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Old 01-23-2012, 09:08 PM   #1
princessbelle
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For years I have had restles leg problems and took flexerill 5mg to help with it,now as I have gotten a bit more down the road I am haveing some twitching in my arms neck and shoulders,it usely happends when im tired or late in the day.I really havent said anything to my doc about it,not long ago I got this pain in my shin bone like being stabed witha 18 gauge needle.I have an appointment with my doc in Febuary with an orthopedic and I am going to see what she says,I have mentioned it to my medicaid doc and he says its cause of my injuries in my spine and neck,he may be right.There are times I dont have anything happen then bam its back in some way.Im also takeing meclizine for an inner ear thing that I have delt with since I was in knickers,in reality its more of a nusence but can be embarrasing when it pops up out of nowhere.The folks I know who are aware of it and the quirkey things that happen just ignore it,the ones who make comments or look at me strange I nignore them.The strange thing is sitting totaly still is near impossable,unless I am reading a book or doing something that keeps my mind locked in to it.
I am not makeing lite of this at all,as it can be serious in some people,I have worked with folks with nervous problems so I take it in stride.Ive also wondered if I am developing some othe nervous thing like parkenston.
Definitely get it checked out.

Just to be clear...I DO NOT have Parkinson's. There are many people who do. There are many diseases that are not diagnosed correctly at the beginning and it can cause them to progress when they don't have to.

I have found with my shaking that people i am around a lot get, i suppose, used to it and don't notice it that much. People who i just meet, however, do notice it. Stress has a lot to do with it too.

You are on the right track. Take ownership of your symptoms and your body. Research, study and demand tests be done that you know would benefit you.

Good luck to you and keep us posted.


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Old 01-23-2012, 09:12 PM   #2
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Belle, I have a friend who was at her doctor's for something, and the doc noticed a fine tremor of her left arm..and asked "how long have you had that" and she answered, I don;t recall what she said..anyway she was diagnosed with MS..and had to go out on disability..as she was an SLP and was fearful of making a wrong decision for someone to get any kind of feeding tube....she gets a shot every night..I have to ask her what the name of it is...anyway...I know she is dx.'ed with one thing and you with another...jus' was sharin'
YOU have nothing to be embarassed about..we all love you totally!!!
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Old 01-23-2012, 09:28 PM   #3
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Definitely get it checked out.

Just to be clear...I DO NOT have Parkinson's. There are many people who do. There are many diseases that are not diagnosed correctly at the beginning and it can cause them to progress when they don't have to.

I have found with my shaking that people i am around a lot get, i suppose, used to it and don't notice it that much. People who i just meet, however, do notice it. Stress has a lot to do with it too.

You are on the right track. Take ownership of your symptoms and your body. Research, study and demand tests be done that you know would benefit you.

Good luck to you and keep us posted.


I will but u do take care of u,this place is better with u being hear.
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Old 01-23-2012, 09:34 PM   #4
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Damnit, I had this long post typed out and I hit the wrong button.

I noticed it, but I just thought/think it's part of who you are.

No more crying about it.

There.

OK. Deal.
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Old 01-23-2012, 09:39 PM   #5
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It would be interesting to hear from others with similar experiences and I am interested to learn more about the breakthrough.

I hardly ever notice Belle's head shaking and when I do I don't care because she says it isn't dangerous to her health.

You are beautiful just the way you are baby. <3
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Old 01-23-2012, 09:46 PM   #6
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It would be interesting to hear from others with similar experiences and I am interested to learn more about the breakthrough.

I hardly ever notice Belle's head shaking and when I do I don't care because she says it isn't dangerous to her health.

You are beautiful just the way you are baby. <3
Thank you sweetheart. You are right, at least i'm not gonna die from it.

Could be worse things.

Way way worse things.

I am very lucky in ALL aspects of my life. <3
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Old 03-10-2012, 05:02 PM   #7
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Thanks to everyone who has written to me privately here and on FB about having these tremors. I've heard from about 7 people who suffer with shaking and about 4 have been diagnosed with exactly what i have.

Update:

Went to Doc last week due to my back but i mentioned that new treatment with "waves" sent to the brain that has actually totally stopped the shaking in people with Essential Tremors. He said he has been watching this closely as well and is a member, so am i, of the National Essential Tremor Foundation. He says it is too early to request this treatment, but to hang in there. He said another year and it should be a go.

That's good news for me, and for anyone else that shakes due to this disease. I will continue to update this thread with more research and more information as i find it. Feel free to do so yourself if you want, or private messaging me is fine of course.

Hang in there shakers, help may just be around the corner!!!!!



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Old 03-10-2012, 05:33 PM   #8
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Thanks to everyone who has written to me privately here and on FB about having these tremors. I've heard from about 7 people who suffer with shaking and about 4 have been diagnosed with exactly what i have.

Update:

Went to Doc last week due to my back but i mentioned that new treatment with "waves" sent to the brain that has actually totally stopped the shaking in people with Essential Tremors. He said he has been watching this closely as well and is a member, so am i, of the National Essential Tremor Foundation. He says it is too early to request this treatment, but to hang in there. He said another year and it should be a go.

That's good news for me, and for anyone else that shakes due to this disease. I will continue to update this thread with more research and more information as i find it. Feel free to do so yourself if you want, or private messaging me is fine of course.

Hang in there shakers, help may just be around the corner!!!!!



Belle you are very brave to have started this thread . I too suffer from tremors and I also have the shaking yes in my head. It is embarrasing especially in public or if I'm around people who don't know me, will ask me 'why are you shaking?' If I get nervous I get them even worse but the people in my life know what's going on and accept it. Just wanted to tell you 'we are not alone sweetgirl' .
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