Do you or someone you know shake? Essential Tremors

[Rockinonahigh]

Originally Posted by princessbelle

Definitely get it checked out.

Just to be clear...I DO NOT have Parkinson's. There are many people who do. There are many diseases that are not diagnosed correctly at the beginning and it can cause them to progress when they don't have to.

I have found with my shaking that people i am around a lot get, i suppose, used to it and don't notice it that much. People who i just meet, however, do notice it. Stress has a lot to do with it too.

You are on the right track. Take ownership of your symptoms and your body. Research, study and demand tests be done that you know would benefit you.

Good luck to you and keep us posted.

I will but u do take care of u,this place is better with u being hear.

[princessbelle]

Originally Posted by June

Damnit, I had this long post typed out and I hit the wrong button.

I noticed it, but I just thought/think it's part of who you are.

No more crying about it.

There.

OK. Deal.

[BullDog]

It would be interesting to hear from others with similar experiences and I am interested to learn more about the breakthrough.

I hardly ever notice Belle's head shaking and when I do I don't care because she says it isn't dangerous to her health.

You are beautiful just the way you are baby. <3

[princessbelle]

Originally Posted by BullDog

It would be interesting to hear from others with similar experiences and I am interested to learn more about the breakthrough.

I hardly ever notice Belle's head shaking and when I do I don't care because she says it isn't dangerous to her health.

You are beautiful just the way you are baby. <3

Thank you sweetheart. You are right, at least i'm not gonna die from it.

Could be worse things.

Way way worse things.

I am very lucky in ALL aspects of my life. <3

[princessbelle]

Thanks to everyone who has written to me privately here and on FB about having these tremors. I've heard from about 7 people who suffer with shaking and about 4 have been diagnosed with exactly what i have.

Update:

Went to Doc last week due to my back but i mentioned that new treatment with "waves" sent to the brain that has actually totally stopped the shaking in people with Essential Tremors. He said he has been watching this closely as well and is a member, so am i, of the National Essential Tremor Foundation. He says it is too early to request this treatment, but to hang in there. He said another year and it should be a go.

That's good news for me, and for anyone else that shakes due to this disease. I will continue to update this thread with more research and more information as i find it. Feel free to do so yourself if you want, or private messaging me is fine of course.

Hang in there shakers, help may just be around the corner!!!!!

[Bella~Vita]

Originally Posted by princessbelle

Thanks to everyone who has written to me privately here and on FB about having these tremors. I've heard from about 7 people who suffer with shaking and about 4 have been diagnosed with exactly what i have.

Update:

Went to Doc last week due to my back but i mentioned that new treatment with "waves" sent to the brain that has actually totally stopped the shaking in people with Essential Tremors. He said he has been watching this closely as well and is a member, so am i, of the National Essential Tremor Foundation. He says it is too early to request this treatment, but to hang in there. He said another year and it should be a go.

That's good news for me, and for anyone else that shakes due to this disease. I will continue to update this thread with more research and more information as i find it. Feel free to do so yourself if you want, or private messaging me is fine of course.

Hang in there shakers, help may just be around the corner!!!!!

Belle you are very brave to have started this thread . I too suffer from tremors and I also have the shaking yes in my head. It is embarrasing especially in public or if I'm around people who don't know me, will ask me 'why are you shaking?' If I get nervous I get them even worse but the people in my life know what's going on and accept it. Just wanted to tell you 'we are not alone sweetgirl' .

[princessbelle]

Originally Posted by Kat_Fl

Belle you are very brave to have started this thread . I too suffer from tremors and I also have the shaking yes in my head. It is embarrasing especially in public or if I'm around people who don't know me, will ask me 'why are you shaking?' If I get nervous I get them even worse but the people in my life know what's going on and accept it. Just wanted to tell you 'we are not alone sweetgirl' .

Oh wow Kat!!!!! You are so precious to post here and brave!!!!! *Hugs you so tight.

Do you have essential tremors? Is it in your family? Do you take anything for it? Is it just in your head? (lol, meaning is it just your head that shakes) Have you heard about this new treatment? (see my original post)

Doesn't it hurt your feelings when people say things? And the thing is, it's not their fault. They don't know it's a disease. Just today i was at a patients house looking over their hospital records and the guy says "OMG it's not good is it, your shaking your head no". Bless his heart, i scared him to death.

Usually, i just say i have the same thing Katheryn Hepburn had and they "get it".

How do you explain it to people? If this is too many questions, pm me. I sorta ramble and i get fascinated when i find someone who has this. It is so very rare!!!!