Lounge for Deaf people and their allies

[Viola]

From reading your message and thinking of batteries, you know what cross my mind???

What if a person made their own batteries...

Um question when you buy your batteries can you take that off your taxes?

What is it like to work for the state of TX., when you did...

That's true abotu surgery what if it goes wrong then what does a person do...

Speaking of ear drums one time I gotten tubes stuck in my ear drum they did surgery on that...

or something like that it was stuck... Mom told me about this when I gotten older., something to do with tubes getting stuck really bad...

I remember getting my ears suck by the device, it scraps like in the ear drum, like... the ears feels raw. I be lying on my side and got to be really still...

I also remember this black ball of air and how my ears had to be popped that i was painful. I also remember doc standing next to me as I sit, and doc doing something to ear, I remember as a kid pulling on doc ear as I reach my hand upward and hang on doc ear and then doc yank on my ear, to teach me not to do that.,

I had to sit still as a kid., can't escape what doc going to do in my ear...

so your mom knows by heart your whole history of ears, my mom remembers a lot too., more then I do as I don't remember all of it as a kid,

oh one time in surgery I work up in the midst of surgery, I do remember this, and I wasn't suppose to wake up, I was in pain, they put me back out...

yeah that's true, what if your ear drum has a hole again, after they fix it.. all that you will go through and then your ear drum gets a whole again, yet doc gets paid but what about your energy in thsi all., thinking of energy it takes a lot of energy docs and...

Originally Posted by DamonK

When I worked for the state of Texas, their insurance paid $500 towards hearing aids. $500! What if I'd bought 2? Still just $500. And I'd have all the paperwork, etc.

I buy mine out of pocket. I buy my batteries out of pocket. I really don't care if any insurance covers my batteries because I'm not going to keep receipts, etc for a year to give to the insurance company so they can argue with me.

I can expect 1 battery to last... usually 2-3 weeks, but for simplicity, let's say a week.

An 8 pack usually costs about $8. So, let's say $1 a battery.

I'm gonna pay about $52 a year on batteries.
I'm gonna pay XXXX amount every few years on maintenance.

Let's assume the average person gets a BTE (since those are my "specialty") every 10 years at $5000. That person starts at 5 years old, and ends at 90.

That estimate is based off MY personal situation.

So, 90/10=9. 9x5000=45000
52x90=4680

***This is an extreme overestimate***

It's not cheap. It's going to get more expensive.

I get to pay for ALL this, maintenance, insurance to cover aforementioned hearing aid.

Surgery = cheaper in long run. But, you don't know it will work. And there aren't any "take backs" once you have the surgery. If they're wrong, they're wrong.

A couple of years ago, I got a nasty ear infection. I can't do any of this simply. I don't get to go to general doctors. I get to go to specialists. So, I'm at the ENT's office and this nice PA is trying to convince me to let the ENT repair the hole in my ear drum.

Me: Why?
PA: It can be fixed.
Me: They said that before. And every time it busted again.
PA: You might could hear.
Me: I don't feel good. Let's talk about it next time with the ENT.
PA: Ok.

Understand I basically got a suction device stuck in my ear and sucked the infection out. It's not pleasant and many times quite painful.

I set up the next ENT appointment to coincide with my mom's visit. You know, she knows my entire history by heart. I'm not gonna remember all that stuff.

ENT: I think with repairing the ear drum and a BTE, you could hear.
Me: Really, now?
ENT: Yes.
Me: What are my chances?
ENT: What do you mean?
Me: If I let you do this, what are my chances of being able to hear? What are the chances of the ear drum blowing again?
ENT: I can't answer if it will bust again.
Me: What about the hearing?
ENT: With training, maybe a 70% chance.

Now, I'm gonna be 30 next month. I've only had one ear for 20 years.

I'm also a CNA. That means intense physical work. After surgery, about 2-3 hours, I would be on a 10 lb restriction for 6-8 weeks.

Then, I'd get to buy another BTE.

For a maybe....a BIG maybe.

Sometimes, the chance to hear, isn't worth the price you end up paying.

[DamonK]

............................

Originally Posted by Viola

From reading your message and thinking of batteries, you know what cross my mind???

What if a person made their own batteries...

Doubt it is safely possible. I'm not mechanically inclined. At all.

Um question when you buy your batteries can you take that off your taxes?

What is it like to work for the state of TX., when you did...

I loved it. I paid dearly for it. In some ways, the best times of my life were there. In some ways, the worst times of my life. During that period was when I discovered drugs. But I also discovered what it was like to fall apart, and still have someone stand there ready to slap you back into being you again... and not be scared.

<snip>..................................

[Bad_boi]

My buddy is deaf so I decided to take ASL over summer. I learned a few signs already, wish me luck.

[~Softbutch4U~]

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

[DamonK]

Originally Posted by ~Softbutch4U~

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

Most Deaf people I know disagree with the CI. But it can be quite controversial.

Me? Uh uh. No way. Too expensive. Too unlikely to succeed.

[femmedyke]

I've had severe hearing issues all my life. Chronic and undiagnosed sinusitis with small Eustachian tubes lent itself to many ear surgeries as a child and into adulthood. When I was 12 I had surgery on my left ear to repair my perforated ear drum and since that surgery I've heard amazing in that ear! However, I have been somewhat screwed with my right ear. I developed mastoiditis several years ago and have had a couple of mastoidectomies. This last one was very expensive and rendered me deaf completely in my right ear as my ENT removed my incus bone with the notion that I would be able to have the second surgery to replace it rather quickly. Crappy insurance did not allow this to happen and two years after that surgery I'm still looking for a way to have this second surgery with implant. I saw someone wrote about cholestotomas -- I had two removed during that surgery as well,that was terribly painful!

I don't sign, I actually will read some lips but mostly depend on my left ear to compensate. Being hard of hearing has often put me in my own world. I get really tired of asking 'huh' or 'what' and kind of just shut down. *shrug*

[nycfem]

Do you know sign language?

Originally Posted by ~Softbutch4U~

I'm Profoundly Deaf but i can read lips alittle bit. Any of u who asked abt cochear impaired? Im against of that. But if u want to have one. Just be careful w that. Best way to ask alot deaf people to find out abt that. I know its cost alot $$ and some r didnt working right.. and some could died by bacteria cuz of molding grow inside. When I was very younger before I graduate in High School and I told my mother that i didnt want to have CI. They understood.

[~Softbutch4U~]

Originally Posted by nycfembbw

Do you know sign language?

Yes, I use PSE. Its part of ASL but i use sign as english for sentence to deaf people. I notices that alot deaf people do not understand my sentences by text msgs. I almost grew up in mainsteam school most of the time. I felt bad for deaf people who couldnt write english well. I dont blame them.

Femmedyke: I know it is VERY expensive to have CI. Last time i heard was $60K but Im sure there r some way to get some help by Vocab Rehabit. I was going to get some help by VR but didnt have time to get a day off and stop by the office to discuison for Hearing Aids. I dont wear hearing aids for almost 4 yrs now. I like to listen the sound but not the words. Alot of my hearing friends said.. You r really lucky that u cant hear. Cuz they cant stand the sound like fire alarm or people get into arguement, etc. For me: I wish i can hear cuz i wanted what the sound of people's accent.. birds sing, waterfall.. many more.

[~Softbutch4U~]

Oops, its for DamonK not femmedyke. lol my bad

[nycfem]

At the school where I work we technically use PSE but I think it ends up being more of a combination of ASL and PSE. I study both and think both are useful.

Originally Posted by ~Softbutch4U~

Yes, I use PSE. Its part of ASL but i use sign as english for sentence to deaf people. I notices that alot deaf people do not understand my sentences by text msgs. I almost grew up in mainsteam school most of the time. I felt bad for deaf people who couldnt write english well. I dont blame them.

Femmedyke: I know it is VERY expensive to have CI. Last time i heard was $60K but Im sure there r some way to get some help by Vocab Rehabit. I was going to get some help by VR but didnt have time to get a day off and stop by the office to discuison for Hearing Aids. I dont wear hearing aids for almost 4 yrs now. I like to listen the sound but not the words. Alot of my hearing friends said.. You r really lucky that u cant hear. Cuz they cant stand the sound like fire alarm or people get into arguement, etc. For me: I wish i can hear cuz i wanted what the sound of people's accent.. birds sing, waterfall.. many more.