being disabled....

Daywalker · 04-14-2011, 08:54 PM

Subscribing

Corkey · 04-14-2011, 10:32 PM

I am differently abled and found someone who just didn't give a rats patoot that I am. 3 herniated disc, arthritis, and fibro, amongst the most serious of issues. We all have flaws, it's how we deal with them that makes us who we are.
When you least expect it, there will be that one right person who will love you for you and not your ableness.

Good luck and don't sell yourself short.

Delish · 04-14-2011, 11:26 PM

I got sick almost 3 yrs ago. In Sept I got my disability because I have Lupus. It has already attacked most of my organs. Besides flare ups which are HORRIBLE and the chronic fatigue I am pretty good for the most part. I went through the whole " I don't need a partner or anyone in my life. Who would want to deal with this" but now I am over it. I firmly believe that we don't find love, love finds us. So just think positive and take care of yourself.

iamkeri1 · 04-14-2011, 11:34 PM

I normally post in pink, but decided not to because I have been told it is hard for people with limited vision to read. I am disabled myself. I will post to this thread in a minute, but for now I just wanted to list some other threads on the topic so anyone interested can peruse them,
Smooches
Keri

Differently Abled (fly your freak flag high)
　
The Mythical *Pass* for Differently-Abled People
　
Fibromyalgia/Chronic Illness/Chronic Pain/etc thread
　
Ableism and Ableist Language

iamkeri1 · 04-14-2011, 11:58 PM

It's funny - I don't knpw whether its because my eyes are tired or what, but this big type is HARDER for me to read.

I had polio at age three, walked with crutches for over forty years, and then when my arms began to go bad I switched full time to an electric scooter for mobility. The switch had negatives - no more dancing which I darly missed, and some problems with building accessibility. BUT the benefits have been overwhelmingly good for me. My energy level zoomed. I can use both hands at the same time for a task, I can carry my own tray in a cafeteria, I can do hundreds of activities that were difficult or impossible before, I can hold hands and move forward at the same time ,,, and I can finally "walk" and chew gum at the same time, LOL!

I had a wonderful 25 year marriage to my FTM husband who loved me both with crutches and with the scooter. He died seven years ago, and I spent most of that time alone. But it was ME who was not ready. This past year I have had loving relationships with two great people. Both relationships ended short of "forever", but the people I remain in touch with. It's real possible that I am still not ready.

But the point is, being disabled did not keep people from finding me attractive.

I am incredibly lucky (and incredibly grateful) to be pretty much pain free.

Blessings to you all. Single or partnered, may we all be content with our lives or have the ability to change them.
Smooches,
Keri

cuddlyfemme · 04-15-2011, 05:50 AM

Like Keri, I normally post in pink but have been told how hard reading pink is so I'm writing this in black. I'm an epileptic, I've had epilepsy since I was 11. The children's neurologist that I saw said it would go away when I got older but it never did and more than likely never will. There's somethings that I can't do, like drive which is really frustrating...I hate depending on others and on public transportation. I take meds every morning and every night. They pretty much control the seizures but a few times a year I still seize.

04-15-2011, 06:06 AM

Another here who takes daily meds for all sorts of things and whose life can be limited by health issues at any given time. You can't 'see' what's wrong so folks assume there is nothing wrong but then they don't know that I could have no feeling in my hands/arms that day or that I can barely draw breath (particularly in the winter - yay for better weather and calmer lungs), or that it took me hours just to get out of bed.

I've been very lucky that partners have understood my limitations and we've worked around them with minimum fuss.

Daywalker · 04-15-2011, 10:57 AM

As of yesterday, I'm not sure what I've got.

According to brand new tests, my 'Auto-Immune' stuff seems to all the
sudden be in order. My immune system is compromised, that is fer sure.
I was Dx'd with MS 13 years ago. Fibro & Arthritis are evident and have
been with me for years. So. Now. They are thinking I've had a small
series of Cardiac events that went undetected years back and have left
me fucked up with things that mimic many other conditions.
Reynauds is definitely present.
They still looking in on Sjogren's.
All this shit at once yesterday...has knocked me sideways
and wobbled my disposition for the last 24 hours.

So forgive me if I am lacking in the humor of it all right now.
I'm actually swimming in the pissed off and confused stage as I type.

That's my share for now.

Gonna have to go cheer myself up.
Or I'll have to ask myself to leave the room.

citybutch · 04-15-2011, 05:37 PM

Don't forget Connie Panzarino's The Me In the Mirror

[ame="http://www.amazon.com/Me-Mirror-Connie-Panzarino/dp/1878067451#reader_1878067451"]Amazon.com: The Me in the Mirror (9781878067456): Connie Panzarino: Books[/ame]

Connie was one of my dearest friends and I miss her madly... and I will always talk about her book....

I love me some Connie!

Quote:

Originally Posted by iamkeri1

I normally post in pink, but decided not to because I have been told it is hard for people with limited vision to read. I am disabled myself. I will post to this thread in a minute, but for now I just wanted to list some other threads on the topic so anyone interested can peruse them,
Smooches
Keri

Differently Abled (fly your freak flag high)
　
The Mythical *Pass* for Differently-Abled People
　
Fibromyalgia/Chronic Illness/Chronic Pain/etc thread
　
Ableism and Ableist Language

The Oopster · 04-15-2011, 07:48 PM

It's been ages since I've read this book but found it reassuring and inspirational at the timne I read it:

The Alchemy of Illness by Kat Duff she is a counselor in private practice that has chronic fatigue syndrome.

DamselFly · 05-22-2011, 10:06 AM

what a dismal week, medically! first, my glaucoma specialist tells me that i am now legally blind. then (this is the "in trouble" part") my gp. refuses to renew my fentanyl patches (100 mgs, every 48 hrs) from my prescription in WV. she DID refer me to a pain specialist but tells me that getting an appt will take a long time. when i asked what to do in the meantime, she says, "well, that is not my problem." ai, what a compassionate dr.! more info on the fibromyalgia/chronic pain thread. from all the info i've found on the web, coming off this cold-turkey is a very, very BAD idea...
*not looking forward to the coming days...*
DamselFly

iamkeri1 · 05-22-2011, 06:30 PM

Damsel.
Could you call your old doctor, tell them you are traveling out of state, and get the prescription renewed that way?
Smooches,
Keri

deb_U_taunt · 05-23-2011, 05:05 PM

I feel blessed with wonderful and loving people in my life.
Didn't know how many people cared, until I was down.

04-14-2011, 08:54 PM	#1
Daywalker Senior Member How Do You Identify?: Hippy Join Date: Nov 2009 Location: * Posts: 3,750 My Photo Gallery Thanks: 6,499 Thanked 11,916 Times in 2,700 Posts Rep Power: 21474855	Subscribing __________________ www.SirDaywalker.com

04-14-2011, 10:32 PM	#2
Corkey Infamous Member How Do You Identify?: Human Preferred Pronoun?: He Relationship Status: Very Married Join Date: Dec 2009 Location: Where I want to be Posts: 8,155 My Photo Gallery Thanks: 47,491 Thanked 29,268 Times in 6,637 Posts Rep Power: 21474859	I am differently abled and found someone who just didn't give a rats patoot that I am. 3 herniated disc, arthritis, and fibro, amongst the most serious of issues. We all have flaws, it's how we deal with them that makes us who we are. When you least expect it, there will be that one right person who will love you for you and not your ableness. Good luck and don't sell yourself short. __________________ "Many proposals have been made to us to adopt your laws, your religion, your manners and your customs. We would be better pleased with beholding the good effects of these doctrines in your own practices, than with hearing you talk about them". ~Old Tassel, Chief of the Tsalagi (Cherokee)

04-14-2011, 11:26 PM	#3
Delish Member How Do You Identify?: Queen of our castle Preferred Pronoun?: she Relationship Status: She put a ring on it and the date is set :) Join Date: Apr 2010 Location: Missouri...in her arms :) Posts: 1,089 My Photo Gallery Thanks: 1,279 Thanked 834 Times in 427 Posts Rep Power: 3888561	I got sick almost 3 yrs ago. In Sept I got my disability because I have Lupus. It has already attacked most of my organs. Besides flare ups which are HORRIBLE and the chronic fatigue I am pretty good for the most part. I went through the whole " I don't need a partner or anyone in my life. Who would want to deal with this" but now I am over it. I firmly believe that we don't find love, love finds us. So just think positive and take care of yourself. __________________

04-15-2011, 10:57 AM	#8
Daywalker Senior Member How Do You Identify?: Hippy Join Date: Nov 2009 Location: * Posts: 3,750 My Photo Gallery Thanks: 6,499 Thanked 11,916 Times in 2,700 Posts Rep Power: 21474855	As of yesterday, I'm not sure what I've got. According to brand new tests, my 'Auto-Immune' stuff seems to all the sudden be in order. My immune system is compromised, that is fer sure. I was Dx'd with MS 13 years ago. Fibro & Arthritis are evident and have been with me for years. So. Now. They are thinking I've had a small series of Cardiac events that went undetected years back and have left me fucked up with things that mimic many other conditions. Reynauds is definitely present. They still looking in on Sjogren's. All this shit at once yesterday...has knocked me sideways and wobbled my disposition for the last 24 hours. So forgive me if I am lacking in the humor of it all right now. I'm actually swimming in the pissed off and confused stage as I type. That's my share for now. Gonna have to go cheer myself up. Or I'll have to ask myself to leave the room. __________________ www.SirDaywalker.com Last edited by Daywalker; 04-15-2011 at 11:11 AM.

05-22-2011, 10:06 AM	#11
DamselFly Member How Do You Identify?: QueerStoneFemme Preferred Pronoun?: Ma'am or Damsel Relationship Status: single Join Date: Feb 2011 Location: hovering here and there Posts: 259 My Photo Gallery Thanks: 1,053 Thanked 771 Times in 199 Posts Rep Power: 396593	in BIG trouble and not sure what to do! what a dismal week, medically! first, my glaucoma specialist tells me that i am now legally blind. then (this is the "in trouble" part") my gp. refuses to renew my fentanyl patches (100 mgs, every 48 hrs) from my prescription in WV. she DID refer me to a pain specialist but tells me that getting an appt will take a long time. when i asked what to do in the meantime, she says, "well, that is not my problem." ai, what a compassionate dr.! more info on the fibromyalgia/chronic pain thread. from all the info i've found on the web, coming off this cold-turkey is a very, very BAD idea... not looking forward to the coming days... DamselFly __________________ so long as space remains so long as sentient beings remain i will remain in order to help, to serve, to make my own contribution (Buddhist prayer, a favorite of H.H.)

04-14-2011, 11:34 PM	#4
iamkeri1 Member How Do You Identify?: femme woman Preferred Pronoun?: she Relationship Status: solo Join Date: Nov 2009 Location: Central Florida Posts: 905 My Photo Gallery Thanks: 302 Thanked 2,153 Times in 659 Posts Rep Power: 16642920	I normally post in pink, but decided not to because I have been told it is hard for people with limited vision to read. I am disabled myself. I will post to this thread in a minute, but for now I just wanted to list some other threads on the topic so anyone interested can peruse them, Smooches Keri Differently Abled (fly your freak flag high) 　 The Mythical Pass for Differently-Abled People 　 Fibromyalgia/Chronic Illness/Chronic Pain/etc thread 　 Ableism and Ableist Language

04-14-2011, 11:58 PM	#5
iamkeri1 Member How Do You Identify?: femme woman Preferred Pronoun?: she Relationship Status: solo Join Date: Nov 2009 Location: Central Florida Posts: 905 My Photo Gallery Thanks: 302 Thanked 2,153 Times in 659 Posts Rep Power: 16642920	It's funny - I don't knpw whether its because my eyes are tired or what, but this big type is HARDER for me to read. I had polio at age three, walked with crutches for over forty years, and then when my arms began to go bad I switched full time to an electric scooter for mobility. The switch had negatives - no more dancing which I darly missed, and some problems with building accessibility. BUT the benefits have been overwhelmingly good for me. My energy level zoomed. I can use both hands at the same time for a task, I can carry my own tray in a cafeteria, I can do hundreds of activities that were difficult or impossible before, I can hold hands and move forward at the same time ,,, and I can finally "walk" and chew gum at the same time, LOL! I had a wonderful 25 year marriage to my FTM husband who loved me both with crutches and with the scooter. He died seven years ago, and I spent most of that time alone. But it was ME who was not ready. This past year I have had loving relationships with two great people. Both relationships ended short of "forever", but the people I remain in touch with. It's real possible that I am still not ready. But the point is, being disabled did not keep people from finding me attractive. I am incredibly lucky (and incredibly grateful) to be pretty much pain free. Blessings to you all. Single or partnered, may we all be content with our lives or have the ability to change them. Smooches, Keri

04-15-2011, 05:50 AM	#6
cuddlyfemme Senior Member How Do You Identify?: Stone Femme Preferred Pronoun?: her/she Relationship Status: single Join Date: Jun 2010 Location: South Carolina Posts: 2,271 My Photo Gallery Thanks: 717 Thanked 2,452 Times in 1,270 Posts Rep Power: 11496123	Like Keri, I normally post in pink but have been told how hard reading pink is so I'm writing this in black. I'm an epileptic, I've had epilepsy since I was 11. The children's neurologist that I saw said it would go away when I got older but it never did and more than likely never will. There's somethings that I can't do, like drive which is really frustrating...I hate depending on others and on public transportation. I take meds every morning and every night. They pretty much control the seizures but a few times a year I still seize.

04-15-2011, 06:06 AM	#7
Daktari Guest Tournaments Won: 1 Posts: n/a My Photo Gallery	Another here who takes daily meds for all sorts of things and whose life can be limited by health issues at any given time. You can't 'see' what's wrong so folks assume there is nothing wrong but then they don't know that I could have no feeling in my hands/arms that day or that I can barely draw breath (particularly in the winter - yay for better weather and calmer lungs), or that it took me hours just to get out of bed. I've been very lucky that partners have understood my limitations and we've worked around them with minimum fuss.

04-15-2011, 07:48 PM	#10
The Oopster Senior Member How Do You Identify?: transgender male Preferred Pronoun?: he Join Date: Jan 2010 Location: carson city nv Posts: 1,987 My Photo Gallery Thanks: 303 Thanked 2,655 Times in 759 Posts Rep Power: 20061509	It's been ages since I've read this book but found it reassuring and inspirational at the timne I read it: The Alchemy of Illness by Kat Duff she is a counselor in private practice that has chronic fatigue syndrome.

05-22-2011, 06:30 PM	#12
iamkeri1 Member How Do You Identify?: femme woman Preferred Pronoun?: she Relationship Status: solo Join Date: Nov 2009 Location: Central Florida Posts: 905 My Photo Gallery Thanks: 302 Thanked 2,153 Times in 659 Posts Rep Power: 16642920	Damsel. Could you call your old doctor, tell them you are traveling out of state, and get the prescription renewed that way? Smooches, Keri

05-23-2011, 05:05 PM	#13
deb_U_taunt Senior Member How Do You Identify?: ........ Join Date: May 2011 Location: ....... Posts: 1,748 My Photo Gallery Thanks: 5,324 Thanked 5,255 Times in 1,361 Posts Rep Power: 21474852	I feel blessed with wonderful and loving people in my life. Didn't know how many people cared, until I was down.