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#1 | |
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Just to be clear...I DO NOT have Parkinson's. There are many people who do. There are many diseases that are not diagnosed correctly at the beginning and it can cause them to progress when they don't have to. I have found with my shaking that people i am around a lot get, i suppose, used to it and don't notice it that much. People who i just meet, however, do notice it. Stress has a lot to do with it too. You are on the right track. Take ownership of your symptoms and your body. Research, study and demand tests be done that you know would benefit you. Good luck to you and keep us posted.
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#2 |
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Belle, I have a friend who was at her doctor's for something, and the doc noticed a fine tremor of her left arm..and asked "how long have you had that" and she answered, I don;t recall what she said..anyway she was diagnosed with MS..and had to go out on disability..as she was an SLP and was fearful of making a wrong decision for someone to get any kind of feeding tube....she gets a shot every night..I have to ask her what the name of it is...anyway...I know she is dx.'ed with one thing and you with another...jus' was sharin'
YOU have nothing to be embarassed about..we all love you totally!!!
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#3 | |
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OK. Deal. ![]()
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#5 |
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It would be interesting to hear from others with similar experiences and I am interested to learn more about the breakthrough.
I hardly ever notice Belle's head shaking and when I do I don't care because she says it isn't dangerous to her health. You are beautiful just the way you are baby. <3
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#6 | |
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Could be worse things. Way way worse things. I am very lucky in ALL aspects of my life. <3
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#7 |
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Thanks to everyone who has written to me privately here and on FB about having these tremors. I've heard from about 7 people who suffer with shaking and about 4 have been diagnosed with exactly what i have.
Update: Went to Doc last week due to my back but i mentioned that new treatment with "waves" sent to the brain that has actually totally stopped the shaking in people with Essential Tremors. He said he has been watching this closely as well and is a member, so am i, of the National Essential Tremor Foundation. He says it is too early to request this treatment, but to hang in there. He said another year and it should be a go. That's good news for me, and for anyone else that shakes due to this disease. I will continue to update this thread with more research and more information as i find it. Feel free to do so yourself if you want, or private messaging me is fine of course. Hang in there shakers, help may just be around the corner!!!!! ![]() ![]()
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~ I've learned that people will forget what you said,
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#8 | |
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