Cancer Support and Caregivers Who Are Trail Blazers!

clay · 11-10-2011, 06:15 AM

Hey all you brave warriors!!! I wrote out a post last night..computer froze up for some reason..and I lost it..by then I was frustrated, tired, more like exhausted, so I said fu get about it..lol.
So I am up really early...for me..and decided to leave a note...I appreciate each and every one fo you..and I know that you each deal with your own battles daily...so I am in awesome company....
I had the endoscopy...and will have to have another..after I get a CT Scan of abd/pelvis this am...with and without contrast....and will know more when we get the results of this. I am seeing my oncologist the first time in the am..and I will REALLY have to be up way earlier than this..I have to leave my home at 515am, drive to the friend who is driving me to appt..and travel another hr and a half to get to oncologist's office...but it's is all good....smiles...
The endoscopy did reveal a mass in the bowel someplace..and he wasn't able to proceed further....so a metal clip was attached to it, the mass was "tattooed" with blue ink...and this is two fold...1..make it more visible on CT Scan and show where it is exactly in gut, and 2. when he does a repeat endoscopy, he will know he has already seen this one..and to help distinguish from any new stuff that I know he WON'T find....smiles....I am tired this am..slept about 4 hrs...but I will get a nap in this afternoon..yummm..love a late afternoon nap!
I am in a good mind space...and I am going to fight this, just a lil hitch in my giddy up..and something I WILL overcome.
I am sorry I didn't post yesterday...I know you all were waiting to hear...I did try and got tired with computer acting up...lol..so...anyway I am off to get nuclear'ed...as I say..when I do get with someone..she won't have any trouble finding me..I will be the one glowing in the dark!!!....and I so hope it won't be Neon Pink...lol...chartreuse I am guessing..would that qualify me as a shrek??? Cool...now to find "my" Fiona!!!! I heart you all...have a most awesome day..I am..
ETA: I fell off the curb the am of my endoscopy, and have a nasty 4 inch gash on my left elbow...unable to be sutured as skin is ripped and shredded....and had to go on to scan with a bloody, ripped open elbow..I cleaned it in bathroom at hospital with soap and water and surg, nurse irrigated wound with saline..and dressed it..talk about sore...anyway it is still sore but will be fine. I did get a cortisone shot in my achey left knee yesterday...so is feeling better this am..yea, I am a "mess" BUT I am a worthy mess..and I am tough!!! smiles...

DapperButch · 11-10-2011, 06:34 AM

Quote:

Originally Posted by claybaby

I had the endoscopy...and will have to have another..after I get a CT Scan of abd/pelvis this am...with and without contrast....and will know more when we get the results of this.

SNIP

The endoscopy did reveal a mass in the bowel someplace..and he wasn't able to proceed further....so a metal clip was attached to it, the mass was "tattooed" with blue ink...and this is two fold...1..make it more visible on CT Scan and show where it is exactly in gut, and 2. when he does a repeat endoscopy, he will know he has already seen this one..

Thanks for the update, Clay. I am sorry that they found a mass, but it sounds as though you are in positive spirits about it...feeling strong, knowing you can fight it.

Hang in there.

Also, no worries about posting. Just update whenever you want to, or can. We all have different processes with all of this.

Tommi · 11-10-2011, 07:27 AM

Congratulations on doing the big things.
claybaby.

Glad you went through with it, and YOU ARE doing the follow through stuff.

So, you don't need that stuff hanging around in there, and you are seeing specialists that will take care of it.

Yes Dapper, time flies .I think the Planet is spinning faster and we just don't know it. This thread gets it.

KimbaYLRF · 11-10-2011, 07:46 AM

Hi all, I am new here and saw this thread. Thanks for whoever started it.

Two years ago in March we lost my dad to a rare form of kidney cancer. My mom's cousin was there one day a week to help, my daughter was there one day a week to help, my younger sister and I were there two days a week each. My mom was working so there was no doubt that since he was home with Hospice we would be there so she could still work. I was there Thurs. evenings and Saturdays.

My mom was with my dad everyday after work. She slept on the couch so if he needed anything at night or had to get to the bathroom she could help him. He had a hospital bed in the living room. She never once babied him, just talked to him as she normally would. They were close but his last few months brought them closer.

My dad hated to "bother" us as he would say. One day after having to clean him after he had an accident on the way to the toilet, he kept apologizing to me because I had to do that for him. I told him he did for us when we couldn't do for ourselves, now it is our turn to help him. We do what we do for you because we love you. My dad cried that day. It was the first time I ever saw my dad cry. It was maybe three weeks before he died.

Not once did my dad complain about his pain, he was always upbeat and also fun when he was on his pain meds...LMAO We had so many laughs with him.

My dad died with dignity. He was my hero. The only regret I have is not telling him the things I wanted to. He did know I loved him and appreciated him.

Tommi · 11-10-2011, 08:13 AM

Thanks for stopping by KimbaYLRF.

What a great post about love and support. I am so glad you were able to spend time with him during his illness. I know even if we don't get to say all the things we want to, our loved ones know from our eyes and our hearts, how very much they mean to us, and that we will miss them sooo.

11-10-2011, 06:15 AM	#1
clay Practically Lives Here How Do You Identify?: Butch (Silver Fox) Dom Daddi Preferred Pronoun?: 50 Shades of Clay Darker & Deeper Relationship Status: married to my forever Join Date: May 2011 Location: salt air & sandy beaches Posts: 13,136 My Photo Gallery Thanks: 97,020 Thanked 31,675 Times in 7,748 Posts Rep Power: 21474864	I will attempt to post...again Hey all you brave warriors!!! I wrote out a post last night..computer froze up for some reason..and I lost it..by then I was frustrated, tired, more like exhausted, so I said fu get about it..lol. So I am up really early...for me..and decided to leave a note...I appreciate each and every one fo you..and I know that you each deal with your own battles daily...so I am in awesome company.... I had the endoscopy...and will have to have another..after I get a CT Scan of abd/pelvis this am...with and without contrast....and will know more when we get the results of this. I am seeing my oncologist the first time in the am..and I will REALLY have to be up way earlier than this..I have to leave my home at 515am, drive to the friend who is driving me to appt..and travel another hr and a half to get to oncologist's office...but it's is all good....smiles... The endoscopy did reveal a mass in the bowel someplace..and he wasn't able to proceed further....so a metal clip was attached to it, the mass was "tattooed" with blue ink...and this is two fold...1..make it more visible on CT Scan and show where it is exactly in gut, and 2. when he does a repeat endoscopy, he will know he has already seen this one..and to help distinguish from any new stuff that I know he WON'T find....smiles....I am tired this am..slept about 4 hrs...but I will get a nap in this afternoon..yummm..love a late afternoon nap! I am in a good mind space...and I am going to fight this, just a lil hitch in my giddy up..and something I WILL overcome. I am sorry I didn't post yesterday...I know you all were waiting to hear...I did try and got tired with computer acting up...lol..so...anyway I am off to get nuclear'ed...as I say..when I do get with someone..she won't have any trouble finding me..I will be the one glowing in the dark!!!....and I so hope it won't be Neon Pink...lol...chartreuse I am guessing..would that qualify me as a shrek??? Cool...now to find "my" Fiona!!!! I heart you all...have a most awesome day..I am.. ETA: I fell off the curb the am of my endoscopy, and have a nasty 4 inch gash on my left elbow...unable to be sutured as skin is ripped and shredded....and had to go on to scan with a bloody, ripped open elbow..I cleaned it in bathroom at hospital with soap and water and surg, nurse irrigated wound with saline..and dressed it..talk about sore...anyway it is still sore but will be fine. I did get a cortisone shot in my achey left knee yesterday...so is feeling better this am..yea, I am a "mess" BUT I am a worthy mess..and I am tough!!! smiles... __________________ To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. ~Robert Brault

11-10-2011, 07:46 AM	#4
KimbaYLRF Junior Member How Do You Identify?: I originally posted femme, but not quite I am femme. Maybe a 'tweener. Relationship Status: On the way to being single Join Date: Nov 2011 Location: MA Posts: 61 My Photo Gallery Thanks: 149 Thanked 331 Times in 48 Posts Rep Power: 3875346	I was a care giver Hi all, I am new here and saw this thread. Thanks for whoever started it. Two years ago in March we lost my dad to a rare form of kidney cancer. My mom's cousin was there one day a week to help, my daughter was there one day a week to help, my younger sister and I were there two days a week each. My mom was working so there was no doubt that since he was home with Hospice we would be there so she could still work. I was there Thurs. evenings and Saturdays. My mom was with my dad everyday after work. She slept on the couch so if he needed anything at night or had to get to the bathroom she could help him. He had a hospital bed in the living room. She never once babied him, just talked to him as she normally would. They were close but his last few months brought them closer. My dad hated to "bother" us as he would say. One day after having to clean him after he had an accident on the way to the toilet, he kept apologizing to me because I had to do that for him. I told him he did for us when we couldn't do for ourselves, now it is our turn to help him. We do what we do for you because we love you. My dad cried that day. It was the first time I ever saw my dad cry. It was maybe three weeks before he died. Not once did my dad complain about his pain, he was always upbeat and also fun when he was on his pain meds...LMAO We had so many laughs with him. My dad died with dignity. He was my hero. The only regret I have is not telling him the things I wanted to. He did know I loved him and appreciated him.

11-10-2011, 07:27 AM	#3
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,338 Times in 5,970 Posts Rep Power: 21474860	Congratulations on doing the big things. claybaby. Glad you went through with it, and YOU ARE doing the follow through stuff. So, you don't need that stuff hanging around in there, and you are seeing specialists that will take care of it. *Yes Dapper, time flies .I think the Planet is spinning faster and we just don't know it. This thread gets it.*

11-10-2011, 08:13 AM	#5
Tommi Infamous Member How Do You Identify?: Usually "Hello" Relationship Status: Married and Bound to Tommi's kaijira (Ts_kaijira ) Join Date: Nov 2009 Location: Suthun.... California that is. Across the ridge from Laguna Beach. Posts: 8,151 My Photo Gallery Thanks: 13,621 Thanked 21,338 Times in 5,970 Posts Rep Power: 21474860	Thanks for stopping by KimbaYLRF. What a great post about love and support. I am so glad you were able to spend time with him during his illness. I know even if we don't get to say all the things we want to, our loved ones know from our eyes and our hearts, how very much they mean to us, and that we will miss them sooo.