Cancer Support and Caregivers Who Are Trail Blazers!

[Tommi]

Has anyone here had to deal with bone marrow cancer either yourself or someone you know? ,What can you share with me? Moms 82 and a few weeks before had congestive heart failure

Hello Luv,

The thing with cancer, it affects folks in different ways. One really great resource is the Oncology office of her doctor. Usually have a family liaison to help you and give you advice, diets, cautions, etc.

With the CHF and new Medications in her life, all things considered, being well nourished, hydrated and warm is a plus. If chemo/radiation is proposed ask them the best and worse outcomes for Mom.

If biopsy confirmed, histology of cells identified, MRI results, Cancer lab work is all done , get the Primary Doc and Oncologist talking to each other. American Cancer Society has free guides and booklets on line that you can order.

Fatigue, pain, loss of appetite, inability to get up and down easily, extreme caution on traveling, stairs, etc. , as bones fractures aren't something to add on top of it.

Give her fresh flowers to look at.
and a soft fuzzy teddy bear to hold tight against her achy parts when no one I'd there to hug her.

Much love and positive protective bubbles to you and Mom. :rrose:

[DapperButch]

Hey, guys, I had a colonoscopy today, and I am in the clear! :thumbsup:

Only one 3mm polyp, so the next one is in one year!

[Daisy Chain]

Thats WONDERFUL NEWS !!!!!!!!!!!

So So pleased for you !!

*big smiles* Daisy





Hey, guys, I had a colonoscopy today, and I am in the clear! :thumbsup:

Only one 3mm polyp, so the next one is in one year!

[clay]

Hey, guys, I had a colonoscopy today, and I am in the clear! :thumbsup:

Only one 3mm polyp, so the next one is in one year!

YAY! This is great news DB! Thanks for sharing!

[Daisy Chain]

Hello all, hope everyone is doing well and enjoying happy healthy days.

I went for my 4th antibody therapy treatment today, 4th of 12 every 2 months for 2 years, then I`m on my own ! :|

Its usually given by drip which takes 4 hours to go through but its changed now to a 5 minute injection !! :) Problem was I had to wait for the drug to arrive at daycare and it also took 40mins and several goes to get a canula in me as and I quote...`my veins are crap, theres just nothing there, they are so fine, they like to hide, oh its blown again and they dont even have any bounce !`....after heat packs, hot water hand washing and a few good slaps we got there ! If only I could have the pre meds, in tablet form I would be in and out.

Anyhow I`m not whining, just sharing. I still think I am privileged to live in a country where care is available, its not for some, and I can go home at the end of it, always a plus !

I would say this though, I`m always a little melancholy to go there, it takes me back to my `ill place` which I manage to keep on the sidelines of my life on the whole. And also brings thoughts of others whom I have sat alongside having treatment and who are no longer with us. Which in turn makes me value every day more.

Anyway, chin up buttercup !

Love to you all, Daisy :bouquet:

[Tommi]

Just checkin in. Reading everyone's posts. A valuable reminder, we are still here, and some, like Daisy Chain still doing the active battles.

That "place" we sometimes see but can't find on a map, can visit, but never want to stay. We can't take anyone with us, without road signs, posted limits, or directions.

Knowing that I am here, and find myself not visiting that place so often, and knowing every single day and every single person and smile is most important.

My Minds Book of Good Memories helps to keep me on the right road, and my plans for the future point to a map on my wall. Sierra Club world map is posted on my kitchen wall, with post it notes of today and tomorrow things to do, places to go. Next week Cleveland, November Galapagos.

Around me are happy pictures, we celebrated my first real tattoo at Benihana's (after my pelvic radiation dot tattoo's, I got Kanji Master script, on my arm, and in my signature below), Our 2nd year anniversary, which was almost two years to the day, after my re-diagnosis, and our Honeymoon Photo in May, also at Benihana's. That is our Friday night dinner place, we celebrate something on those nights, it is my way of marking the road behind, and knowing, that ahead there are Friday nights I will be celebrating my life. In the last two years we have celebrated life, Pictures of two beautiful couples that were married, and in whose wedding we were proud to be part of.

Roses and plumeria blooming all around the house, all year long, to remind me of the natural beauty and smells of this wonderful planet.

All this helps keep me in the place I want to be. Looking out the window, I see the need to refill the hummingbird feeder, so my cat can chatter through the glass, and the little birds can twitter about happy to have a drink in shade, in this horrible hundred degree heat.

I have places to go and things to do. I even forgot about, missed the 6 month follow-up oncologists appointment, now post-poned till mid Oct. and I didn't panic. Maybe because I was dealing with a broken foot, a trip to see the Steelers and my sister I hadn't seen in 25+ years. Taking the wife to meet my estranged family. What a hoot that was, and they welcomed her with open arms.

Since that "place" took me by such surprise, that May of 2004, I am happy to visit BFP and know we are still here, can keep coming back, and understand , those moments, those nights and days, and the life of those interrupted.:bunchflowers:.

Love ,
Tommi (f)

[Genesis]

Good day everyone...

I feel like I was out in a time warp and just got out of it...
My deepest condolences for those that have lost a loved one since I last was active on this thread... Also I am happy and excited for those of you who are
on remission and clean, and those of you still rolling up your sleeves and kicking toosh! As for me, I am doing ok... This year has been an uphill battle with a few wonderful restful stops that had magnificent views and then more climbing... This year is not over and neither are the opportunities for learning and growing... My Mama had been on remission from multiple myeloma for almost a year until probably two-three weeks ago... As of right now... She keeps fighting... and we are hanging on... It had been a while since I had to see her this way... I know it was unrealistic to think that she would not have another battle... another close call... I know it was a bit silly of me to think that she would just keep getting better.... I learned my lesson... duly noted... She is so strong... I just hope I can keep holding on as hard as she is fighting... I love you Mama...

[Genesis]

Hello everyone! I hope everyone is doing well or as good as you can given the current situation you each might be in.
My Mama is recuperating slowly and doing well. She is such a strong woman... Never seizes to amaze me... As for me I'm just keeping my eyes up to the sky and feeling gratitude in my heart for the interesting roller coaster we have been in the last few weeks. Wishing each of you to have wonderful holidays with your loved ones whom you call family.... Make each moment count...

[clay]

Hello everyone! I hope everyone is doing well or as good as you can given the current situation you each might be in.
My Mama is recuperating slowly and doing well. She is such a strong woman... Never seizes to amaze me... As for me I'm just keeping my eyes up to the sky and feeling gratitude in my heart for the interesting roller coaster we have been in the last few weeks. Wishing each of you to have wonderful holidays with your loved ones whom you call family.... Make each moment count...

Sending gentle hugs & healing energies for Genesis & mama!
Hold on to her tight, my friend!!!
Keeping you both close in spirit!!!!

[clay]

:Thursday is my "time of the year"....

NO :sushi::wine: nor
:chocolate:

All shall be well.......hugs to everyone!

[clay]

Great colonoscopy & Esophagoscopy results!!! All clear! Yay! Dec. 9th was my 4 year mark post colon/uterine cancer!

I am so happy with these results!

Thank you to everyone who sent me well wishes & good luck!

For those who are battling...even silently....know you are in my heart always....I send you positive energies & wishes for strength to fight the fight!!! Know you each are so loved....xoxo...clay

[DapperButch]

Great colonoscopy & Esophagoscopy results!!! All clear! Yay! Dec. 9th was my 4 year mark post colon/uterine cancer!

I am so happy with these results!

Thank you to everyone who sent me well wishes & good luck!

For those who are battling...even silently....know you are in my heart always....I send you positive energies & wishes for strength to fight the fight!!! Know you each are so loved....xoxo...clay

CONGRATS!

Are you sure it isn't 5 years? How did I hit 5 years and you hit 4? I thought we were at the same time? Hey, I should have made a post about 5 years! Heh. It was 8/2015.

[clay]

CONGRATS!

Are you sure it isn't 5 years? How did I hit 5 years and you hit 4? I thought we were at the same time? Hey, I should have made a post about 5 years! Heh. It was 8/2015.

THANKS!!!

I am certain it was 4 on 12/09. Mine was December 2011 for the surgery...diagnosis was November 2011!!!

I think what you are counting is different than what I am counting. I count from Dec. 9.2011 to Dec 9, 2015! I think you were counting 2011, 2012,2013,2014,2015..lol...Mine was the last month of the year 2011....:).

Anyway, it is all good!!!

[DapperButch]

THANKS!!!

I am certain it was 4 on 12/09. Mine was December 2011 for the surgery...diagnosis was November 2011!!!

I think what you are counting is different than what I am counting. I count from Dec. 9.2011 to Dec 9, 2015! I think you were counting 2011, 2012,2013,2014,2015..lol...Mine was the last month of the year 2011....:).

Anyway, it is all good!!!


I was probably still in the chemo fog when you first got diagnosed!

[easygoingfemme]

Well, while I was gone from here for about 1.5 years I spent about 9 months of that navigating breast cancer. Went through diagnosis, bilateral mastectomy, chemo, and radiation. I finished treatment on December 18th. I start hormone blockers sometime in the next week and should be on that for 10 years. Cheers, trail blazers. Health and healing to us all!

[DapperButch]

Well, while I was gone from here for about 1.5 years I spent about 9 months of that navigating breast cancer. Went through diagnosis, bilateral mastectomy, chemo, and radiation. I finished treatment on December 18th. I start hormone blockers sometime in the next week and should be on that for 10 years. Cheers, trail blazers. Health and healing to us all!

Hi, easygoingfemme. I'm sorry to hear that this dreaded disease struck you. Breast cancer treatment is a long road. I am glad you came to this thread and hope that you stick around. Keep us updated.

[clay]

Well, while I was gone from here for about 1.5 years I spent about 9 months of that navigating breast cancer. Went through diagnosis, bilateral mastectomy, chemo, and radiation. I finished treatment on December 18th. I start hormone blockers sometime in the next week and should be on that for 10 years. Cheers, trail blazers. Health and healing to us all!

hi easygoing....thank you for being brave & posting your journey! Cancer sucks....but I am glad to see you are fighting & able to join us here....take care....we are here to stand with you & support you....hugs...

[TruTexan]

I wish all of you healing and good outcomes and better health now and in the years to come.

[easygoingfemme]

Thanks, everyone. Hopes for you all to have a healthy cancer free path ahead as well! I'm grateful I went into this in otherwise very good health, and very grateful to be on the other side of the chemo/surgery part. This year challenged me in so many ways. Now forming "the new normal" and putting one foot in front of the other.

[girlin2une]

What an amazing and positive attitude you have! :rrose:


Thanks, everyone. Hopes for you all to have a healthy cancer free path ahead as well! I'm grateful I went into this in otherwise very good health, and very grateful to be on the other side of the chemo/surgery part. This year challenged me in so many ways. Now forming "the new normal" and putting one foot in front of the other.

[Genesis]

http://scontent.xx.fbcdn.net/hphotos-xlt1/v/t1.0-9/734886_1004859189570251_5716721920116361208_n.jpg? oh=dd07ce2d6e22cf87cdc819a6598b7f3d&oe=5747E48B

ABOUT CLEANING FOR A REASON
Cleaning For A Reason is a nonprofit organization that serves the United States and Canada. Our mission is to give the gift of free house cleaning for women undergoing treatment for any type of cancer. Our goal is to let these brave and strong women focus on their health and treatment while we focus on, and take away the worry and work of, cleaning their homes– free of charge. We have recruited over 1,200 maid services to donate free housecleaning to women who are undergoing treatment for cancer. Since 2006, our partner maid services have volunteered their time to clean for over 19,500 women – valued at over $5,500,000.

Link for more information HERE (http://www.cleaningforareason.org/)

[TruTexan]

Glad you posted that Genesis, I saw it on my facebook page this afternoon and thought about posting it here as well. It's legit.

[Bèsame*]

https://s-media-cache-ak0.pinimg.com/236x/6c/6e/59/6c6e595c4428205639a828b50cb9c49d.jpg

[deb_U_taunt]

I logged in to say thank you all for the support. The cancer has gone from bones to lungs. I am no longer doing any treatment. I just wanted to tell you that you were the best support when this journey began. lots of love and hugs XOXOXOXOXOXO

[DapperButch]

I logged in to say thank you all for the support. The cancer has gone from bones to lungs. I am no longer doing any treatment. I just wanted to tell you that you were the best support when this journey began. lots of love and hugs XOXOXOXOXOXO

Oh, geezus. I'm so sorry. Please know you are in my thoughts and prayers. (f) Thank you for coming in.

[clay]

I logged in to say thank you all for the support. The cancer has gone from bones to lungs. I am no longer doing any treatment. I just wanted to tell you that you were the best support when this journey began. lots of love and hugs XOXOXOXOXOXO

Hey Deb...very sorry to hear this. Please know you are in our thoughts & sends you hugs!!

[easygoingfemme]

I logged in to say thank you all for the support. The cancer has gone from bones to lungs. I am no longer doing any treatment. I just wanted to tell you that you were the best support when this journey began. lots of love and hugs XOXOXOXOXOXO

Sending positive energy and light your way~~~I will be thinking of you.

[clay]

I see my oncologist next week. I just had bloodwork done this week....he checks my tumor marker levels every 6 months. My colonoscopy & EGD were "clean" back in January! I expect great news when I get the latest bloodwork results also!!!!.....:hangloose:

[clay]

I see my oncologist next week. I just had bloodwork done this week....he checks my tumor marker levels every 6 months. My colonoscopy & EGD were "clean" back in January! I expect great news when I get the latest bloodwork results also!!!!.....:hangloose:

Everything looks good.....:). I am now 5 years (come December) surviving!!!!

Thanks for everyone's kind words & support through this journey!!!

[*Anya*]

Congrats Clay! Happy to hear it.

I also got great results this week from blood work markers and ultrasound.

Doctor said I can be considered cured from my thyroid cancer and just need annual blood work for the markers now.

This thread gets both the very sad and very happy news. Sometimes I feel guilty when others are not as fortunate.

Cancer is a fucker. It knows not who or what we are when it attacks us and does not care.

Prayers and healing good thoughts to those that are still fighting the battle.

Comfort and peace to anyone that is not able to fight anymore.

:moonstars:

[clay]

Thank you Anya!

That is great news for you as well...congrats!!!

Yes, it is a thread filled with good & not so good news sometimes, BUT it is a wonderfully supportive & compassionate thread. It got me through my journey....and still comforts me.

Hugs for everyone here.....

[DapperButch]

Everything looks good.....:). I am now 5 years (come December) surviving!!!!

Thanks for everyone's kind words & support through this journey!!!

Congrats, Clay!

I have my annual CAT scan in a month (moved to annual this year). I am several months late on my colonoscopy. I get sick of doing them so often (every 6 months). The prep doesn't even bother me, it is just having to deal with medical stuff that gets annoying. And yeah, I guess I don't like being reminded of my history with cancer, either!

[easygoingfemme]

A year ago today I was four weeks out from some major surgery and was starting my first day of four months of some serious chemotherapy. I had shaved my head to donate my hair, rather than having it just fall out, and was in a dark scary place.

Today, I'm working in the morning, then taking my daughter on a college tour, and then I want to make a really good dinner. My hair is growing and I'm feeling healthy and strong. What a year...

The anniversaries are good for me to celebrate when I "reclaim" days because otherwise when I have these "one year later" moments it can just rear up anxiety and worry. The anxiety and worry still pop up, but I'm trying hard to crowd that out with positives.

Cheers, everyone!

[clay]

Thanks for sharing your heart with us EGF!

Reclaiming is an excellent way to "take back" your life!!!

I am well aware of "anxiousness" & "worrisome" ideations along the journey!!

Congratulations on your surviving that dark journey my friend!!! I am elated you are still among us!!!!

For what it is worth, I am in silent support for you.....go get 'em girl!!!!!



A year ago today I was four weeks out from some major surgery and was starting my first day of four months of some serious chemotherapy. I had shaved my head to donate my hair, rather than having it just fall out, and was in a dark scary place.

Today, I'm working in the morning, then taking my daughter on a college tour, and then I want to make a really good dinner. My hair is growing and I'm feeling healthy and strong. What a year...

The anniversaries are good for me to celebrate when I "reclaim" days because otherwise when I have these "one year later" moments it can just rear up anxiety and worry. The anxiety and worry still pop up, but I'm trying hard to crowd that out with positives.

Cheers, everyone!

[clay]

Congrats, Clay!

I have my annual CAT scan in a month (moved to annual this year). I am several months late on my colonoscopy. I get sick of doing them so often (every 6 months). The prep doesn't even bother me, it is just having to deal with medical stuff that gets annoying. And yeah, I guess I don't like being reminded of my history with cancer, either!

Thank you Dapper!

I will be thinking of you & waiting to see your posts after your exam!

Know you are always in my heart & thoughts DB!!!!

[DapperButch]

Thank you Dapper!

I will be thinking of you & waiting to see your posts after your exam!

Know you are always in my heart & thoughts DB!!!!

Right back at cha, Clay!

My CAT scan is on 7/15/16. I am scheduled to see my oncologist on 7/19, but I need to change that because I have a conflict.

[DapperButch]

Right back at cha, Clay!

My CAT scan is on 7/15/16. I am scheduled to see my oncologist on 7/19, but I need to change that because I have a conflict.

Hey, guys. Please keep me in your thoughts tomorrow!

I also decided that it was more important that I leave one meeting early and be late for the second one in order to go to my appointment on 7/19. I don't want to delay hearing the results of my scan.

[easygoingfemme]

Hey, guys. Please keep me in your thoughts tomorrow!

I also decided that it was more important that I leave one meeting early and be late for the second one in order to go to my appointment on 7/19. I don't want to delay hearing the results of my scan.

Sending lots of positive thoughts to you today and I'm glad you have a fast turnaround on getting your results back. I hope you can plan some good relaxing activities to help you through the weekend wait...

[DapperButch]

Tomorrow is the day (again!). :blowingitup:

My colonoscopy is WAY past due. I am supposed to go every 6 months.

Please keep me in your thoughts....

[DapperButch]

NOOOO polyps at all! That is the FIRST time that has happened at a colonoscopy since my cancer (5 of them, I believe). Every freakin' time I have polyps. He says I can go out to once a year now. Last time he told me every 6 months for the foreseeable future. Yay!

Thank for your support, guys!

[clay]

NOOOO polyps at all! That is the FIRST time that has happened at a colonoscopy since my cancer (5 of them, I believe). Every freakin' time I have polyps. He says I can go out to once a year now. Last time he told me every 6 months for the foreseeable future. Yay!

Thank for your support, guys!

Awesome news DB! I thought of you all day today!!

Thanks for this wonderful news.....love ya buddy!!

[easygoingfemme]

NOOOO polyps at all! That is the FIRST time that has happened at a colonoscopy since my cancer (5 of them, I believe). Every freakin' time I have polyps. He says I can go out to once a year now. Last time he told me every 6 months for the foreseeable future. Yay!

Thank for your support, guys!

Woohoo!!!!!!!!!!!!!!!!!!! Great news. Happy dancing for you :)

[clay]

FIVE years now cancer free.

Today marks the date 5 years ago I was in the hospital for 2 weeks, having half my large intestine removed & a complete hystero.

I was so very blessed to have it be Stage 1 & operable, plus I did not have to have any chemo or radiation, for which I was/am so very thankful!!

I will always remember how very supportive the folks in this thread were & the one special guardian angel I was gifted who came to be with me, having never met before, for six weeks. She went to hospital with & stayed with me there 24/7 for 2 whole weeks. Now that is a true friend indeed. We are still very close to this day and always will be.

Anyway I am celebrating my victory over cancer, today & I will always be grateful for all of you here. Thanks from the depths of my heart & soul..I heart you all!!!!

[easygoingfemme]

Happy Happy Anniversary!!!!!!!!!!:cheer::cheer: That 5 year mark has to feel so good to check off- so happy for you!

[easygoingfemme]

A year ago today I had my last breast cancer treatment. This concluded 9 months of surgery, chemo, and radiation. I am so looking forward to starting my second year away from all of that. Today I have a nice day ahead with good friends coming for dinner. We hadn't planned it to fall on this day specifically but I'm glad we did!

[DapperButch]

A year ago today I had my last breast cancer treatment. This concluded 9 months of surgery, chemo, and radiation. I am so looking forward to starting my second year away from all of that. Today I have a nice day ahead with good friends coming for dinner. We hadn't planned it to fall on this day specifically but I'm glad we did!

Congratulations on your one year past treatment! Based on what you are saying, this means you are 1.75 years from surgery?

I've been wanting to ask you about something for a long time, and I think that other readers may find your response here useful. Subsequently, I am not writing this in PM.

After my surgery I became crazy nuts about eating vegan (plus shellfish...some people call this seagan), making sure all the foods I ate were also high in anti-oxidants, and went to see Dr. Keith Block (in Chicago), to do bloodwork to determine which supplements would be best for me and the doses. He has been doing integrative cancer work for over 35 years when no one else did (and are only starting to). His book Life Over Cancer is what I followed and as consistent with eating this way until a couple of years ago. www.lifeovercancer.com. I spoke about it ad nauseam on this thread as I very strongly believe in a mostly plant based diet and wanted all of my fellow "cancer survivors", to know about it. There is just too much data that tells us this. A lot of it is about inflammation.

(I do feel a need to admit that a year and a half ago I moved away from being strict in my eating. The bulk of the reason for this is that my old partner, whom I was with during my cancer and for more than several years afterwards, already ate vegan (plus shellfish), and was wonderfully conscious of buying organic and choosing vegetables and spices that have a lot of anti oxidants. However, I don't do a lot of cooking (although I have learned a lot and do more now), and chicken is quick and easy (so I eat that quite a bit), and I sometimes eat diary (cheese). I also don't completely avoid sugar, which I know causes tumor growth.) Anyway...

My recollection is that when you first came onto the site you had your own business working as a nutritionist or something or other that included how one eats and I believes supplements and the like. I believe that you eat vegan (or maybe I just assume it), and I know that you exercise regularly. You also seem to be conscious of the fact that part of good health is taking care of our stress.

Since my belief is that the way you eat and live your life is the key to the avoidance of chronic and terminal illness (cancer, heart disease), I was very surprised to read that you had cancer.

So, I need to ask if how you live your life is new, or if you have lived this way for a long time? I am especially curious how long you have eaten vegan/more of a plant based diet, as I believe that is the key to all of this. I believe that what we put into our bodies (especially what we eat), is what triggers or alternatively keeps from triggering, any predisposition a person has towards getting a chronic/terminal illness.

Thanks for your response in advance! ha!

[clay]

Congratulations EGF!! That is a major milestone. Thank you for sharing your story with us also! The 9th of Dec. marked my 5 year mark of being cancer free. I just had a CEA level done, and waiting to hear those results BUT I am optimistic it is all good!!

Take care. Share more of your journey as you are comfortable with....big hugs my friend...YAY!! I am really glad you are here with us!!!




A year ago today I had my last breast cancer treatment. This concluded 9 months of surgery, chemo, and radiation. I am so looking forward to starting my second year away from all of that. Today I have a nice day ahead with good friends coming for dinner. We hadn't planned it to fall on this day specifically but I'm glad we did!

[easygoingfemme]

Hey Dapper,
Your memory is mostly correct- well done! I've worked for years as a holistic health counselor/nutrition educator. I went vegetarian at the age 12 (I'm 42 years old now) and have spent a lot of my life as vegan. However, as a recovered anorexic I live a life where I eat what I want when I want it and sometimes that means I eat chicken, turkey or fish. I don't really like sweets/sugary things so that cancer feeding food has never really had a frequent place in my diet.

I was diagnosed in May 2015, surgery June 2015, then 4 months chemo and 6 weeks radiation. My initial diagnosis was stage I so I thought surgery was going to be it but it turned out stage II so I went further with treatment. I also did an alternative chemo on weeks when I didn't have traditional chemo- with my naturopath. We did Vitamin C chemotherapy and acupuncture treatments throughout my "other" cancer treatments. Since my cancer was 95% estrogen positive (fed by estrogen) I take a drug that works to essentially prevent any other cancer cells that could develop in my body from absorbing estrogen. I'll be on that for another 9 years.

(I also want to say that my diagnosis stemmed from self exam at home, 6 months after I had a "clean and clear" mammo and ultrasound. So all of you here with breasts, please check them monthly! If I wasn't checking mine this could have been much worse)

I have most always kept a very clean healthy life. Eating well, exercising, keeping to a healthy weight for my body (Since I was about 20), not using toxic body products or chemicals in my house (not obsessively but living a mostly natural life) I followed all of the protocol for "preventing breast cancer" due to extensive family history of it.

So, it was a very traumatic feeling, betrayal, to after all of that, be diagnosed with cancer. Even though I knew my genetics would make me at a higher risk than most, I thought I was doing everything I should do to prevent it.

I went to a naturopathic oncologist for answers. She took about a gallon of my blood to check for reasons, nutritional deficiencies, inflammation markers, etc. When the results came in, she told me that I had the best biological terrain she had ever seen and didn't have any answers for me, other than genetics, on why I had developed cancer, especially at such a young age.

In my own searching for "why" I had to set my mind on some emotions that were stuck in me and I feel in my gut that was what allowed my cancer to grow. A dear friend of mine had died unexpectedly a year and a half before and I did not process my grief well. I stayed on my knees for a long time after that and am still processing it. I also had some unhealthy relationships (friends, family, etc) that I was accepting in my life and they kept me bottling up some hurt feelings and anger that I wasn't letting go of or dealing with. So that's the area I've changed the most I think. I'm sharper with checking in with my emotions. I've cut off toxic people who were in my life and keep a sharper check on fresh relationships that I develop and I keep stronger boundaries up with people who I think could threaten my emotional well being.

[DapperButch]

Hey Dapper,
Your memory is mostly correct- well done! I've worked for years as a holistic health counselor/nutrition educator. I went vegetarian at the age 12 (I'm 42 years old now) and have spent a lot of my life as vegan. However, as a recovered anorexic I live a life where I eat what I want when I want it and sometimes that means I eat chicken, turkey or fish. I don't really like sweets/sugary things so that cancer feeding food has never really had a frequent place in my diet.

I was diagnosed in May 2015, surgery June 2015, then 4 months chemo and 6 weeks radiation. My initial diagnosis was stage I so I thought surgery was going to be it but it turned out stage II so I went further with treatment. I also did an alternative chemo on weeks when I didn't have traditional chemo- with my naturopath. We did Vitamin C chemotherapy and acupuncture treatments throughout my "other" cancer treatments. Since my cancer was 95% estrogen positive (fed by estrogen) I take a drug that works to essentially prevent any other cancer cells that could develop in my body from absorbing estrogen. I'll be on that for another 9 years.

(I also want to say that my diagnosis stemmed from self exam at home, 6 months after I had a "clean and clear" mammo and ultrasound. So all of you here with breasts, please check them monthly! If I wasn't checking mine this could have been much worse)

I have most always kept a very clean healthy life. Eating well, exercising, keeping to a healthy weight for my body (Since I was about 20), not using toxic body products or chemicals in my house (not obsessively but living a mostly natural life) I followed all of the protocol for "preventing breast cancer" due to extensive family history of it.

So, it was a very traumatic feeling, betrayal, to after all of that, be diagnosed with cancer. Even though I knew my genetics would make me at a higher risk than most, I thought I was doing everything I should do to prevent it.

I went to a naturopathic oncologist for answers. She took about a gallon of my blood to check for reasons, nutritional deficiencies, inflammation markers, etc. When the results came in, she told me that I had the best biological terrain she had ever seen and didn't have any answers for me, other than genetics, on why I had developed cancer, especially at such a young age.

In my own searching for "why" I had to set my mind on some emotions that were stuck in me and I feel in my gut that was what allowed my cancer to grow. A dear friend of mine had died unexpectedly a year and a half before and I did not process my grief well. I stayed on my knees for a long time after that and am still processing it. I also had some unhealthy relationships (friends, family, etc) that I was accepting in my life and they kept me bottling up some hurt feelings and anger that I wasn't letting go of or dealing with. So that's the area I've changed the most I think. I'm sharper with checking in with my emotions. I've cut off toxic people who were in my life and keep a sharper check on fresh relationships that I develop and I keep stronger boundaries up with people who I think could threaten my emotional well being.

Thanks so much for your extensive response!

Although prior to cancer I didn't eat well, I was always at a healthy weight and pretty active. Hearing what you said about emotionally where you were makes sense to me. I have been fighting gender dysphoria my entire life. Part of me didn't even realize it was that and just placed it into other boxes (being stone, just having issues having "breasts", my social dysphoria was actually just social anxiety, my anger was because of ?, etc).

I am quite different since I got on testosterone and transitioned. I don't want to take the time to ramble on about it...which I could...but just suffice it to say that my emotional health and relationships is much improved since I got on testosterone, and got through the initial humps. I believe that if I had transitioned earlier, I may not have gotten the cancer. I believe that stress is such a huge factor.

I do want to clarify what you said...you mentioned vegan, vegetarian, and then said you will eat meat.
What did you eat for the 5 years prior to your cancer?
Does the fact that your cancer was estrogen based mean that your biological terrain didn't matter?
Do you mind sharing with me/us what you take for inflammation in the body (since that is the key to all)? Since you have this kick ass biological terrain, I don't want to miss any and I need to get back on supplements.
Thanks!

[easygoingfemme]

Dapper, I totally hear you. I'm so glad to hear that your emotional health and relationships are so improved since transitioning. It all makes sense. Would you still have had cancer if you had transitioned earlier? You'll never know. But I think we really need to listen to our gut when it tells us to pay attention to those matters. Regardless, holding onto stress and negativity will never be good for our overall health, cancer or not. So, we grow and learn.

The five years prior to diagnosis,I was probably 50% vegan/vegetarian and 50% having a diet that included fish, chicken, turkey. When vegetarian I would eat eggs but mostly stayed away from dairy. Vegan/vegetarian or not, food through the 5 years was consistent at about 90-95% whole foods/natural/cooked at home. I trend to eating more plant based in the spring and summer and crave more animal protein/fats in the fall winter and that's where my diet tends to swing.

I don't believe that the estrogen base and biological terrain related to each other in a way that my baseline health was irrelevant. It's just a type of breast cancer- hormone based or not. My grandmother and mother both had the same hormone based breast cancer. For some reason, it was able to grow despite my starting place of health. However, I can't help but think that it would have been a lot worse if my starting point had been worse.

I don't really take anything for the inflammation. Rather than that I make choices that reduce or don't cause inflammation. Such as, dairy, sugar, wheat, red meat- all cause inflammation in your body. So I don't eat them, or eat them in very minimal doses. I drink lots of water and exercise regularly and that keeps my body circulating and prevents some buildup of inflammation. If I feel inflammation, which I will if I eat some of those items or if I'm stagnant for a bit, I'll detox and go on a really clean plant based diet for a few days, guzzle lemon water, and snap out of it.

When I was in chemo and my body was going to be more prone to inflammation I took high level doses of turmeric, which reduces inflammation, and mega doses of three different prescription level probiotics and the probiotics can also reduce inflammation. Which, actually, I do still take probiotics, just not the mega mega dose, so I guess I'm still taking one inflammation fighting supplement.

I'm glad you're taking care of yourself and being mindful of your choices, Dapper. Life after cancer can be a big mind f*ck when you sit back and contemplate choices and decisions with an ultimate goal of never going through it again.

[easygoingfemme]

Articles like these are way too few and far between, but I'm glad they are popping up:

http://www.cbsnews.com/news/a-matter-of-choice-mastectomies-without-reconstruction/

http://nypost.com/2017/03/13/why-i-stayed-flat-after-breast-cancer/

[clay]

I wanted to come here to open my heart...once again,..to the wonderful friends & supporters I have !

About 2 months ago I began to have really severe pain, deep down in my bones, esp in the long bones. Initially was just hip & shoulder. Then about a month ago I began to have long bone pain, loss of appetite, weight changes, nausea after eating, and a sudden onset of pain in ribs, shoulders, neck, & down into my hands. I saw an oncologist who ordered a bone scan, a CT of whole body, and a plethora of labs.

I was very concerned & tried to remain positive, and not think the worst. Having survived cancer once, it was a difficult thing to do. I pulled on my inner reserves, had an amazing support group, & weathered the next couple weeks.

Today I saw the oncologist. While I do NOT have multiple myeloma, which was the suspect, I have severe anemia, and RA (rheumatoid arthritis, a severe case of it.)

That is okay because now I have a definitive diagnosis & a plan of action. While treatment varies and can be hard on one's body, I at least KNOW what I am dealing with.

Next step is to see a rheumatologist, get a plan of attack going, and hoping to be able to get these bouts tamped down to a minimum of discomfort. I have answers now! That was so stressful NOT knowing.

So I have an incredible team of loved ones, an amazing partner, & wonderful support system in place. Now off to the battlefield I go....I will slay this "dragon", too.

Thanks for listening, for your kind words, warmth, & support during this very trying time. As I usually do, I smile, and remain positive, & focused on a plan of attack now.

Peace & much love to you all....I am so happy knowing now what I have to work with....:)

[easygoingfemme]

I wanted to come here to open my heart...once again,..to the wonderful friends & supporters I have !

About 2 months ago I began to have really severe pain, deep down in my bones, esp in the long bones. Initially was just hip & shoulder. Then about a month ago I began to have long bone pain, loss of appetite, weight changes, nausea after eating, and a sudden onset of pain in ribs, shoulders, neck, & down into my hands. I saw an oncologist who ordered a bone scan, a CT of whole body, and a plethora of labs.

I was very concerned & tried to remain positive, and not think the worst. Having survived cancer once, it was a difficult thing to do. I pulled on my inner reserves, had an amazing support group, & weathered the next couple weeks.

Today I saw the oncologist. While I do NOT have multiple myeloma, which was the suspect, I have severe anemia, and RA (rheumatoid arthritis, a severe case of it.)

That is okay because now I have a definitive diagnosis & a plan of action. While treatment varies and can be hard on one's body, I at least KNOW what I am dealing with.

Next step is to see a rheumatologist, get a plan of attack going, and hoping to be able to get these bouts tamped down to a minimum of discomfort. I have answers now! That was so stressful NOT knowing.

So I have an incredible team of loved ones, an amazing partner, & wonderful support system in place. Now off to the battlefield I go....I will slay this "dragon", too.

Thanks for listening, for your kind words, warmth, & support during this very trying time. As I usually do, I smile, and remain positive, & focused on a plan of attack now.

Peace & much love to you all....I am so happy knowing now what I have to work with....:)

I am so sorry you went through this scare, I am so glad you have an answer to the mystery and I am so very very glad it's not what you were worrying it was. Still a challenge to tackle, but not the same dragon to slay. Those "what if's" are such a different world after a cancer diagnosis. You got this!

[clay]

I am so sorry you went through this scare, I am so glad you have an answer to the mystery and I am so very very glad it's not what you were worrying it was. Still a challenge to tackle, but not the same dragon to slay. Those "what if's" are such a different world after a cancer diagnosis. You got this!

Words can't begin to convey the worries, concerns, & being afraid nanners & I went through the last couple of months. She was scared out of her mind BUT was like a real trooper, she kept me buoyed, strong, & positive.

Though RA is a real bugger to deal with, at least I KNOW what I am facing now.

Thanks so very much for your friendship, kind words, & support for me. I appreciate you, my friend!!

[DapperButch]

I logged in to say thank you all for the support. The cancer has gone from bones to lungs. I am no longer doing any treatment. I just wanted to tell you that you were the best support when this journey began. lots of love and hugs XOXOXOXOXOXO

I'm thinking of you today, Deb. (f)

[DapperButch]

Does anyone ever speak with Lady Pamela?

[Wrang1er]

Today we found out my mom has cancer again. In September we went for her 3 month check-up and her blood work showed that her CA125 was high. They told her to wait 30 days to test again. We did that Tuesday and on Wednesday they called to say the numbers were higher than in September and that she should have a CT scan of her chest, abdomen and pelvis. That appointment was today and they said the results would be available in 24 hours. I was thinking Monday afternoon or Tuesday we'd hear something. However, they called right after we got home to say the cancer is back. Tuesday we have an appointment with her oncologist.

Understandably my mom is upset. She's resting on the couch and she asked me to call all my siblings because she doesn't want to talk about it.

These last 30 days have been hell. She's been so stressed and of course that overflows on to me and the grandkids because she's so tense.

I don't know what to expect now. She had already said she doesn't think she can do it again. She fought last time and I know she'll fight again...she just seems defeated right now. Our family doesn't show or share our feelings or emotions so it's hard to know what to say.

I moved home from Atlanta to help her when we found out she had cancer the first time. I haven't had a job since. I was just starting to look again because she had been doing so well. When we found out in September about the blood test my older sister said I should hold off looking until we know. Even though I've been helping my mom I still feel like a loser for not working and I worry the longer I go the harder it will be. My other siblings don't help so I feel sort of lost right now.

I say we throughout this post because even though my relationship with my mom has been horrible at times I feel like we are a team when it comes to fighting this cancer.

I wish I could make it all better for her.

[clay]

Today we found out my mom has cancer again.

I say we throughout this post because even though my relationship with my mom has been horrible at times I feel like we are a team when it comes to fighting this cancer.

I wish I could make it all better for her.

((((((((((((((((((((((wrang & mom))))))))))))))))))))

I am so very sad to hear this. It IS a very tough road...past & ahead.

Even though you are down on yourself right now, the main thing to remember YOU stepped up to the proverbial plate when no one else did! That speaks volumes about YOU! Also, knowing the relationship wasn't good, you STILL did the right thing! That is admirable, my friend!!

None of us would want to have to see a parent or anyone else suffer, but we still want to make things better. YOU are a source of inspiration just being with her, you are standing by her, and I am sending you positive energies & wishes for her to battle this again. Know you aren't alone my friend.....I am always here for you buddy!! Be gentle with yourself!!!! Love you much, wrang!!!

[Wrang1er]

((((((((((((((((((((((wrang & mom))))))))))))))))))))

I am so very sad to hear this. It IS a very tough road...past & ahead.

Even though you are down on yourself right now, the main thing to remember YOU stepped up to the proverbial plate when no one else did! That speaks volumes about YOU! Also, knowing the relationship wasn't good, you STILL did the right thing! That is admirable, my friend!!

None of us would want to have to see a parent or anyone else suffer, but we still want to make things better. YOU are a source of inspiration just being with her, you are standing by her, and I am sending you positive energies & wishes for her to battle this again. Know you aren't alone my friend.....I am always here for you buddy!! Be gentle with yourself!!!! Love you much, wrang!!!

Thanks so much Clay. We appreciate all your positive energies and wishes.

[clay]

Thanks so much Clay. We appreciate all your positive energies and wishes.

You are so very welcome, wrang & mom!!! I am always thinking of you two & sending these same wishes out to you both. Take care of you & remember to be gentle with you my friend!!!

[Chained Daisy]

Today we found out my mom has cancer again. In September we went for her 3 month check-up and her blood work showed that her CA125 was high. They told her to wait 30 days to test again. We did that Tuesday and on Wednesday they called to say the numbers were higher than in September and that she should have a CT scan of her chest, abdomen and pelvis. That appointment was today and they said the results would be available in 24 hours. I was thinking Monday afternoon or Tuesday we'd hear something. However, they called right after we got home to say the cancer is back. Tuesday we have an appointment with her oncologist.

Understandably my mom is upset. She's resting on the couch and she asked me to call all my siblings because she doesn't want to talk about it.

These last 30 days have been hell. She's been so stressed and of course that overflows on to me and the grandkids because she's so tense.

I don't know what to expect now. She had already said she doesn't think she can do it again. She fought last time and I know she'll fight again...she just seems defeated right now. Our family doesn't show or share our feelings or emotions so it's hard to know what to say.

I moved home from Atlanta to help her when we found out she had cancer the first time. I haven't had a job since. I was just starting to look again because she had been doing so well. When we found out in September about the blood test my older sister said I should hold off looking until we know. Even though I've been helping my mom I still feel like a loser for not working and I worry the longer I go the harder it will be. My other siblings don't help so I feel sort of lost right now.

I say we throughout this post because even though my relationship with my mom has been horrible at times I feel like we are a team when it comes to fighting this cancer.

I wish I could make it all better for her.

Hello Wrangler,

I came here reading through yesterday and began to write a reply to your post but some how couldn't find the right words. However I woke this morning with a few people on my mind, a loved one who has had the worst news, loved ones passed and still fighting, my own uncertain future and you and your Mom too went through my thoughts so I am here again.

It made me realise that even though people have never met/interacted before, this in no way means that we can not feel real empathy and concern when we read of cancer rearing its ugly head again. When I tried to write the first time I was worried my words felt flat and didnt convey my empathy enough so I want to say I am sorry your Mom has to go through this fight again, that I dont think the word loser suits your situation, Hero is the word, it is no easy decision to give up a wage and working life to be with someone 24/7 to support and care for them, many would run a mile, it sounds like you are alone in this job, I commend you for it, I`m sure closing the door and setting off to work some days must be a far easier option. I too had a difficult to say the least relationship with my Mother so again I commend you.

I shall keep you and your Mom in my thoughts, along with the other folk I think of often, sending positive thoughts and wishing gentle days to all who are touched by this fight.

[rustedrims]

Thank you everyone !! I am doing good. Saw the doctor today. My hair is growing back from 17 hits of radiation. Still cant drive or go back home by myself yet. Maybe another 2 months. Kinda getting my appetite back. I look different. creepy to me.

[rustedrims]

I am doing better now and not feeling to bad. I left moms house Saturday. She just wouldn't let up on me. After 3 days of pressure in my head I thought I probly should go back to my house where my 3 little girls are. My head is better and getting a few things done around here. I get another MRI on April 16 of my head. If my pictures show nothing then I will probly get back to work a few weeks later. I do love my Mom and we are on good terms. Just kinda stressful on me at this time. My heart and prayers go out to everyone and their families that are fighting this unforgiving disease. Fight the fight ! We got this !

[Chained Daisy]

I am doing better now and not feeling to bad. I left moms house Saturday. She just wouldn't let up on me. After 3 days of pressure in my head I thought I probly should go back to my house where my 3 little girls are. My head is better and getting a few things done around here. I get another MRI on April 16 of my head. If my pictures show nothing then I will probly get back to work a few weeks later. I do love my Mom and we are on good terms. Just kinda stressful on me at this time. My heart and prayers go out to everyone and their families that are fighting this unforgiving disease. Fight the fight ! We got this !

Good to hear you are doing well and making plans. Cancer does have a habit of making us spend a little longer than is comfortable with family and friends doesnt it. More than once I`ve thought to myself "I`m really touched you were so worried I could die, really grateful for you support and advice but honestly...I`ve kinda had enough of you now !" :| Laughter is the best medicine !

[Wrang1er]

Today is my mom's graduation day. Meaning she is currently having her last chemotherapy session in the series. Then she will have to have a CT scan to see if the cancer is gone.

Yesterday, we went to see her urologist because she has been having pain that radiates around her abdomen to her back on the left and right side. More painful on the left than the right. She is also experiencing pain in her lower abdomen. He said from her last CT scan in October when they found the cancer again that her kidneys looked good, the flow looked good and her kidney function was good. She will have a renal scan to double check. It's hard to say what the cause of this pain is.

I am happy for my mother. This will be the second time she beat cancer (hopefully) and I hope she doesn't have to face it again. We will have to deal with the other health issues that have arisen from the cancer and chemo. Chemo is a bitch.

I feel bad about this but it's hard living with my mother. She is not a nice person. She wasn't before her cancer and she isn't now. She's mean and says mean things. A few weeks ago she said some mean things to me and I got upset. I didn't say anything but I did try to spend time away from her. Then she was sick from her chemo and a UTI and I felt bad. It is such a conflict for me at times. I feel sorry for her and then feel bad that I don't always like her.

I do admire and respect her for the strength and determination she has shown through both battles with cancer. She is a trooper for sure. I don't believe I could have handled it as well as she has. I do love my mother and I want her to be well. I just don't always like her much and that makes me feel sad and conflicted.

Excuse my ramblings. It's a happy day. There's just a lot of thoughts rolling around in my head and I don't know where else to put them.

[Wrang1er]

She couldn't get chemo because her white blood cell count was too low. :(

[rustedrims]

I am home now with my cats. It feels good. I get my MRI on the 16th to check things out in my head. I feel ok and getting a few things cleaned up around here. I left Moms on my own. She just wouldn't let up. I couldnt even put the blanket on the bed right. Had enough. When I was there she took very good care of me and I was very comfortable. I believe I over stayed my welcome. She also had a very hard time seeing me with that stuff and not being well. I do love my Mom very much. Its just been hard on all of us. I could eat as much as 3 horses and now I am eating barely enough to keep a mouse alive. Getting better with my appetite. 17 hits of radiation doesn't help either. Seeing the Dr. on the 20th to look at the MRI pictures. As long as things look good I am going to ask for 2 more weeks off then back to work. If things don't work out at work I will be able to retire comfortably. I want to work another year to teach that cancer that it didn't win. I did !

My heart goes out to us all. We will fight the fight and win !
Thank you for reading and caring the way you all do.

Sheila

[Chained Daisy]

Hi Wrangler,

That`s tough your Mom wasn't able to complete her chemo just yet, I`m sure you are both waiting for the treatment to be done with, yes, chemo is indeed a bitch.

As I read your post it I was reminded just how that conflict of emotions feels, having a Mom who rewards, care, concern and devotion with cruel words and thinks they are entitled to say anything they wish regardless of the hurt inflicted, I have been there so often. When you have had a similar relationship with a parent you understand just how that feels.

It sounds like she is very blessed to have you around, in her life and caring for her. Remember you are entitled to feel hurt and want some breathing space from her when she behaves this way, I`m telling you that as I wish I had told myself that more often years ago !

So here`s hoping she can get the last round of chemo soon, the scan results bring what is hoped for and that her pain eases too.

Stay strong and know you and your Mom are sent positive thoughts for brighter days.

Daisy

[Gayandgray]

My spouse’s oldest daughter who lives in Indiana had told us she has liver cancer. We were waiting for all her tests to come back. Today she called and said it’s stage 4 and they are giving her maybe a year. My spouse is heartbroken and is not taking this well at all. Her daughter and her husband are flying out here a week after Easter to see us all one last time. I feel so helpless.

[Chained Daisy]

My spouse’s oldest daughter who lives in Indiana had told us she has liver cancer. We were waiting for all her tests to come back. Today she called and said it’s stage 4 and they are giving her maybe a year. My spouse is heartbroken and is not taking this well at all. Her daughter and her husband are flying out here a week after Easter to see us all one last time. I feel so helpless.

I am so sorry to hear this, the worst news.

Thoughts are with all of you, life can be so cruel.

[Chained Daisy]

I am home now with my cats. It feels good. I get my MRI on the 16th to check things out in my head. I feel ok and getting a few things cleaned up around here. I left Moms on my own. She just wouldn't let up. I couldnt even put the blanket on the bed right. Had enough. When I was there she took very good care of me and I was very comfortable. I believe I over stayed my welcome. She also had a very hard time seeing me with that stuff and not being well. I do love my Mom very much. Its just been hard on all of us. I could eat as much as 3 horses and now I am eating barely enough to keep a mouse alive. Getting better with my appetite. 17 hits of radiation doesn't help either. Seeing the Dr. on the 20th to look at the MRI pictures. As long as things look good I am going to ask for 2 more weeks off then back to work. If things don't work out at work I will be able to retire comfortably. I want to work another year to teach that cancer that it didn't win. I did !

My heart goes out to us all. We will fight the fight and win !
Thank you for reading and caring the way you all do.

Sheila

Hi Shelia, Home with my cats is my favourite place to be ! Hoping your appetite comes back and you can build your strength to get back to work, I get how you feel you want to be able to return. Wishing you gentle days,

Daisy

[easygoingfemme]

I am home now with my cats. It feels good. I get my MRI on the 16th to check things out in my head. I feel ok and getting a few things cleaned up around here. I left Moms on my own. She just wouldn't let up. I couldnt even put the blanket on the bed right. Had enough. When I was there she took very good care of me and I was very comfortable. I believe I over stayed my welcome. She also had a very hard time seeing me with that stuff and not being well. I do love my Mom very much. Its just been hard on all of us. I could eat as much as 3 horses and now I am eating barely enough to keep a mouse alive. Getting better with my appetite. 17 hits of radiation doesn't help either. Seeing the Dr. on the 20th to look at the MRI pictures. As long as things look good I am going to ask for 2 more weeks off then back to work. If things don't work out at work I will be able to retire comfortably. I want to work another year to teach that cancer that it didn't win. I did !



My heart goes out to us all. We will fight the fight and win !
Thank you for reading and caring the way you all do.

Sheila

I'm glad you're home. That radiation buildup can be hard. When I was in it it was even harder than chemo sometimes and the lasting effects on my skin and muscle in the area that was hit is permanently changed. Hoping for a quick easy MRI, positive results, and a smooth transition back into your new normal.

[easygoingfemme]

My spouse’s oldest daughter who lives in Indiana had told us she has liver cancer. We were waiting for all her tests to come back. Today she called and said it’s stage 4 and they are giving her maybe a year. My spouse is heartbroken and is not taking this well at all. Her daughter and her husband are flying out here a week after Easter to see us all one last time. I feel so helpless.

I am so very sorry to hear this. My heart goes out to your whole family...

[Wrang1er]

Mom got her CT scan today. We'll know next Tuesday if the cancer is gone. If it's gone I will be throwing her a "Kicked Cancer's Ass" party!

[clay]

Mom got her CT scan today. We'll know next Tuesday if the cancer is gone. If it's gone I will be throwing her a "Kicked Cancer's Ass" party!

Sending you both gentle hugs & positive energies for an "all clean" report! Know you are in my thoughts always my friend!

[Wrang1er]

Sending you both gentle hugs & positive energies for an "all clean" report! Know you are in my thoughts always my friend!

Thank you, Clay. It is much appreciated. Everyone here has been super supportive. :)

[JDeere]

Good vibes sent to all caregivers and kudos for doing what yall do.

My birth mother had hospice care along with one of my sisters helping her last 2 months of life. I have a ton of appreciation for how yall handle and do what yall do.

[clay]

My yearly CEA levels are great!! My tumor marker levels are <.5...so I am really happy about that! Dec 2017 was my 6th year cancer free!

My other labs were not so great. The extensive colon resection causes periods of being anemic. Now is one of those. Extremely so!
Pending , I start IV Infusion therapy in 2 weeks for 10 weeks and my monthly B12 shots will go to every other week during that time.

I have been extremely fatigued, having cardiac arrhythmias, and just stay sleepy all the time, have to get frequent naps in....my appetite sucks....:(.

BUT, I will bounce back, I just want to sit & rest ALL the time! I have little energy to do most anything ATM.

Thanks for listening......love to you all....:rrose:

[Wrang1er]

Today we find out if my mom's cancer is gone. I am nervous. I am sure she's is a wreck. I had to come to school to study but I am finding it hard to focus.

[clay]

Today we find out if my mom's cancer is gone. I am nervous. I am sure she's is a wreck. I had to come to school to study but I am finding it hard to focus.

Sending positive energies & good juju, wrang!

[clay]

My yearly CEA levels are great!! My tumor marker levels are <.5...so I am really happy about that! Dec 2017 was my 6th year cancer free!

My other labs were not so great. The extensive colon resection causes periods of being anemic. Now is one of those. Extremely so!
Pending , I start IV Infusion therapy in 2 weeks for 10 weeks and my monthly B12 shots will go to every other week during that time.

I have been extremely fatigued, having cardiac arrhythmias, and just stay sleepy all the time, have to get frequent naps in....my appetite sucks....:(.

BUT, I will bounce back, I just want to sit & rest ALL the time! I have little energy to do most anything ATM.

Thanks for listening......love to you all....:rrose:

Damn this anemia...last night was an hour & 15 min of an arrhythmia.......siggghh...come insurance company...let's get going here.....low hgb makes for low iron in cells & blood which plays havoc with the ole ticker!

[Wrang1er]

Sending positive energies & good juju, wrang!



Thanks for always being supportive, Clay. It's much appreciated. I am sending good juju right back to you! :)

[clay]

Thanks for always being supportive, Clay. It's much appreciated. I am sending good juju right back to you! :)

YVW my friend! Thank you as well...you are indeed a very warm, compassionate friend to me as well!

[Wrang1er]

Good news and bad news. The spots are still there and she has two more months of chemo. The good news is the spots are smaller. Her CA125 is within normal range. After chemo they will just monitor her through weekly labs.

Needless to say she's extremely disappointed. :(

[clay]

Good news and bad news. The spots are still there and she has two more months of chemo. The good news is the spots are smaller. Her CA125 is within normal range. After chemo they will just monitor her through weekly labs.

Needless to say she's extremely disappointed. :(

Glad to hear CA 125 is now "wnl". I am sorry to hear more chemo. Hang in there my friend!!

Know you both are in my thoughts & prayers buddy!!

[Wrang1er]

Hopefully today is mom's last chemo (I know I've said this before). She was unable to get it last week because she had neutropenia. Her neutrophils (WBCs) were dangerously low. Hopefully she's within a range that will allow her to get it. We shall see.

[Chained Daisy]

Hopefully today is mom's last chemo (I know I've said this before). She was unable to get it last week because she had neutropenia. Her neutrophils (WBCs) were dangerously low. Hopefully she's within a range that will allow her to get it. We shall see.

Fingers crossed she can get this last one done with, best of luck
:bunchflowers:

[clay]

Hopefully today is mom's last chemo (I know I've said this before). She was unable to get it last week because she had neutropenia. Her neutrophils (WBCs) were dangerously low. Hopefully she's within a range that will allow her to get it. We shall see.

Hey wrang...sending mom & you gentle hugs! Hey, no worries...life does happen sometimes, so things have to be changed. I will be keeping you both close in thoughts & sending positive light your way. Wishing all the best possible outcomes for her, wrang!

[clay]

UPDATE: Tomorrow should be my last IV infusion at the oncologists...:). I am feeling a bit better with the 8 I have gotten. I am now back to monthly B12 injections (I give those to myself). My hemoglobin is up to 11, so will recheck tomorrow. My ferritin levels have come back up greatly...were down to 8. Am hopeful my RBC's will be in much better range this next lab draw, hopefully! I will be seeing the oncologist every 4 months instead of yearly.
Overall I am feeling a bit more energized now..:). Thank you all for continually supporting me & keeping me in some good juju! Wishing us all brighter days to come.

[Chained Daisy]

UPDATE: Tomorrow should be my last IV infusion at the oncologists...:). I am feeling a bit better with the 8 I have gotten. I am now back to monthly B12 injections (I give those to myself). My hemoglobin is up to 11, so will recheck tomorrow. My ferritin levels have come back up greatly...were down to 8. Am hopeful my RBC's will be in much better range this next lab draw, hopefully! I will be seeing the oncologist every 4 months instead of yearly.
Overall I am feeling a bit more energized now..:). Thank you all for continually supporting me & keeping me in some good juju! Wishing us all brighter days to come.

So you are winning some battles there ! Good !! Sending lots of positivity that things will continue to improve my friend.

[Wrang1er]

Fingers crossed she can get this last one done with, best of luck
:bunchflowers:

Hey wrang...sending mom & you gentle hugs! Hey, no worries...life does happen sometimes, so things have to be changed. I will be keeping you both close in thoughts & sending positive light your way. Wishing all the best possible outcomes for her, wrang!

Thank you to you both! She is getting her chemo now. The next step is a CT on the 25th and then an appointment with her oncologist on the 26th to go over the results. She's been feeling pretty poorly lately so I am hoping all this goes in her favor.

I appreciate your kind words and support. I wish you both the best and I am sending you positive vibes!

~W

P.S. I am super proud of myself. This is the first time I ever quoted multiple messages.

[clay]

So you are winning some battles there ! Good !! Sending lots of positivity that things will continue to improve my friend.

Yes on all fronts! Thank you so much for your valued friendship here! Sending good juju to you as well! Keep up that courage & strength, my friend! Have a wonderful day!! Gentle hugs!

[clay]

Good job on multiquotes, wrang!! I can't even do THAT! I even forgot how to post a pic to someone's page...:(.
Anyway, still sending good energy & strength to you & your mom. I will not remember these dates but do let me know how things go, please?
Hugs you both...

Thank YOU for your friendship & support always wrang!!

Thank you to you both! She is getting her chemo now. The next step is a CT on the 25th and then an appointment with her oncologist on the 26th to go over the results. She's been feeling pretty poorly lately so I am hoping all this goes in her favor.

I appreciate your kind words and support. I wish you both the best and I am sending you positive vibes!

~W

P.S. I am super proud of myself. This is the first time I ever quoted multiple messages.

[Wrang1er]

Good job on multiquotes, wrang!! I can't even do THAT! I even forgot how to post a pic to someone's page...:(.
Anyway, still sending good energy & strength to you & your mom. I will not remember these dates but do let me know how things go, please?
Hugs you both...

Thank YOU for your friendship & support always wrang!!

Always, Clay!

[Wrang1er]

Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.

[Chad]

Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.

Normal range sounds hopefull. I am keeping you and your mom in my thoughts. I wish you my best and I hope that your mom recovers.

Chad

[Wrang1er]

Normal range sounds hopefull. I am keeping you and your mom in my thoughts. I wish you my best and I hope that your mom recovers.

Chad

Thank you, Chad. Overall she is doing well. She walks every day, goes to the YMCA a few times a week to swim and walk. She does things outside like working in the flower beds and various other activities. She just gets tired very quickly but doesn't sleep well. Plus, she's much weaker than she was.

She's also doing things like backing the car into the flower bed. Then she went to the store but forgot a few things on her list so I had to run back over there. I think the chemo has caused her to become a little foggy. Hoping that fog lifts during the chemo break.

I hope you and your mom are doing well. The addition sounds nice. Maybe you could add another wing for weary butches.

Thanks again!

[Chad]

Thank you, Chad. Overall she is doing well. She walks every day, goes to the YMCA a few times a week to swim and walk. She does things outside like working in the flower beds and various other activities. She just gets tired very quickly but doesn't sleep well. Plus, she's much weaker than she was.

She's also doing things like backing the car into the flower bed. Then she went to the store but forgot a few things on her list so I had to run back over there. I think the chemo has caused her to become a little foggy. Hoping that fog lifts during the chemo break.

I hope you and your mom are doing well. The addition sounds nice. Maybe you could add another wing for weary butches.

Thanks again!

Yep, I think you and I will chat a lot as time goes by. Mom can still take care of herself but I am worried about the times that she may need a lady around.

Best wishes your friend,
Chad

[clay]

Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.

This is hopeful news, wrang! I have been sending some really positive energies to the universe for your mom. Every.Single.Day!

Will continue that. Know you are always in my heart & thoughts my friend. Contact me anytime, and I am sincere!

[Wrang1er]

This is hopeful news, wrang! I have been sending some really positive energies to the universe for your mom. Every.Single.Day!

Will continue that. Know you are always in my heart & thoughts my friend. Contact me anytime, and I am sincere!

Thanks so much, Clay. Your continued kindess and positive thoughts mean a lot to me!

You rock!

~W

[Chained Daisy]

Last Monday I took mom for a CT scan. On Friday we went to the oncologist. The 2 spots are still there. However, they don't know if they are cancer or not. They said it could be treated cancer. They have stopped chemo treatments for two months because they said her body can't handle any more at this time. Her body needs time to rest and heal. Her CA125 is within normal range. We'll go back in August to check those numbers again. Hopefully, they stay the same.

Thats sounding pretty positive to me Wrangler, I`m so glad for both of you.

[Wrang1er]

Thank you, Ms. Daisy! :)

[clay]

Had an EGD & colonoscopy Wednesday...first one in 2.5 yrs.

Doc did a biopsy of "suspicious spot" in my stomach, so awaiting that biopsy report. Had some oozing post biopsy, so she had to keep pressure on that area for a bit. I was back under anesthesia for 1.5 hrs instead of usual 45 min or so.

I am having paroxysmal pain in the ascending colon, just at splenic flexure ...so not sure what is going on. Doesn't require any pain meds. I am not worried, leaving it all in the Goddess's hands!

Have a beautiful Sunday everyone. Keep fighting & know I send you all positive energies & gentle hugs.

[Chained Daisy]

Had an EGD & colonoscopy Wednesday...first one in 2.5 yrs.

Doc did a biopsy of "suspicious spot" in my stomach, so awaiting that biopsy report. Had some oozing post biopsy, so she had to keep pressure on that area for a bit. I was back under anesthesia for 1.5 hrs instead of usual 45 min or so.

I am having paroxysmal pain in the ascending colon, just at splenic flexure ...so not sure what is going on. Doesn't require any pain meds. I am not worried, leaving it all in the Goddess's hands!

Have a beautiful Sunday everyone. Keep fighting & know I send you all positive energies & gentle hugs.



Clay, sending lots of positive thoughts and healing energy your way. :rrose:

I like the sentiment `leaving it all in the Goddess`s hands` that has been my mantra of late.

[clay]

Clay, sending lots of positive thoughts and healing energy your way. :rrose:

I like the sentiment `leaving it all in the Goddess`s hands` that has been my mantra of late.

This is a sweet note! I appreciate your support, my friend! It is all going to be good! Hugs you back.....(((((((((((((CD)))))))))))))

[clay]

The path report was benign! Whewww...been a long week!
I am still having pains in area of top of stomach/intestine area, so we will talk on the appointment the 15th of what to do next, investigatively. 1. To find why I am so anemic, 2. To find out source of pain....and a course of action. She said I may have to swallow a camera pill, so we can see all the way thru the GI tract! This procedure is a bit of a danger for me, due to a really large ventral hernia that if said camera were to get hung up, that is open abd surg...:(.

So, again, we "wait & see"....

[Chained Daisy]

The path report was benign! Whewww...been a long week!
I am still having pains in area of top of stomach/intestine area, so we will talk on the appointment the 15th of what to do next, investigatively. 1. To find why I am so anemic, 2. To find out source of pain....and a course of action. She said I may have to swallow a camera pill, so we can see all the way thru the GI tract! This procedure is a bit of a danger for me, due to a really large ventral hernia that if said camera were to get hung up, that is open abd surg...:(.

So, again, we "wait & see"....

Pheww indeed. What a relief ! I know you still have a way to go, more concerns and issues to resolve but benign is a wonderful update. Stay strong my friend :rrose:

[Wrang1er]

It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.

[clay]

(((((((((((((((((((((((((((((((((((Wrang & Mom)))))))))))))))))))

Sometimes, it is just deciding when "enough is enough". When they have a fighting spirit & a will to live, then they will fight hard! When they are just tired & want to have quality vs quantity, then decisions have to be made.

Neither is an easy choice, and I do not relish that for either of you.

I DO know that I will be sending as much white light & positive energies as I can. Know that someone is there for you both......my friend.....gentle hugs....


It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.

[Chained Daisy]

It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.

(((((((((((((((((((((((((((((((((((Wrang & Mom)))))))))))))))))))

Sometimes, it is just deciding when "enough is enough". When they have a fighting spirit & a will to live, then they will fight hard! When they are just tired & want to have quality vs quantity, then decisions have to be made.

Neither is an easy choice, and I do not relish that for either of you.

I DO know that I will be sending as much white light & positive energies as I can. Know that someone is there for you both......my friend.....gentle hugs....

Wrangler, I dont think I could of said it any better than our friend Clay. It really is about how much more of this fight she can handle. You and your Mom both must be very weary. This is hard to hear after the chemo break. Sending you love and light as you process this latest news. :rrose:

[Tommi]

It looks like it is back to chemo for my mom. We went in June and her CA125 was 15 and yesterday it was at 39. Next Wednesday they will do another CT scan and then we'll discuss what to do next. She has been on a break because they said she couldn't handle any more chemo. Yesterday they said because her cancer came back once before it will most likely be recurring. The oncologist said that just like some people take medicine for high blood pressure she will need chemo to treat cancer most likely until the end of her life. After leaving the hospital my mom said that it will probably kill her.

I just don't know anymore. I don't know what it means for either of us. Just when you think it's gone it rears it's ugly head and punches you right in the gut.

Wrangler, I had nine years of silence.
Have you been able to talk to anyone about your Mom, other than the oncologist? Modifying dosing treatments for her. Has radiation been done, or not effective for her situation? Do you have a local cancer organization, or hospital support group, so you can talk and hear about others successes.

I had endometrial cancer in 2004, radical surgery, then a recurrence in 2013. I underwent 28 radiation and brachytherapy treatments versus chemo which was not effective for my type of reoccurance.

Being tired and sick of the treatment is so difficult. I feel for you, and understand where you Mom is coming from. But, please look into talking , and options, and others who have been there. Don't need to be alone. Warmest regards. Tommi

[rustedrims]

Well been through hell and back. Tough part over and back to work a few weeks now. I want to hopefully get 1 more year then retire. Working gets my brain firing and that is what I need now. Doing what the doctors told me to do. Feeling better and I still have a long way to go. Thank you all for your support and you all know you have mine. I love you all very much.. Rustedrims Sheila

[rustedrims]

I am doing real good and back at work. Things are going well at work and remembering my job. I am glad I am back. It is my therapy and gets my brain a cracking and snapping. Forget about the surgery the thing is I haven't worked in 9 months. Feels good to get out and feel like I did something with the day. My hair is growing back. It looks a little lighter and baby soft. I love being home with my kitties. One of the sisters wont leave me alone. I was gone a long time. January is my reality of what I deal with every day. Getting my MRI and CT scan. The six month check on things. The last check nothing bad showed up. A good feeling. Sometimes I am still afraid to go to sleep. I still get scared. Sheila

[easygoingfemme]

Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!

[girl_dee]

Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!



I am so happy to hear this!!!! Definitely celebrating with you!

[clay]

Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!

This is AWESOME!!!!! Congratulations, my friend!!

[Chained Daisy]

Had my annual bloodwork today. Almost three years since finishing chemo/radiation/surgery madness. My lord the anxiety leading up to those appointments. Anyway, I got a perfect all clear, better than what they usually even see in the perfect realm of blood work. Celebrating. That appointment was weighing hard on me. There's been so much disturbing in the world and I was supposed to go last week but it turned out I had to bury my cousin that day and reschedule. The anxiety just built and built while I waited for a reschedule. Thankfully someone cancelled. Otherwise I'd have had to wait for the next appointment in December. Not cool. Celebrate with me tonight!

I am so glad for you, I can imagine your relief, its great news ! (f)

[rustedrims]

I am doing good and feeling stronger. The first of January I go in for a MRI and CT scan. Gotta get checked out for my 6 months. I know my friends mean well but I just hate to hear them say Hey good luck with your MRI. I am not going to Vegas or racing in the Kentucky Derby. I am getting my head checked to see if there is any cancer. Have been getting good scans. I pray for everyone in here to feel good and get better. We all gotta fight the fight together.

[Teddybear]

Tomorrow I go in to have my medi-port put in.

Hopefully soon after that we will start treatment no matter what it is.

Every have a cancer free day or as close to it as possible

[Teddybear]

Surgery went well just a few bumps in the road. Blood sugar bottomed out and so did blood pressure.

They gave me some orange juice they put sugar in however they didn't stir the sugar in to dissolve so it was real nasty tasting. That was enough to bring my blood pressure up.

I start chemo on Monday since we dont have the DNA results back yet. Keep your fingers crossed we get them soon.

[easygoingfemme]

Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.

[~ocean]

Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.

at first my port was easy to deal with ~ then during one chemo treatment a nurse pulled the needle out fast and hard ~ I of course yelled out OUCH she responded with don't be a baby that didn't hurt . It bed for 2 day ~ bruised inside and out ~ and twisted. Every treatment after that the head of nursing at the cancer center had to put the needle in place ~ to this day it hurts, even when the shower water beats down on my skin. (((((( Teddy, easy going, rusted rims, )))))))) 2019 will be a better year.

[~ocean]

ooops bled for 2 days.

[easygoingfemme]

at first my port was easy to deal with ~ then during one chemo treatment a nurse pulled the needle out fast and hard ~ I of course yelled out OUCH she responded with don't be a baby that didn't hurt . It bed for 2 day ~ bruised inside and out ~ and twisted. Every treatment after that the head of nursing at the cancer center had to put the needle in place ~ to this day it hurts, even when the shower water beats down on my skin. (((((( Teddy, easy going, rusted rims, )))))))) 2019 will be a better year.

Oh ouch. I can feel that and it didn't even happen to me. I'm sorry that was your experience and that you have ongoing pain from it.

[Teddybear]

Teddbear, How are you feeling from the port being put in? Hopefully you're not too uncomfortable. Mine hurt a lot. Fingers crossed you get the test results soon and that Monday goes as alright as it can. Do you know how long your chemo takes to administer?
I suggest bringing something like ginger chews or mints. When they flush your port between things, you can taste the saline and it's gross. I always put a ginger mint in my mouth before they did it to block the taste. Will be thinking of you.


I am good. The surgeon put what looked like super glue on it instead of stitches. It came off yesterday just like glue would.

I have been good and not lifted or pulled anything so it feels ok.

My treatments are 6 hours the first day then they send me home with a pump for 42 more hours. Then back in 2 weeks if I stay on chemo. If I go to immunotherapy it is once every 3 weeks.

I will be on this the rest of my life which I plan on it being a LONG time

[Teddybear]

ooops bled for 2 days.



I probably would have been in bed for 2 days

[JDeere]

Sending healing vibes to all who are caregiving, going into treatment or recovering.

[Teddybear]

It’s beeen awhile since I have posted an update.

First off I hope everyone had a Merry Christmas and will have a happy New Year.

Me and the chemo are not Compatible. If my insurance company hadn’t denied the immunotherapy back in November I don’t believe I would’ve suffer what I have suffered. I missed 2 treatments before they told us it was denied. Then another 2 weeks to get me back on the schedule.

Thanksgiving day I was at the Er due to now having 2 PE’s. Let tell y’all that was painful. I thought I was having a major heart attack. They fixed me up really quick and sent me home. So far no more blood clots.

Then Christmas Eve I woke up with a small knot in the middle of my chest. On Christmas Day it was bigger and drained some nasty stuff. So the day after it was even bigger and sorer then the last 2 days so I went to the cancer center to see if I needed to go to the Er again they looked at it gave me some instructions and sent me home. I followed the instructions to the T.

I ended up going back yesterday because now it is bigger at least 5 times. They looked at me and it has turned into cellulitis and again I was dehydrated even thought I had drank more than 60 bottles of water in less than a week. So back up in the infusion center for fluids and antibiotics.

Today I have the energy I have after about 4 days post treatment.

While running labs most came back good except the cancer markers test. In less then 3 months they have increased by 120 points. Which isn’t good. Normal range is less that 40. My first test was 335 and now it is 457. Hopefully the new insurance company will go ahead an approved the immunotherapy.

I will fight this. I will do everything possible to beat this. I have everything I have ever wanted and I know it couldn’t have taken me this long to find not to have it last a long time.

I hope each one of y’all are having better luck then we are having with this.

[Teddybear]

This is a hard post to write. So I haven’t taken a cancer treatment since 19 December was put in the hospital on the 30th because of said cancer treatment and had to have surgery on the 31st.

My insurance company the new one has been delaying giving me approval for my new treatment. We were told to weeks ago that my cancer is back active and that we need to start a treatment soon.

Thursday of last week I was rushed back to the ER and was given fluids and sent home because of some lab work. I spoke to my doctors on Friday who said I needed to come back into the hospital and get some more fluids at the infusion center. While there I suffered a pain attacked it almost doubled me over when I was sitting in a chair my doctor came up and talk to me to tell me that my liver which has cancer in it also is inflamed and that we’re almost at the point to where If we don’t start treatment soon we are going to be too far gone to have to be able to do anything.

This is been a very emotional weekend for me and my wife. We had to have that talk of what if it doesn’t happen I don’t start new treatment and I suffer the ravages of this disease. It was the hardest thing I’ve ever had to do in my life coming face-to-face with my morality and the fact that I may end up leaving her alone which is the one thing I don’t want to do.

I had written a nasty gram on my insurance website last week to To which they responded the following morning but because I was back in the hospital I had no chance of answering them until you know close to five as in what information they needed they informed me they couldn’t work on it until Monday I told them they would have their information when I came to work Monday because we all know Facebook gets hacked so I didn’t wanna put anything out there to hang around too long. So they came to work at 8 and at 805 I got a message from them of who was going to be handling my case. At 10:33 I received a call from said person who is handling my case to explain to me exactly what all they needed what all they had and what steps were going to be taken to expedite the approval process. A little over an hour later she called me back to let me know she had everything that she needed and that now the process begins to get approval and then I should have approval by Wednesday afternoon.

Please understand I appreciate everyone’s prayers thoughtfulness healing thoughts white light everything that you’ve sent my way during the last six months that I’ve been battling with this and I asked that you continue that but you also now add my wife for peace and calm Ness during this time as we walk our way through the insurance but our I appreciate everyone’s prayers thoughtfulness and healing thoughts WhiteLight everything that you’ve sent my way during the last six months that I’ve been battling with this and I asked that you continue that but you also now add my wife for peace and calm Ness during this time as we walk our way through the insurance bs.

Thank you for letting me vent thank you for listening and all my love to all of you you are part of my family

[Wrang1er]

My mom was unable to get her chemotherapy today due to extremely low neutrophils and potassium.

Tomorrow, I will be taking her to get her head shaved because her hair is falling out.

She's feeling pretty low right now. :(

[homoe]

My mom was unable to get her chemotherapy today due to extremely low neutrophils and potassium.

Tomorrow, I will be taking her to get her head shaved because her hair is falling out.

She's feeling pretty low right now. :(

Sending good vibes your mom's way!

Maybe surprise mom tomorrow and get your own head shaved to show solidarity?

[clay]

My mom was unable to get her chemotherapy today due to extremely low neutrophils and potassium.

Tomorrow, I will be taking her to get her head shaved because her hair is falling out.

She's feeling pretty low right now. :(

Wrang & mom......lots & lots of hugs!

I am sending healing energies & white light for her...and strength for you, my friend! Tell mom I send her my love....as always. You both are in my heart!

[Tommi]

I was diagnosed in March of 2004 with endometrial cancer. Had the radical surgery, and went on with life. In 2013, I had a recurrence, adenocarcinoma of the vaginal cuff (not identifying with that) , had internal and external radiation. Met the love of my life 2 weeks before that diagnosis. We married May 2, 2015.

I realized that I no longer think much about cancer . Anniversaries, trigger me, like going in for my annual EXAM from hell.
My wedding anniversary is next month, and I'll schedule my annual exam for sometime after that.

So, Just For Today, I listen to the birds, enjoy the flowers in my yard, and am thankful for...today.

[Teddybear]

Hello caregivers and survivors

I wanted to give an update since I haven't been on much in the last couple of months. Here is a brief recap and update

In September I was diagnosed with Stage IV colon cancer. I didn't just have one type of cancer but two different types. We were devastated to say the least. More testing to be done to find out if I had broken DNA. I do not one broken gene but two.

I offered Norma a way out. We could call it quits if she couldn't handle this. We had been told I would be on whatever treatment the rest of my life. I am a fighter and told my doctor that I wasn't convinced he was. He proved me wrong I am so happy to say.

I started chemo in October. It was killing me. Daily I prayed for strength and that GOD would show me the way. Norma wasn't going anywhere so I asked her to marry me. She agreed. I am sure she may regret that some days.

Thanksgiving came and what do I get instead of turkey TWO!!!! blood clots in my lungs. Thank you LORD they were small and treated quickly.

Christmas came and what we thought was a pimple turned out to be an infection that required surgery and 10 days in the hospital. Another week out of work once I was released. Norma became my nurse. I am so thankful for her and her courage during this time.

New Year and a new treatment, but we had to fight for it and boy did we. I knew GOD was strong then cancer, stronger then anything the devil would throw our way.



In the last month I have had my cancer markers tested they are now 58 verses the 312 in September and 900+ in December and before the new treatment started in February they were at 1395. My A1C is down to 7.4 verses the 17+ (of the chart) in September.

I had my PET scan done the end of April which shows that my liver is now has less then 10% tumors verse 75-85% in September last year.

My doctor told me that this is very rare and shows that the Keyturda is doing its job. I will probably be on it the rest of my life and I am ok with that if it keeps the cancer away.

Wrangler and your Mom are in our prayers for treatment to be resumed and that she will get results yall are wanting.

I am praying for each of us as we are on this journey for peace and healing and understanding if we are the caregiver that this journey can be overwhelming at times for even those who are not the caregiver.

Thank you all for your support during this time. It has been a great source of peace for Norma and I

[rustedrims]

Had my 6 month scans the other day. Made sure I drank all that jacked up water they give me. The girls that do the pictures are good at what they do. Non threatening and safe. Feeling good and some light pain in my surgery area when I overdo a little. My thoughts are with everyone that is fighting the fight.

[rustedrims]

Things are going well for me finally. Its been a long hard road. Saw my Doctors a few weeks ago. The pictures looked good. Nothing came back. Because of that I get pictures once a year now. So gratefull and thankfull for that. Thank you all for being supportive. We gotta fight this fight together.My thoughts and prayers go out to all of us.


Thank you for reading and caring.


s

[Wrang1er]

On August 5th, my mother had a CT scan that showed her cancer is shrinking. Her oncologist said 3 more cycles of chemo (which equates to 3 months) and then she'll get another scan.

The downside is that due to the chemo Avastin she has a bladder infection and mouth ulcers. She is on two different meds for these two issues now.

Yesterday after chemo we went to lunch. I dropped her off at the door of the restaurant and parked a couple of spaces down. When I get out of the car I see that she is all the way down at the end of the parking lot. I yelled for her a few times. I asked her what she was doing and she said she didn't realize she walked past the door. Then inside she forgot where the bathroom was. This is worrisome but I am going to chalk this up to chemo fog at this time.

[rustedrims]

Hello.. Been working my yards and I get tired easily.. Sometimes I need to stop and think what I went through.. My cousin called the other day.. He started the conversation off with I gotta tell ya something. Yeah he has it now.. Its pretty serious but things look good for him after surgery. This sh#t doesnt stop.. Some day there has got to be an end..

Thank you for reading and again caring..

[Wrang1er]

Mom was unable to get her chemotherapy today due to most of her numbers being low. Her CA125 has gone back up a bit. I updated them on everything that happened last week.

Her temperature was normal. They told her if she ever has a fever again that we are to call them immediately.

Her oncologist believes the fever/confusion was a result of the bladder infection. Avastin also causes sinus infections and she has one of those as well. He said they will monitor her closely. They do a urinalysis every other week so they will check to see what that says. Finally, they gave her potassium because she's been having severe leg cramps and her's was very low.

Again, thanks to everyone who sent me messages and well wishes for my mother. The kind words and support you have offered mean the world to me!

[FireSignFemme]

Someone I've known since my teens, long enough and well enough that she's like family to me. She went in for a biopsy and now we're just waiting for the results, the suspicion is esophageal cancer.

[easygoingfemme]

Mom was unable to get her chemotherapy today due to most of her numbers being low. Her CA125 has gone back up a bit. I updated them on everything that happened last week.

Her temperature was normal. They told her if she ever has a fever again that we are to call them immediately.

Her oncologist believes the fever/confusion was a result of the bladder infection. Avastin also causes sinus infections and she has one of those as well. He said they will monitor her closely. They do a urinalysis every other week so they will check to see what that says. Finally, they gave her potassium because she's been having severe leg cramps and her's was very low.

Again, thanks to everyone who sent me messages and well wishes for my mother. The kind words and support you have offered mean the world to me!

Oh I'm glad they caught the bladder infection! That does make sense. When my grandmother would get bladder infections it would do the same thing, make her way off character and out of it/forgetful. We learned through treating her that that is often how bladder infections impact seniors. Also super glad you have an answer to the confusing behavior. One less thing to worry about if they are going to monitor her so closely.

[Teddybear]

First off Wrangler sorry to hear about your mom and the chemo fig. I get it even on immunotherapy. Rustyrims sorry about your cousin and their now battle. FiresignFemme prayers for your friend during this waiting period

So last month I had another colonoscopy just to find out a cpl of things. Why I was bleeding, and how the colon looked now almost a year of either chemo or immunotherapy. So it showed one tumor completely gone the other responding very well.

Second PET scan was done the following week and it showed...... drumroll please. All tumors in my liver are gone. The first PET scan showed my liver had 75-85% full of cancer tumors.

I have had 3 iron infusions due to my blood counts being so low I was bordering on needing blood instead of just iron.

I have been taken off blood thinners due to bleeding. I am sure come Monday they will ask me to come in to have more blood work and probably other testing.

I have to admit I am worried about this loss of blood. I ask those of you who have had me on your prayer list to pray we find the reason for this. I also want to thank everyone who has prayed, sent healing thoughts and good vibes. I couldn’t have done this journey without any of yall

[clay]

I am having a SECOND Capsule endoscopy next week. I JUST had one in May! Because the half prep wasn't enough, it was a cloudy pic of small intestine.

My iron saturation levels have been extremely low, despite 8 weeks of iron infusions IV every couple of months or so. Have had to have them since last October or so. I am now with 6 under my belt, have 2 more to go.

I saw my gastro, we have done every test imaginable. The fecal globulin immunoassay is positive for bleeding internally! Most probably small intestine. A scope can NOT go in that area to see...so a second capsule endoscopy!

I see my new surgeon next week, so will know more then, what we may be looking at!

Dec 2011 marks my eighth year cancer free from colon/uterine cancer!

To everyone here, I send healing energies & positive vibes for all of you, fighting, or your friends/loved ones who are fighting. KEEP FIGHTING!

Take care...tell your person how much you love them..every day!
Tell your friends how much you love them every day!

Love is an amazing healer of things in life that are so stressful! I love each of you!

[Teddybear]

Oh so much going on. Good news first. Had my markers checked last week we are now at a 2 compared to 1391 in Jan.

I found out this past couple of weeks I have developed Cushing syndrome. This due to the tumor and the treatment.

I am finally going to have surgery to remove my colon on the 15th. This is an improvement over last year when they said it was inoperable. The chances are 50-50 I won't have an ostomy bag. We are prepared for whichever way it goes.

I continue to pray for each of you who are in the battle either as care giver or as a front line soldier. Not that a care giver isn't a front line soldier, I honestly think they are deeper in the battle then those of us who have the dreaded disease.

[easygoingfemme]

I rode Tour de Pink this past weekend and was honored to ride with 70 other survivors of breast cancer. There were also about 150 co-survivors/family members/parents and children of people lost to cancer. The conversations we had while riding were powerful and meaningful. The moments fighting our way up a steep hill and being able to say... it's not as hard as chemo was... just so nice to be in a community of people who completely understand your journey but to be doing something empowering and powerful together instead of just meeting randomly at hospitals and oncology appointments. At the end of the 200 miles we were on a beach front and all ran into the water and hugged it out. My heart is full.

[clay]

Repeat Cap. End. didn't show any active bleeding...so next is a repeat colonoscopy on the 25th. OH JOY! NOT!

Have to get a repeat blood panel drawn as well, as liver enzymes are elevated...:(.

I LOVED the new surgeon. She is amazing. BUT she wants to refer me to a surgeon more talented in fixing such a large ventral hernia..due to so many adhesions from when I had my hemicolectomy for colon cancer Dec 2011. So, the two best are in W. Palm Beach, FL AND Charlotte, NC! Neither are possible for me to travel to. So, I have contacted my bariatric surgeon who did my VGS, she is having her staff check into if my insurance will cover this. She is in St Pdete..2 hrs. away! I trust her with my life!!

Sends good juju to all of you facing surgeries, treatments, and just in need of a hug! Take care.

[Teddybear]

Good afternoon Peeps

So its been a little over a week since I had surgery. I had a total colestomy. Other then feeling like I am doing a million plus crunches a day I am doing well.

The doctor wants me to shoot for no more then 5 BMs a day. Some days its ore like 5 an hour.

The path report showed out of 25 lymph nodes only 3 showed signs of cancer. Only 1 tumor left in the colon and had shrunk to around 5 cm. Liver looked good.

I start back on treatment on Nov 4. Cant wait to find out how long I will now have to be on it.

Prayers and healing light to all.

[Bèsame*]

Good afternoon Peeps

So its been a little over a week since I had surgery. I had a total colestomy. Other then feeling like I am doing a million plus crunches a day I am doing well.

The doctor wants me to shoot for no more then 5 BMs a day. Some days its ore like 5 an hour.

The path report showed out of 25 lymph nodes only 3 showed signs of cancer. Only 1 tumor left in the colon and had shrunk to around 5 cm. Liver looked good.

I start back on treatment on Nov 4. Cant wait to find out how long I will now have to be on it.

Prayers and healing light to all.

Best Update So Far!!
XOXO

[clay]

Good afternoon Peeps

So its been a little over a week since I had surgery. I had a total colestomy. Other then feeling like I am doing a million plus crunches a day I am doing well.

The doctor wants me to shoot for no more then 5 BMs a day. Some days its ore like 5 an hour.

The path report showed out of 25 lymph nodes only 3 showed signs of cancer. Only 1 tumor left in the colon and had shrunk to around 5 cm. Liver looked good.

I start back on treatment on Nov 4. Cant wait to find out how long I will now have to be on it.

Prayers and healing light to all.

That is great news! So you had a colectomy (removal of large intestine) OR a colostomy (wear a bag on outside for BM's)....the colectomy is the better of the two. I had a hemicolectomy (partial removal of my colon) & they reattached the small intestine to that half large colon.

The BM's will decrease with time, and initially there will be "urgency" with them, but that, too, will lessen. Luckily for us, with these surgeries, we will not have the "dumping syndrome"....where one eats & immediately that food is rapidly passed thru stomach to gut, interfering with absorption of minerals & nutrients. They removed my ileo cecal valve (that holds foods in bowel long enough to let natural absorption of minerals & nutrients) so I am always going to have pernicious anemia, will take B12 shots rest of my life. A very good multivitamin is a good thing IF your MD says so.

Usually one has a lot of gas initially & that too will subside. Lying on left side with right leg flexed up on the left leg will stimulate natural peristalsis (movement of gas along bowel to be passed) and was a huge reliver for me post op. Even now I do that, too!

Anyway, sends healing energies to continue for you & will watch for future posts. Good luck, Ted.

[Teddybear]

So a month ago at this time I was being prepped for surgery. In the last month I have lost a little over 30lbs not that I didn't have it to lose.

Still trying to figure out what I can and cant eat. I also have figure out in what amounts I can eat. I maybe able to eat a whole 8 oz steak today and tomorrow barely able to eat a third of that.

Started back on Keytruda last week. Usual side effects but I would rather have them then what I had on chemo.

I am back on the every 3 week rotation with treatment and according to my dr that is going to be the schedule for some time.

Ms Norma and I will be heading to Ga for Thanksgiving in a cpl of weeks. This will be my longest road trip since surgery and since last March. Please keep us in your thoughts and prayers during this time that my health will not be a factor like it was last time we went home.


Hope everyone has a great day and holiday season if I am unable to post before then

[Teddybear]

So I thought I would give an update.

Surgery Oct 2019 to remove my colon where the tumor had shrunk a enough I could have surgery. Still have some issues but they will continue the rest of my life.

Was pain free for a little over 3 months and now it is back with a vengeance.

Had a PET scan the end of Dec and Dr was a little worried about some up take where the surgery was. Was going to keep an eye on it.

Talk to the Dr every 3 weeks when I go in for treatment. I try to let them know about any and all pains that come up.

Since chemo I have had issues with my right hand going to sleep all the time. It usually means my iron level is low. Not the case this time. This time it is off the charts. Concerning so they run more test. Find my liver enzymes are off way off also.

My next PET is for the first part of April. Result show a new tumor and it looks like it is on the liver, or it can be a fat lymph node. MRI is ordered.

Phone rings on a Thurs night at 845 and it is the doctor. We all know what that means dont we.

Yes it is a new tumor and I will have to do radiation. 5 treatments 1 a day for 5 days,

They seem to think it will supercharge the Keytruda so it will be able to get rid of this tumor also.

Tuesday was my last radiation. Today it hit me and I slept most of the day. Thank goodness I work nights.

I hope everyone is doing well. Keep up the good fight.

[rustedrims]

Read my first posts. Still kinda in the same spot. Still getting pictures every 6 months. Dr. appt. today and a CT scan on the 1st then in july the MRI. Pictures still commin back good. Not workin and busy with my yards like i wanted. I gotta be extra careful. Sometimes i catch myself slipping a little. Balance off sometimes. That brings me to a tough decision. Probly gotta take the bike back. It is 5 years old with only 500 miles on it. Strength and coordination not like it was. My hair did all grow back. It has a deep wave in the front on top of my head. I guess with 52 staples and a drain hole hair grows back the way it needs to,. I am very grateful how i am still healing.

Thank you everyone for reading and caring.

s

[rustedrims]

Hello everyone..

Had my CT scan. Pictures always come back good and no worries. Scan on monday. Usually takes a week or more to see the Dr. bout the pictures. I saw her on thursday. Got the phone call to come in on thursday. Thought that was great that I can get an early appt. Found out why I got that early appt. I have 2 spots on my right kidney. My Dr. said she isnt concerned about this. She told me not to worry. She said we caught it early. If it is bad we get rid of it and that will be it. I trust her. She has been with me from the beginning. It will be 3 years in november. Gotta get an MRI and maybe a biopsy if they need to know more.

Went out to 1 of my yards to get my mind off things. Gotta say that it didnt work. Left and visited friends. That was a nice break. I did go back and got more done. Felt better later. Glad i went back. Moms neighbor. Had a little visit with her. Watched the cat dump the birdbath on her. It was funny and scared her.

We all have our stuff going on individually but we fight the fight together.
Thank you for reading and caring. Stay safe everyone.

s

[Wrang1er]

My mother isn't doing well. She started having abdominal pain shortly before Covid-19 struck. After that, I was unable to go in with her for chemo, oncologist appointments and tests. Although I continued speaking to them on the phone it made everything more difficult and continues to do do. In May they said she had a partial bowel blockage and she was in the hospital for 9 days. Her tumors are growing and pressing against her small intestine and colon. They did a biopsy and found that her cancer has a breast cancer mutation. Which means there is one chemo that is used for breast cancer that may possibly work. IF it gets approved. It could be denied because my mother has ovarian cancer. The oncologist said if it doesn't get approved or doesn't work she would have approximately 3-6 months. She had a drainage gtube put in Thursday morning. She seemed to be doing better on Friday but terrible yesterday and today.

I'm trying to make sure I'm doing everything possible to help her feel comfortable and feel better. I worry I may not do something correctly and she may suffer due to that. I'm more than a little stressed. My mother and I have not always had the best relationship but it breaks my heart to see her suffering and in pain. I'm trying to stay positive. I'm hoping things fall into place and she gets better.

I'm just confused and having trouble pinpointing what went wrong so quickly. She's been fighting this since July 2015 and for the most part kicking cancer's ass.

I'd appreciate if you read this if you would send prays, good juju... whatever you believe in for my momma.

[Teddybear]

Hello everyone..

Had my CT scan. Pictures always come back good and no worries. Scan on monday. Usually takes a week or more to see the Dr. bout the pictures. I saw her on thursday. Got the phone call to come in on thursday. Thought that was great that I can get an early appt. Found out why I got that early appt. I have 2 spots on my right kidney. My Dr. said she isnt concerned about this. She told me not to worry. She said we caught it early. If it is bad we get rid of it and that will be it. I trust her. She has been with me from the beginning. It will be 3 years in november. Gotta get an MRI and maybe a biopsy if they need to know more.

Went out to 1 of my yards to get my mind off things. Gotta say that it didnt work. Left and visited friends. That was a nice break. I did go back and got more done. Felt better later. Glad i went back. Moms neighbor. Had a little visit with her. Watched the cat dump the birdbath on her. It was funny and scared her.

We all have our stuff going on individually but we fight the fight together.
Thank you for reading and caring. Stay safe everyone.

s


Rusty,

I also had a new tumor try to start growing inside one of the lymph nodes close to the liver. I did 5 treatments of radiation and we should know the middle of next month if that did the trick.

Prayers for everything to work out like it should

[Teddybear]

My mother isn't doing well. She started having abdominal pain shortly before Covid-19 struck. After that, I was unable to go in with her for chemo, oncologist appointments and tests. Although I continued speaking to them on the phone it made everything more difficult and continues to do do. In May they said she had a partial bowel blockage and she was in the hospital for 9 days. Her tumors are growing and pressing against her small intestine and colon. They did a biopsy and found that her cancer has a breast cancer mutation. Which means there is one chemo that is used for breast cancer that may possibly work. IF it gets approved. It could be denied because my mother has ovarian cancer. The oncologist said if it doesn't get approved or doesn't work she would have approximately 3-6 months. She had a drainage gtube put in Thursday morning. She seemed to be doing better on Friday but terrible yesterday and today.

I'm trying to make sure I'm doing everything possible to help her feel comfortable and feel better. I worry I may not do something correctly and she may suffer due to that. I'm more than a little stressed. My mother and I have not always had the best relationship but it breaks my heart to see her suffering and in pain. I'm trying to stay positive. I'm hoping things fall into place and she gets better.

I'm just confused and having trouble pinpointing what went wrong so quickly. She's been fighting this since July 2015 and for the most part kicking cancer's ass.

I'd appreciate if you read this if you would send prays, good juju... whatever you believe in for my momma.

Wrangler

We have been holding your mom up in prayer since I read this. I know how difficult it can be to care for someone who we havent had the best of relationships with.

I am sure you are doing everything you can to help her and to be there for her.

Continued prayers

[Teddybear]

So I have been battling getting a wheelchair because I felt it would mean I had given up and letting cancer win. Not the case I finally realize that refusing to get a chair has taken my freedom away from me. I am dependent upon a motorized cart at the stores I go to to be available when I go. If not then I have to turn around and go back to the car. Then I am done for the day.

It has robbed Norma and I from doing things together because she hates to see me in pain so she just doesn't ask to go.

Got the chair Friday and go tomorrow to get the lift for my car. My wife and I are looking forward to our life together where we enjoy doing things.

[easygoingfemme]

My mother isn't doing well. She started having abdominal pain shortly before Covid-19 struck. After that, I was unable to go in with her for chemo, oncologist appointments and tests. Although I continued speaking to them on the phone it made everything more difficult and continues to do do. In May they said she had a partial bowel blockage and she was in the hospital for 9 days. Her tumors are growing and pressing against her small intestine and colon. They did a biopsy and found that her cancer has a breast cancer mutation. Which means there is one chemo that is used for breast cancer that may possibly work. IF it gets approved. It could be denied because my mother has ovarian cancer. The oncologist said if it doesn't get approved or doesn't work she would have approximately 3-6 months. She had a drainage gtube put in Thursday morning. She seemed to be doing better on Friday but terrible yesterday and today.

I'm trying to make sure I'm doing everything possible to help her feel comfortable and feel better. I worry I may not do something correctly and she may suffer due to that. I'm more than a little stressed. My mother and I have not always had the best relationship but it breaks my heart to see her suffering and in pain. I'm trying to stay positive. I'm hoping things fall into place and she gets better.

I'm just confused and having trouble pinpointing what went wrong so quickly. She's been fighting this since July 2015 and for the most part kicking cancer's ass.

I'd appreciate if you read this if you would send prays, good juju... whatever you believe in for my momma.


Wrang, how is your mother doing? How are you?

[clay]

My mother isn't doing well. She started having abdominal pain shortly before Covid-19 struck. After that, I was unable to go in with her for chemo, oncologist appointments and tests. Although I continued speaking to them on the phone it made everything more difficult and continues to do do. In May they said she had a partial bowel blockage and she was in the hospital for 9 days. Her tumors are growing and pressing against her small intestine and colon. They did a biopsy and found that her cancer has a breast cancer mutation. Which means there is one chemo that is used for breast cancer that may possibly work. IF it gets approved. It could be denied because my mother has ovarian cancer. The oncologist said if it doesn't get approved or doesn't work she would have approximately 3-6 months. She had a drainage gtube put in Thursday morning. She seemed to be doing better on Friday but terrible yesterday and today.

I'm trying to make sure I'm doing everything possible to help her feel comfortable and feel better. I worry I may not do something correctly and she may suffer due to that. I'm more than a little stressed. My mother and I have not always had the best relationship but it breaks my heart to see her suffering and in pain. I'm trying to stay positive. I'm hoping things fall into place and she gets better.

I'm just confused and having trouble pinpointing what went wrong so quickly. She's been fighting this since July 2015 and for the most part kicking cancer's ass.

I'd appreciate if you read this if you would send prays, good juju... whatever you believe in for my momma.
Wrang & Mom).....have had you & mom on my mind a lot. Just came by to send you light & love. Hang in there my friend!

[Wrang1er]

Wrangler

We have been holding your mom up in prayer since I read this. I know how difficult it can be to care for someone who we havent had the best of relationships with.

I am sure you are doing everything you can to help her and to be there for her.

Continued prayers

Teddy,

Thank you so much. I know you understand. I've read your posts and I've been thinking of you. I just haven't been able to find the words lately.

Good move on the chair. I'll be waiting for an update about you and your wife's first outing. Take care of you and again, thank you.

~W

[Wrang1er]

Wrangler

We have been holding your mom up in prayer since I read this. I know how difficult it can be to care for someone who we havent had the best of relationships with.

I am sure you are doing everything you can to help her and to be there for her.

Continued prayers

Wrang, how is your mother doing? How are you?

Not good, easy. The last three days have been rough due to pain. I haven't been able to get her to eat very much because of the nausea.

The chemo was approved. It's Herceptin. She's scheduled for an echocardiogram on the 24th. The problem is I don't know that'll she be strong enough to even attempt it.

Last night she told me she doesn't want to suffer. This morning she told me to have my older sister to come after work to plan the funeral.

As for me... I read the post earlier and since then have been trying to figure that out. The only thing I can come up with is that I don't know. There's just so much. So many feelings at once.

I don't want her to suffer. I'm still hoping something changes and she gets the chemo and it works but things aren't looking that way. I have taken to sleeping in the living room on the floor near the couch. I think it comforts her and that in turn helps me. I don't want her to be alone.

Anyway, I'm rambling, still trying to figure out how I am doing. I'm going to think about it some more. Maybe I'll pin something down.

I appreciate you asking, easy. I hope you and yours are happy, healthy and safe.

~W

[Wrang1er]

Wrang & Mom).....have had you & mom on my mind a lot. Just came by to send you light & love. Hang in there my friend!

Clay,

I feel like you've been here since the beginning. I can't express how much your support has meant.

Your love and light is accepted and returned to you, my friend. Thank you!

[Starfish]

Prayers for all in this thread. May you have peace, comfort and relief from pain both physical and emotional.

[easygoingfemme]

Wrang, that all sounds really difficult. I'm glad you're able to be there with your mom now and even sleeping on the floor next to her. That's absolutely comforting to you both. I did the same a few times when my mom had cancer and she stayed with me a few times when I was in chemo and really having a hard time of it. It's a very helpless feeling when you can't take the pain away but you can be a loving presence and that's what you are doing.

Herceptin isn't as rough as some other chemos but still, if she's not strong enough for it, I don't know how much it could benefit or hurt and that's a horrible decision to make.

Take care of yourself as you can. Drink water. Take deep breaths. I'll be thinking of you.

[Teddybear]

Teddy,

Thank you so much. I know you understand. I've read your posts and I've been thinking of you. I just haven't been able to find the words lately.

Good move on the chair. I'll be waiting for an update about you and your wife's first outing. Take care of you and again, thank you.

~W

So the people we got the lift from put it on my car. Had to take it to the shop to have the bolt tighten. God has blessed us with this move to get the chair.

The lift has ratchet straps however I dont have the strength to turn the knob to ratchet it down so I had to get new ratchet straps that arent like ones you have to turn like a knob. Got it strapped down and off we went to Lowes.

I was able to get the chair unloaded, run around the store and then back on the lift without too much problems like yesterday. We know the more we use it the easier it will be.

We are planning a trip in a couple of months once we get some stuff done around here.

[ksrainbow]

I have experienced, lived, survived many heartfelt and saddened outcomes for many here. There truly is no outcome that will ever return any of us OR our loved ones to a previous time without cancer. Our world/s: are forever changed.

Having this space for expression/s is welcomed and cherished. We all are connected by those of us who share a common space with one another. Caregiver/survivor or both...being able to share this space IS comforting.

At the end of my visit to this thread, I am reminded that I am not alone. I am thankful for everyone who has a few minutes to be here. I am humbled how many share a personal moment.

Ks-

[Wrang1er]

Mom had an echocardiogram which came back normal. This means she can start chemo on the 30th.

I hope she'll be strong enough to go. She's so sick right now. Barely eating or drinking. She gets weaker each day.

I'm hoping to some how get her feeling better by Tuesday. I'm also hoping the chemo works and works quickly.

[easygoingfemme]

Mom had an echocardiogram which came back normal. This means she can start chemo on the 30th.

I hope she'll be strong enough to go. She's so sick right now. Barely eating or drinking. She gets weaker each day.

I'm hoping to some how get her feeling better by Tuesday. I'm also hoping the chemo works and works quickly.

I'm glad the echo cardiogram came back normal. Does she have a port for chemo?

Do you know how to make or have access to bone stock? It can be so nutrient dense and easy to digest, it might help her build up some strength. It's not hard to make. I'd be happy to talk you through it if you need a hand.

[Wrang1er]

I'm glad the echo cardiogram came back normal. Does she have a port for chemo?

Do you know how to make or have access to bone stock? It can be so nutrient dense and easy to digest, it might help her build up some strength. It's not hard to make. I'd be happy to talk you through it if you need a hand.

Easy,

She does have a port. I don't know how to make it but I was recently reading about it. Do you have a recipe? I will also Google it.

Thanks for the suggestion, EGF!

[Starfish]

Easy,

She does have a port. I don't know how to make it but I was recently reading about it. Do you have a recipe? I will also Google it.

Thanks for the suggestion, EGF!

You can purchase on Amazon.

[easygoingfemme]

Easy,

She does have a port. I don't know how to make it but I was recently reading about it. Do you have a recipe? I will also Google it.

Thanks for the suggestion, EGF!

I'm glad she has a port. That makes things easier.

There are a lot of ways to make stock. If you have a crock pot/slow cooker it's easiest. When I had cancer I couldn't handle touching meat but I had friends with a farm and they would make this for me any time they were processing a chicken or turkey.

I usually start with roasting a chicken and then breaking it down. But it doesn't have to be chicken. Beef bones can make the stock thicker though and that's not always desired- though it does add more protein.
Put all of the bones and some of the bone meat into crock pot.
Add in celery garlic onions mushrooms carrots turmeric salt and a small splash of vinegar (vinegar just helps break up the bones to release more nutrients). I also really like turnips in there.
Top with water to about two inches from the top.
Cook on low for at least 8 hours.
Strain.
Serve.

You can do all of the same stovetop with a big pot. It's just easier with a crock pot so you don't have to watch it so much.

If you can get Miso paste to make miso broth that's also super high protein and healthy to drink when you can't get food down.

[Wrang1er]

Thank you, Easy! I'm going to do this tomorrow. Mom has a Crock-Pot. We also have a instant pot which I've only used three times.

I am going to try to get her eating as much as possible today. She had a horrible night but I made her eat a pudding cup and then I mixed a BeneCalorie into a small glass of Carnation breakfast drink and had her drink that. She's sleeping now but when she wakes up I'll make her eat again.

I appreciate your input. I'm going to go with the chicken. Any other suggestions please send them my way.

Thanks again!

~W

[easygoingfemme]

If you need to mix medicine into something, applesauce can be a good mix. The dairy might be hard on her stomach right now...

[Wrang1er]

I am in the emergency department with my mother. She began vomiting and must have dislodged the PEG tube because it started leaking.

She's so weak that I had to call 911.

[Starfish]

I am in the emergency department with my mother. She began vomiting and must have dislodged the PEG tube because it started leaking.

She's so weak that I had to call 911.

Lifting you and your Mom in prayer.

[~ocean]

I am in the emergency department with my mother. She began vomiting and must have dislodged the PEG tube because it started leaking.

She's so weak that I had to call 911.


((((((((( wrangler & mom ))))))))) stay strong ~:praying:

[easygoingfemme]

Wrag... holding you and your mom in my thoughts. I know you will update when you can.

[clay]

I am in the emergency department with my mother. She began vomiting and must have dislodged the PEG tube because it started leaking.

She's so weak that I had to call 911.

((((((((((((((((((((((Wrang & MOM)))))))))))).....I am saddened to hear this, buddy! Know many of us are holding you & your mom up, sending positive juju to you both!

[Wrang1er]

Update:

We spent over 12 hours in the emergency department yesterday. The doctor on duty didn't feel like my mother qualified to be admitted. The x-rays showed the tube was still in it's proper place. I attempted more than once to explain everything that was going on with her. He discharged her twice. Each time the nurses tried to get her up stomach fluids would flow out of the hole. So much so, that it puddled on the floor. How in the hell was I going to be able to take her home? She was in immense pain. She had not ate anything other than a pudding cup and applesauce for days. Nor had she gotten any sleep. He suggested I put her into a nursing home.

Thankfully, the charge nurse made the ultimate decision to keep her. I can't tell you how relieved I was.

It sucks that some doctors don't take the time to stop and listen. Or just want to move on to the next patient. I realize the emergency department is usually slammed but my mom is still a human being who is obviously suffering greatly. I will be communicating this to the higher ups.

I am getting ready to go back over. I'll fill everyone in once I find out what's going on.

Thanks for all the support. It's nice to have all of you and the planet to be able to vent and share with.

Thanks to you all.

~W

[clay]

Update:

We spent over 12 hours in the emergency department yesterday. The doctor on duty didn't feel like my mother qualified to be admitted. The x-rays showed the tube was still in it's proper place. I attempted more than once to explain everything that was going on with her. He discharged her twice. Each time the nurses tried to get her up stomach fluids would flow out of the hole. So much so, that it puddled on the floor. How in the hell was I going to be able to take her home? She was in immense pain. She had not ate anything other than a pudding cup and applesauce for days. Nor had she gotten any sleep. He suggested I put her into a nursing home.

Thankfully, the charge nurse made the ultimate decision to keep her. I can't tell you how relieved I was.

It sucks that some doctors don't take the time to stop and listen. Or just want to move on to the next patient. I realize the emergency department is usually slammed but my mom is still a human being who is obviously suffering greatly. I will be communicating this to the higher ups.

I am getting ready to go back over. I'll fill everyone in once I find out what's going on.

Thanks for all the support. It's nice to have all of you and the planet to be able to vent and share with.

Thanks to you all.

~W

(((((((((((((((((((((Wrang))))))))))))))). I am happy to hear they did keep her. Thank the Universe for NURSES! They are the ones who actually spend the most time with a patient!

Though "empty" the stomach still produces gastric acids, and quite possibly her stoma (site where tube is in) may be "stretched" thus allowing for that leakage. May be suggest a larger size feeding tube? Just my thoughts on that, having dealt with these sorts of issues in past. Does she have a stomal dressing to help stabilize that feeding tube? Just some ideas to mull over with the nurses?! Sends you big hugs & more for your mom!!

[Wrang1er]

(((((((((((((((((((((Wrang))))))))))))))). I am happy to hear they did keep her. Thank the Universe for NURSES! They are the ones who actually spend the most time with a patient!

Though "empty" the stomach still produces gastric acids, and quite possibly her stoma (site where tube is in) may be "stretched" thus allowing for that leakage. May be suggest a larger size feeding tube? Just my thoughts on that, having dealt with these sorts of issues in past. Does she have a stomal dressing to help stabilize that feeding tube? Just some ideas to mull over with the nurses?! Sends you big hugs & more for your mom!!

I agree wholeheartedly about the nurses!

They are taking that PEG tube out tomorrow. I think you are right, Clay, regarding the stoma. You can see that it's much wider than the tube. I believe from all the pressure put on it from vomiting.

She now has an NGtube which is sucking all that nastiness out of her. She's experiencing pain but she's getting Dilaudid through her IV every four hours. She's also getting fluids. No food or drink though.

I had to laugh earlier. She asked the nurse for ice. The nurse complied but with instructions that she can only have a little.

I left the room and when I came back she was still eating ice. I told her she's only allowed a few pieces. She replied that she knew but she was addicted to it. She's a little out of it.

[clay]

I agree wholeheartedly about the nurses!

They are taking that PEG tube out tomorrow. I think you are right, Clay, regarding the stoma. You can see that it's much wider than the tube. I believe from all the pressure put on it from vomiting.

She now has an NGtube which is sucking all that nastiness out of her. She's experiencing pain but she's getting Dilaudid through her IV every four hours. She's also getting fluids. No food or drink though.

I had to laugh earlier. She asked the nurse for ice. The nurse complied but with instructions that she can only have a little.

I left the room and when I came back she was still eating ice. I told her she's only allowed a few pieces. She replied that she knew but she was addicted to it. She's a little out of it.

Hey Wrang! Good on getting j-peg out. I have to tell you, I had an NG tube for 5 weeks back in December when I got so sick & was in hospital for 50 days, had surgery, too. They put a PICC line in my arm, into my superior vena cava to give me TPN (total parenteral nutrition)...a specially mixed bag of lipids(fats), nutrients, vitamins, minerals, electrolytes, etc, that I had for 2 weeks.

As far as her eating the ice chips..no worries as the NG will just suck it right back out...lol. BUT the chips will stimulate more gastric acids...

I, too, got Dilaudid IV for most all 50 days....whoohoo. It would make me so loopy, within seconds. The nurses got so much laughter once I was "drugged". LOL.

Otherwise, at least she has pain under control Has NG to empty tummy and got ice chips, so all is good, yes....at least control over some of her problems....hugs buddy!

[easygoingfemme]

I agree wholeheartedly about the nurses!

They are taking that PEG tube out tomorrow. I think you are right, Clay, regarding the stoma. You can see that it's much wider than the tube. I believe from all the pressure put on it from vomiting.

She now has an NGtube which is sucking all that nastiness out of her. She's experiencing pain but she's getting Dilaudid through her IV every four hours. She's also getting fluids. No food or drink though.

I had to laugh earlier. She asked the nurse for ice. The nurse complied but with instructions that she can only have a little.

I left the room and when I came back she was still eating ice. I told her she's only allowed a few pieces. She replied that she knew but she was addicted to it. She's a little out of it.


Really good update! Unbelievable how you had to fight to get her admitted to get to this place. I'm really glad they are taking good care of your mom now.

[Wrang1er]

I am not going to go into a lot of detail tonight because I am spent. They couldn't take the tube out due to complications. They called in a surgeon to ask his opinion. He said it's time for palliative care.

I will talk to her oncologist tomorrow. If he says the same I am going to get a second opinion.

I don't want to give up yet. I feel they have. Maybe I am fooling myself or being selfish. I just want to know for sure.

~W

[Teddybear]

Mom had an echocardiogram which came back normal. This means she can start chemo on the 30th.

I hope she'll be strong enough to go. She's so sick right now. Barely eating or drinking. She gets weaker each day.

I'm hoping to some how get her feeling better by Tuesday. I'm also hoping the chemo works and works quickly.

Wrangler know you and your mom are in our prayers today.

[Wrang1er]

I want to let everyone know that my mom passed away this morning.

I want to express to all of you my thanks and appreciation for all of the support, advice and kind words.

~W

[C0LLETTE]

Just Saw Your Sad Post:

Wrangler, I think I can safely say that your love, deep affection and determined efforts to keep your Mom comfortable in such anguishing times touched all of us here, even to the point that now, in some small way, we share your sorrow.

As a stranger and as family, I am so sorry Wrangler.

[homoe]

So sorry to hear this Wrangler.

[easygoingfemme]

Oh Wrangler. I'm so very sorry to hear this. My heart is with you and your family. You have been with your mom thick and thin through this. You gave it your all to be there for and with her and she knew that and you know that. But that doesn't take away the hurt and loss. My heart is with you and your family tonight.

[clay]

I want to let everyone know that my mom passed away this morning.

I want to express to all of you my thanks and appreciation for all of the support, advice and kind words.

~W

Awww, Wrangler...I am heartbroken. You have to know deep inside that your mom fought as long as she could, and because of you, she was able to do just that. You did everything right by her, and no one could have done anymore that you so unselfishly gave to her!

She is always going to live inside you & your heart. I know there are no words, but do know you are in my heart & my thoughts always...more so now. (((((((((((((((((W))))))))))))))))).

My deepest sympathies & condolences to you & your family, Wrang!

Take care my friend!!

[kittygrrl]

https://img.sunset02.com/sites/default/files/styles/4_3_horizontal_inbody_900x506/public/image/david_austin_rose_the_lady_of_the_lake.jpg?itok=iS K0gHgY
Wrangler...So sorry to hear of your Mom's passing

[Teddybear]

Wrangler

We both are saddened by the news if your mom's passing. Know our prayers are with you and your family during this time.

If you ever need a shoulder in which to lean on, scream into please reach out

[Teddybear]

UPDATE:

Today I was scheduled for my PET scan next Wednesday morning. I am a little worried since the last night a new tumor was found. I dont have the dread I had in April prior to the scan.

I try to be upbeat about it all but we all know at times our mind can run wild with us .

Hope everyone is doing well.

Wrangler you are still in our prayers

[Wrang1er]

UPDATE:

Today I was scheduled for my PET scan next Wednesday morning. I am a little worried since the last night a new tumor was found. I dont have the dread I had in April prior to the scan.

I try to be upbeat about it all but we all know at times our mind can run wild with us .

Hope everyone is doing well.

Wrangler you are still in our prayers

Thank you, Teddy. I should have responded to the posts but I just haven't been able to.

You'll be in my thoughts.

[rustedrims]

Well had my biopsy on my right kidney last tuesday. Waiting to hear from someone. Nobody likes the waiting. This time i want to wait a little longer. I found out if I get a early call then somethin is up. I dont feel an urgency this time with this. I feel ok and nothing has changed where i would be concerned. Just dont want that stuff back. I dont want to loose my hair and 60 pounds again. Had a tough time gettin through that.

When I got the news bout my kidney I went head first balls to the wall in my yards. Did 3 straight days nonstop then crashed. Took a step back and realized that wasnt going to help me. Mom told me to slow down and of course I didnt listen to her. Was thinkin if I got that biopsy I would not be able to do anything. Wanted to get things done so I wouldnt get to far behind. Had to take at least 3 days off. Sweeping off my sidewalk was a bad idea. Hurting that night. Dont want to call but might call tuesday. That will be a week. Gotta get some sleep.

As always thank you for reading and caring. I love you all. Fighting the Fight in The Planet.!!

s

[Teddybear]

Well had my biopsy on my right kidney last tuesday. Waiting to hear from someone. Nobody likes the waiting. This time i want to wait a little longer. I found out if I get a early call then somethin is up. I dont feel an urgency this time with this. I feel ok and nothing has changed where i would be concerned. Just dont want that stuff back. I dont want to loose my hair and 60 pounds again. Had a tough time gettin through that.

When I got the news bout my kidney I went head first balls to the wall in my yards. Did 3 straight days nonstop then crashed. Took a step back and realized that wasnt going to help me. Mom told me to slow down and of course I didnt listen to her. Was thinkin if I got that biopsy I would not be able to do anything. Wanted to get things done so I wouldnt get to far behind. Had to take at least 3 days off. Sweeping off my sidewalk was a bad idea. Hurting that night. Dont want to call but might call tuesday. That will be a week. Gotta get some sleep.

As always thank you for reading and caring. I love you all. Fighting the Fight in The Planet.!!

s


Sending up prayers and positive thoughts for you

[Wrang1er]

https://img.sunset02.com/sites/default/files/styles/4_3_horizontal_inbody_900x506/public/image/david_austin_rose_the_lady_of_the_lake.jpg?itok=iS K0gHgY
Wrangler...So sorry to hear of your Mom's passing

Thank you, kittygirl. Her memorial service was yesterday. I think she would have been pleased with it. I'm glad that part is over. I miss her and it's still hard to believe she's gone. The only solace is knowing she isn't in pain or suffering.

She loved flowers so thank you for that. This is a little song I wrote for her.

xGgmuZ8QXj4&feature=youtu.be

~W

[~ocean]

Well had my biopsy on my right kidney last tuesday. Waiting to hear from someone. Nobody likes the waiting. This time i want to wait a little longer. I found out if I get a early call then somethin is up. I dont feel an urgency this time with this. I feel ok and nothing has changed where i would be concerned. Just dont want that stuff back. I dont want to loose my hair and 60 pounds again. Had a tough time gettin through that.

When I got the news bout my kidney I went head first balls to the wall in my yards. Did 3 straight days nonstop then crashed. Took a step back and realized that wasnt going to help me. Mom told me to slow down and of course I didnt listen to her. Was thinkin if I got that biopsy I would not be able to do anything. Wanted to get things done so I wouldnt get to far behind. Had to take at least 3 days off. Sweeping off my sidewalk was a bad idea. Hurting that night. Dont want to call but might call tuesday. That will be a week. Gotta get some sleep.

As always thank you for reading and caring. I love you all. Fighting the Fight in The Planet.!!

s


(((((( hugs for you )))))) using your muscles around your kidney after surgery ~ sweeping !!! hellooooooo !!! rest ,rest, and get more rest ! :readfineprint:

[C0LLETTE]

Wrangler, I've "known " you off and on over several years and from here and from there.
I've always found you thoughtful and kind and I have no doubt this is the legacy of your Mom.
The video tribute is both beautiful and moving and I thank you for posting it.

[Wrang1er]

Wrangler, I've "known " you off and on over several years and from here and from there.
I've always found you thoughtful and kind and I have no doubt this is the legacy of your Mom.
The video tribute is both beautiful and moving and I thank you for posting it.

Thank you, Collette. It made me feel a little better. :)

[kittygrrl]

Thank you, kittygirl. Her memorial service was yesterday. I think she would have been pleased with it. I'm glad that part is over. I miss her and it's still hard to believe she's gone. The only solace is knowing she isn't in pain or suffering.

She loved flowers so thank you for that. This is a little song I wrote for her.

xGgmuZ8QXj4&feature=youtu.be

~W

Your song is beautiful Wrangler..thank you for sharing it (((hugs)))

[Teddybear]

Thank you, kittygirl. Her memorial service was yesterday. I think she would have been pleased with it. I'm glad that part is over. I miss her and it's still hard to believe she's gone. The only solace is knowing she isn't in pain or suffering.

She loved flowers so thank you for that. This is a little song I wrote for her.

xGgmuZ8QXj4&feature=youtu.be

~W

Beautiful tribute Wrangler. We all should be so honored to inspire such

[easygoingfemme]

Wrangler, that was a beautiful and loving tribute to your mom. Thank you for sharing that with us. Your song is beautiful and perfect.

[easygoingfemme]

I had to put on my big girl pants yesterday and call my oncologist about some bone pain I've been having for about a month. It is so damn hard to make those calls. The anxiety to get ready to even pick up the phone knocks me out. Finally yesterday I took a half of an ativan and then made the call after that kicked in. They sent me to x-ray and I went and had scans done yesterday and now I wait.

There are a lot of things it could be. Just, I can't deal with sorting that out unless I've knocked out the biggest scariest monster which would be a recurrence of the cancer.

[~ocean]

I had to put on my big girl pants yesterday and call my oncologist about some bone pain I've been having for about a month. It is so damn hard to make those calls. The anxiety to get ready to even pick up the phone knocks me out. Finally yesterday I took a half of an ativan and then made the call after that kicked in. They sent me to x-ray and I went and had scans done yesterday and now I wait.

There are a lot of things it could be. Just, I can't deal with sorting that out unless I've knocked out the biggest scariest monster which would be a recurrence of the cancer.

((((( easy )))))) lets blame it on the heat and humidity ! makes us all achy. stay strong :goodluck:

[easygoingfemme]

((((( easy )))))) lets blame it on the heat and humidity ! makes us all achy. stay strong :goodluck:

My oncologist called about a half hour ago. I'm all good :) I don't know what's causing the pain but it isn't cancer so I don't care what it is.

[clay]

My oncologist called about a half hour ago. I'm all good :) I don't know what's causing the pain but it isn't cancer so I don't care what it is.
((((((((((((((((((((((((easy))))))))))))

That is absolutely fantastic!

[Wrang1er]

My oncologist called about a half hour ago. I'm all good :) I don't know what's causing the pain but it isn't cancer so I don't care what it is.

Woohoo! So glad to hear this, easy! ��

[Teddybear]

My oncologist called about a half hour ago. I'm all good :) I don't know what's causing the pain but it isn't cancer so I don't care what it is.

What great news.

I go today to see my oncologist to get the results of my PET. Since they found a new tumor last PET Im a little worried but I am holding on to faith the radiation kicked its butt along with the Keytruda

[Teddybear]

What great news.

I go today to see my oncologist to get the results of my PET. Since they found a new tumor last PET Im a little worried but I am holding on to faith the radiation kicked its butt along with the Keytruda

Ok it took a minute for me to process the news I got yesterday at the doctors office.

He said I am officially in REMISSION!!!!!!!!!!!!!!!!!!

Still a little bit of shock. I am thankful for the doctors and the treatment.

[~ocean]

I was in pain last weekend so off to the ER I went ~ after a cat scan I have kidney stones << no big deal but they saw area's of concern near the esophagus and liver now I get a PET scan Aug. 5th . I am keeping my fingers crossed after being in remission for 5 years :) lot's of blood work this coming week . I just found out I am going to be a grandmother again :)))) this will be grandchild # 2 ~ I'm very excited ~ did you all know the new neutral color is in grey tones :( a floor or a rug ok ~ but infant clothes ~ no no . they find out in a 3 weeks or 4 if it's a boy or girl. I'm not buying grey ! there will be 14 years between Jonathan and this baby . lol I told him when he will be walking with the baby the girls are going to flirt with him. lol it's like having a cute puppy ! I just don't want to cause my daughter any stress w/ my health. with the news of the cat scan last week her tears broke my heart. this is no time for God to have a sense of humor ~ sort to speak ~

[clay]

I was in pain last weekend so off to the ER I went ~ after a cat scan I have kidney stones << no big deal but they saw area's of concern near the esophagus and liver now I get a PET scan Aug. 5th . I am keeping my fingers crossed after being in remission for 5 years :) lot's of blood work this coming week . I just found out I am going to be a grandmother again :)))) this will be grandchild # 2 ~ I'm very excited ~ did you all know the new neutral color is in grey tones :( a floor or a rug ok ~ but infant clothes ~ no no . they find out in a 3 weeks or 4 if it's a boy or girl. I'm not buying grey ! there will be 14 years between Jonathan and this baby . lol I told him when he will be walking with the baby the girls are going to flirt with him. lol it's like having a cute puppy ! I just don't want to cause my daughter any stress w/ my health. with the news of the cat scan last week her tears broke my heart. this is no time for God to have a sense of humor ~ sort to speak ~

Ohhhssshhhh...will lift you up & keep space for you in my heart! YOU.GOT.THIS!! I also agree...tones of grey..for a baby...nahhh...a house or room, yes, BUT not a baby's wardrobe...:).

(((((((((((((((((((Ohhhsshhhhhhhh)....xo
ETA: Congratulations on the new grandbaby!

[firegal]

I was in pain last weekend so off to the ER I went ~ after a cat scan I have kidney stones << no big deal but they saw area's of concern near the esophagus and liver now I get a PET scan Aug. 5th . I am keeping my fingers crossed after being in remission for 5 years :) lot's of blood work this coming week . I just found out I am going to be a grandmother again :)))) this will be grandchild # 2 ~ I'm very excited ~ did you all know the new neutral color is in grey tones :( a floor or a rug ok ~ but infant clothes ~ no no . they find out in a 3 weeks or 4 if it's a boy or girl. I'm not buying grey ! there will be 14 years between Jonathan and this baby . lol I told him when he will be walking with the baby the girls are going to flirt with him. lol it's like having a cute puppy ! I just don't want to cause my daughter any stress w/ my health. with the news of the cat scan last week her tears broke my heart. this is no time for God to have a sense of humor ~ sort to speak ~
Congrats on another grand baby..... and ill be praying for good results on your blood work. Hugs to you.

[rustedrims]

Feeling restless all last week waiting to see the Dr. on friday. Had a kid in town on thursday so spent some time with her. Had a good time. After she left i see that Mom called. Called her back. I could tell by her voice somethin was up. Her sister my aunt had passed. Feel sad we couldnt get in there to see her. She was just to busted up to make her new again. I will miss her.

Well now it is friday 10:30am. Waiting to see the Dr. .Starring at the floor and pickin at my finger. My name is called and I look up and follow Nancy to "the room" . No hug or kiss. She went right into my kidney biopsy. Yeah I got it back. Almost 3 years in remisson. Start treatments in a few weeks. Why do i gotta f####ng wait!! I hope I dont go into stage 4 waiting on insurance to approve my treatments. Thats messed up !! Getting an IV drip insted of chemo or radiation. Had radiation last time. Its the same stuff I had in my head. Slow growing. Give insurance time to get caught up. Stayed home yesterday to just be quiet and think whats gonna happen. Thinkin that I should be doing something at my yards. Better not cause my head wasnt in it. Might hurt myself not thinkin.

Today again balls to the wall to get my stuff done before treatments. Makes me feel good doing that.That stuff does what it does BUT it is NOT takin my yards away from me!

Thank you very much for reading my ramblings and caring.

s

[clay]

Feeling restless all last week waiting to see the Dr. on friday. Had a kid in town on thursday so spent some time with her. Had a good time. After she left i see that Mom called. Called her back. I could tell by her voice somethin was up. Her sister my aunt had passed. Feel sad we couldnt get in there to see her. She was just to busted up to make her new again. I will miss her.

Well now it is friday 10:30am. Waiting to see the Dr. .Starring at the floor and pickin at my finger. My name is called and I look up and follow Nancy to "the room" . No hug or kiss. She went right into my kidney biopsy. Yeah I got it back. Almost 3 years in remisson. Start treatments in a few weeks. Why do i gotta f####ng wait!! I hope I dont go into stage 4 waiting on insurance to approve my treatments. Thats messed up !! Getting an IV drip insted of chemo or radiation. Had radiation last time. Its the same stuff I had in my head. Slow growing. Give insurance time to get caught up. Stayed home yesterday to just be quiet and think whats gonna happen. Thinkin that I should be doing something at my yards. Better not cause my head wasnt in it. Might hurt myself not thinkin.

Today again balls to the wall to get my stuff done before treatments. Makes me feel good doing that.That stuff does what it does BUT it is NOT takin my yards away from me!

Thank you very much for reading my ramblings and caring.

s
S....I am so very sorry to hear this, & I know exactly how devastating that hearing a diagnosis of the C is, firsthand.

Remain as focused & as positive as you can. Holding space for you, my friend!!

My heartfelt condolences to you & your family on the death of your aunt. I am very sad you are having to deal with this doubly heartbreaking news.

Hang in there. be gentle with you. Loving hugs, S.

[rustedrims]

Gotta start with an apology. I am sorry bout my last post. Kinda went off on my stuff. Sittin here alone thinkin bout what I am going to be going through. I did get my phone call today. Insurance didnt take as long as I thought it was going to. I start my treatments wednesday. Would start tomorrow but I am not going to miss Aunt Sherrys funeral. Going to get 5 treatments then a CT scan to see if that stuff worked. Then after that life goes on with me in it. thankyou

s

[rustedrims]

On Wednesday I will be getting my 3rd treatment. Starting my 2nd fight with this stuff. I am a little scared.Sometimes I don't want to go to sleep. Going to step quietly out the back door and get myself through this as best as I can. Thank you all for all the kind words and support over the past years. Prayers for us all.

s

[clay]

On Wednesday I will be getting my 3rd treatment. Starting my 2nd fight with this stuff. I am a little scared.Sometimes I don't want to go to sleep. Going to step quietly out the back door and get myself through this as best as I can. Thank you all for all the kind words and support over the past years. Prayers for us all.

s

Saving space for you. Healing energies, S. Take care of you!!

[rustedrims]

Been a while since I have been here. Had to figure things out and get myself through my second fight. In the meantime being happy and relieved that I got my kidney straightened up my liver felt left out. Enzymes went nutz. This time it was an easy fix. Started slammin the water down and that seemed to help level things out. Still scared me. Had an MRI on my head and waiting for 2 weeks to hear from the Dr. to look at my pictures. I finally called and she told me the reason I wasnt called is because my pictures were good. Come on now! You tell me the bad stuff so why not tell me the good stuff. Spent the waiting time worrying. Feeling good while fighting the fight. Prayers for us all.

thanks for reading

s

[Chad]

I talked to my cousin this morning, she is an RN. She was at the hospital with my aunt (her mom). My aunt is 83 and has had cancer twice now in her 80's. It seems odd to me because it is not a mass or tumor. It is just spots that show up in different places in her body. My aunt is strong but this time the cancer is really making her suffer. Our family will rally around her and my mom's brother.

[GeorgiaMa'am]

I thought I had gotten lucky and slid under the wire. The first chemo treatment and the day after were a piece of cake. The next day, a little dry mouth and a nagging headache and not much appetite, but nothing I couldn't handle. Then last night, this stuff kicked my butt. It feels like the chemo irritated all my joints, and my arthritis is pretty unbearable. I didn't get any sleep at all last night, and I couldn't nap today. I can only spend a few minutes in one position without my knees and back seizing up.

I ordered some Salonpas pain relief patches on Amazon Fresh, and they should arrive within the next hour. Hopefully they will help - I have never tried them before, but I'm willing to try anything at the moment.

[rustedrims]

Been keeping myself busy so I don't think of stuff.

Finally started my maintenance treatments after around a year of insurance denying me. Got that stuff back once and don't want it back again. Last I was told I have a treatment every 8 weeks for 2 years. Still getting my MRI and CT scan every 6 months. Pictures are coming back good. Couldn't wait for retirement and figuring out what I wanted to do with my time. Did not plan fighting the fight was one of my things to do. Been a year retirement already. My nephew is getting married the 19th. Going to be there for the 3 day event. Back home then the 21st blood work and 22nd treatment. I am still able to drive myself. Not loosing my hair this time.

Thanks for reading and caring.

s

[Kätzchen]

Been keeping myself busy so I don't think of stuff.

Finally started my maintenance treatments after around a year of insurance denying me. Got that stuff back once and don't want it back again. Last I was told I have a treatment every 8 weeks for 2 years. Still getting my MRI and CT scan every 6 months. Pictures are coming back good. Couldn't wait for retirement and figuring out what I wanted to do with my time. Did not plan fighting the fight was one of my things to do. Been a year retirement already. My nephew is getting married the 19th. Going to be there for the 3 day event. Back home then the 21st blood work and 22nd treatment. I am still able to drive myself. Not loosing my hair this time.

Thanks for reading and caring.

s

I'm glad to hear that you are keeping yourself busy, with everyday life.

My fiancé has stage 4 Kidney cancer. Life is no cake walk. He keeps busy with his commitments at his organization as well as in other facets of life. He is a strong individual but he has his limits, like anybody else who is dealing with daily struggles over his health and health care regimen.

Thanks for sharing Rusted-rims. :tea:

Sending peace and wellness wishes your way,

--K. :bunchflowers:

[rustedrims]

Treatments are going good. Well I learned the hard way about how important drinking water is. It swells up the veins so I only get stuck once! Think we all know about blowouts. Maybe every second or third time I go home with one. Those things hurt! Not to mention the dark purple spot stays a while. Nobody likes going but the nurses that hook me up are real nice to me. They make it not so bad. Always asking if I need anything and how I am feeling. Bringing me snacks when I didn't bring any. My Dr. is just as nice. She is from Japan. Very smart lady. I like everyone that helps me and nobody wants a nurse that is in a bad mood.

MRI first of the year then 6 months a CT Scan. I get some juice for that. The nurses there are just as nice. I have more of a friendship with them because more one on one. They also make it not so bad. Been there so much it's just comfortable with them. Nonthreatening atmosphere. We all want that with what we all have to deal with. We all just keep fighting the fight. My best wishes to us all.

s

[rustedrims]

I am heart broken. My cousin Dave has lost his fight of 3 years days ago. I will miss him terribly. It hit me hard in the parking lot at the hospital. Started crying and couldn't stop. I was there for a CT scan. I realized he wouldn't be there to tell how it went. We kept in close contact of what we were going through. I got it first but he got it harder and more of it. When I got in there I told the girls what was going on with me so they knew they were not hurting me. Lost it again. I was waiting for my jacked up water to drink and never got it. I told Jen that I didn't get my water. She told me why I didn't get it. Turns out there is a shortage of that stuff. They get it from China! When I get my treatments they mix it up when I get there! Why does that stuff come all the way from China and they can mix the treatment stuff up when I get there?!..

Got to thinking the other day....... My last maintainance treatment is October 2023. The other day I was out cutting up broken branches on a tree. A lady came out and asked me what I was doing? I should have told her I was staying in remission. Then started to think that every time I get
a treatment it takes away a little bit from me. I don't notice things right away but there are things missing. I love to do yard work! Cut branches up stack the sticks deliver them and mow yards! I will fight as long as I can to keep that part of me! What I did loose is strength balance and coordination. Gotta have that to ride the bike. Yeah I can zip around very short distances but that's not riding. Not relaxed and comfortable like I need to be to ride. Sold the bike today. That stuff took away 2 things I love dearly .Dave and riding.

Thank you for reading my ramblings and be safe out there.

s

[pynkkameleon]

It’s been an awfully long minute since I last posted here. Life happens and time just seems to fly by.

Sending out my deepest and heartfelt condolences to those of you that have lost loved ones. I can see that there have been some tremendous losses recently for some of you. I wish you peace and comfort to help you heal your hearts.

I was diagnosed with stage IV recurrence this past May. Breast cancer to my bones and chest wall. Treatable but no longer curable. Originally it was stage 2b in 2009. Although I’m pretty annoyed by this latest bit of everything, I’m in a very good and happy place in my life right now. My two youngest, will turn 21 in 3 months. Our son lives at home with us and our daughter recently moved in with her boyfriend of almost 4 years. My two older ones are very happy, stable and in strong relationships. One lives in Alaska and the other in Oregon. TexasCowboi and I will celebrate 7 years married next weekend, 10 years officially together. We purchased an old but (mostly) sturdy motorhome late last year (lovingly named “The Green Turd”) with grand plans of sneaking in some adventures over the next few years as TC inches closer to retirement. Right now, those plans are on hold though while we deal with this nonsense.

In the meantime, treatment for now is pretty straightforward. Ibrance and anastrasole pills daily, Zometa infusions monthly. This will continue until I build up a tolerance to the meds and have to move on. I have very few mutations, so for now it limits my options. I’m not eligible for any stage IV studies and there are currently only 5-7 treatment line options available for me, so the longer I can stay on one line, the better. Traditional chemo will be around the 3rd to 4th line. I’ll have my first new set of CT scans on the 17th to see if the medicine is working and everything is staying stable. Side effects so far are very tolerable. Some nausea, aches and pains and fatigue mostly. I just switched to a new Oncologist and she’s promised to keep us in the loop every step of the way and not sugarcoat anything. She’s young, smart as a whip and breast cancer is her specialty. This is still pretty new for us and we are learning as we go. I learned to be my own expert the first time around but we’ve quickly learned that metastatic disease is a whole different beast and treated much differently. Stability is the name of the game now. Scans every 3 months and monthly infusions with labs every month for the foreseeable future are the new normal. As are making lots of new memories and enjoying many adventures filled with laughter. Because that’s the way we roll anyway. This was just a reminder that time is short and to not take any of it for granted.

Thinking of you all. Check in if you feel up to it and let us know how you and yours are doing.
Big love. Be good to you.
Vonni -

[clay]

((((((((((((((((Vonni)))))))))))

It is great seeing a rep from you & here on BFP> BUT I am saddened to hear this latest challenge!

Thought of you over the last few years, wondered how you were doing, and smiling at our chats we had long ago!!

It made me smile, seeing you with TC & how happy you are!! I know how much you wanted that, too!!

As you can see, I am now married, waiting on my sweetie to retire in next few months, so we can travel! We bought a retro camper that is in excellent, original shape, with exception of a newer fridge. We dubbed her BleuBelle, camp with a great group of older ladies, & have a blast. We go a few days every month, & are booked up now until Aug 2023!! I am very happy, and have a winderful wife!!

Know I hold space for you in my heart & we send you white light energies!! Thinking of you & TC as you travel this challenging road ahead now.Much love, always, pynk!! clay


It’s been an awfully long minute since I last posted here. Life happens and time just seems to fly by.

Sending out my deepest and heartfelt condolences to those of you that have lost loved ones. I can see that there have been some tremendous losses recently for some of you. I wish you peace and comfort to help you heal your hearts.

I was diagnosed with stage IV recurrence this past May. Breast cancer to my bones and chest wall. Treatable but no longer curable. Originally it was stage 2b in 2009. Although I’m pretty annoyed by this latest bit of everything, I’m in a very good and happy place in my life right now. My two youngest, will turn 21 in 3 months. Our son lives at home with us and our daughter recently moved in with her boyfriend of almost 4 years. My two older ones are very happy, stable and in strong relationships. One lives in Alaska and the other in Oregon. TexasCowboi and I will celebrate 7 years married next weekend, 10 years officially together. We purchased an old but (mostly) sturdy motorhome late last year (lovingly named “The Green Turd”) with grand plans of sneaking in some adventures over the next few years as TC inches closer to retirement. Right now, those plans are on hold though while we deal with this nonsense.

In the meantime, treatment for now is pretty straightforward. Ibrance and anastrasole pills daily, Zometa infusions monthly. This will continue until I build up a tolerance to the meds and have to move on. I have very few mutations, so for now it limits my options. I’m not eligible for any stage IV studies and there are currently only 5-7 treatment line options available for me, so the longer I can stay on one line, the better. Traditional chemo will be around the 3rd to 4th line. I’ll have my first new set of CT scans on the 17th to see if the medicine is working and everything is staying stable. Side effects so far are very tolerable. Some nausea, aches and pains and fatigue mostly. I just switched to a new Oncologist and she’s promised to keep us in the loop every step of the way and not sugarcoat anything. She’s young, smart as a whip and breast cancer is her specialty. This is still pretty new for us and we are learning as we go. I learned to be my own expert the first time around but we’ve quickly learned that metastatic disease is a whole different beast and treated much differently. Stability is the name of the game now. Scans every 3 months and monthly infusions with labs every month for the foreseeable future are the new normal. As are making lots of new memories and enjoying many adventures filled with laughter. Because that’s the way we roll anyway. This was just a reminder that time is short and to not take any of it for granted.

Thinking of you all. Check in if you feel up to it and let us know how you and yours are doing.
Big love. Be good to you.
Vonni -

[pynkkameleon]

((((((((((((((((Vonni)))))))))))

It is great seeing a rep from you & here on BFP> BUT I am saddened to hear this latest challenge!

Thought of you over the last few years, wondered how you were doing, and smiling at our chats we had long ago!!

It made me smile, seeing you with TC & how happy you are!! I know how much you wanted that, too!!

As you can see, I am now married, waiting on my sweetie to retire in next few months, so we can travel! We bought a retro camper that is in excellent, original shape, with exception of a newer fridge. We dubbed her BleuBelle, camp with a great group of older ladies, & have a blast. We go a few days every month, & are booked up now until Aug 2023!! I am very happy, and have a winderful wife!!

Know I hold space for you in my heart & we send you white light energies!! Thinking of you & TC as you travel this challenging road ahead now.Much love, always, pynk!! clay

(((((((Clay!)))))))

Well hello there old friend! It’s been far too long since we last caught up. Thank you for your words of love and support.

I’m very happy to hear that you’ve found your person and are doing so well! It sounds like you are truly living your best life right now. Long overdue but clearly you’ve just saved the best for last :cheer:

[Kätzchen]

Just wanted to check in, today, and quietly share that I am getting a biopsy done today to confirm if i have cancer, or not.

Not sure what the outcome will be, but I live each day with zest for life and I plan to be present and clear minded about what I have to do next.

Blessings to us all,

K. 💐

[pynkkameleon]

Thinking of you Kätzchen.

Sending all of the positive into the universe for a good outcome. Here if you need to talk, vent or just hear a stupid joke or two to distract you.

[BullDog]

Best wishes to you Katchen! Also to everyone else in this thread and others who are facing challenging health issues. I see so much strength, determination, resiliency, and grace expressed here. I admire all of you and wish you nothing but the best.

I have been extremely healthy all my life until the last several months. I have never been in the hospital, had surgery, broken a bone, or had any serious issues at all. Up until recently I hadn't been to a doctor in decades and didn't have health insurance - both of those are no longer true (thank god for the ACA). I have always known I was extremely fortunate and tried to never take my good health for granted. But don't be like Bully - you need regular checkups just like your car does.

I have been referred to go see a cancer specialist in Albuquerque at the end of the month. I've been quite sick and lost 100-150 pounds - probably closer to 150 - and I have been in a lot of pain (have meds to help with that now) and have a lot of strange symptoms. I have received good care so far and I am very impressed by the qualifications of the cancer specialist.

Best wishes to all. I will keep fighting.

[Kätzchen]

Today was real rough....my dearest, long time BFF revealed to me by text that she is moving back to our homestate to be closer to her grandkids. I was at the doctor office when i got her news and was devestated (sp?) And couldnt get control of my emtions. I was crying (sobbing) into the arms of a complete stranger and rescheduled to another week later this month.

But i just want to share back to Pynk and my long time friend in the community, Bulldog, that your comments of support help me so much, right now.

*Thank you* ♥️💜♥️💜♥️


I too have lost a ton of weight and my weightloss is related to my cancer.

I will know by late September what type of cancer i have and what types of treatment are available to me.

I will keep you all posted and thank you for the kindest of support!

~K. :bunchflowers: + big air hugs. : )

[clay]

Oh my, I am very saddened to hear this, bully!!!PLEASE, reach out here if you need to talk to a friend! Will be holding you close to my heart & in my thoughts!

You are so right....we must get checkups, maintain our bodily machines, as best we can. Am grateful to hear you got ACA.

And, it is always good when you have complete faith in your oncologist & team! This is NOT an easy journey, will be fraught with challenges along the way. It is of utmost importance to have a really great support team IRL & here! I so hope that you have that, Bully!!

Know you are always welcome at my door here!! Check your PM's. Myself & pynk are both nurses! We have both travelled the journey you are now on.

Big hugs, BD!!! Keep positive & keep fighting....I might need yer help to kick some azz one day...lol....Much love....clay




Best wishes to you Katchen! Also to everyone else in this thread and others who are facing challenging health issues. I see so much strength, determination, resiliency, and grace expressed here. I admire all of you and wish you nothing but the best.

I have been extremely healthy all my life until the last several months. I have never been in the hospital, had surgery, broken a bone, or had any serious issues at all. Up until recently I hadn't been to a doctor in decades and didn't have health insurance - both of those are no longer true (thank god for the ACA). I have always known I was extremely fortunate and tried to never take my good health for granted. But don't be like Bully - you need regular checkups just like your car does.

I have been referred to go see a cancer specialist in Albuquerque at the end of the month. I've been quite sick and lost 100-150 pounds - probably closer to 150 - and I have been in a lot of pain (have meds to help with that now) and have a lot of strange symptoms. I have received good care so far and I am very impressed by the qualifications of the cancer specialist.

Best wishes to all. I will keep fighting.

[BullDog]

Thank you so much Clay. Your support really means a lot to me, and I see you giving so much of it in this thread. You are a very kind soul. And thank you to my other friends who reached out and offered their support. It really means a lot to me.

Belated congratulations on your marriage Clay. I am so glad you have found happiness and your special lady to share your life with. I wish the two of you all the very best.

You're right Clay - I need to go conquer this so I can be at full strength to back up my friends and kick ass if necessary! Lol, I am on it.

[clay]

YVW, BD!! I truly am here for you! I will PM you my cell...if you need to reach out, dear friend!

Keeping space for you in my heart! Always.

Thank you for your kind words, Bully! That means a lot to me. I always try to treat others how I would want to be treated!!

We are each one day away from a challenge being thrown us. Esp now is when we need to be kind, supportive, & be present for those facing challenges!

Thank you so much Clay. Your support really means a lot to me, and I see you giving so much of it in this thread. You are a very kind soul. And thank you to my other friends who reached out and offered their support. It really means a lot to me.

Belated congratulations on your marriage Clay. I am so glad you have found happiness and your special lady to share your life with. I wish the two of you all the very best.

You're right Clay - I need to go conquer this so I can be at full strength to back up my friends and kick ass if necessary! Lol, I am on it.

[Canela]

Hey, Hi y’all,

I was diagnosed with ductal carcinoma yesterday, actually. I’m in shock one minute, crying the next, then sucking it up and taking care of business throughout…I’ve made contact with MD Anderson in Houston. They’re dealing with the particulars…I’m grateful for that. I’m hopeful, trusting God to make a way for me and for all of you as well. I apologize for just throwing that out there all random. Thanks for the space to share.

[easygoingfemme]

Hey, Hi y’all,

I was diagnosed with ductal carcinoma yesterday, actually. I’m in shock one minute, crying the next, then sucking it up and taking care of business throughout…I’ve made contact with MD Anderson in Houston. They’re dealing with the particulars…I’m grateful for that. I’m hopeful, trusting God to make a way for me and for all of you as well. I apologize for just throwing that out there all random. Thanks for the space to share.

I'm so sorry to hear this. I was there myself 7 years ago. The initial diagnosis and "hurry up and wait" of putting together an action plan is relentless. I am sending you peace and positivity and "you got this". Please don't apologize for sharing and please keep us posted.

[clay]

((((((((((((((((((Canela)))))))))))))))

You never have to apologize for posting here!

This hurts my heart to know you have this to deal with!!

Please know, I will send you positive energies, hold a space in my heart for you, and everyone else here, having to deal with this!

As my sweet friend, easy said, "you got this". We will be here for you & please keep us posted as you can!

Much love & support....clay

Hey, Hi y’all,

I was diagnosed with ductal carcinoma yesterday, actually. I’m in shock one minute, crying the next, then sucking it up and taking care of business throughout…I’ve made contact with MD Anderson in Houston. They’re dealing with the particulars…I’m grateful for that. I’m hopeful, trusting God to make a way for me and for all of you as well. I apologize for just throwing that out there all random. Thanks for the space to share.

[pynkkameleon]

I’m saddened by the recent updates here. Such a shitty club to find ourselves enrolled in. With that said though, I don’t think that you will ever find a more supportive and understanding group of people than those that have walked in similar shoes. Each journey is different yes, but the tools we all gather, the strength we gain and the trials that we go through, give each of us a unique outlook and sense of empathy that is hard to find elsewhere.
The days ahead will test you to your very core but you’ll find strength that you never knew you had. Also know though that it’s okay, and necessary, to be vulnerable too. Leaning on others for support right now is a crucial component to your health and overall well being and your health needs to be your primary focus right now. If there are days that you can’t find your strength, you can come here and someone will remind you. This space is to share both the good, the bad and the unknown. Ask questions, cry, vent, laugh or share something completely unrelated. We all understand, whether we have cancer, are waiting to hear if we have it, care for or have lost someone with it, cancer links us all together.

Thinking of you all. Here for you if you need an ear, a shoulder or a nudge to remind you of what a badass you are.

F**k cancer
Big love, Be good to you..
V

[Kätzchen]

Your post is brain candy (to me) and I just want you to know that I think your process & your perspective is invaluable, and terribly kind.

Your so sweet.

I appreciate you.

Sending big sister love to you, tonight. :stillheart:

~K. ♥️♥️♥️♥️


I’m saddened by the recent updates here. Such a shitty club to find ourselves enrolled in. With that said though, I don’t think that you will ever find a more supportive and understanding group of people than those that have walked in similar shoes. Each journey is different yes, but the tools we all gather, the strength we gain and the trials that we go through, give each of us a unique outlook and sense of empathy that is hard to find elsewhere.
The days ahead will test you to your very core but you’ll find strength that you never knew you had. Also know though that it’s okay, and necessary, to be vulnerable too. Leaning on others for support right now is a crucial component to your health and overall well being and your health needs to be your primary focus right now. If there are days that you can’t find your strength, you can come here and someone will remind you. This space is to share both the good, the bad and the unknown. Ask questions, cry, vent, laugh or share something completely unrelated. We all understand, whether we have cancer, are waiting to hear if we have it, care for or have lost someone with it, cancer links us all together.

Thinking of you all. Here for you if you need an ear, a shoulder or a nudge to remind you of what a badass you are.

F**k cancer
Big love, Be good to you..
V

[Canela]

I'm so sorry to hear this. I was there myself 7 years ago. The initial diagnosis and "hurry up and wait" of putting together an action plan is relentless. I am sending you peace and positivity and "you got this". Please don't apologize for sharing and please keep us posted.

Thank you so much. Your support and kindness mean everything to me. I appreciate you reaching out and I receive your peace and positivity, which I need so badly. Sending you hugs and celebrating your success over this horribly ugly thing. Thank you so much! 💗 🤗

[Canela]

((((((((((((((((((Canela)))))))))))))))

You never have to apologize for posting here!

This hurts my heart to know you have this to deal with!!

Please know, I will send you positive energies, hold a space in my heart for you, and everyone else here, having to deal with this!

As my sweet friend, easy said, "you got this". We will be here for you & please keep us posted as you can!

Much love & support....clay

Aww Clay, thank you so much for your kindness. I’m so glad I actually posted about this and that you’re here with your effervescent spirit showering myself and everyone here with positivity and love. You’re amazing, you know that? I appreciate you holding space for me. You make me believe it’ll be easy… Thank you old friend, thank you 💗🤗

[Canela]

I’m saddened by the recent updates here. Such a shitty club to find ourselves enrolled in. With that said though, I don’t think that you will ever find a more supportive and understanding group of people than those that have walked in similar shoes. Each journey is different yes, but the tools we all gather, the strength we gain and the trials that we go through, give each of us a unique outlook and sense of empathy that is hard to find elsewhere.
The days ahead will test you to your very core but you’ll find strength that you never knew you had. Also know though that it’s okay, and necessary, to be vulnerable too. Leaning on others for support right now is a crucial component to your health and overall well being and your health needs to be your primary focus right now. If there are days that you can’t find your strength, you can come here and someone will remind you. This space is to share both the good, the bad and the unknown. Ask questions, cry, vent, laugh or share something completely unrelated. We all understand, whether we have cancer, are waiting to hear if we have it, care for or have lost someone with it, cancer links us all together.

Thinking of you all. Here for you if you need an ear, a shoulder or a nudge to remind you of what a badass you are.

F**k cancer
Big love, Be good to you..
V

This. This is everything, thank you so much for your support and love. Your spirit is so joyous and generous. I feel like I’m exactly where I need to be. I was scared and intimidated by my DX but after reading all the posts not just now but before, it feels like home here. And I really need to feel like I’m home somewhere. Here is good. Familiar. I’ve missed this place. I feel like the whole world, my whole world has gone crazy and I’m the only sane one wishing I was crazy too. Idk if that even makes sense but that’s how I feel. Today, my daughters asked me to provide proof. PROOF! That I actually got this. Who would make that up? I provided them with proof and afterward I blocked them. I love my children, anyone that knows me knows my kids are everything to me, but right now, today, I’m feeling sad. Disappointed I guess is a better word. I’m grateful though because I do have a support system to help me get through this and I count all of y’all as part of that system. Thanks for inviting me to share. I know you meant your post for everyone but I took all of it to heart. Thank you so very much for your kindness. It is very much appreciated. ❤️🤗

All my love,

Canela

[Canela]

Your post is brain candy (to me) and I just want you to know that I think your process & your perspective is invaluable, and terribly kind.

Your so sweet.

I appreciate you.

Sending big sister love to you, tonight. :stillheart:

~K. ♥️♥️♥️♥️

Hi my friend! I co-sign everything you wrote here. Agreed!
Thinking of you sweet lady and sending blessings to you and yours. 💗🤗

[clay]

I am so so sorry that your kids are "doubting" you at a time like this. That just absolutely sucks. Perhaps it is their way of processing this, maybe it scared them, I do not know that answer.

But, HERE....here is home for you & all of us, for this is where NO ONE is questioned, no one is doubted, & no one will be shunned. This is your soft place to land, where you can read in silence, yet feel all the love, support, & gentle hugs you need, every! single! time!

Any post we write, I feel certain is both individual & collectively. So always feel free to take our words for your own!!

Sitting in here, feels like an amazing space, that one or many, can come to, soak up all the energies being left for all who needs that. What I love about this particular thread is that so many of us have had to face this dilemma of C., and unfairly, sometimes, more than once! Yet everyone remains hopeful, positive, & encouraging, loving each of us as best they can. As my sweet friend, V wrote, C. SUCKS! My mantra was "I made cancer my bitch" and my oncologist loved that when I would say it to her!!

Every one of us are challenged in differing ways when we get this dx. BUT we all march forward, fighting for every day we live another day, suffering, progressing, sliding into what ever emotion facing us at any given moment, BUT! WE! MARCH! forward. We are BRAVE WARRIORS!



Know you are NOT EVER alone in your battle. Some, one, or all, of us are here for whatever you may need. Feel free to scream, to cry, to post of your feelings, reach out, or just say hi...because, at the end of the day...we are all one in here!!

Be gentle with yourself, reach out, there is no shame is being vulnerable...as we all have at some point. We are all one here...some, or many times, it will NOT be easy....BUT...what is easy is to come to your family here...we will ease your burdens so it will be easier for you! I promise you that!!

Know you are so precious to me, & others here. You have always been a special friend to me!! Take care, Canela! We got you, girl!!


This. This is everything, thank you so much for your support and love. Your spirit is so joyous and generous. I feel like I’m exactly where I need to be. I was scared and intimidated by my DX but after reading all the posts not just now but before, it feels like home here. And I really need to feel like I’m home somewhere. Here is good. Familiar. I’ve missed this place. I feel like the whole world, my whole world has gone crazy and I’m the only sane one wishing I was crazy too. Idk if that even makes sense but that’s how I feel. Today, my daughters asked me to provide proof. PROOF! That I actually got this. Who would make that up? I provided them with proof and afterward I blocked them. I love my children, anyone that knows me knows my kids are everything to me, but right now, today, I’m feeling sad. Disappointed I guess is a better word. I’m grateful though because I do have a support system to help me get through this and I count all of y’all as part of that system. Thanks for inviting me to share. I know you meant your post for everyone but I took all of it to heart. Thank you so very much for your kindness. It is very much appreciated. ❤️��

All my love,

Canela

[clay]

Know I leave you each with a gentle hug, a soft place to land, & an ear...most of all...YOU ALL ARE BRAVE!! We got this!! Thinking of each & everyone of you..always....clay xoxo

[Kätzchen]

Thanks so much Clay !! You are so kind and I truly appreciate you!

Today was my followup appt to get a tooth fixed and my cancer biopsy done, but my blood pressure was really high so they fixed my tooth and gave me a bag of beautiful veggies from their community gardens and a bouquet of flowers from that same garden too.

We have staffing issues at work: we keep getting people who dont want to work (that "quiet quit" syndrome, maybe?).

I felt like whatever cancer i have must be terrible because of how the medical staff treated me so.kindly and shoved my cancer biopsy test under the proverbial rug.

I'm not upset that they could not do my test today. But it sends me a subtle unspoken message that my cancer situation will become real ugly.

All i know is to dwell on positive thoughts and not get caught up in what i dont know (etc).

Thanks for being so kind during a very unsettling part of life.

~K.


Know I leave you each with a gentle hug, a soft place to land, & an ear...most of all...YOU ALL ARE BRAVE!! We got this!! Thinking of each & everyone of you..always....clay xoxo

[pynkkameleon]

Thanks so much Clay !! You are so kind and I truly appreciate you!

Today was my followup appt to get a tooth fixed and my cancer biopsy done, but my blood pressure was really high so they fixed my tooth and gave me a bag of beautiful veggies from their community gardens and a bouquet of flowers from that same garden too.

We have staffing issues at work: we keep getting people who dont want to work (that "quiet quit" syndrome, maybe?).

I felt like whatever cancer i have must be terrible because of how the medical staff treated me so.kindly and shoved my cancer biopsy test under the proverbial rug.

I'm not upset that they could not do my test today. But it sends me a subtle unspoken message that my cancer situation will become real ugly.

All i know is to dwell on positive thoughts and not get caught up in what i dont know (etc).

Thanks for being so kind during a very unsettling part of life.

~K.

Glad to hear that you were at least able to get that tooth fixed.

One day, one moment, one breath at a time.. 💜

[pynkkameleon]

This. This is everything, thank you so much for your support and love. Your spirit is so joyous and generous. I feel like I’m exactly where I need to be. I was scared and intimidated by my DX but after reading all the posts not just now but before, it feels like home here. And I really need to feel like I’m home somewhere. Here is good. Familiar. I’ve missed this place. I feel like the whole world, my whole world has gone crazy and I’m the only sane one wishing I was crazy too. Idk if that even makes sense but that’s how I feel. Today, my daughters asked me to provide proof. PROOF! That I actually got this. Who would make that up? I provided them with proof and afterward I blocked them. I love my children, anyone that knows me knows my kids are everything to me, but right now, today, I’m feeling sad. Disappointed I guess is a better word. I’m grateful though because I do have a support system to help me get through this and I count all of y’all as part of that system. Thanks for inviting me to share. I know you meant your post for everyone but I took all of it to heart. Thank you so very much for your kindness. It is very much appreciated. ❤️🤗

All my love,

Canela

I’m so sorry that your daughters did that!? That makes me very sad. I’m proud of you for dealing with it the way you did! I have four adult children of my own, each capable of saying and doing idiotic things from time to time. Most of the time it’s pretty harmless stuff but if they lost every ounce of common sense and empathy and did anything remotely similar, I would do the same thing that you did. A few days or more of being blocked might be just what the doctor ordered 😊.
I do hope that yours come to their senses soon and apologize profusely.

Mine thankfully are very supportive but they do struggle with talking about it. Talking just makes it all more real. I recognize that and try not to push them too much. At the same time though, I don’t let them avoid it altogether. We are still working on finding the right balance.

As for everything else you said, of course it makes sense.. 💜

Big love 💗

[pynkkameleon]

I was too tired last night to add in my little bit of good news. My scans from last week show that the bone mets are stable, the mets near my lungs have resolved and all of the others have been reduced in size by half or more. There are a couple of teeny, tiny spots on my liver that we’re going to watch and revisit in 3 months when it’s time to run scans again. I’m tolerating the treatment well so far and that, coupled with evidence that it’s working to reduce the tumor burden, is very good news indeed. The only thing that made me grumpy at the appointment was being told that I need to lose some weight. As if I don’t already know that I have a bit of chonky going on right now. 😂 To be fair, it’s because she wants to prepare me for when the cancer becomes resistant to this first line of treatment. The second line is known to be harsher and cause diabetes, amongst other issues. So my first goal is going to be to get off of my cute, well padded derrière, walk a little bit more, eat a bit better and try to lose 20 pounds. If I can hit that goal, I’ll move on to a new one. It’s the right thing to do but knowing that I need to do something and being told that I HAVE to do something just somehow rubs me the wrong way every time. Even at 51, I apparently still have some rebellious teenager energy left in me.

I’m off the hook for appts now for the next 3 1/2 weeks. I’m looking forward to having this small break. In addition to the exercise, I also see lots of naps in my near future. This fatigue is hitting hard. Also, a big shoutout to TC for going to every appt with me, taking notes, asking questions and keeping me entertained every step of the way. I’m blessed to be loved by this amazing human being.

How’s everyone else doing? Kätzchen, how’s your tooth? Were you able to get the biopsy rescheduled? Canela, have you heard anything productive from MDAnderson? Incidentally, I’m up North in DFW and go to UTSW. Bulldog, I know that your appt is also coming up this week or next right?

Check in when you all feel up to it. Thinking of everyone here and sending tons of the good stuff out into the universe for each of you.

Big love 🖤 Be good to you