11-11-2009, 01:12 AM | #1 |
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Fibromyalgia
I know there has to be other Fibro sufferers here. Its such an insidious and painful disease. Would be nice to have a place where we can share stories, support one another, discuss new medications and therapies that might help us.
Jewel |
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11-12-2009, 06:15 PM | #2 |
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Bump...I cant be the only one here with Fibro.
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11-12-2009, 06:22 PM | #3 |
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I have it too.. Though in the last year or so it hasn't bothered me as much as it use to. I firmly belive that my aches and pains are not nearly as bad because my head is in a better place than it use to be. Actually a lot of my health problems are a lot better.
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11-12-2009, 06:28 PM | #4 |
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Yes, your emotional state DOES have a big effect on Fibro.
Genlte hugs, Jewel |
11-12-2009, 07:28 PM | #5 |
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*raising hand*
I am in what is probably my worst fibro flare in over 10 years. Not a happy camper, C |
11-12-2009, 07:35 PM | #6 |
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11-12-2009, 08:48 PM | #7 |
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My mother was diagnosed with Fibro in the early 90s when they were still saying it wasn't a Sure thing type disease....
They're suspecting I have it, from time to time I get 'flares' that closely resemble the symptoms.... 'specially when I'm stressed, or the weather's not optimal But then, I try hard not to let things stress me too much because then I trigger asthma, and Cluster headaches, depending how bad the stress level is.... There's a medication out for Fibromyalgia, but when the commercial reads all the side effects, it's unreal... The "cure" is worse than the sickness....
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11-12-2009, 10:22 PM | #8 |
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Awww honey, Im so sorry. Sleep is the single most important thing for us fibro sufferers. And please be kind to yourself my friend. I know its not easy. Has anyone tried Cymbalta? Ive been on it since it came out. It doesnt help the pain, but it helps the fibro fog and some other symptoms that I have.
I need to unburden my soul about something that I am very very scared about. I had some labwork done a few weeks ago and got the results today. I tested postive for an autoimmune disease that require further labwork and tests. It could be lupus. Who knows. Im scared to death. Those of you who know me, know I have already been put thru the ringer these past 7 years healthwise. I know that I will get thru this just like I have everything else. But Im scared. And tired. Ive had my fill. I try and have a positive attitude and not complain. So Im sorry if it comes off like that. Im glad we started this thread and can support each other. Gentle hugs, Jewel |
11-13-2009, 03:03 AM | #9 |
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I was diagnosed with Fibro in 1989. I had it mastered until 2007 when I was hit by a semi..twice. After herniating four back discs, it flared up my fibro. I just spent this year trying and succeeding getting the fibro to a point where I could tell the difference between it and the pain from my back injury. I am so well, in fact, I am going back to work. Rest, water therapy, muscle relaxers, a change in diet...did I say rest>? These were my tools...
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11-13-2009, 01:09 PM | #10 | |
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Good for you softness. I wish you continued success in the Fibro battle. Nice to see you again btw.
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11-13-2009, 05:09 PM | #11 |
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good to see you, too, Jewel, and so many others! It actually feels like a community here...
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11-17-2009, 12:54 AM | #12 |
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Trying to keep this thread alive for all of us Fibro folk.
Gentle hugs, Jewel |
11-17-2009, 01:50 AM | #13 |
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I got a PM asking me what Fibro is, so I am quoting a very short definition from the National Fibromyalgia Associations website:
Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause. Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities. Whether you have been diagnosed with fibromyalgia or suffer from its symptoms, or have a family member or friend with the disorder, this section is designed to provide you with a better understanding of this chronic pain disorder that affects millions of people worldwide. |
11-17-2009, 09:30 PM | #14 | |
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I wasn't diagnosed until around 2003, but now that I "know" I can see the symptoms going as far back as the early 80's. I lived with progressing pain for at least 20 years until it reached a point that I just couldn't tolerate it any longer. I was missing work because I could barely walk, my hands hurt so bad I could barely use a computer, etc. etc. Pain is an odd thing, it will sneak up on you and the next thing you know you think it's "normal", when in reality it's anything but. |
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11-17-2009, 10:35 PM | #15 |
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I'm raising my hand...I was diagnosed in the early 90's along with hypo thyroid disease. It was a pretty intense time before I was diagnosed. It was all very slow and progressive, I noticed the pain and sore spots but I stayed very active.
Earlier in my treatment I tried a lot of drugs at my Dr.s insistence ...Wrong thing for me. I just have not found much that does help other than some basic things...lots of rest, stay warm, stay active, eat right and take my muscle relaxers, do a toke at night. The "fog" is killing me though. The mental impact, especially when I am tired, can be intolerable at times. I'm learning things and doing things differently but there are days it takes everything that I have to make it thru. It has only been recently that I have had it this bad. I see a rheumatologist every 5 years for Lupus testing and to keep an eye on my Fibro. I have an appt in Jan so I am anxious as to what will happen or ? Lupus runs in my family. Lady Jewel..I'm sorry this is happening. If there is anything I can do just holler. |
11-17-2009, 10:59 PM | #16 | |
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Kim, Im so sorry that you are a part of our "elite" club . The fibro "fog" is tough. Especially for those around us that dont understand it. Ive been on Cymbalta since it came out, and while it does nothing for the fibro pain, it has helped with the "fog" a bit.
Im going to keep you in my thoughts and prayers that when January arrives, you will get nothing but positive news. And thank you for your support. It means a lot. Gentle hugs to all, Jewel Quote:
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11-17-2009, 11:15 PM | #17 | |
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One of the things I think I am going to do is to have a 24 hour saliva test done and analyzed. I've had such positive results with vitamin and diet changes that I wonder what more I can benefit from and at what cost. |
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11-17-2009, 11:33 PM | #18 |
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a little support :)
good evening. i do not have fibromyalgia, just wanted to say hi, after reading this thread, {{{{ kimbo }}}} and may you all have a gentle week
i overheard someone a few weeks ago make a comment that too much iron made her symptoms worse. best, belle |
11-18-2009, 06:11 AM | #19 |
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Good Morning Everyone!
I'm about 90% certain I have Fibro~ I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management. I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain. |
11-18-2009, 09:43 AM | #20 | |
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Welcome to the club Mom <g>. The most important thing for us fbro suffererers is sleep. You must get as much sleep as possible. And do your research on Fibro, theres a lot of useful info online.
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