being disabled....

Rockinonahigh · 04-15-2011, 03:34 PM

OK,I am trying again to get this thing to put out big letters,So hear we go again.

One of the biggest things being difrently abled is the folks who are normal"whatever normal is" think many of us get a free pass for being difrentlyabled.I dont think I ever got a break because of my ablities,I have to work harder or difrently to get it done and often with better results cause we often put more effort into what it is we are doing.I can ashure u I havent lived a charmed life cause I havent,the hardest part of being diffrentlyabled is so many people either want to candy coat the issue,wich makes it worse or the bullys torment others cause they can get away with it..then say we are to sensitive.I call it BS.Many of us have gotten to where we are because we networked with people and places to to get the help we needed along the way.My hats off to the people who have helped any of us to to reach a goal or make a dream come true in many ways.If u have receved a helping hand...pass it on,there are many ways to do so.

Note from June: I made the font bigger for ya!

lipstixgal · 04-15-2011, 04:03 PM

I also suffer from disabilities like Fibro and bipolar disorder which can get me down. I have been struggling since I had the Lyme's disease 10 years ago. I am a medical assistant and want to work and be part of a functioning society as well so I can understand what it is like to have pain every day and not be able to get going every day!! I wish the best of luck to everyone on this thread and hope they find a cure for what ales people!!

wolfbittenpoet · 04-15-2011, 04:11 PM

Completely understand the feeling of never finding someone who love me as I am. I have issues due to complications of strep throat and as a result I am on hemodialysis. Needless to say it limits my ability to do things. Some days I don't even want to crawl out of bed. But this site and online socialization keeps me relatively sane.

Soft*Silver · 04-15-2011, 04:44 PM

so..does anyone else have problems getting pain meds from their Dr? I swear my Dr is so paranoid! I ask for pain meds twice a year. I ask for maybe two weeks worth of meds at a time. Wow. Some addict I am. And I ask only for enough to help me sleep..not 24 hour coverage. YET...my Dr refuses to give them to me! I have to read her the riot act and go in, show her how damn crippled up I am, break down into tears, which makes me feel like I am at her mercy instead of a grown up to be trusted, before she takes me in earnest. After treating me for almost 3 years, why cant she just take my word for it?

THIS is why the little green plant has become my friend at rare times

Daywalker · 04-15-2011, 05:24 PM

For myself, I find that the consumption of the Groovy Green along
with absorbing high levels of pain at times...is preferable to being
Pharmacologically dependent on anything the Drug Manufacturing
Machine has to offer. I take Ultram 50mg and Flexeril for break
though pain. Ultram is a non-narcotic. Perhaps you can get your
Doc to look into the Ultram, and perhaps gradually get
you on the Ultram ER (extended release 200mg)

.

DomnNC · 04-15-2011, 10:02 PM

Quote:

Originally Posted by Daywalker

I take Ultram 50mg and Flexeril for break
though pain. Ultram is a non-narcotic. Perhaps you can get your
Doc to look into the Ultram, and perhaps gradually get
you on the Ultram ER (extended release 200mg)

I hate to break it to you but Ultram is indeed a narcotic, it is a synthetic opiate and it can be addictive, tho they claim the incidence of addiction is far less than most opiates. There are lots of people who have gotten addicted to it and withdrawals from it are hell for some people. My Dr prescribed it to me at one point but it did nothing for my pain level.

"While Ultram is technically a narcotic or opioid pain medication, it is different from typical narcotics in that patients do not build up a tolerance with extended usage and there is a very low incidence of addiction. With other narcotics there is a general tendency to escalate the dosage of the medicine with time and a chance of addiction. The narcotic effect of Ultram is not as strong as the narcotic agents in other common pain medications, such as Vicodin (hydrocodone) and Oxycontin and Percocet (Oxycodone)."

Full text here: http://www.spine-health.com/treatmen...-pain-reliever

Check out these people's experiences with Ultram:

http://www.drugs.com/forum/featured-...l-22123-2.html

Corkey · 04-15-2011, 10:26 PM

While I seldom take any pain meds, as I am allergic in icky ways to the stuff, every now and again I have to have them, and just acknowledge that the side effects are gonna kick my ass. That said I cannot take opiates, my PCP knows this and has no issue with prescribing Hydrocodone for me. He also knows I am not a drug seeker and have mind managed my pain levels for 30+ years. Having a good PCP is paramount to good pain management. Self education of medicines and their uses and counter indications is helpful when having these discussions with your Doc. I cannot take Ultram because I take Meloxicam for the arthritis, it is counter indicated.
Be aware, be proactive, be informed, it is your in your best interest.

Daywalker · 04-15-2011, 11:13 PM

Quote:

Originally Posted by DomnNC

I hate to break it to you but Ultram is indeed a narcotic, it is a synthetic opiate and it can be addictive, tho they claim the incidence of addiction is far less than most opiates. There are lots of people who have gotten addicted to it and withdrawals from it are hell for some people. My Dr prescribed it to me at one point but it did nothing for my pain level.

"While Ultram is technically a narcotic or opioid pain medication, it is different from typical narcotics in that patients do not build up a tolerance with extended usage and there is a very low incidence of addiction. With other narcotics there is a general tendency to escalate the dosage of the medicine with time and a chance of addiction. The narcotic effect of Ultram is not as strong as the narcotic agents in other common pain medications, such as Vicodin (hydrocodone) and Oxycontin and Percocet (Oxycodone)."

Full text here: http://www.spine-health.com/treatmen...-pain-reliever

Check out these people's experiences with Ultram:

http://www.drugs.com/forum/featured-...l-22123-2.html

Holy Crap

LOL

Well, I take a 50mg about 5 times a week.

Unfortunetly anything stronger than Motrin makes me feel hella icky.

Throws mah balance/equilibruim sideways; compare it to
being in the yuckiest part of a drunken state...and
yer stuck there for like 2 hours.

Woozy, but not the good kind.

See, I was told that the Ultram 50mg was classified non-narcotic.

I'll have to decide how I feel about
all that later, for now Imunna marinate.

always2late · 04-15-2011, 08:03 PM

Quote:

Originally Posted by softness

so..does anyone else have problems getting pain meds from their Dr? I swear my Dr is so paranoid! I ask for pain meds twice a year. I ask for maybe two weeks worth of meds at a time. Wow. Some addict I am. And I ask only for enough to help me sleep..not 24 hour coverage. YET...my Dr refuses to give them to me! I have to read her the riot act and go in, show her how damn crippled up I am, break down into tears, which makes me feel like I am at her mercy instead of a grown up to be trusted, before she takes me in earnest. After treating me for almost 3 years, why cant she just take my word for it?

THIS is why the little green plant has become my friend at rare times

This enrages me! I have two herniated discs...and I'm a nurse. I work 12 hour shifts where I am on my feet for most of those hours. Yet, when the pain gets bad enough that I can barely walk and I go to my Dr....he looks at me like I'm an addict! MORON!! Look at my medical history!! Do you SEE an abuse of medication?? Thanks for making me feel like my pain doesn't really matter when you see that I can barely walk or stand upright. I swear, compassion is sorely lacking in healthcare. Note: Like softness...I only ask for the pain meds when it gets really bad...MAYBE twice a year, and only enough to get me through a week or so until the pain subsides enough that I can function...yep, if I'm an addict I'm sure as hell doing it wrong!

DomnNC · 04-15-2011, 09:49 PM

I understand about the frustration of getting pain meds. I've had 2 cervical fusions and one lumbar fusion with all sorts of hardware. I have permanent nerve damage due to waiting too long to have anything done about these things.

The DEA is cracking down hard on Dr's who prescribe a lot of pain meds. My PCP sent me to a pain Dr to determine what the extent of damage I had. The pain Dr made a recommendation as to the type, amount and dosage of pain meds. He put this in writing to my PCP and said he would prefer that my PCP write the prescription each month or every 3 months so that one Dr was prescribing all my meds and would know everything I'm taking. I don't know if any of ya'll having issues with getting pain meds have been to a pain specialist or not. If not, go to one and have them make the recommendation back to your PCP and have it put in your file, that way the PCP's butt is covered in the event the DEA pays a visit to their office or makes an inquiry.

You can go to the American Pain Foundations website and go to the PainSafe tab, there is a section for Dr's on pain treatment with opiods, print out some of it and take it to your Dr and have an open honest discussion with them about it. Here's the link:

http://www.painfoundation.org/

Sachita · 04-16-2011, 05:21 AM

Quote:

Originally Posted by softness

so..does anyone else have problems getting pain meds from their Dr? I swear my Dr is so paranoid! I ask for pain meds twice a year. I ask for maybe two weeks worth of meds at a time. Wow. Some addict I am. And I ask only for enough to help me sleep..not 24 hour coverage. YET...my Dr refuses to give them to me! I have to read her the riot act and go in, show her how damn crippled up I am, break down into tears, which makes me feel like I am at her mercy instead of a grown up to be trusted, before she takes me in earnest. After treating me for almost 3 years, why cant she just take my word for it?

THIS is why the little green plant has become my friend at rare times

change dr. this is bs

scootebaby · 04-16-2011, 10:05 AM

Incubus thanks for the reminder....it was late,waiting for pills to kick in,and wasnt thinking. Dom--thanks for your response...i am hoping that surgery is only an option not a have to case...when i first injured it affected my right side...i would come home in tears after working a 12 hr shift...in 2007 the disc bulged and just touched the nerve...i took PT and had 3 epidurals...lived on ibuprofen because they said nothing else could be done...so i let it go up till about 5 months ago when i couldnt stand it any longer..they put me on loracets and flexeril 10mg...fast forward to almost 3 weeks ago....the disc went,but this time it affected my left side initially...dilaudid was prescribed..the last few days from my hips down both legs tingle,gets feeling of numbness,and aches so bad i cant sit still....it really sucks not being able to move around...watch my g/f work herself silly everyday with her work,the home,and me...then there is the fact my store is hanging by a thread bc my people cant seem to get their egos thru the door!

JustJo · 04-16-2011, 10:31 AM

Quote:

Originally Posted by scootebaby

...watch my g/f work herself silly everyday with her work,the home,and me...

I'm silly anyway honey...you know that...

I think it's important to not "tough it out" but to take it easy, see what's happening, and insist on the care you (and that's all of you) need from the doctors. Too often it's the insurance companies making the decisions, based on money, and you have to be an insistent and determined advocate for yourself.

Toughy · 04-16-2011, 10:33 AM

Vicodin is hydrocodone + acetaminophen (tylenol). Vicodan is hydrocodone + aspirin. Hydrocodone is an opiate.

Percoset is oxycodone + acetaminophen. Percodan is oxycodone + aspirin. Oxycodone is an opiate.

MS Contin is morphine in a continuous release formula.

IF you take Vicodin or Percoset on a daily basis, you should ask your doctor for 'plain' hydrocodone or oxycodone. Or you could ask your doc for the formula that has aspirin instead of tylenol. Tylenol can cause permanent liver damage and an overdose of tylenol can kill you (yes kill you dead of liver failure).

ALL of your drugs should be filled at the same pharmacy no matter what doctor orders them.

04-15-2011, 03:34 PM	#1
Rockinonahigh Senior Member How Do You Identify?: stone butch Preferred Pronoun?: makes no diffrence,I know who I am. Relationship Status: single,maybe looking if the right person comes along. Join Date: Dec 2009 Location: shreveport,Louisiana Posts: 4,907 My Photo Gallery Thanks: 4,682 Thanked 14,933 Times in 3,938 Posts Rep Power: 21474856	OK,I am trying again to get this thing to put out big letters,So hear we go again. One of the biggest things being difrently abled is the folks who are normal"whatever normal is" think many of us get a free pass for being difrentlyabled.I dont think I ever got a break because of my ablities,I have to work harder or difrently to get it done and often with better results cause we often put more effort into what it is we are doing.I can ashure u I havent lived a charmed life cause I havent,the hardest part of being diffrentlyabled is so many people either want to candy coat the issue,wich makes it worse or the bullys torment others cause they can get away with it..then say we are to sensitive.I call it BS.Many of us have gotten to where we are because we networked with people and places to to get the help we needed along the way.My hats off to the people who have helped any of us to to reach a goal or make a dream come true in many ways.If u have receved a helping hand...pass it on,there are many ways to do so. Note from June: I made the font bigger for ya! Last edited by T-Rex; 04-15-2011 at 08:18 PM.

04-15-2011, 04:03 PM	#2
lipstixgal Senior Member How Do You Identify?: femme Preferred Pronoun?: She Relationship Status: coupled Join Date: Feb 2010 Location: New Jersey Posts: 3,028 My Photo Gallery Thanks: 201 Thanked 1,690 Times in 1,064 Posts Rep Power: 1494761	I also suffer from disabilities like Fibro and bipolar disorder which can get me down. I have been struggling since I had the Lyme's disease 10 years ago. I am a medical assistant and want to work and be part of a functioning society as well so I can understand what it is like to have pain every day and not be able to get going every day!! I wish the best of luck to everyone on this thread and hope they find a cure for what ales people!! __________________ Gail

04-15-2011, 04:11 PM	#3
wolfbittenpoet Member How Do You Identify?: Typewriter Boy Preferred Pronoun?: He/They Relationship Status: Single Join Date: Sep 2010 Location: FL where cows go mooooo Posts: 535 My Photo Gallery Thanks: 893 Thanked 1,579 Times in 403 Posts Rep Power: 7518427	Completely understand the feeling of never finding someone who love me as I am. I have issues due to complications of strep throat and as a result I am on hemodialysis. Needless to say it limits my ability to do things. Some days I don't even want to crawl out of bed. But this site and online socialization keeps me relatively sane. __________________ Burn Burn Burn

04-15-2011, 04:44 PM	#4
SoftSilver Infamous Member How Do You Identify?: femme Preferred Pronoun?: she Relationship Status: Married Join Date: Nov 2009 Location: rose cottage Posts: 5,592 My Photo Gallery Thanks: 8,948 Thanked 15,894 Times in 4,062 Posts Rep Power*: 21474857	so..does anyone else have problems getting pain meds from their Dr? I swear my Dr is so paranoid! I ask for pain meds twice a year. I ask for maybe two weeks worth of meds at a time. Wow. Some addict I am. And I ask only for enough to help me sleep..not 24 hour coverage. YET...my Dr refuses to give them to me! I have to read her the riot act and go in, show her how damn crippled up I am, break down into tears, which makes me feel like I am at her mercy instead of a grown up to be trusted, before she takes me in earnest. After treating me for almost 3 years, why cant she just take my word for it? THIS is why the little green plant has become my friend at rare times __________________ Pole bachit, a lis chuye. The field sees, the forest hears

04-15-2011, 05:24 PM	#5
Daywalker Senior Member How Do You Identify?: Hippy Join Date: Nov 2009 Location: * Posts: 3,750 My Photo Gallery Thanks: 6,499 Thanked 11,916 Times in 2,700 Posts Rep Power: 21474855	For myself, I find that the consumption of the Groovy Green along with absorbing high levels of pain at times...is preferable to being Pharmacologically dependent on anything the Drug Manufacturing Machine has to offer. I take Ultram 50mg and Flexeril for break though pain. Ultram is a non-narcotic. Perhaps you can get your Doc to look into the Ultram, and perhaps gradually get you on the Ultram ER (extended release 200mg) . __________________ www.SirDaywalker.com Last edited by Daywalker; 04-15-2011 at 05:42 PM. Reason: keep forgetting to RAISE the FONT size

04-15-2011, 10:26 PM	#7
Corkey Infamous Member How Do You Identify?: Human Preferred Pronoun?: He Relationship Status: Very Married Join Date: Dec 2009 Location: Where I want to be Posts: 8,155 My Photo Gallery Thanks: 47,491 Thanked 29,268 Times in 6,637 Posts Rep Power: 21474859	While I seldom take any pain meds, as I am allergic in icky ways to the stuff, every now and again I have to have them, and just acknowledge that the side effects are gonna kick my ass. That said I cannot take opiates, my PCP knows this and has no issue with prescribing Hydrocodone for me. He also knows I am not a drug seeker and have mind managed my pain levels for 30+ years. Having a good PCP is paramount to good pain management. Self education of medicines and their uses and counter indications is helpful when having these discussions with your Doc. I cannot take Ultram because I take Meloxicam for the arthritis, it is counter indicated. Be aware, be proactive, be informed, it is your in your best interest. __________________ "Many proposals have been made to us to adopt your laws, your religion, your manners and your customs. We would be better pleased with beholding the good effects of these doctrines in your own practices, than with hearing you talk about them". ~Old Tassel, Chief of the Tsalagi (Cherokee)

04-15-2011, 09:49 PM	#10
DomnNC Timed Out How Do You Identify?: Male Preferred Pronoun?: He/Him Relationship Status: Widow Join Date: Sep 2010 Location: Permanently Banned 11/15/2011 Posts: 1,223 My Photo Gallery Thanks: 2,618 Thanked 2,582 Times in 837 Posts Rep Power: 0	I understand about the frustration of getting pain meds. I've had 2 cervical fusions and one lumbar fusion with all sorts of hardware. I have permanent nerve damage due to waiting too long to have anything done about these things. The DEA is cracking down hard on Dr's who prescribe a lot of pain meds. My PCP sent me to a pain Dr to determine what the extent of damage I had. The pain Dr made a recommendation as to the type, amount and dosage of pain meds. He put this in writing to my PCP and said he would prefer that my PCP write the prescription each month or every 3 months so that one Dr was prescribing all my meds and would know everything I'm taking. I don't know if any of ya'll having issues with getting pain meds have been to a pain specialist or not. If not, go to one and have them make the recommendation back to your PCP and have it put in your file, that way the PCP's butt is covered in the event the DEA pays a visit to their office or makes an inquiry. You can go to the American Pain Foundations website and go to the PainSafe tab, there is a section for Dr's on pain treatment with opiods, print out some of it and take it to your Dr and have an open honest discussion with them about it. Here's the link: http://www.painfoundation.org/

04-16-2011, 10:05 AM	#12
scootebaby Timed Out How Do You Identify?: yes dear Preferred Pronoun?: she Join Date: Nov 2009 Location: south florida Posts: 2,494 My Photo Gallery Thanks: 3,264 Thanked 6,737 Times in 1,777 Posts Rep Power: 0	Incubus thanks for the reminder....it was late,waiting for pills to kick in,and wasnt thinking. Dom--thanks for your response...i am hoping that surgery is only an option not a have to case...when i first injured it affected my right side...i would come home in tears after working a 12 hr shift...in 2007 the disc bulged and just touched the nerve...i took PT and had 3 epidurals...lived on ibuprofen because they said nothing else could be done...so i let it go up till about 5 months ago when i couldnt stand it any longer..they put me on loracets and flexeril 10mg...fast forward to almost 3 weeks ago....the disc went,but this time it affected my left side initially...dilaudid was prescribed..the last few days from my hips down both legs tingle,gets feeling of numbness,and aches so bad i cant sit still....it really sucks not being able to move around...watch my g/f work herself silly everyday with her work,the home,and me...then there is the fact my store is hanging by a thread bc my people cant seem to get their egos thru the door!

04-16-2011, 10:33 AM	#14
Toughy Senior Member How Do You Identify?: pervert butch feminist woman Preferred Pronoun?: see above Relationship Status: independent entity Join Date: Nov 2009 Location: Oakland Posts: 1,826 My Photo Gallery Thanks: 4,068 Thanked 7,654 Times in 1,523 Posts Rep Power: 21474853	Vicodin is hydrocodone + acetaminophen (tylenol). Vicodan is hydrocodone + aspirin. Hydrocodone is an opiate. Percoset is oxycodone + acetaminophen. Percodan is oxycodone + aspirin. Oxycodone is an opiate. MS Contin is morphine in a continuous release formula. IF you take Vicodin or Percoset on a daily basis, you should ask your doctor for 'plain' hydrocodone or oxycodone. Or you could ask your doc for the formula that has aspirin instead of tylenol. Tylenol can cause permanent liver damage and an overdose of tylenol can kill you (yes kill you dead of liver failure). ALL of your drugs should be filled at the same pharmacy no matter what doctor orders them.