Fibromyalgia

[Lady Jewel]

Kim, Im so sorry that you are a part of our "elite" club . The fibro "fog" is tough. Especially for those around us that dont understand it. Ive been on Cymbalta since it came out, and while it does nothing for the fibro pain, it has helped with the "fog" a bit.

Im going to keep you in my thoughts and prayers that when January arrives, you will get nothing but positive news.

And thank you for your support. It means a lot.

Gentle hugs to all,
Jewel

Originally Posted by Kimbo

I'm raising my hand...I was diagnosed in the early 90's along with hypo thyroid disease. It was a pretty intense time before I was diagnosed. It was all very slow and progressive, I noticed the pain and sore spots but I stayed very active.

Earlier in my treatment I tried a lot of drugs at my Dr.s insistence ...Wrong thing for me. I just have not found much that does help other than some basic things...lots of rest, stay warm, stay active, eat right and take my muscle relaxers, do a toke at night. The "fog" is killing me though. The mental impact, especially when I am tired, can be intolerable at times. I'm learning things and doing things differently but there are days it takes everything that I have to make it thru. It has only been recently that I have had it this bad.

I see a rheumatologist every 5 years for Lupus testing and to keep an eye on my Fibro. I have an appt in Jan so I am anxious as to what will happen or ? Lupus runs in my family.

Lady Jewel..I'm sorry this is happening. If there is anything I can do just holler.

[Kimbo]

Originally Posted by Lady Jewel

Kim, Im so sorry that you are a part of our "elite" club . The fibro "fog" is tough. Especially for those around us that dont understand it. Ive been on Cymbalta since it came out, and while it does nothing for the fibro pain, it has helped with the "fog" a bit.

Im going to keep you in my thoughts and prayers that when January arrives, you will get nothing but positive news.

And thank you for your support. It means a lot.

Gentle hugs to all,
Jewel

Thank you. I really have a hard time trusting all the new drugs, they are almost all still psychotropic, if not all. They send me through the roof with anxiety. I've very, very cautious of them. How long have you been on Cymbalta? I believe that I am more hormonally impacted--that is where I feel and know I need to keep the greatest balance.

One of the things I think I am going to do is to have a 24 hour saliva test done and analyzed. I've had such positive results with vitamin and diet changes that I wonder what more I can benefit from and at what cost.

[violaine]

good evening. i do not have fibromyalgia, just wanted to say hi, after reading this thread, {{{{ kimbo }}}} and may you all have a gentle week

i overheard someone a few weeks ago make a comment that too much iron made her symptoms worse.

best,
belle

[Stacy]

Good Morning Everyone!
I'm about 90% certain I have Fibro~
I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management.
I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain.

[Lady Jewel]

Welcome to the club Mom <g>. The most important thing for us fbro suffererers is sleep. You must get as much sleep as possible. And do your research on Fibro, theres a lot of useful info online.

Jewel

Originally Posted by DeviantMom

Good Morning Everyone!
I'm about 90% certain I have Fibro~
I haven't been officially diagnosed by a physician, but from my understanding, they have no definitive test for it. I've researched and diagnosed myself. (I have no health insurance at the moment) I've decided to treat it with exercise and stress management.
I was taking way too much Tylenol and Ibuprofen. I quit taking that daily and now sometimes go a couple weeks without any. For me it's really about learning to live with the pain.

[christie]

We have really let this thread die!

Last week, I decided to give Savella a whirl. I have never had any success with antidepressants as pain management in regard to my fibro and I was very hesitant to walk this road again.

I'll keep updating after I titrate up to therapeutic dosing levels. So far (and I know its too early, but I am an immediate gratification kinda woman) nada. But - I remain hopeful!

[Soft*Silver]

Ihave been diagnosed with Akylosis Spondylitus. AS or AKA Bamboo back. My spinal column is actually fusing together. This also affects connective tissue, like ligaments and tendons. Inflammation of those can cause muscle soreness and pain. In other words, what they thought might have been fibro, could be just symptoms of AS. Its genetic too, so my family is all getting tested for it. And yes, many of them have been diagnosed with fibro.

I am currently on steroids, and cymbalta for this. I start injectables today. I am SO not wanting to do this. I am scared...

I also have shoulder spurs that have to be operated on. This is kicking up my Fibro/AS. But I need this done so I dont feel like a nail has been pounded in my shoulder top.

[Outlaw]

Has anyone tried Lyrica?

[Canela]

Originally Posted by Outlaw

Has anyone tried Lyrica?

I take Lyrica on an as needed basis and it works well for me...been taking it for the last 2 years or so.

[christie]

Originally Posted by Outlaw

Has anyone tried Lyrica?

I have as has my father. I am not a fan.

I've also tried Savella. Not a fan of that, either!

What has done amazing things for me is establishing a relationship with a chiropractor. I'm fortunate that my health plan covers visits. I've been going once/twice a week for several months now and the difference the warm heat/TENS combined with adjustments is just short of my own personal miracle.

For the first time in almost a year, Jess is able to cuddle me in bed without my skin feeling as if I am on fire.

My shoulders and the burning pain across my upper back has eased - I have days like yesterday (after a chiro visit) that I am able to be the workaholic I am without it being such a struggle. I felt "good" - and that has been hard to come by.

I did see a new OTC/homeopathic ad for a fibro treatment. I have it on the list to do some label reading - I can't find a link for it, but I will post it as soon as I find it in the drug store.

Best of luck to you.
Christie

[lipstixgal]

Originally Posted by Outlaw

Has anyone tried Lyrica?

Yes I have lyrica and flexeril as well. I will try the savella next or the cymbalta if the doctor prescribes it to me..I only take the lyrica on a need be basis as it causes weight gain..