your kidney...ALWAYS...cause I have 2? Went to a Gyn/Onchologist, who did total workup on me, including the MRI, bone scan, liver scan, lung scan, etc , prior to OR..and saw I had some lymph nodes that were swollen, and 16 had to come out.BUT all was known, ahead of time. |
|
|
|
|
| The Following 3 Users Say Thank You to Tommi For This Useful Post: |
|
05-15-2013, 03:05 AM
|
#13 | |
|
Infamous Member
How Do You Identify?:
Usually "Hello" Relationship Status:
Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009
Location: Suthun.... California that is. Across the ridge from Laguna Beach.
Posts: 8,151
Thanks: 13,621
Thanked 21,337 Times in 5,968 Posts
Rep Power: 21474859 |
Happy Anniversary to ME :)
Quote:
I am now 9 years cancer free. I have learned and lived and loved alot. I highly recommend it. THAT annual appointment at 7AM with my Oncologist is looming, I can't sleep, so..this is a healthy place to hang out. Think I'll go make some hot chocolate and cinnamon toast. |
|
|
|
|
| The Following 8 Users Say Thank You to Tommi For This Useful Post: |
|
05-15-2013, 11:52 PM
|
#14 | |
|
Member
How Do You Identify?:
old school stonebutch, Queer TG butch, ranch hand Preferred Pronoun?:
he Relationship Status:
single, not looking Join Date: Mar 2011
Location: Northern Ca.
Posts: 1,088
Thanks: 2,459
Thanked 1,029 Times in 361 Posts
Rep Power: 15314315 |
Quote:
__________________
"Your outlook affects your outcome". John Paul Warren |
|
|
|
|
| The Following 5 Users Say Thank You to mustangjeano For This Useful Post: |
|
05-16-2013, 07:07 PM
|
#15 | |
|
Infamous Member
How Do You Identify?:
Usually "Hello" Relationship Status:
Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009
Location: Suthun.... California that is. Across the ridge from Laguna Beach.
Posts: 8,151
Thanks: 13,621
Thanked 21,337 Times in 5,968 Posts
Rep Power: 21474859 |
Rockin and rollin and boppin anda strollin
Quote:
I made my follow-up appointment for May 14, 2014, my 10 year Anniversary  All went well, always glad to see them under these circumstances. Exams, tests and "results will be in the mail". I took several days off work for R & R Now, back to living life to it's fullest. Where is that bull named Fumanchu |
|
|
|
|
| The Following 6 Users Say Thank You to Tommi For This Useful Post: |
|
05-16-2013, 07:12 PM
|
#16 | |
|
Roadster Guy
How Do You Identify?:
FTM, Stone Butch Preferred Pronoun?:
He 
Join Date: Nov 2009
Location: Northeast
Posts: 7,745
Thanks: 26,545
Thanked 26,892 Times in 5,770 Posts
Rep Power: 21474858 |
Quote:
 Congrats!
__________________
-Dapper    Are you educated or indoctrinated? |
|
|
|
|
| The Following 3 Users Say Thank You to DapperButch For This Useful Post: |
|
05-16-2013, 07:30 PM
|
#17 | |
|
Infamous Member
How Do You Identify?:
Usually "Hello" Relationship Status:
Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009
Location: Suthun.... California that is. Across the ridge from Laguna Beach.
Posts: 8,151
Thanks: 13,621
Thanked 21,337 Times in 5,968 Posts
Rep Power: 21474859 |
Quote:
Hey you...Thanks for the concern, and ...the smile at your post.  
|
|
|
|
|
| The Following 3 Users Say Thank You to Tommi For This Useful Post: |
|
05-20-2013, 09:37 AM
|
#18 |
|
Timed Out - TOS Drama
How Do You Identify?:
........
Join Date: Nov 2009
Location: ........
Posts: 2,402
Thanks: 4,981
Thanked 8,925 Times in 1,834 Posts
Rep Power: 0 |
A beautiful friend passed away last night from ovarian cancer. She fought so incredibly hard all the way and willed herself to stay alive to see her oldest daughter graduate from college and her youngest son from high school...both on the same day.
The world is a little less bright today but the angels have another sister to dance with. I love you T and I miss you already. 
|
|
|
|
| The Following 10 Users Say Thank You to Novelafemme For This Useful Post: |
|
06-02-2013, 06:23 PM
|
#19 | |
|
Infamous Member
How Do You Identify?:
Usually "Hello" Relationship Status:
Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009
Location: Suthun.... California that is. Across the ridge from Laguna Beach.
Posts: 8,151
Thanks: 13,621
Thanked 21,337 Times in 5,968 Posts
Rep Power: 21474859 |
The tests. The wait. The results. The re-test. The wait..and the beat goes on.
Quote:
The dreaded phone call came on Friday. "We need you to come back for a follow-up as the Pap results showed some atypical cells. Doc wants to do a Colposcopy" A what?? I can come in tomorrow, I mean Monday" "The first appointment we have available is on the 19th at 7:00AM, and in case he needs to do a biopsy it will be done at that time." ... What is a colposcopy anyway? ......as I am Googling it...Endometrial cancer, follow-ups for atypical cells, a magnifying light, acetic acid...oy vey* as the Nurse is saying ....These things are just routine, and negative 9 times out of 10, just a little burning, and uncomfortable cramps possibly for a day or two and..... as my mind wandered off to the beach. Who the hell can call this routine after 9 years of negative pap smears /post total radical hysterectomy with 16 lymph nodes donated to science***I thought it was "my prostate" surgery in the first place. I hate waiting. So, to wile away the team, so I gessoed a huge canvas...  Hmmm. either a peaceful landscape or a rolling stormy seascape 3 X 4 feet Last edited by Tommi; 06-02-2013 at 06:39 PM. |
|
|
|
|
| The Following 9 Users Say Thank You to Tommi For This Useful Post: |
|
06-02-2013, 11:45 PM
|
#20 | |
|
Member
How Do You Identify?:
old school stonebutch, Queer TG butch, ranch hand Preferred Pronoun?:
he Relationship Status:
single, not looking Join Date: Mar 2011
Location: Northern Ca.
Posts: 1,088
Thanks: 2,459
Thanked 1,029 Times in 361 Posts
Rep Power: 15314315 |
Quote:
__________________
"Your outlook affects your outcome". John Paul Warren |
|
|
|
|
| The Following 3 Users Say Thank You to mustangjeano For This Useful Post: |
 |
|
|
Hybrid Mode
