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Finding Your People - Special Groups Are you a member of AA? Neurodiverse? a Vegan? Find your people here!

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Old 07-18-2010, 02:00 PM   #1
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"Further, it concerns me that you state you can't advocate for all disabilities but yet, I would see the DA ambassador role as just that - an advocate for all DA persons."

*I* (Nina) may well be misreading or misunderstanding the above..what SF said is :

"I am not unable to advocate for all different abilities."

so...what she said is that while she may not have the Personal experience of the whole range of DAs, she can, indeed, advocate for for a/the variety of different abilities....

I (Nina) have other things I'm thinking on, but my communication skills are not as accurate as I intend these days, so for now I will leave my fingers at rest...

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Old 07-18-2010, 02:06 PM   #2
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Quote:
Originally Posted by Nina View Post
"Further, it concerns me that you state you can't advocate for all disabilities but yet, I would see the DA ambassador role as just that - an advocate for all DA persons."

*I* (Nina) may well be misreading or misunderstanding the above..what SF said is :

"I am not unable to advocate for all different abilities."

so...what she said is that while she may not have the Personal experience of the whole range of DAs, she can, indeed, advocate for for a/the variety of different abilities....

I (Nina) have other things I'm thinking on, but my communication skills are not as accurate as I intend these days, so for now I will leave my fingers at rest...

Nina
You read my post completely right.
Thank you for that.

I thought I had been clear.
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Old 07-18-2010, 02:38 PM   #3
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Good Day to all here...
I have a diagnosis of Dyslexia and ADD. I consider my different wiring as a challenge not a disability. However my brother who is living with a severe TBI frontal lobe damage as
more than differently abled. He is nonverbal, highly behavioral, with severe cognitive disability. I do not expect he be given a 'pass' I expect that persons that do his direct care are capable of helping him interpret his world so his reaction to stimulas like sudden noises, touches, transitions, bathing, eating, drinking can be within calm responses. He isn't capable of explaining his response. I doubt that he understands why he responds to things the way he does. Sometimes more extreme than other times. The fact that you here can relay to others the particulars of your disability is great for you.

Be patient and loving in your exchange. Know that those who most need advocation can not ask for it themselves.
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Old 07-18-2010, 03:15 PM   #4
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Originally Posted by friskyfemme View Post
Good Day to all here...
I have a diagnosis of Dyslexia and ADD. I consider my different wiring as a challenge not a disability. However my brother who is living with a severe TBI frontal lobe damage as
more than differently abled. He is nonverbal, highly behavioral, with severe cognitive disability. I do not expect he be given a 'pass' I expect that persons that do his direct care are capable of helping him interpret his world so his reaction to stimulas like sudden noises, touches, transitions, bathing, eating, drinking can be within calm responses. He isn't capable of explaining his response. I doubt that he understands why he responds to things the way he does. Sometimes more extreme than other times. The fact that you here can relay to others the particulars of your disability is great for you.

Be patient and loving in your exchange. Know that those who most need advocation can not ask for it themselves.
I appreciate what you are saying here. My late sister had paranoid schizophenia and even when taking medications, had very delusional thinking. Her capacity was very diminished at times and she just was unable to understand many social ques. She also was very smart, kind, and lived life aware of the fact that her potential could never be achieved due to her mental illness. When she died, my tears were mixed because I knew there was so much she missed due to her illness even though I just plain loved her like she was. Her sensibilities compared to mine were just not the same. Never could be.

You are so right on about some just not being able to advocate nor ask for this, themselves.

I think the Planet does an excellent job in being sensitive to DA issues (Medusa's post is very clear). Adele does a great service here, I believe. And no, I do not know her in real-time. Nothing is ever perfect, but it sure seems like the admin gives DA a serious look and offers support and understanding while being responsible for the entire site. And hey, Dusa has had to box my stubborn ears and I deserved it. Yes, I have challenges, my sister had a very different set of variables.

Last edited by AtLast; 07-18-2010 at 03:20 PM. Reason: addition
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Old 07-18-2010, 03:36 PM   #5
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I have thought about this a lot.

First let me say that I think it is incredible that this website even wants to have a DA ambassador and that anyone wants to take that on.

What I see, kind of jumping off what Medusa said is sometimes different dissabilities intersect in a negative and dangerous way. Say someone with no filters and an anger disorder spouts off something that is very detrimental for someone with PTSD.

Volatile situation.

Whose disoder is worse or trumps the other?

Or is it ok for the person with anger opportunities to be able to insult other members at all? disorder or no?

I think the TOS has to be the wall at which it stops. Can you follow the rules after being given time outs and suggested coping mechanisms you refuse to take advantage of. Is your behavior hurtful and detrimental to other members?

Do my rights stop where someone else's begin?
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Old 07-18-2010, 04:12 PM   #6
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Originally Posted by SuperFemme View Post
You read my post completely right.
Thank you for that.

I thought I had been clear.
SF - You were clear. My apologies. I did mis-read your post - and thats why it bothered me! lol

That is a prime example of how the fallout issues of a physical disability can impact our posting. Today is fibro flare. Hence, my misreading of your post - fibro fog.

My apologies.
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Old 07-18-2010, 04:15 PM   #7
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Quote:
Originally Posted by christie0918 View Post
SF - You were clear. My apologies. I did mis-read your post - and thats why it bothered me! lol

That is a prime example of how the fallout issues of a physical disability can impact our posting. Today is fibro flare. Hence, my misreading of your post - fibro fog.

My apologies.
No biggie. If anyone understands misreading a post, it's me.

Fibro flares are awful, do take care to be gentle with yourself.
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